Posts by cosmicsailor91

Amanda Brown3 said:First off, sorry for just barging in like this. I see so many people here fighting through all kinds of illnesses, and I truly want everyone to win their battles..
I’ve also noticed some people sharing really helpful advice, which is something I could definitely use right now...
So, basically..

I have a little relative, just 2 months old, who was born with a lump about the size of a sake bottle on his neck. At first, the doctors told us it was just fatty tissue or fluid and suggested surgery, but after specialists analyzed the results, they claimed it's actually part of the baby's brain along with a tumor that's been growing since conception. They told us the baby might only live for two months at most... We're all just living in this state of suspense, trying to stay optimistic because the baby is so strong and fighting hard... but that lump on his neck has actually gotten a bit bigger. Some days they tell us it's possible they were twins at the start and one passed away early and fused with the other, so even the doctors aren't quite sure what to tell us anymore... So, I wanted to ask if anyone has dealt with a similar situation in their family—if you could please share your experience here...
Thanks in advance, and again, sorry for jumping into a thread that might not even be the right place for this..

Hey Amanda Brown3!
The best thing I can suggest is to try reaching out to St. Jude Children's Research Hospital in the US. Here is the email:🙏andra.villarreal@stjude.org.
http://www.stjude.org , and their number is ++(901) 495-4055.
Since they are a research hospital, the tougher the case, the more interested they are, plus they provide free housing and treatment. You'll just need to convince your doctor to talk to them and prove that the baby is a candidate for their programs.
There's also Cincinnati Children's Hospital, which is widely considered one of the top pediatric hospitals in the world—you can find all their info online.
At least if you get a solid diagnosis from them, you'll have taken a huge step forward. Good luck!🙂

Beatrice, check your PMs when you can.

I can't give you a straight answer, other than saying I just roll my eyes when doctors try to fix every single skin issue by slapping on Hydrocortisone or some other scary corticosteroid cream. They're super risky.
Besides, if this cold of yours is dragging on this long without getting better, your immune system might be struggling, or maybe you've got some kind of bacterial infection messing with your blood and causing chaos on your skin.
Since your doctor is being pretty superficial about this and the Diphenhydramine isn't doing squat, it’s definitely time to go get a second opinion.🙂

Jessica Booth35 said:Hey everyone,

I just signed up for this forum today... I was searching the web for info, support, advice, or even just a little bit of hope, and that’s how I found you guys...
Basically, my mom was diagnosed with breast cancer just under a year ago. They had to do a full mastectomy, but unfortunately, it had already spread to the nearby lymph nodes... so it was Stage III. She’s been through chemo and radiation. Then, at her checkup last month, her markers spiked, and after all the tests, it turns out the cancer has metastasized to her liver... She starts a new round of chemo this Thursday... Taxotere plus Xerox... I’ve looked into it, and people say Xerox is a "smart, solid drug"... but while I was researching, I stumbled onto some stuff I really didn't want to read... like those 5-year survival rates and things like that...
Trying to wrap my head around it all... since there isn't a cure and it's more about improving (and hopefully extending) quality of life, I came across Pfizer (but I've also heard about it online over the last year since Mom's diagnosis)...
I wanted to ask if anyone here has experience with Pfizer? Do you know if she can take it while she's on chemo, or should she wait until the cycle is over? (I don't know how many cycles she'll need yet—for now, the doctor said 10, which would be one full cycle)—and honestly, I’d be so grateful for any advice, experiences, or help you can give...
Thanks so much, everyone!
Hang in there,
Mary

Hey there, fellow fighters!

Dear Mary, regarding Pfizer,
My little girl (she's 4 now) was Stage IV with lung metastases when we first found out. She went through 8 rounds of chemo, 2 surgeries, a stem cell transplant, MIBG radiation, and the standard radiation too.
She's been in remission for 1.4 years now, and I truly believe she'll stay that way.
From the very start, I gave her Pfizer; for her age, one packet a day was enough. I’d mix the Pfizer into her bottle when she wasn't undergoing chemo and once she stopped vomiting. Sometimes, because of the Pfizer, her temperature would spike briefly, even up to 100°F. Along with that, we always used non-alcoholic propolis spray and propolis ointment for skin sores. As for whether it helped—I can't say for sure—but I do know she never got mouth sores, never had skin issues, other infections were much milder, and we almost always made it to our chemo appointments on time.
Thanks to my dad, who survived throat cancer with metastases (they gave him only a month to live when he was diagnosed!) and has been in remission for eight years now, he insisted that regardless of how the body is doing, we should strictly stick to non boiled goat milk, Aloe-gel, Broccoli, and beet juice. I also added echinacea drops and garlic mixed with fruit so she wouldn't taste it. Looking at her now, you'd never know she was ever sick.

People will probably jump all over me for saying this, but when it comes to energy healers and that kind of stuff, I've never actually heard of them helping anyone. I saw so many parents reaching for those options, but kids would usually get a tiny temporary boost and then a crash they just couldn't recover from.
Our hearts stayed with God, and we just prayed and left it in His hands.
🙂

Hey!
Honestly, you should probably go get those intestines checked out.
In my experience, a low-grade fever like that is usually just a sign that your body is fighting something off, rather than a full-blown infection.
Especially if your blood work is coming back normal.
Don't let them brush you off—stay on them!

Angela Wright said:Based on my own terrible experience, my advice is simple: if this headache keeps up, he needs to head straight to the ER at a major hospital like Mayo Clinic. It’s just not right for this to drag on like this while medication fails to touch it. They can run a CT scan immediately to figure out what's actually going on. These kinds of headaches aren't something you joke about, and honestly, I think this whole idea of keeping a symptom diary is nothing more than absolute, utter nonsense.🙄

I am 100% with you on this.
Don't waste a single second.

Hey there!
I’m not totally sure about the X-ray situation, but the local clinic near the suburbs and the Mayo Clinic up by the Cleveland Clinic both handle their own CT and MRI scans. Might be worth giving them a call to see if they can help you out.
Good luck.

Carol Sanchez2 said:I'm honestly pretty pissed off right now because...

My sister living over in the States put together this care package for my mom, who’s currently fighting breast cancer. She picked out a bunch of little things to brighten her day—hats, a wig, some linen shirts for when she needs to be out in the sun, even that special toothpaste for mouth sores. She also grabbed some photos, scarves, a mastectomy bra, and some info booklets on cancer. It’s her way of being there for us since she can't be here in person.
She sent it via FedEx on Monday, so we were expecting it to arrive today. But nope—US Customs decided to hold the whole thing because the value is over the $50 limit allowed per person. Now they’re going to tear everything open, inventory every single item, and demand receipts for every little thing? Seriously?? My sister went through all the trouble of listing every item on the package, clearly stating she was covering all costs, paying all the fees, and even marking it as a donation package for breast cancer patients. But apparently, our government thinks there's money to be made off of people fighting cancer. I am beyond livid, and honestly just heartbroken. My mom is so upset because she can't get her hands on these simple things that would have actually cheered her up. I know there are much bigger problems in the world and this might seem trivial to some of you, but should we really be this rigid over something like this?😠

I had a similar experience when I was working with my livestock.
My sister sends me stuff from the UK all the time and I never get anything. Just once, she actually included an invoice with the package, and they hit me with customs duties immediately—it ended up being like 30% of the total value. Total rip-off.
Give it another shot without running the numbers or looking at the values first. Might just work.
Those people are absolute animals. She literally said it was for a kid fighting cancer, but they couldn't care less. No heart at all.
I’m usually a pretty chill person, but man, dealing with all this government bureaucracy is driving me absolutely insane—unless you count the rare exceptions.

Hey everyone fighting this battle, and to all the caregivers out there standing by them.
I’m the mom of a little girl who was diagnosed with Stage IV neuroblastoma just 19 months ago. She wasn't even two years old yet. It’s one of the top three most common childhood cancers, and man, it is brutal. In our daughter's case, the tumor stretched across the right side of her abdomen from her ribs down to her pelvis, crossed the midline, hit several lymph nodes, and even metastasized to her lungs. We’ve pushed through four rounds of pre-op chemo and four rounds of post-op chemo, plus MIBG therapy, followed immediately by an autologous stem cell transplant. She’s doing great now, though we still have to do radiation just to be safe. She’s only 3.5 years old, and I really want to reach out and help other parents in the same boat by sharing what we've learned.
Please, don't fall for any "miracle cures," but things like beet juice, carrot juice, vitamins, and goat milk can definitely help the body handle the chemo better. Using non-alcoholic propolis can help prevent mouth sores, and some good old-fashioned ointment or propolis cream can help soothe skin irritation in sensitive areas.

Sending love to you all—may God watch over you and bless you.
I'M WITH YOU AND I LOVE YOU ALL

steeleagle152 said:Hey there!
I've got a quick question. I felt this little lump under my left armpit, and it actually hurts when I touch it. It’s not huge—maybe about 3-5 mm if I had to guess.
If anyone has any insight, please let me know. I'm not trying to freak out, but I'm definitely a bit concerned too. Maybe someone else (sadly) has dealt with something similar and can share their experience?
Thanks.

I don't have firsthand experience with this, but seriously, please go see a doctor as soon as you can. It might be absolutely nothing, but if it is something, you don't want to waste a single second.