Dialysis: How many of us are here?
in Health ·
Hi everyone. I hope you don't mind me posting here since there isn't a dedicated forum for transplant recipients.
My husband has lived with Type 1 diabetes since he was 16. After three years on peritoneal dialysis, he received a kidney and pancreas transplant two years ago. Everything seems fine on the surface, but we have been battling one massive issue for over eight years now: anal incontinence. He refuses to see a neurologist or any specialist; he just insists to the doctors that his bowel movements are perfectly normal, even though they are always loose. He is so skilled at manipulating both me and his medical team that I end up feeling ashamed just for bringing it up. To him, wetting the bed or having accidents that leave a mess from the bed all the way to the bathroom is somehow normal. I am at my wit's end and feel completely lost. He won't even consider using adult diapers. I know it’s psychologically devastating for him to admit, even if he hides it behind a mask. But what am I supposed to do? Has anyone else dealt with something similar?
My husband has lived with Type 1 diabetes since he was 16. After three years on peritoneal dialysis, he received a kidney and pancreas transplant two years ago. Everything seems fine on the surface, but we have been battling one massive issue for over eight years now: anal incontinence. He refuses to see a neurologist or any specialist; he just insists to the doctors that his bowel movements are perfectly normal, even though they are always loose. He is so skilled at manipulating both me and his medical team that I end up feeling ashamed just for bringing it up. To him, wetting the bed or having accidents that leave a mess from the bed all the way to the bathroom is somehow normal. I am at my wit's end and feel completely lost. He won't even consider using adult diapers. I know it’s psychologically devastating for him to admit, even if he hides it behind a mask. But what am I supposed to do? Has anyone else dealt with something similar?