Scleroderma: Morphea vs. Systemic Diagnosis
in Health ·
Well, I’ve decided to embark on a bit of a forum crusade to see what everyone else's experiences are regarding REUMAS... I’m asking for your input—I’ll list my mom's specific symptoms further down. I realize consulting doctors is the gold standard, but even after doing that, things are just getting worse for her. It’s honestly heartbreaking to watch her deal with this pain and lose her independence... If I look back at the last year or two, she can barely handle 70% of what she used to—she just gets exhausted way too fast.
Regarding the medical tests and the final physician's notes, here is what it says:
CONCLUSION: Microscopic changes are consistent with late-stage, sclerotic systemic sclerosis.
CONCLUSION: Hemangioma hepatitis, right renal calculus, left renal calculus, incipient hydronephrosis, left
Diagnosis: Systemic Sclerosis
As for the actual symptoms, she's dealing with:
Swollen hands, joint pain, inability to fully bend her joints—only halfway, really—shoulder pain, aches running from her ankles up to her knees, poor circulation, and frequent bouts of fever that might only last a day, but they hit so hard she can barely get out of bed... plus, there's this crushing fatigue that just sweeps over her.
Does anyone here have someone using REUMAS at home, or perhaps someone dealing with similar—or even identical—symptoms? What works? What actually helps? Maybe there's something to be gleaned from the diagnosis itself, though I'm admittedly lost here... I just know it's hard to watch, and while I try my best to make her comfortable when I'm home, there has to be some way to provide her some relief. 😢
Thanks to all you kind souls for any advice!!
Regarding the medical tests and the final physician's notes, here is what it says:
CONCLUSION: Microscopic changes are consistent with late-stage, sclerotic systemic sclerosis.
CONCLUSION: Hemangioma hepatitis, right renal calculus, left renal calculus, incipient hydronephrosis, left
Diagnosis: Systemic Sclerosis
As for the actual symptoms, she's dealing with:
Swollen hands, joint pain, inability to fully bend her joints—only halfway, really—shoulder pain, aches running from her ankles up to her knees, poor circulation, and frequent bouts of fever that might only last a day, but they hit so hard she can barely get out of bed... plus, there's this crushing fatigue that just sweeps over her.
Does anyone here have someone using REUMAS at home, or perhaps someone dealing with similar—or even identical—symptoms? What works? What actually helps? Maybe there's something to be gleaned from the diagnosis itself, though I'm admittedly lost here... I just know it's hard to watch, and while I try my best to make her comfortable when I'm home, there has to be some way to provide her some relief. 😢
Thanks to all you kind souls for any advice!!