CheckEmoji Community · the emoji forum
🏠 Home 🆕 What's new ❓ Unanswered 🔥 Popular 📡 RSS Members 👥 0 online log in · register
Home › ruggedfox11 › Posts

Posts by ruggedfox11

239 posts shown.

We’ve decided to move forward with full-dose radiation for the head. My pulmonologist suspects—though nothing is set in stone just yet—that we’ll be looking at a total dose of about 30 Gray, which is well under the maximum limit of 70 Gray.
The good news is that the primary process is actually under control and starting to shrink, so all things considered, we're heading in the right direction.
silentbison17 said:Hey there... I'm probably totally out of the loop here, but...

It’s honestly driving me crazy—my mom is being discharged from the oncology ward today, and they’re expecting her to handle all the scheduling for her follow-up tests, like bone scans and things like that, all on her own. I assume she’s just stuck waiting for an opening... and since she isn't local to Indianapolis, of course she wants to get everything done while she's up there where her doctor is located.

Why couldn't they just coordinate and finalize everything before she left the hospital?

I suspect it's because certain tests require specific timing intervals to be accurate..

In our experience, they usually keep slots open specifically for oncology patients just so they don't have to endure those massive wait times..

But hey, try giving the Mayo Clinic a call—I know they accept those special insurance referrals.
Angela Wright said:Just take it slow. Brain metastases are tricky because the lungs are so incredibly sensitive to radiation therapy. Things will eventually settle down.
If I were in her shoes, I would absolutely insist on getting a bone scan right now.

Sent from my Samsung Galaxy J5 using Reddit

The thing is, I haven't pushed for that yet because he claims he "isn't showing any symptoms"—which, honestly, is the exact same excuse I got when I was trying to get her to go in for her first brain scan. This oncologist I'm seeing... he actually suggested whole-brain radiation even though there are only two
This is just... heavy.
My husband is receiving his final round of chemo today. Yesterday, they had to do a brain scan because he’s been in absolute agony this past week—he's feeling two distinct spots in the occipital region. Based on that, the doctor postponed his scheduled chest and abdominal CT scans. Now, we’re stuck waiting until Wednesday for the medical board to convene; they need to decide if they should perform whole-brain radiation, use Gamma Knife specifically for those two spots, or perhaps a combination of both.

Even before the diagnosis, he mentioned his vision was getting blurry, and I feel terrible now because I didn't give it enough weight at the time—maybe if I had, we could have moved forward with brain radiation much sooner.

Dammit, these relentless illnesses... I haven't even processed everything since hearing the results this morning. To her, things don't seem quite as bleak as they do to me. Fuck.
Drew Ward7 said:Hello,

My father is battling small cell lung cancer. It was first detected and officially diagnosed last year, around July.
He’s gone through radiation, chemo, and everything else—alternative treatments, various scans, you name it—and things were actually holding up relatively well until just a few months ago, when he started losing his appetite.

As of today, his condition has taken a turn where he can't keep anything down—absolutely nothing. Even a glass of water results in him vomiting.
The CT scan he had about ten days ago didn't show any specific issues with the stomach itself, though it does indicate liver involvement, which we already knew from before. We've spoken to the doctors about his inability to eat and the constant vomiting, of course, but they’ve only given him some tablets that honestly feel like a total waste of time—he just vomits those up too, and frankly, he can't even bear the sight of them anymore.

Two days ago, he lost consciousness, and since then, he's received two IV drips. Now, he's just lying there, completely exhausted.

If anyone here has dealt with a similar situation, I would truly appreciate it if you could tell me how to get some nutrition into him, or if you have any other advice at all.

THANK YOU.

Has he had any brain imaging done yet?
Did they perform any preventative radiation on the head?
And what about a chest CT?
This damn disease... when it strikes back, it hits you right in the head.
You should ask the specialist overseeing his care for a prescription for supportive medications.
My husband actually has the same diagnosis, and they managed to save him early on when he started vomiting.
For him, everything started with him throwing up everything he ingested, and that's how they finally caught it—the tumor was pressing against his esophagus, making it impossible for food to pass through. So, it wouldn't be a bad idea to request a chest CT or perhaps an MRI of the head.
Robin Diaz4 said:My dear friends,
my father has passed away... it feels so incredibly heavy—as if "someone up above" didn't give us even a fighting chance...
I want to say a huge thank you to all of you—friends I haven't even met in person—for the advice, the kind words, and the support when things got rough. You know just how much that means to someone in this position.

To everyone else out there fighting their own battles, I am wishing you all the luck in the world!
I'll check back in once I've gathered myself enough to write something meaningful—maybe then I can offer some help to someone else.
Sending love to you all.

I am so incredibly sorry; please accept my deepest condolences from the bottom of my heart 😢😢
But what happened? What went wrong?
Oh my God, are you okay?
I’ve got such a pounding headache—it's been going on for a few days now. It feels especially intense right above my right eyebrow, and honestly, it really flares up whenever I try to lie down. The only thing that seems to offer even a moment of relief is Tramadol, but it's just a temporary fix. I'm trying my best to get an appointment with my doctor so she can order a CT scan before we start any other treatment. I just don't feel like I can write this off as a simple cold, or blame it on the changing seasons, or even dismiss it as a side effect from medication... there's just so much swirling around in my mind right now.
Angela Wright said:The one that fake news pulls you toward.

I can't bring myself to follow the hype... none of those outlets really grab my attention. My mind is focused on just one specific surgeon—the only one in the US who handles centrally located tumors—while another specializes in microcellular cases. There’s a third guy who also practices privately at Radiochirurgija (maybe I could reach out there to see if they have any openings for me), and then there’s a fourth, who is basically just a close family friend.

Honestly, though? I think I might just play on their ego a little bit—you know, something like, "Since you're supposedly the best, why not step up to the challenge and prove it?" I mean, let's be real, surgeons can be such massive egos.
Robin Diaz4 said:Everyone at the hospital keeps giving me that same look—you know the one—and saying things like, "Unfortunately, you understand what this diagnosis means... his immune system is quite compromised now..." and then they just trail off, leaving the rest to my imagination. It’s exhausting. On the bright side, he seems to be doing much better today, though he's still working through a lot of congestion and coughing up mucus.😢

Sent from my iPhone using Reddit

We actually found that Mucinex really helped him when he was dealing with that heavy coughing.
I honestly can't stand it when people talk like that—it's so patronizing.
Here’s something interesting...
I had always assumed that getting a consultation with a thoracic surgeon would be an incredibly difficult process to navigate. Today—driven by a mix of pure frustration over this heatwave and the fact that there isn't a single opening for a CT scan anywhere—I decided to pick up the phone and call a few contacts in Washington, D.C., looking for recommendations for specialists who handle microcellular issues. I checked the databases, and honestly, it seemed easy enough; they just told me to email the full set of records to a specific address. So, great, right? Everything seems smooth!
But then I get home, and out of sheer anger—mind you, I have never, ever called a professional contact like this in my entire life—I end up calling my sister, who happens to be a close friend of one of the top thoracic surgeons in San Francisco. As we’re chatting, since she’s such a good friend of mine, I mention the situation. Her response? She tells me no—not him, and certainly not anyone in Washington, D.C.—because everyone else here in San Francisco is just cutting corners or ignoring the severity of these cases, treating them as insignificant. She says, "Just reach out to him directly," and keep in mind, she’s the head nurse at the pulmonary department...
So now I’m left wondering: who can you actually trust? Should I follow the advice of these near-strangers from the databases, or should I listen to my friend?
Robin Diaz4 said:He’s just like my dad was... honestly, his cough is really starting to worry me because it sounds so rough. He actually ended up heading back to the hospital today. 😢

Sent from my iPhone using Reddit

It’s the same thing with mine... it sounds like there's just a ton of congestion stuck in their lungs that they can't clear out. There's even this wheezing sound when they breathe. I’m leaning towards thinking it’s just these sudden shifts in the weather—both my little one and I have been stuck inside dealing with this heatwave.

Did she leave him because of the coughing?
Robin Diaz4 said:I don't really have anything insightful to add... today just isn't going well at all. We'll just have to see how things look tomorrow...
How is your husband doing?

Sent from my iPhone using Reddit

Regarding that—he's been coughing quite a bit. It looks like a cold caught up with him, so his doctor decided to push this last round of chemo back to Monday and put him on some antibiotics instead.
dustyscout8 said:Hello everyone... I know this is a heavy topic to dive into, but I was wondering if anyone here might have some insight regarding that new cancer drug—I think it's called Keytruda. From what I've gathered, it's supposedly used for all sorts of cancers regardless of where they're located, specifically for patients who show a high number of mutations. Does anyone actually understand what that implies in practical terms? I saw somewhere that there's a 15% $0.00 success rate per pill... or something along those lines. For instance, it mentions things like this here:
https://www.mayoclinic.org/diseases-conditions/melanoma/symptoms-causes/syc-20355222

I actually asked my husband's pulmonologist about it this morning. She mentioned that here in the States, it's primarily being utilized for melanoma and gastrointestinal cancers, though she said she’d look into it a bit more deeply for me.
Robin Diaz4 said:Dad is doing a little better today. God, this illness is just exhausting... honestly, I’m almost afraid to even post here—I don't want to tempt fate by sounding too optimistic.

Is he feeling any improvement?
wearyskipper20, I am so incredibly sorry, truly.
Robin Diaz4 said:Regarding those platelets... they just won't budge. As for the patches, we've been using them since the very beginning—honestly, it was actually because of the persistent pain that we ended up discovering the cancer in the first place...

Hang in there—I honestly don't know what else to say.
Robin Diaz4 said:Things still aren't looking great... 😢

Is it the platelet count again? Or something else...? 😞
Robin Diaz4 said:Is your husband even remotely less picky than my father was? Honestly, trying to get him to eat anything remotely healthy feels like an uphill battle—he’s always been difficult about food, but it’s somehow gotten even worse lately. I suppose I should be grateful he still has an appetite for fruit; at least he's getting some vitamins naturally rather than relying solely on pills. This article mentions the importance of omega-3 fatty acids—do you think I should just buy him some supplements to ensure he gets them? Also, is it safe to take those while undergoing chemo, or would they act like an antioxidant that might interfere with the treatment?

In this regard, they couldn't be more different—my husband actually loves his vegetables! 😄
Local farm eggs and organic milk are actually great sources of omega-3s, though I did pick up some capsules for him at a CVS. That said, I make sure he doesn't take the supplements while he's actively undergoing chemo.
Robin Diaz4 said:I feel like this article should just be titled: Food items my dad wouldn't touch even if his life depended on it—though, to be fair, he'll still eat meat, eggs, and fish.

Hahahhahha, man, you really cracked me up.
Robin Diaz4 said:He won't touch beets because they trigger his gag reflex—honestly, I'm the same way, so I completely get it. Instead, he sticks to berries. We usually have bacon together. 🙂
That said, his white blood cell count hasn't been an issue from the get-go, and his red blood cells are mostly fine; the real struggle has always been his platelets.

Almost everything mentioned is part of our daily diet, but just so you know—not through some flashy commercial, mind you—but based on actual nutritional lists meant to boost platelet counts :-)

https://www.webmd.com/diet/foods-to-boost-platelets