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Posts by Olivia Diaz35

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redcrane19 said:I'm 15 and dealing with these spots all over—tried some teas and goat milk creams, which helped a tiny bit, but not enough. It's everywhere, and honestly, I'm embarrassed to even wear shorts. It’s been brutal on my face, too. I've been scouring the web for a cure, but nothing's working. If anyone knows if there's a specific treatment available in Italy—my aunt and grandparents are there—please let me know. I heard there might be something, but I couldn't go because I didn't have my medical history handy. Such a waste. This started when I was 12—just pure stress wrecking my immune system...

I don't want to let you down, but I've been looking for a cure for two and a half years now, and unfortunately, it just doesn't exist. For now, we're on our own. I have it on my legs too, so I won't wear dresses or shorts either. I'm even embarrassed to go to the beach. But believe me, there are people dealing with much worse, God forbid. We just have to grit our teeth and deal with how we look. I read somewhere that you can only manage the condition; it usually spreads for about three to five years and then just stops, but it all depends on how strong your body is. We have to work on ourselves and our mental state, since that's where it all started anyway. Just keep your head up... feel free to ask me anything else. Peace.
restlessmoose95 said:Just checking in here since 🙂
isn't around.
I was diagnosed with morphea about eight months ago.
What’s everyone else’s experience been like—did you get your diagnosis at a major hospital in a city like Chicago, or somewhere else entirely? Also, how often are you all running ANA and ANF blood panels to monitor for any systemic progression?

Let's swap some stories. 🙂

Mine was diagnosed back in May 2010. I've posted quite a bit about it on the HUOS pages, that scleroderma organization. Right now, it's just localized on my right leg. I go in for checkups every three months. Just taking Rocaltrol capsules and that's about it. What's your experience been like? Is yours spreading? Any other symptoms, or is it strictly skin deep...
So, I got diagnosed with localized morphea scleroderma on my right leg this year. Since this is such a rare condition, there isn't much out there—most of what you find online is either sparse or just plain scary. I’d love to hear from anyone else dealing with this... hope everyone is doing okay.