brighteagle26 said:After months of chasing ghosts trying to pin down why I have this stabbing pain in my ribs and right side of my back, it turns out I'm dealing with intercostal neuralgia. A full workup with specialists turned up absolutely nothing—even an MRI of my spine came back looking perfectly normal. It wasn't until a diagnostic block with lidocaine that we finally identified the culprits: the Th9, Th10, and Th11 nerves.
The pain used to hit me in the front, but now it has migrated entirely to my back, right at the source where those intercostal nerves originate. Honestly, I think there should be a dedicated forum thread for intercostal neuralgia and peripheral neuropathies. It feels like a relatively rare condition, yet I suspect there are others out there navigating this same maze. As for my own management, I’ve been relying on painkillers, lidocaine patches, and a TENS unit; I’ve even dabbled in magnet therapy—yes, I actually bought a device for it—and I'm currently weighing the option of acupuncture.
There is a more invasive route involving phenol blocks on those nerves, but my doctors turned that down due to the high risk of the solution migrating toward the spinal cord. I imagine there might be other aggressive interventions, like neurotomy, though I'm not particularly well-versed in those procedures.
This whole ordeal really eats away at your quality of life. In my case, the symptoms seem to flare up whenever the weather shifts. Physical activity is basically off the table; even just riding a stationary bike can trigger a setback.
Is anyone else going through this, and how are you managing? Is there anyone in the US besides Dr. Kvesić who specializes in treating this systematically?
Well, consider me officially part of the club... 😁
I completely feel for you.
As for me, my entire spine is essentially a disaster zone...
To put it bluntly...
On top of all that, I got hit by shingles about a year ago.
Your post actually reminded me so much of the specific agony that nasty virus left behind—that lingering chronic neuralgia... and so on and so forth.
For now, my primary strategy is the same as yours: staying in bed.
And no one believes me when I say that lying still is the only way to find any semblance of relief.
The pain is constant, but I try to manage it without heavy medication because I also deal with gastrointestinal issues, so I run from NSAIDs and other painkillers like they're the plague.
Right now, my biggest hurdle is a Th2-Th3 disc protrusion (on top of seven others along my spine and having already undergone two L5-S1 surgeries), because it has repeatedly irritated the nerves that control my heart and lungs...
It's hard to even describe the sensation—this pain that starts in my chest and radiates toward my jaw, over my shoulder, into my back, and down under my armpits...
It feels exactly like a heart attack.
By the way, I'm currently stuck waiting for an MRI appointment that was scheduled three months ago for April 3rd, 2017. 🙂
If I'm lucky, I'll actually make it to the appointment...
In the meantime, I'm watching these little bumps pop up constantly on my wrists, forearms, and feet... essentially neuromas accompanied by itching and paresthesia.
Then there's the tingling and pins-and-needles feeling all over my body, not to mention the nerve pain in my back that itches and aches to the point of madness...
So, yeah...
That's my situation.
It looks like there are more of us than I thought.