Posts by Walter Thompson
11 posts shown.
Chris Morgan67 said:Hey, what happened there?
I think we already have over twenty pages of threads here, and there's quite a bit of information regarding medications and treatments scattered throughout. I know this because I've personally contributed quite a few posts myself, so it might be helpful if you took some time to read through them, as I don't really have the energy to keep repeating everything.
There's plenty of info out there about psoriasis, and honestly, it’s even easier to find if you search in English.👍
However, I feel like people just haven't quite grasped one fundamental reality, which is that psoriasis is now considered a chronic, incurable condition, and I suppose there isn't any single medication a doctor can prescribe that will completely cure someone once and for all.
I'm honestly feeling a bit drained from typing all this out again, so if I may offer some advice, I'd suggest moving away from those steroid creams or Beloderma, and instead focusing on daily showers, using oils, and trying phototherapy.
👍
Well, I appreciate the effort, but I was actually referring to certain individuals who act as if they're waiting for someone to just hand them the name of a magic pill. I truly see people here who genuinely want to help and do provide support, but I guess you have to admit there are others who won't help you, yet won't stop making things difficult either. I suppose I am a perfect example of how stress and anxiety can trigger a flare-up.
I’ve been sitting here reading through what my fellow psoriasis sufferers are posting, and I honestly can't believe some of it. There are just some incredibly rude people out there. I always viewed this forum as a way to gather information or, at the very least, a place to exchange experiences, but lately, it feels like you practically have to beg someone just to get the name of a product or treatment that they claim actually worked for them.
So, if you happen to have any solutions or tips, I’m asking you—please—just write them down right away. There really isn't any need to wait until we all get frustrated and start flooding your inbox with pleas for help, because, believe me, this really isn't a joke for us.
I think everyone here is hitting the nail on the head, and I suspect most of us living with psoriasis probably realize this too—that the real work happens within ourselves rather than just being something we impose upon our bodies. However, I don't think we're quite right when we try to generalize about medications, specific treatment types, or even different variations of psoriasis itself. For one person, a standard application of Belosalica might clear everything up in maybe five or six days, whereas for someone else, that very same cream could actually make things worse. It’s the same story with initial treatments; someone might have an incredibly successful run with Belosalica, only to find their skin reacts poorly during the next round of application. Even things like dietary changes, like eating more fish, seem to help some people while doing absolutely nothing for others. I really feel it would be beneficial if there were more public discourse regarding our condition. I honestly can't recall ever hearing anyone discuss psoriasis on the radio or the news; in fact, I think I, along with many of you, probably didn't even know much about it until my own diagnosis. I'm not necessarily calling for massive public health campaigns, but perhaps there could be at least some sort of assistance or relief regarding the costs of treatment and medication. On a more personal note, back when I was younger, I struggled immensely with my self-confidence regarding my sex life because of all this. I was lucky enough, though, to meet a girl who, after learning what I was dealing with, truly stood by me in this fight against psoriasis; she'd even help out by regularly applying creams to the patches on my body and scalp. She eventually became my wife, and if God wills it, we're expecting a baby this coming June.
If I could just get this psoriasis under control.
p.s. and maybe win the Powerball too (just kidding)
Please don't take this the wrong way, but I can't help feeling that those of you living in a major hub like New York City just have so many more resources at your fingertips. Max mentioned there's even a psoriasis support group over near Pike Place Market, and from what I gather, they might even offer tanning services there. Now, some people might suggest just heading to a local salon, but honestly, as someone dealing with this myself, the idea doesn't really appeal to me; I worry I'd be turned away because they aren't informed, or worse, they'd let me use the equipment and then just regret it afterward. Someone else also brought up certain creams that you can order through a pharmacy near Pike Place Market. If I could just pick them up on the spot, I might actually make the trip down from San Diego, but instead, I have to travel all the way there just to place an order, head back to the city, and then wait another three days...
I suppose it could be simplified, but you have to admit that things are just a bit more difficult for us out here. Though, maybe that isn't even the worst part. You know what is? It's the fact that while I'm sitting here writing this somewhat depressing little note to you all, I've actually managed to trigger another flare-up just from the stress of it all. Not that it matters much, I guess; at least it gives me something to do while I'm searching my body for it. I should probably remember to number it.
Best regards! Let me know if anyone knows of any good options for those of us dealing with psoriasis along the Mediterranean Coast.
My apologies, I accidentally switched pages there. What I wrote above actually refers back to that last message on the previous page. I guess I don't quite understand why Timothy Jackson6 is being so hesitant about just saying the name. It seems to me like nobody would actually stop you from sharing it, unless maybe there's just so little to say that it doesn't feel worth the effort of bringing it up with everyone else.
Look, I probably wouldn't be quite so confident about your recovery if you could just manage to remember a single name. Like this, maybe? I'm not really sure.
I was hoping Mrs. Sarah Sanchez52 might be willing to share her results with us, and if she happens to remember—though I suspect it hasn't been too long—what the total cost ended up being.
I’d also love to hear from anyone who has dealt with those little fish treatments; I'm curious if it's something you can just handle at home or if you really need to seek out a professional specialist for it.
Thanks so much!
I was hoping Sarah Sanchez52 might be willing to share her results with us, and if she can recall—though I suspect it hasn't been all that long—what the total cost ended up being.
Also, for anyone who has worked with fish treatments before, I’d love to know if this is something you can manage yourself at home, or if it really requires seeing a professional specialist.
Thanks so much!
I was wondering if anyone here might have heard anything about those once-a-year injections. I believe they cost roughly around $67. If anyone happens to have any insight or knows anything about them, I’d really appreciate it if you could let me know.
Thanks
For my face, I tend to use the exact same cream I apply to my body, which is a custom blend prepared for me by my local pharmacists. I’ve found that the most important part of my routine is making sure I stay freshly shaved; if I do that, I generally run into fewer issues. That is, unless I indulge in a bit too much prosciutto, in which case, I guess nothing really helps for a good two or three days.
When I was about 16, I noticed this ring-shaped fungal patch on my right thigh during one of those hot summers. Now that I'm 28, you can probably guess how that turned out. It has since migrated to all the usual spots—my elbows, arms, legs, scalp, and back. My doctor has been prescribing Belosalicov lotion specifically for my scalp, while for the rest of my body, she just has the pharmacists whip up some custom compounded cream. The flare-ups come in waves, but honestly, I think I'm just more exhausted by the whole ordeal than anything else. Every single day, sometimes even multiple times a day, I find myself scratching until I bleed out of pure frustration. I suspect that intense stress might have even played a role in those strep infections I used to get constantly back when I was a teenager. Over the last few years, I’ve felt like I'm reaching my breaking point; there will be a few days where things seem to be settling down, and then suddenly, in a single afternoon, my whole body flares up again, and I'm right back at square one. There are moments when I genuinely feel like just giving up and walking around looking like a complete mess. I mean, can anyone tell me there's a more tedious, draining condition than this?