Robert Clark2 said:I see this forum, specifically the health sub-forum, as a space where people dealing with these relentless, exhausting illnesses can swap stories about causes, treatments, and everything from mainstream medicine and pharmacology to alternative approaches. It’s a place to highlight how certain drugs work—for better or worse—and the real benefits of holistic methods that many of us have experienced firsthand.
The kind of personal back-and-forth you, Elizabeth Lee49, and a few others engage in... well, that could easily happen through private messages, or even just by using better formatting and a few emojis in your posts.
Since Elizabeth Lee49 spends her time crafting these posts without invading anyone's privacy, my advice would be simple: before jumping into any medication or supplement, actually read the label and learn what it is first. Don't wait until someone asks you about it. For someone as bright as she is—even if she does mention constantly hunting for patches at the pharmacy—it seems odd. If people are always asking for them, maybe they aren't all they're cracked up to be... she'll realize that eventually. Same goes for that Butavat ointment you used, which we only get through certain gray-market channels anyway.
I'm not going to ignore your posts, but I'd ask that you start contributing content that actually interests a wider audience. We need to keep this forum at the high standard it's always been. And a little warning for Elizabeth Lee49: this is a corner for those of us struggling with illness, not a place for people to act out. Maybe try posting in the afternoon instead of when you're feeling restless...
If everyone is so eager to communicate, why hasn't anyone replied to silverjackal20's post? You know, the one where she mentioned being born with psoriasis (my apologies, silverjackal20, for bringing it up here).
Just remember, you aren't the only one here. Let's stick to the rules.
Best,
Look, Robert Clark2, you don't get to decide how this forum runs. I've been through the hell of psoriasis just like everyone else here, and I know exactly how much aggression this disease can trigger in a person. Honestly, it feels like that might be exactly what's happening with you right now. You don't have any right to judge us for talking about life instead of just the disease... because talking about life is actually vital to getting better.
Twenty years ago, the best dermatologist I ever saw, Dr. Schultz in Washington, D.C.,
told me straight up: change your mindset and your outlook on life, and you won't have to deal with psoriasis anymore.
So, I have to wonder if that's actually your issue here. We're going to talk about therapies and the latest research, sure, but we shouldn't forget that we're just human beings made of flesh and blood. Your comments about me aren't necessary. When or how I post isn't your business; there's plenty of room and time for all of us. Just let us write what we feel needs to be said, and you can just read the parts you actually like. As for the patches, they worked for me, but that doesn't mean you have to use them. No one's forcing you. Please, just leave us alone so we can each find our own way to fight this. Aggression and negative energy aren't going to help... believe me.👎