CheckEmoji Community · the emoji forum
🏠 Home 🆕 What's new ❓ Unanswered 🔥 Popular 📡 RSS Members 👥 0 online log in · register
Home › restlessangler › Posts

Posts by restlessangler

148 posts shown.

Diagnosed with SCLE—skin lupus—back in 2013. I stay on top of things with regular checkups with my immunologist, and this was my most recent lab work. My SSA RO60 levels are unusually high... they’re definitely elevated, though usually they don't go much past 150.
Normally I get my labs done at Mayo Clinic, but by some stroke of luck, I had them done over at Mount Sinai this time—though the reference intervals are exactly the same...

https://ibb.co/L55pXqb
https://ibb.co/gdDrVR2
There 🙂 Good Luck 😉
Is this a scam or what? (Need advice) in Health ·
If you ask me, it’s a total scam. Every single link just circles back to an ad for that nonsense. I'd steer clear if I were you...
rapidtiger11 said:Hi everyone!
I’m really hoping someone can offer some advice here...
My issue is related to dermatology—specifically, skin problems showing up as tiny, closed comedones along my cheekbones and chin.
I was asked to get a full panel done: CBC, CMP, glucose, urinalysis, AST, ALT, GGT, direct and total bilirubin, serum/urine amylase, AF, Iron, Ferritin, and during days 2 to 5 of my cycle: FSH, LH, estradiol, androstenedione, prolactin, plus TSH, fT4, Anti-TPO, and ATG.
After getting everything back, it turns out almost all my results were within the normal range, except for these:
RWD 15.3 (9 to 15)
ALP 51 (52 to 119)
Ferritin 8.8 (10 to 120)
Urine: quite a bit of bacteria
Because of the ALP and Ferritin levels, my Dermatology Clinic referred me to a gastroenterologist, suspecting something with my stomach. I ended up being diagnosed with Gastritis peptica (though I tested negative for H. pylori), so I started taking Zantac—which I took religiously—along with various herbal supplements specifically targeted for gut health. In the end, they concluded my skin issues actually have nothing to do with my stomach... and now my doctor doesn't have any more time to look into my case because she's just too busy.
So, I wanted to ask if anyone could help me understand what else these slightly out-of-range results might point toward...
My current symptoms include pretty intense PMS (painful for about a day), and a weak immune system—if someone leaves a window cracked even just a little while I'm sleeping, my throat feels tight by morning... I deal with frequent sore throats. I'm feeling so confused, honestly; I don't know where to go from here or what my skin might be trying to tell me, especially since we always hear that the skin is a reflection of what's happening inside.
I would be so grateful for any recommendations, guidance, or even just a bit of advice... anything at all.
Thanks so much for reading.

Change doctors? That's my vote. If you don't mind me asking, which clinic did you go to?
Sean Barrett35 said:Does anyone know of a facility where I can get an MRI done relatively quickly using a Medicare referral? Ideally within a month...
Thanks

Maybe try checking with Quest Diagnostics
coastaltiger7 said:Oh, my bad—I definitely wasn't reading closely enough. I wasn't sure if they were doing the TCD at Oakwood or not; I just saw the mention of a color Doppler near the Sliva area and assumed that was the main issue...

The issue actually lies with the TCD 😢
coastaltiger7 said:They’re performing them over in Oakwood, and I’d bet they do them at Rib too—that kind of scan isn't exactly rare.
Maybe they just haven't released next year's schedule yet, which would explain why they told me to check back at the end of the month. Honestly, I can't think of any other reason...


The answer to my question about ordering was basically that they aren't doing TCD right now, so I should try checking in again late this month.
I'll send an inquiry over to Oakwood and we'll see what happens...
melloworca6 said:I honestly have no clue. There might be differences between those color Doppler scans, just like there are variations between ultrasounds... 🤷

I actually tried to book a spirometry test and a diffusion test privately—I was bouncing around all over town—and they told me they could do the spiro, but not the diffusion. When I was at the hospital, I had both done on the exact same machine, so it seemed logical to me that if they offer spiro, they'd offer diffusion too, since the tests are so similar. Clearly, that wasn't the case...

Maybe it's the same kind of runaround here. 🤷

Ugh, that just sounds so silly to me. I think I'll just email every hospital in the area and see who can get me in the soonest—and whether anyone even offers it outside of private clinics...
melloworca6 said:Could it be this one:

And I also stumbled upon this:
TCD and TCD VB are both non-invasive ultrasound diagnostic methods—they let you check out the circulation in the intracranial part of the posterior (VB) and terminal (carotid) flows. They basically just run the probe along your temples and the back of your neck.

But why isn't Rib doing this right now... and why did they tell me to check back in at the end of the month?
Can anyone explain what a color Doppler ultrasound of the splenic vein actually entails? I know the basics, but I'm also wondering about the TCD...

I've had one hospital tell me they don't perform TCDs at all, while another one mentioned they just aren't offering them right now.
What exactly is a TCD?
Sandra Vaughn50 said:Your kidney function isn't exactly perfect—it won't be like a 20-year-old athlete's—but it’s nothing clinically concerning right now.
It really starts becoming an issue when the GF drops below 60, which moves the kidney disease into stage 3. At that point, combined with arterial hypertension—which often goes hand-in-hand with chronic kidney issues—about 10% of cases see anemia pop up too (though looking at your labs, you don't have that).

There's no need to go pushing anyone around, especially not your doctors 🕺, since your results are basically just for monitoring at this stage. If you happen to deal with high blood pressure, I might suggest an ACE inhibitor as part of a treatment plan...

That proteinuria reading of 0.14 g is actually great, so please don't worry! Of course, that doesn't mean it will stay that way forever—especially considering your underlying diagnosis can be pretty tough on the kidneys—but that's exactly why we do these regular check-ups, so we can catch any shifts early on.

Best regards.

Well, no wonder he hasn't mentioned anything until now.
The main thing for me is just knowing there's nothing to stress about 🙂

Thanks again.
Sandra Vaughn50 said:Complete blood count, segmented leukocytes (granulocytes)

Glucose.

GF stands for glomerular filtration—basically shows how your kidneys are doing—and based on this result, you have stage 2 chronic kidney disease (out of 5)
Kidney function is still pretty decent at this point. A normal GF is usually north of 100.

Protein in 24h urine—normal should be under 0.15 g.

As for interpreting those elevated ssA and ssB antibodies without any Sjögren's symptoms... I'm probably not the best person to ask. Maybe someone else here might have more insight there.

Thanks so much for the info.
I tried Googling the GF thing, but I couldn't really find clear values—just a bunch of overly complicated formulas that went way over my head.
My doctor didn't mention that specific part at all; he was mostly focused on the leukopenia and lymphopenia...
Are you sure about that GF reading? Should I be pestering my doctors to find out what's going on, or is it nothing to worry about?
And what's the deal with the protein in my urine? It's right at the upper limit... personally, I wouldn't stress too much, but since I'm just a layman, should I be paying attention to that too?
Just got back from some lab work at the outpatient clinic—dealing with the lupus stuff...

I don't have the reference values handy since everything was sent via private message—I haven't actually received the physical lab results yet... I think I'll just look up some standard ranges online to use as a guide, since I know those should be accurate enough...

SE - 23 (4-24)
My CRP levels came back at less than 0.3—well under that 0.5 threshold... turns out things are looking pretty steady on that front.
Red blood cell count is sitting at 4.10—the normal range listed here is 3.86 to 5.08... so everything looks pretty steady on that front.
Hemoglobin came back at 130—the normal range here is 119 to 157... looks like I'm right in the middle of things...
HTC — 0.390 (0.356–0.470)
MCV is sitting at 95.3—which falls right within that 83 to 97.2 range... looks normal to me.
L - 2.8 (normal range 3.4-9.7) — along with that, it shows DKS seg 57, Ly 31, and Mo 12... So, what exactly is DKS syndrome...?
Trc - 179 (158-424)...
GLC - 4.8... What exactly is this?...
Urea levels came back at 4.7...
Creatinine - 86...
My ALP came back at 44—the normal range starts at 54 and goes up to 119... definitely a bit on the low side...
ALT levels are sitting at 17—the normal range usually goes from 10 to 36... just wanted to share that update.
My GGT came back at 13—the normal range is listed as 9 to 35... so everything looks pretty steady on that front...
CK - 121
LDH is sitting at 172...
K - 4.9
Sodium levels at 139...
Copper levels at 17.5...
GF-CKD... Does anyone happen to know the reference values for this? ... 77.9 mL/min/1.73m2...
GF-MDRD... Is this exactly the same as those other reference values?... 66.8 mL/min/1.73m2...

Creatinine clearance is sitting at 74.9... What kind of reference values are we talking about here...?
BI URET - 0.14 g/dL What exactly does this mean—and what’s the reference value...?

TSH is sitting at 0.70...
T4—150.3...
RF - 10.7...

ANA - spotted...
SS-A - 282
SS-B - 100...
The results came back for dsDNA, Histone, Sm, U1-RNP, DNA-topo1, Jo-1, and CENP-B—all negative...
C3 levels came back at 0.77...
C4 - 0.16...
CH50—it’s looking pretty normal...

ELEF serum protein levels came back at 66 g/L...
IgG levels came back at 6.43...
lgA - 0.58...
IgM levels sitting at 3.58 g/L... a bit higher than what you'd typically see, I suppose—definitely worth keeping an eye on...
Albumin levels are sitting at 63.1...
AlGl - 4.5...
AlGl2 - 10.2...
BeG - 9.8...
GaGl 12.4%...
The A/G ratio is sitting at 1.71...

I don't have any issues with my vision, and I haven't had any trouble with saliva or tearing either—everything seems to be working perfectly fine...
My SSA and SSB levels just keep climbing—even though I’ve stepped up my treatment... I was originally on 10 mg of Decortin and taking Resochin twice a day at 250 mg, but since the Decortin wasn't really doing the trick, things shifted. I actually went up to 20 mg for a bit before dropping back down to 5 mg, and now I've bumped the Resochin up to two 250 mg doses daily... still seeing those numbers rise...

Results from September 16, 2014...
SSA - 56...
ssB - 108

Results from December 2014...
SSA - 91
ssB - 38
Could someone give me a hand?
I need to get scheduled for a Doppler VB Silva and a TCD—but I’m struggling to find the exact search terms to use on the Medicare website to check the waiting lists. Since the availability dates change so much depending on which specific scan you're looking for, I really want to make sure I'm searching for the right thing...
Betty Gray36 said:Hi there! 🙂
I was wondering how to schedule an appointment with an ophthalmologist at Rebro Hospital—specifically for a Xerophthalmia checkup—and also how to handle checking my eye pressure and posterior segment if I need to use corticosteroids...
I stopped by earlier today, but I ended up at the lens clinic instead, so I only got part of the testing done since they don't handle the rest anymore—apparently, it’s all due to some new organizational changes 🙂.

Personally, I just book everything online. Rebro Hospital has an email listed right on their website.
I usually just send over an inquiry along with a scan of my referral—it helps if you include your medical history too, like which doctor you've been seeing and the specialist's referral for the specific tests...
Every time I've booked with ophthalmology this way, they've been really quick to get back to me.
Maria Fisher46 said:Angie, when you're dealing with a vitamin D deficiency, there are really two different stages: first, you have to hit that target level in your blood, and then comes the maintenance phase to keep it there. For that initial push, people sometimes go with daily, weekly, or even monthly doses—though, honestly, daily dosing usually gets the best results—but once you reach the maintenance stage (which is where you are now), most experts suggest sticking to a daily routine. If it’s not too much trouble, maybe try going back to just a few drops of your Vitamin D3 supplement every day, almost like a baby dose 😍.

Most medical advice points toward daily maintenance doses. If that just doesn't work with your schedule for some reason, you could always switch to larger doses at longer intervals...

Anyway, I'll give my doctor a call tomorrow to see about ordering that baby dose 😬
Thanks for all the help 👍
Maria Fisher46 said:Vitamin D levels are clearly measured in nmol/l—in this case, 166 nmol/l. That level isn't considered toxic just yet. Usually, we don't start talking about toxicity until you cross the 375 nmol/l (150 ng/ml) mark.

That said, whether 166 nmol/l (66 ng/ml) is an ideal number... well, that’s definitely up for debate. Some might call it "high-normal," others just "normal," and then there's the question of whether there's actually any extra benefit from that level compared to, say, 125 nmol/l.

The tricky part is that studies haven't quite nailed down what the "perfect" vitamin D blood level should be specifically for people living with lupus.

Since you were deficient before starting supplements, I'm not entirely sure if you should stop taking it altogether or if it would be smarter to just scale back—maybe try 1000 IU a day and then retest in three months to see where things stand...

Nicholas, I've been waiting for you 😁—I remember you gave me some general advice on Vitamin D a few months back.
Since I have those 10,000 IU capsules, would it be okay to just take one every ten days?
I know that here in the US, some patients get prescribed 50,000 IU once a week (though I guess it depends on the doctor), even though from another perspective
it doesn't seem quite right. Taking an extreme dose one day and then nothing at all for the rest of the week... I kind of struggle with that logic.

P.s. Is nmol/l the standard unit?
Hi everyone,

I could really use some advice here.
Because of an autoimmune condition that keeps me out of the sun, I decided to start taking a Vitamin D3 supplement on my own...

Here is the breakdown of all my lab results:

March 12, 2015 (my first labs before starting any supplements)

Calcium - 2.48 (ref. 2.14-2.53)
Phosphate - 1.50 (ref. 0.79-1.42)
Vitamin D - 22 (ref. >75)

June 21, 2015 (after three months of taking 2000 IU daily drops)

Calcium - 2.40 (ref. 2.14-2.53)
Phosphate - 1.36 (ref. 0.79-1.42)
Vitamin D - 53 (ref. >75)

September 8, 2015 (after two and a half months of taking 10,000 IU daily tablets)

Calcium - 2.57 (ref. 2.14-2.53)
Phosphate - 1.42 (ref. 0.79-1.42)
Vitamin D - 166 (ref. >75)

I'm planning to stop the Vitamin D3 supplement now, so I'll see what the results look like in about twelve months...

Could anyone tell me if this Vitamin D level is considered too high? I'm honestly not sure at what point it becomes toxic.
I haven't noticed any side effects so far...
Carol Garcia said:Hey, where can I grab a monthly pass for the garage? We’re going to be hanging around there for maybe two weeks—I was thinking a monthly rate might actually work out cheaper than paying daily... though I can't seem to find any info on how to actually buy one. Is it possible to do it remotely? Since we aren't from New York City, it would save us a lot if we could handle it ahead of time, especially since a single day of parking costs about as much as a whole month $67 🙂

Ask NYC Parking—you probably have to go through them to get anything set up.
ER and Emergency Services in Health ·
Nancy Jones12 said:I know this sounds like a silly question, but I honestly have no clue...
Say something hurts and I want a doctor to take a look—like my ear, for example.
Do I head to a local clinic or go straight to the hospital? Do I just show up, or is there some specific procedure I need to follow?

Please don't laugh at me... 🙈

You'd start with your primary care physician.
Now, you really ought to check if you need to make an appointment with your doctor first or if you can just walk in—it varies depending on the practice. They'll either treat you right there or refer you to a specialist...