47 posts shown.
Chris Morgan67 said:So, I popped into CVS to grab some flaxseed oil capsules.😍
I did a ton of Googling and now I’m going to take one capsule every single day for a month.
After that, I'm moving on to Omega-3 capsules. 😍
Robin Robinson8 said:I’ve written quite a bit about this already, but I don't mind repeating myself. Right now, my routine is pretty simple: just Vaseline and Sandimmun Neoral (you can find more info on that medicine on the earlier pages). It’s actually working. My psoriasis has cleared up almost entirely—it went from covering 90% of my body down to just 15%. There's still some left, but it's minimal. It isn't even flaking anymore; it's just red. Honestly, I've dealt with so many issues, so I'm really hoping they finally hit the mark with this one. If it turns out this isn't the answer, my last shot will be biologics. I'm praying to God it stays exactly like this. 🙂
Hey there!! 😍
Robin Robinson8 said:If I were you, I’d just suggest moving away from corticosteroids. They haven't helped anyone in the long run; they only offer temporary relief. So many people on this forum can back that up. Try switching to more neutral options first, and if that doesn't work, definitely talk to your doctor. I know how frustrating it is to wait around while doctors treat you like a lab rat—I've been exactly where you are. But they prescribe what works for most people, even if everyone responds to treatment differently. It took me six years to finally find the right therapy. By then, I’d gained enough mental maturity regarding this illness that I don't let stress or certain people get under my skin like they used to.
Hang in there. Best wishes! 😍
Robin Robinson8 said:I would honestly just advise you to move away from corticosteroids. They don't really help anyone in the long run; they just offer temporary relief. Plenty of people on this forum can testify to that. Start using more neutral options, and if that doesn't work, talk to your doctor. I know how hard it is to wait and deal with doctors treating you like a lab rat—I've been there myself. But they prescribe what works for most people, even if it's an individual process of trial and error. It took six years before they finally found the right therapy for me. By then, I’d also gained some mental maturity regarding this illness, so I don't let stress or certain people get to me as easily as I used to.
Hang in there, best 😍
Robin Robinson8 said:Welcome to the group!!! 🙂
Aside from dealing with those panic attacks,😁 could you tell us how things are looking for you right now and what kind of treatment you're on?
I used to get self-conscious about people staring at my psoriasis too, but I don't let it get to me anymore. First off, it isn't contagious, so there's zero reason to feel ashamed or scared—I'm not a threat to anyone. Second, honestly, there are plenty of much worse conditions out there that look way tougher than this, which puts things in perspective. Plus, when someone asks what's going on, I just tell them straight up without any hesitation. Most of the people I hang out with already know what's up, so they usually just ask if I'm feeling better. 😁
As far as clothes go, I don't care if I wear long or short sleeves. Long sleeves are easy because there are so many lightweight, breathable fabrics that you barely notice them. And short sleeves? Honestly, I've reached a point where I just don't care who looks. Thank God most people don't have to deal with this, so they don't have to stare at it either.
If you're worried about swimming or being seen on the beach, remember you've got options. You can always find those gorgeous little secluded spots along the coast that aren't too far from the main beaches, so you still get everything you need.
I'm really hoping and believing that if things keep going this way, this will be my first summer without psoriasis since I've had it. I am genuinely looking forward to it. 🙂
I'm rooting for you to get better as soon as possible. Take care! 😍
Robin Robinson8 said:Welcome aboard!!! 🙂
Besides dealing with the panic attacks,😁 can you tell us how things are looking right now and what your current routine is?
The stares used to get to me too, but I'm over it now. First, because it isn't contagious—so there's nothing to be ashamed of or afraid of, and I'm nobody's threat. Second, I just figure there are plenty of much worse conditions out there that look way worse than this, so it doesn't bother me as much. Plus, when someone asks what's going on, I just tell them straight up without any drama. Most people around me already know what's up, so they usually just ask if I'm feeling better. 😁
I have zero issues wearing long or short sleeves. Long sleeves are easy since there are so many lightweight, breathable fabrics you barely feel. Short sleeves? Honestly, I just don't care who looks anymore. Thank Bog that they don't have to deal with this themselves.
If you're worried about swimming or being watched at the beach, you've still got options. There are so many beautiful little coves along the coast near the main beaches, so you can always find your own spot.
I'm really hoping—and I truly believe—that this will be my first summer without psoriasis since I've had it, if things keep going this way. I am genuinely excited. 🙂
I'm rooting for you to recover quickly, too. Cheers! 😍