Posts by stormycyclist41

Hey northernraven49,

Finally, some actual good news. I felt a massive weight lift off my shoulders when you mentioned those pills were fine; I’m really hoping they do the trick...👍

The specialist appointment I went to was actually for a calibration test—basically to see if I was even a candidate for surgery or not.
Thank God, everything came back clear regarding the canal, so they decided to scrap the surgical option entirely.
Part of me is incredibly relieved to have dodged that bullet, though, honestly, it feels like I just traded one problem for another since we still don't have a definitive answer.
I suppose I should be grateful that no bacteria showed up on the tests, unless that E. coli is just playing some masterclass game of hide-and-seek...
I've come to terms with where things stand. I'm going to take care of myself as best I can and fight to get this resolved once and for all. After all, I'm a tough cookie—stubborn as hell and not one to roll over easily—it's just that some days, finding the strength to keep pushing is a struggle...

Thanks to everyone for the advice,
you've all been such a huge help and offered so much support right when I needed it most.
We'll just have to wait and see what the lab results show next week.🙂

Hey,

So that happened—the famous checkup. I know exactly what I'm dealing with, and I know my own body,😠
I sat there for two whole hours just waiting for a forty-five-second interaction. 🙂 He finally showed up, glanced at me, checked the calibration of the urinary tract, and then he was out the door.
Of course, everything is "fine" with me and my urinary tract is perfectly healthy. Actually, better than fine.
The guy basically has no clue what’s actually going on with me; he just handed me some Zithromax to take for the next three months and insisted on leaving because he was in such a rush...🙂 🙂
Then my nurse starts lecturing me about how I need to drink tons of fluids, watch my diet, stick to teas, be careful with everything...🙂
And honestly, it just slipped out of me: do you people think I'm stupid? I've been struggling with this for four years and I follow every single piece of advice to the letter.
And her response? "Well, then you're just a little more sensitive!"
That’s it? That is the answer? That’s the plan for the rest of my life?
I can't believe it, and I certainly can't accept it!!

But I did push back against the doctor and told her all about the advice you all gave me. She said she'd help as much as she could, but she just sent me off for all sorts of tests again. We'll see tomorrow once I hand over the materials and get the results...

Anyway, I've been doing some Googling, but I can't quite pin down exactly what a nephrologist does. From what I understand, they deal with kidney function, right?
So I'm wondering, what's even the point of seeing him if all my results—from urine cultures and bloodwork to urea and creatinine levels—have been perfectly normal so far? Not a single type of bacteria has ever been found; sure, there are rare instances of bacteria, but it's never E. coli or anything like that...

So, please, if there is anyone smart out there, I need some help because this is becoming absolutely unbearable!!!🙏

Hey,
thanks for all the advice,
I’ve been doing some deep dives online about all of this and honestly, it's the same story everywhere you look...
drink tons of fluids (I'm hitting 2 liters a day plus everything else—so basically a liter of cranberry juice, sodas...)☕
wear slippers, stay out of drafts, keep your feet warm, just watch out for the chill...
stick to cranberry juice, lingonberry, or bearberry tea...
I have tried every trick in the book and it always boils down to this:
I feel an infection coming on, and sure enough, it hits me. I go get an antibiotic, then three or four weeks later, I'm right back there getting another prescription, even though my urine culture comes back totally fine in the meantime.😕
And once I finally clear it after maybe three or four months—which is what I was trying to say earlier—the whole cycle just starts all over again...
But the real kicker is how fast it happens. I can catch an infection literally overnight. If a cold breeze hits me—even in the middle of summer—or if my feet get cold for even a minute, boom, there it is again!!!!😠

And frankly, I just can't deal with this anymore. I can't be standing there giving a presentation and having to excuse myself to the restroom three times while turning bright red like an idiot. Not to mention I've completely stopped being intimate because I'm paranoid that maybe that's what triggers these things... since my boyfriend and I are long-distance, we don't get much chance anyway... but still, I just can't take it!!!😠

I know I'm probably not a medical emergency or anything, but for God's sake, my entire life revolves around finding a bathroom. Even when I'm just going for a walk with someone, I'm constantly scanning the area to see where the nearest restroom is... and don't even get me started on the stinging, the anxiety, the pain, and all that nonsense...

If anyone actually knows something useful, please reach out.🙏 🙏
And thanks to the user who has been helping me out so much via private message😉
I'm going to try their suggestions, and if they actually work, I'll pass them along to everyone else here...😁

Hey,

I appreciate the advice. Honestly, I’m leaning toward your side of things too—it feels like this whole situation might be a bit overhyped and won't actually lead to anything significant. But hey, we'll just have to wait until Monday and see how it plays out...

By the way, what's the deal with this stabbing sensation in my stomach??😕
Does it just fade away after a while??

If you wouldn't mind walking me through it...

Thanks

Hey lady,

Hang in there. Just hold on a little longer because I’m crossing my fingers that you get through all this as soon as possible. Honestly though, I really think you ought to go talk to your doctor. You need to tell them that this mountain of pills is making you feel miserable and that you just can't deal with it anymore... stay strong.😉

Off-topic—I’m heading in for a biopsy on Monday. It's a similar procedure, so I'm hoping they actually manage to find some real answers this time so I can finally put all this behind me, hopefully for good!!😢>

Thanks so much,
you’ve actually been a bit of a comfort to me; at least now I have some idea of what they're planning to do....😉
But... if my memory serves me right, the clit isn't exactly located where the urethra is, or am I just completely losing my mind here?
I mean, you're telling me that even with all those infections, they never even suggested an operation like that to you?😲
That part is starting to worry me a little bit...
Maybe we aren't even dealing with the same thing, who knows, but this whole situation where they just keep hitting you with antibiotics... it doesn't make sense to me. Honestly...

So, did they at least manage to figure anything out after that exam, or...?

I really do feel for you because I know exactly what you're going through. Though, truth be told, things aren't even that bad for me, so I won't bother complaining about my own issues anymore—it's clear some people have it much tougher than I do...
I'm crossing my fingers that they finally get everything sorted this time so you can put these problems behind you once and for all...

Let me know how it goes...😉

So, here’s the deal. I went to see my doctor today, and this was the breakdown:

Since there aren't any bacteria present, I have a follow-up appointment on Monday. They’re going to use some kind of probe to check if my urethra is narrowed or constricted...
If it turns out to be narrowed, I'll have to go under the knife, but if everything looks clear, then no surgery is needed...

I haven't done any specialized testing yet, though they did tell me I need blood work, a urinalysis, and a gynecological exam. But honestly, when I finally sat down with the urologist, he seemed completely indifferent—he didn't even bother asking for my results, even though my primary physician says they’re all fine, including the gyno report...

I really don't know what to make of any of this...
I've realized now that it isn't a bacterial issue or anything like that. Everything would have been perfectly fine for months, and then, literally overnight, an inflammation just... appears...🤷

If anyone else has dealt with something similar, please speak up, because I am genuinely at a loss for what to do next...

Thanks...

Hi everyone,

I ended up at the urologist today because I’ve been dealing with these relentless bladder infections that just won't quit. My primary doctor sent me over since all my test results come back perfectly normal, yet the inflammation keeps coming back... it's incredibly frustrating.☕
After sitting in the waiting room for two agonizing hours,😠 this specialist gives me nothing more than a cursory glance before deciding I need surgery under local anesthesia. Apparently, they need to dilate the urethra because "that's likely the culprit."😕.
When I tried to ask for some actual details on how the procedure works, he just brushed me off with: "Oh, it's a minor thing—just a small incision, three stitches, and you'll be out of there the next day..."
Of course, I didn't even get a chance to follow up with any real questions after that dismissive remark.😢

So, I'm wondering if anyone here has dealt with something similar?
What should I actually be expecting? What is this procedure even meant to fix?
I've been scouring the internet for answers, but I haven't found much of substance...🤷

I would truly appreciate any insight you can share.😁