Posts by amberbear87

Maria Chavez55 said:Dovonex or Psorcutan
Regarding that specific medication, I actually experienced a pretty severe allergic reaction from it.
Since you're already looking into cross-referencing different treatments, you might as well toss this one onto your list.

Thnx Zuko... We've actually already placed the order. So, my best advice would be to have her test it on just a tiny patch of skin first to see if a reaction triggers. Honestly, I was browsing dovonex.com and noticed they list that exact side effect right at the top of their warning list.

Around here, the Calcipotriol—which is just the generic name for the drug—is only manufactured in capsule form. I can't recall the specific brand name of those capsules off the top of my head; I left all my paperwork back at home. Has anyone else here ever taken them?

jadesailor14 said:Well, within those 1,700-odd posts, there’s a whole spectrum of advice, medications, and various therapies floating around...
I truly believe it's worth reading through them.

Of course, that’s exactly why I decided to join this forum in the first place.

Even if I had spent a day and half the night digging through, say, half of those 1,700 posts, and then called my friend the next morning, I probably could have only told her two things—one bad and one good. Since she insisted on hearing the bad news first, I told her straight up: there is no magic cure. But the good news? She isn't going to die.
What I actually did was grab a notepad and start jotting down the names of any medications people were raving about. Every time I found a "happy" success story, I'd add it to the list, but after just a few more posts, I’d see someone else describing how that exact same product made their condition much worse... and I’d cross it right off.

By the next morning, I had this lengthy list, and almost all of it was crossed out. The only thing left standing was Dovonex, but you can't even find that anywhere in NYC.

That’s ultimately why we reached the conclusion that her first move should be adjusting her diet. She does use Synoderm occasionally based on an old doctor's recommendation, but honestly, it hasn't done much for her.

As for stress, there's no easy fix there; her family situation is just heavy—she’s dealing with an elderly, nearly immobile mother and a very hyperactive child, if you know what I mean.

And as for those specialized fish treatments? There's just no money for that. I mean, if it were a permanent solution, I'd happily shell out $1,000, but she simply cannot afford a massive expense like that every few years. Very few people in this country can swing that kind of cash.

So, for now, we'll see if she can stick to taking fish oil, eating plenty of fish and lean protein, fruits, and veggies (minus anything citrus), and cutting out the cookies, white bread, junk food, and Coca-Cola. She'll limit coffee to the mornings and since she doesn't drink alcohol anyway, we'll just have to wait and see how it goes...

jadesailor14 said:How much access does a moderator actually have? I mean, honestly, where do they draw the line when it comes to checking things?
No moderator can actually verify this—thank God, because that’s the last thing I need right now! Seriously, what even is that guy's "miracle cure" supposed to be?
That really speaks to his soul.

And that’s it—we are officially moving on from the topic of my acne. 🙂

With all due respect to you, jadesailor14, I’m just not sure how a moderator can truly verify anything other than an IP address—and even that isn't foolproof. Between proxies and VPNs, there are so many ways to mask one's digital footprint. It’s like trying to identify someone through a heavy fog; you might see a silhouette, but you can't be certain who is actually standing there.

Look, let’s get one thing straight: I didn't come here to pick fights or engage in some endless back-and-forth debate. My goal is simple—I want to learn about psoriasis. I came looking for genuine advice and real-world experiences that might actually help. The only reason I left that previous comment was out of pure frustration. It honestly makes my blood boil when I see people trying to turn someone else's genuine suffering into a way to profit or make a point. I realize that when you're feeling backed into a corner by a condition like this, it’s hard to stay objective. You find yourself grasping at anything for relief—sometimes you're reaching for a lifeline, and sometimes you're just grabbing at straws. At any rate, I have no intention of engaging with that gentleman further or responding to any more of his posts. I'm here for information, not drama.

With faith in all those who act with good intentions and true integrity. 😉

crimsonranger54 said:I’m relatively new here—I just joined recently—but I’ve already made my way through almost every single page of this forum. Based on what I’ve read, I have a pretty solid grasp of the different types of psoriasis our members are dealing with and just how much their bodies are being affected. I don't have anything against anyone personally. However, looking at Mr. Izlijeceni, it seems to me he isn't a patient himself, but rather a middleman focused on sales. Now, don't get me wrong, I have no issue with someone running a business or peddling products.
That said, I’ve noticed several members claiming to have used his specific preparation. It would be highly prudent if, after a few months of use, those individuals shared their current progress—ideally by posting photos in the coming days—so we can actually evaluate the quality of this product. Until they provide that visual evidence, I reserve the right to remain skeptical about both the claims being made and the actual efficacy of the treatment.
I see you’re frustrated by the lack of activity from the community, so why not take the initiative? Reach out to the people you sold the product to and nudge them to post. If we see genuine, positive results, this forum will come back to life instantly.
In my view, sharing photos shouldn't be an issue; one can easily protect their privacy by cropping out their face.
Talk soon.

Since I’ve managed to digest over 30 pages of this forum in just about a day and a half, I might actually have a clearer perspective than some of the long-term members here. This is strictly my personal opinion, but I am almost certain that all these patients of Mr. Izlecen are actually just his own aliases. I’ve reached this conclusion based on the general vibe of the posts and, more importantly, certain subtle patterns in the writing. So, I’ll ask him directly right at the start: please don't waste your breath trying to push your "miracle cure" on me.
Now, look, Big Pharma certainly makes a fortune off medications, but those drugs undergo years of rigorous clinical trials and testing before they ever hit the shelves, and they have to clear countless FDA commissions before getting approved. I’m talking about serious, prescription-strength medicine. (Unlike the Wild West approach you sometimes see where you can buy anything if you have the cash—though even having money doesn't guarantee you won't end up with some low-grade junk imported from overseas). The only "references" we get from these amateur herbalists or old-wives-tale practitioners are things like, "Oh, a guy I know—my cousin's neighbor's brother—was cured overnight after doctors gave up on him!" (As if a close relative would make up such a story!)
The one point where I actually agree with Izlecen is regarding the photos... without them, there is absolutely no guarantee of anything.
I might be wrong, but I have my doubts, and that's just what eleven years of lurking on various internet forums and message boards has taught me.

Good afternoon, everyone,

First off, I want to say that this forum is wonderful—both as a source of information and as a community for support.

I don't personally have psoriasis, but my best friend does. Since she doesn't have reliable internet access, I’ve been doing some desperate late-night surfing to find anything at all that might help her, which is how I stumbled upon you all. The information I've found here has been incredibly helpful, though I admit I haven't had the chance to read through everything yet.
My initial goal was to find a specific medication, an ointment, or perhaps some kind of breakthrough treatment, but I’ve honestly felt quite lost in the sea of options—from traditional pharmaceuticals to the various alternative remedies mentioned here and on other sites. My friend eventually decided to start by changing her diet to see if that yields any results. Because of that, I wanted to reach out and ask: am I giving her bad advice?
To give you a little background on her history:
Her symptoms first appeared when she was around 30 years old. She isn't sure if there's a family history of this condition, but she can't rule it out either. It might be worth mentioning that the psoriasis flared up right around the time she gained some weight. I'm not sure if there's a direct correlation there.
After a while, it actually cleared up on its own. At the beginning, it wasn't even particularly severe; it was mostly just localized around her elbows.
Then, about ten years later (I'm not entirely certain of the exact timing), she had her baby. It was a very difficult pregnancy followed by a rough delivery—she had a C-section and then dealt with sepsis afterward—and she says that following those complications, the psoriasis began to gradually return. I wasn't living in the same city as her back then, so I don't know all the fine details.
However, it has never been as bad as it is right now. It used to be that being near the ocean really helped her, but she bought a condo this year and hasn't had the opportunity to get to the coast. Since the beginning of the summer, things have taken a turn for the worse. I saw her arms and legs recently, and I was truly shocked. It isn't just her limbs anymore; it has spread to her scalp and parts of her torso. She’s quite self-conscious about it and hates even discussing it. I’ve been trying to push her to take action—even if she can't cure it, I just want her to stop it from spreading further. I try to talk to her about it as if it were nothing more than a mosquito bite, hoping she might eventually accept it as a normal thing to manage. To make matters worse, she's recently started getting red spots on her face.
So, starting today, she is going to change her diet (or at least, that's the promise). She's cutting out "forbidden" foods: cookies, chips, sour foods, and Coca-Cola. She plans to limit her coffee to just one cup in the morning and will instead focus on fish oil, fresh fish, vegetables, apples, and plenty of water. From reading your posts, I’ve gathered that much of this revolves around Vitamin D, so I was wondering if something like a Vitamin D supplement might provide some relief.
I would most sincerely appreciate your advice: is this the right way to go about it, or should she jump straight into medical treatments before her condition worsens even further? It feels like such a difficult decision, especially since reading through your various experiences, I've realized that a medication that works wonders for one person might actually make things worse for someone else.
Thank you all in advance.