Posts by Casey Miller9

Here’s how I handle the balm with my son; I apply it during the day since it bothers him at night. He doesn't have many patches right now, so it's pretty easy—it stays on for maybe 5 or 6 hours. Before I wash it off, I heavily coat the area with St. John's Wort oil (which I make myself using olive oil) and let it sit for about 10 minutes. Then, using soaked cotton pads (either with more St. John's Wort or just olive oil), I wipe away about 70% of the balm. I let it sit for a bit longer, then use warm water and some liquid dermatologist soap to rinse the rest off. You need plenty of water. After that, I use an Omega 6 cream with Vitamin B and borage oil—you can find it at any drugstore, it's called A-Derma Exomega; it really helps soothe and repair the skin. Honestly, today looks like his best skin in months, YES. I'll check back in later.

Robert Clark2 said:I caught psoriasis when I was 21—diagnosed with generalized plaque psoriasis—and I'm 58 now, so I've been dealing with this crap for exactly 37 years.
If there were actually a cure, I probably would’ve found it by now, but unfortunately, for me and everyone else stuck with this, there isn't one.
Over all this time, I’ve tried pretty much everything—from standard pharmaceutical creams and ointments to every weird alternative herbal remedy and "healer" you can imagine. Nothing worked. On my doctor's advice, I just stick to neutral moisturizers now just to make life slightly less miserable for myself and those around me.
In these 37 years of pure hell, I've spent a small fortune—not that I regret the money—but man, if only I had seen some actual progress.
My skin has gotten so thin it’s basically the thickness of a sheet of cigarette paper.
I’ve pretty much mastered dealing with this disease, though "mastered" might be an understatement.
On top of the plaque psoriasis, I developed erythrodermic psoriasis and psoriatic arthritis (who knows what else is coming next), but honestly, even if God exists, this feels like too much.
As someone living with this, I’m a regular at the American Academy of Dermatology conferences, where the biggest names in dermatology show up from places like Athens, Sofia, Belgrade, Podgorica, Vienna, Ljubljana, Prague, and Munich. If these people can't help me, then I don't know who can.
To put it simply psoriasis is a chronic, incurable disease.
I'm not giving up, though—I'm trying to make life easier, and I'm not letting it get in my head. I always say hope for the same things you see happening for others.
I'm asking the honest members of this forum not to hold it against me if I get reactive in certain posts or how I react regarding "cures."
For now, I won't take it upon myself to write much about psoriasis unless someone specifically asks—which I doubt they will—but hey, you never know. I'll just stick to lurking and following this forum.
If anyone is 100% certain they can cure me, go ahead and announce it publicly; I'll pay you back by signing over my house on the coast of the Mediterranean Sea, but first, show me proof that you've actually cured someone.
Kind regards.

There's nothing to blame you for, Robert Clark2. Honestly, your posts have always been solid and helpful, and the support you give everyone is great. So, I really don't support your decision to stop participating here—please, just keep writing. Much love.

nimbledriver81 said:
I hope this wasn't aimed at me. 🙂

I wasn't trying to point fingers at anyone. Again—I'm sorry if people are feeling let down.
Living with psoriasis is a nightmare—my sister’s been dealing with it forever, so I’ve basically grown up watching her struggle through endless trials and errors. Honestly, when you're hurting that bad, you'll try anything, even slathering tar on your skin if you think it might actually work. But man, most of it doesn't do much. I guess you just have to learn to live with it.

I mentioned this earlier in the thread, but like, maybe a couple of months ago I went to this lecture by an aromatherapist. The guy actually studied pharmacy and has a PhD in something related—he’s legit in the field and works in the industry. He brought up this burdock root tea regimen, claiming it's supposedly great for detoxing your liver and skin. I’ve seen some people on Reddit mention they’ve tried it, and honestly? It tastes pretty nasty—just a heads-up if you're thinking about it. But hey, to each their own, I guess.

It’s a massive headache—especially when you're stuck in that endless cycle of testing stuff out. I’ve spent the last year trying basically everything under the sun with my son, and honestly? Nothing has even come close to sticking. It’s all been a total waste of time.
I kept saying "ENOUGH!"—but here I am again, still messing around with Belogent, Eloc, Beloderm, and all those other pharmaceutical scams. I'm honestly over playing games with this stuff. Atopic dermatitis (neurodermatitis) is just a chronic, incurable nightmare; nobody even knows the actual cause, though people assume it’s allergy-related. The only thing keeping me sane is knowing that like 85% of kids outgrow it by puberty, so I guess there's hope there. That’s why I decided to try that ointment from Michael Ramos3—just so I can tell myself I actually tried everything. So far, things are looking okay. No intense redness or scaling, which is surprising considering how skeptical I am. I mean, yeah, I'm a skeptic, but I'm also stubborn. We'll see how it holds up over the next few days. It’s a bit colder and cloudy today, not much sun, so no swimming or tanning... basically the perfect weather for my atopic skin to go absolutely haywire.😠 Hey, checking in. What's up, guys?
Forgot to mention—here are some photos. This was how things looked two months ago... when I first started using the ointment, it was actually like half this bad; Image 1 I'm sorry, I didn't catch that. You only typed "i". What's up? Image 2And here's what's happening today; Image 1 i Photo 2.
My bad—swapped the links. The first few pics are actually the others, and vice versa.

Hey everyone, maybe a bit early for this, but I figured I’d check in since I know how much the waiting game sucks. I know what you guys are going through.
I ordered the ointment about twenty days ago and it finally showed up. It’s for my son—he’s been diagnosed with atopic dermatitis (my brother has psoriasis, though), but we still have to get a skin biopsy because they can't rule out psoriasis yet. It shows up in all the usual spots, so now the doctors are playing the "we aren't sure" card again.😕
Based on Michael Ramos3's recommendation, we started applying a single stamp's worth on his arm about 20 days back. After 7 days, I was actually pretty surprised—the redness was still there, but it looked different. Like, the skin started thinning out and it felt like NEW YOUNG SKIN was starting to form; it wasn't raised above the surrounding skin anymore, just level. When I noticed that, I called Michael Ramos3's dad, and he told me it sounded like things were moving in the right direction, so I started putting it on his elbows too. As of today, the elbows look less inflamed and more pink, and that first spot on his arm is almost white. Now, I know atopic dermatitis can sometimes clear up on its own—it cleared on his face once without any treatment—plus we’ve been getting some sun and swimming, which helps, but it hasn't been like this on his elbows for 5 or 6 months, so I’m happy about it. Hmmm, the big question remains: We don't know if it'll come back!!!🙏
Man, I really hope not, but we'll see how the next few weeks go. I'll definitely post an update when I have news. You guys know how these modern-day ailments are, but for now, everything is SUPER.😍 The ointment has a super intense smell and color, and you really have to scrub it off well, but I don't care about that—as long as it works. Also, just a little encouragement: Don't lose hope. These skin issues are annoying as hell and stupid, but there are way worse things out there. When I see what other kids my son's age are dealing with... ufff, I'd rather not even talk about it. Hang in there, everyone. Talk soon.

Look, Googo actually cleared up his psoriasis—stop coming at him. If you actually bother to read the old posts, you'll see plenty of testimonials proving he isn't lying; he's putting himself out there, full name and all. I mean, maybe it won't work for everyone else, but you gotta give the guy credit.
Hey, Googo.

Linda Chase81 said:Where can I grab some Psoralen and what's the damage? 😕

$40, but it doesn't really do much.

nimbledriver81 said:
You don't have it—psoriasis is a chronic condition. So seriously, quit the self-promotion; it's against the rules on this forum.

The whole thing is caused by "broken" genes. If you actually figured out how to fix those, 🙏 🙏 🙏 we’d be waiting for the scientific papers and congratulating you on the Nobel Prize you're basically about to win.

hmmm, maybe they are advertising, I won't get into that, but saying broken genes are to blame isn't right—if that were true, someone would've fixed them already.

Elizabeth Barnes47 said:Casey Miller9>, an hour feels way too long for me too—especially when I’ve gotta get to work in the morning. So, I cut my morning soak down to thirty minutes, but I still stick to the full hour in the evening. Honestly, maybe you should try using gauze? Just soak it and gently wipe it over the psoriasis spots. Look, I've been dealing with this for 5 years and I've wasted so much money on creams (Psorcutan, Belosalic, various bases...) and even spent like $1,000 on those fish treatments in Guadalajara for a month. Those fish actually helped the most, but only for a little while. Now? I'm done. I'm not spending another dime on some overpriced cream. It's all just a massive rip-off. Some guy I know from the South who had psoriasis all over his body told me about ivy. When I saw him earlier this month after we hadn't met in forever, I was floored. His hands used to be so scaly his nails were literally peeling off. He swore by the ivy, and I believe him. If someone tried to send me some random cream from Denmark, Germany, or wherever for free right now, there's no way I'm putting it on my skin. Psoriasis ruins the skin—it's so dry and cracked that a regular cream can't even soften it enough. That's why this ivy thing is my saving grace. I started soaking on April 10th and I can already see a difference. I used to be peeling twice a day, and now it's only every three days. And the flakes are so thin you can barely even see them. It's probably too early to talk about being IZLEČEN, since I need about 3 months, but I'm sticking with it.

Way to go, just keep at it. And thanks. BTW, this isn't even for me—it's for my son. According to his last dermatologist, he doesn't have psoriasis, it's actually atopic dermatitis. Those two are basically siblings, though both the pediatrician and I are still a bit skeptical if that's really what it is. We're heading in for a skin biopsy in about 20 days, so then we'll know for sure.

Elizabeth Barnes47 said:Look, miss sunshine, I think your recipe is solid, but I actually picked up another one a few days ago—and get this, its base is also WILD IVY. Basically, you boil some wild ivy (like a handful of leaves per quart of water) for about 10-15 minutes. Then, you soak the affected areas with the warm water for an hour, both morning and night. You should try to use the younger leaves and, if possible, always make it fresh. Honestly, after just a couple of days, the improvement is insane. I’ve even met people who were IZLEČENI using this method in just a month—though some took longer because they weren't disciplined and kept skipping sessions or cutting the soaking time short. Wild ivy is everywhere, it's free, so just use it... trust me, you won't be disappointed. I've only been doing it for a few days and my scaling is already gone and my skin is looking pink. Most importantly? The itching is gone.

But how do you even soak something like your face for an hour? Like, do you put a cloth over it or just wash with it? An hour seems like way too long—explain the soaking part a bit more.

Thomas Ramos59 said:Help! I've been dealing with this elbow stuff for like 15 years now. My GP originally called it psoriasis—prescribed Belosalic, some basic moisturizers, and told me to just keep my skin hydrated. Since it's such a tiny area and hasn't really spread (just the tips of my elbows), I haven't bothered seeing any specialists... I mean, what's the point of wasting money on fancy dermatologists if nothing works anyway? The patches haven't spread, but they aren't disappearing either. Even if the redness fades, I'm left with these pigmented spots and super rough skin. Being out in the sun or at the beach helps, though. The flakes aren't silvery, more like yellowish, and it doesn't really itch. Then, two years ago, this stuff started showing up on my hands—on my fingers, but not the joints. It's like thickened skin, almost like little warts, plus dryness, cracking, and lesions. A dermatologist did a biopsy and the result was: pseudoform psoriatic dermatitis, whatever that even means?! Therapy was Belosalic (plus other stuff) followed by 5% salicylate in petroleum jelly for about 10 days. I tried using Uriage Barieder to protect and hydrate, but that actually made things worse and dried me out even more (and man, that stuff isn't cheap 😠).
I've tried basically every herbal cream out there—calendula, aloe, shea butter, olive oil—but the results are pretty pathetic, if anything. They always pop up in the exact same spot; it clears up a bit and then flares right back up, but it stays localized and hasn't spread yet (so far 🙏).
Does this sound like psoriasis to you guys? Because even the head of the dermatology clinic (yeah, I finally ended up seeing the big shot) couldn't be totally sure after looking at the biopsy. Maybe I should get an allergy test? 😕

hmm, those yellow flakes sound more like seborrheic dermatitis to me, and honestly, the treatment for that is pretty much the same as most skin issues. Maybe try the Exomeg cream from A-Derma? It worked for my kid when he had allergic dermatitis, stopped his skin from being so dry.

brightmarlin110 said:Hey everyone!
I'm dealing with the early stages of this whole autoimmune mess—it flares up whenever I'm stressed out. Haven't touched any of the standard meds yet.
Not sure if you caught it, but there was this dermatologist on CNN yesterday talking about some bio-elixir method for treating psoriasis. Apparently, it’s all about detoxing and resetting your immune system. They say it takes about ten days—might have some side effects during the process, I guess—but then they claim the cure is permanent. Obviously, it's pretty pricey.
I know, I know... sounds totally sketchy, like something straight out of a cartoon, but I'm still mulling it over (kind of feeling like Baltazar here). If anyone has actually tried Dr. Markovic or this specific method, please let me know.

Thanks in advance.

Hmm, probably best to talk to the doctor directly first to see if it's legit. Might be worth a shot—if it works for psoriasis, maybe it'll handle neurodermatitis too. You got any info on her? A phone number or something? I'd like to reach out. Thanks.

Robert Clark2 said:🙂Dealing with allergic dermatitis usually means using corticosteroids, but you gotta keep that usage short—kind of depends on how bad the skin flare-up is. I'm thinking if you dilute Claritin like a lotion, it shouldn't cause any major side effects for such a brief window. It’s probably not even a common issue, but hey, it's been three months since I last used steroids anyway. Prevention is huge here too—just stick to neutral moisturizers as a barrier, stay far away from harsh chemicals, and use high-quality soaps and shampoos. Some dermatologists even suggest a change in climate helps. My take? Don't expose the irritated area to the sun until the allergy settles down, then go for it later.
Best,

Sweet, thanks a ton.👍

Robert Clark2 said:🙂 Glad to hear it’s not psoriasis for your son—more like allergic dermatitis, which is honestly way easier to deal with than psoriasis. You just gotta stick to the treatment plan, watch out for irritants, and be picky about clothes—definitely stay away from synthetics.
Best wishes to you and your boy—hope the doctor's plan works and he gets better soon.

The doc prescribed this: Neosporin (ugh, steroids again) twice a day for 4 days, then Benadryl diluted like a lotion for another 10 days, plus some Claritin tablets for 14 days. I know Claritin isn't a big deal since it's a newer antihistamine with basically zero side effects or dependency issues, but the corticosteroids... they bug me. I know you aren't supposed to use them constantly. Last time he used Cortizone-10 back in December, and now he's starting up again with Neosporin and Benadryl—does that count as "frequent" use? Keeping in mind we're only treating a tiny area here. Thanks for the kind words. One more thing—we live on an island, tons of sun and ocean everywhere—can he just hang out in the sun normally?

Robert Clark2 said:It’s pretty much the same for me—at the start of winter, it just fades away, almost like I don't even have it, and I haven't even been using anything. But now it’s starting to flare up again, so I’m using creams to keep it... let's call it under control, until summer hits and we start swimming, since I live right on the coast. Psoriasis is kind of a recurring thing for me; spring and fall are definitely the worst times. On the flip side, the sun actually bothers it—you can't just go out and bake in it, you gotta stay under an umbrella. For psoriasis, saltwater is probably the best thing there is.
How's your son doing? What are the doctors saying?

Finally got a bit of a breather today. We went to see a third dermatologist in San Francisco, and honestly, this guy was solid. He thinks it isn't actually psoriasis, but more like allergic dermatitis—he said there's a 90% chance he'll just grow out of it, especially once he hits puberty. We'll see, I guess. At least we're hoping. Seems a hell of a lot better than dealing with psoriasis, though. Thanks to you and Chris Morgan67, things turned out just like you said they would. All the best, and I'll be hanging around this forum, maybe I'll even contribute something useful. Take care.

Robert Clark2 said:😕 Give me some more details—what kind of psoriasis are we talking about, how long has this been going on, and what have you actually tried? If it just flared up recently, maybe just hang tight for a bit. Spring is finally hitting, so things should start looking better once the weather warms up.👎

Wait, does psoriasis actually get worse in the spring? I thought more sun meant it would clear up... or am I totally wrong about that?

Casey Miller9 said:Just joined the group—it’s actually pretty helpful hearing everyone's take on this stuff. We’re still waiting on some test results for my ten-year-old, so I figured I'd jump in here. Basically, over the summer, my kid started getting these patches on his elbows that looked like ringworm or something. After a few months, the skin started peeling off, and that's when the doctor finally sent him in for testing. Our first dermatologist basically brushed it off, saying it didn't look like psoriasis, so they just prescribed some Beloderm cream. It cleared up in about ten days, but then we had a follow-up where a second derm suggested it *could* be psoriasis, though she wasn't totally sure—just recommended sticking to neutral moisturizers for now. Well, looking at him today, it seems like the redness is creeping back... what do you guys think?🙏

Checking back in with a reply to my own post because—surprise, surprise—still absolutely nothing. Doctors haven't nailed down a diagnosis yet. Things are just... stuck. Some days it’s totally quiet, then suddenly everything flares up and turns red again, like it did today. Since most of you guys here probably recognize what different types of psoriasis look like by now, I went ahead and posted some photos.
Pic 1 It looks like you might have hit send too early—you only typed "i". What's up? Give me the details. image 2 Can you guys take a look and tell me if this is actually psoriasis or maybe something else? Any thoughts would be helpful, I guess. Cheers.😕

Adam Wells43 said:Chris Morgan67, thanks for the tip. I've officially decided to stop using Beloderm and Belosal—my skin is freaking burning and it's bright red everywhere. Just tell me, what actually are the symptoms of skin tuberculosis? How do you even spot it?

SKIN TUBERCULOSIS
It’s caused by human or animal tuberculosis bacteria. On the skin, you see these pinkish-brown to yellowish nodules, mostly showing up on the face or spread across the body.
You can read more about it here, but honestly, don't let it freak you out too much—the odds of having this are basically zero.

steelseal13 said:Chris Morgan67, I got some Swedish DAIVOBET cream that fixed my hands like 90% 🙏 and now I'm just using Daivonex 50 mcg/g to "maintain" things.
The price here for a 30g tube of Daivobet is about $167😲
Where on earth are you getting PSORCUTAN for $43?😕

Watch yourself with the DAIVOBET—it's basically just the "Swedish" version of Beloderm. It's all base stuff, meaning the active ingredient is betamethasone... so yeah, it's a heavy-duty corticosteroid.
Later.👎

Mark 1 said:In the really bad cases, nothing's gonna help—not even a miracle. Man, you read some wild stuff on here. There are way too many scammers running around. When it comes to this Noni juice or whatever people call it, the Germans did some serious research and basically concluded it’s just a massive scam. They found that juice is pretty much worthless.😉

Maybe that's true, maybe it isn't. I mean, Noni probably isn't so expensive if it's actually totally useless. Personally, I think maybe it could work—I know a buddy who had Hepatitis C and spent forever trying treatments without any luck. Then someone suggested some tea to him—I think it was a centenarian—and he drank about a liter or two a day. After a few months, his tests came back fine, even though plenty of skeptics were talking trash. Also, I've seen people mention on this forum that the Germans studied it, but nobody's actually posted a link to prove it yet, so it kind of feels like misinformation to me.

feralorca71 said:I was talking about "natural stuff"

Yeah, well, St. John's Wort oil definitely works—tried it on my ten-year-old, and the redness went down by maybe 60%. Now I'm gonna try some Noni and see what happens. I guess you never really know until you actually try it.
And yeah, I'm with 👍Henry Vaughn57
on this one.