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Dealing with tingling, migrating muscle/joint pain, loss of appetite, and tinnitus...

Started by restlesscobra13 · · 👁 5 views · 28 replies

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Participants restlesscobra13Nicholas Mendoza60brightgull95Brenda Parker5restlessdriverDaniel Green98
restlesscobra13 restlesscobra13 MemberOP
16 messages
joined Dec 2020
#1 ·
Around late October or early November, I started feeling numbness in my left arm. The first time it lasted a few hours. A couple of days later, my left arm went numb again, though it was much more intense and lasted longer this time. I could still move my arm and everything felt normal physically, but there was this constant tingling or burning sensation. I called my primary care physician, and she suggested it might just be my cervical spine. She told me to try some exercises, take some Advil, and check back in a week.

I went in for blood work the next day (CBC, TSH, CRP, sedimentation, urinalysis, metabolic panel, TSH). Everything was within the normal range except for my MPV (12.2, whereas the limit is 10.4), and my monocytes were at 11.4% (normal is up to 12%). During that week, the general tingling subsided, but I began experiencing nerve and muscle pain. The pain started spreading into my back, shoulders, neck, and head (mostly the forehead and the back of the head). I called my doctor again, but she wanted me to continue the Advil and exercises for another week.

I decided to go ahead and schedule a full physical on my own (breast ultrasound, abdominal and pelvic ultrasound, lymph node ultrasound, EKG, CBC, urinalysis, PAP smear). Results showed BI-RADS 2 for the breasts, erythroplakia on the cervix measuring 1.5cm, elevated monocytes at 12.6% (limit 12%), slightly high MCHC at 349 (limit 345), and an MPV of 12.3. My PAP smear showed reactive changes in the cells related to inflammation. The doctor who performed the exam noted that everything looked fine overall.

I saw a neurologist, who suspected cervical brachial syndrome. He ordered an MRI of my cervical and thoracic spine, an SSEP of the median nerve, an EMG, and an EEG.

In early December, I had the MRI done. For the cervical spine, there were abnormalities—osteophytes, and a disc protrusion at the C5-C6 segment (1.3mm) paramedian to the right, which reduces the anterior epidural space, along with minor degenerative changes. For the thoracic spine, the findings included straightened thoracic kyphosis, and at the level of the Th8, 9, and 10 vertebrae, a length of about 6.2cm where the disc slightly widens the central spinal canal, measuring 1.2×1.5mm.

I went back to the neurologist, and he said the MRI doesn't actually explain the cause of my pain and numbness. Because I mentioned joint pain, he now suspects arthritis and recommended I see a physiatrist.

I saw the physiatrist, but she didn't find anything significant either. She said there were no signs of arthritis (my elbows were sensitive near the lateral epicondyle but the Milsov test was negative; positive Tinel sign over the left carpal tunnel, ID around 5-6cm, and flat feet). She recommended therapy consisting of five ultrasound sessions on the trapezius, local massage, and five TENS sessions for my neck and hands.

Other tests I had done in early December include an ENT evaluation (vasomotor and allergic rhinitis with chronic tonsillitis, enlarged angular lymph nodes), an orthodontist visit (who gave me a splint because my TMJ clicks), and a neck ultrasound (small reactive lymph nodes near the anterior edge of the SCM on both sides, a couple of reactive submandibular lymph nodes up to 15mm on both sides, and an inhomogeneous thyroid structure suggesting possible lymphocytic thyroiditis—maybe Hashimoto?).

Over the last few days, I've been feeling joint pain and have had ringing in my right ear a few times. Today, I'm feeling pain running from my right knee down to my foot.

I was pretty active in sports until I was 14, but I just started lifting weights about a week ago. I don't smoke or drink. I tend to get sore throats during the winter, and I've had a few strep infections (the last two didn't involve a fever, just a scratchy throat). Generally, I spend most of my time sitting or lying down. I'm 5'2" and 95 lbs, 22 years old. In my immediate family, there is a history of high blood pressure, hyperthyroidism with suspected Hashimoto, benign uterine tumors, glaucoma, and arthritis. I should also mention that my mental health has been pretty poor since all this started (I've lost weight because I have no appetite).

Does anyone have any ideas on what to do next? Thanks to everyone who takes the time to read this.
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#2 ·
restlesscobra13 said:So, like, late October or maybe just as November was kicking in... I started getting this weird tingling sensation in my left arm. At first, it only lasted a few hours, you know? But then a couple of days later, it hit me again—only this time it went on way longer and felt way more intense. It wasn’t like I couldn't move it or anything; I could still move my arm just fine and everything felt physically "normal," but there was just this constant, nagging feeling of tingling... almost like a burning sensation... I ended up calling my primary care doctor about it, and she basically told me it’s probably just some issues with my neck/cervical spine. She suggested I stick to some exercises and take some Tylenol, then just give her a call back in a week to see how things are going...

So, I finally went in for my blood work yesterday—you know, the whole nine yards... CBC, TSH, CRP, ESR, urinalysis, full biochemistry, the works. Honestly? Everything came back totally normal and within range, except for my MPV, which was sitting at 12.2 when it should be under 10.4. My monocytes were also kind of hovering right on the edge at 11.4%, since the limit is 12%. The weird thing is, that general tingling sensation I've been dealing with actually cleared up this past week! But now, instead, it’s like this constant nerve and muscle pain has moved in... It started migrating everywhere—my back, shoulders, neck, even my head... mostly hitting me right in the forehead and the base of my skull. Super annoying. I called my doctor to see what's up, but she basically just told me to stick with the Lupocet for another week and keep exercising. Like, really? That's it?...

So, I finally dragged myself to the doctor for a full-on checkup... just one of those things you have to do, right? I went in for the whole nine yards—breast ultrasound, abdominal and pelvic ultrasounds, checking out my lymph nodes, an EKG, a complete blood count, urine work, and even a Pap smear. The breast scan came back as BI-RADS 2, which is totally fine, but they did find some erythroleukemia on my cervix about 1.5cm wide. My labs were a little wonky too... my monocytes were up at 12.6% when the limit is supposed to be 12, my MCHC was sitting at 349 (normal is 345), and my MPV was 12.3. As for the Pap test, it showed some reactive changes in the cells linked to inflammation. Even with all those little hiccups in the numbers, the doctor who saw me basically said everything looks pretty much okay overall... so, yeah... nothing to panic about yet, I guess...

So, I finally made it to the neurologist today... and honestly, things are looking a little dicey. They’re seriously suspecting I might have cervical brachial syndrome or something along those lines. It’s all pretty overwhelming right now, but they've already started throwing a whole laundry list of tests at me to figure out what's actually going on... I'm looking at getting an MRI for both my cervical and thoracic spine, plus some SSEP on the median nerve, an EMG, and an EEG too. Just a total marathon of testing ahead of me... ugh...

So, I finally bit the bullet and got my MRI done at the beginning of December... and man, looking at these results is just a lot to process. My cervical spine is definitely showing some wear and tear—there's some osteophyte formation going on, and in that C5-C6 segment, there's this tiny disk protrusion, like 1.3mm, pushing slightly to the right. It’s crowding the anterior epidural space a bit, plus some other minor degenerative stuff... typical aging, I guess? But then there's the thoracic part that's a little more intense. My thoracic kyphosis is totally straightened out, and around the Th8, 9, and 10 vertebrae, there's this stretch about 6.2cm long where things are getting a bit cramped... the central spinal canal is being narrowed down to about 1.2 by 1.5mm... just a lot to wrap my head around...

So, I went back to see my neurologist again... and honestly, it was kind of a letdown. He basically told me that the MRI didn't show anything that explains why I’m dealing with all this pain and tingling. Then, because I mentioned how much my joints have been hurting lately, he started questioning if it might actually be arthritis instead... which just adds another layer to this whole mess. Now he's telling me I need to go see a physical therapist to get checked out... ugh...

So, I finally went to see my physical therapist today... and honestly? It was kind of the same old story. She didn't find anything major either. According to her, there aren't even any real signs of arthritis... which is wild given how I feel. My elbows are super sensitive right around the lateral epicondyle area, but apparently, that Milsov test came back negative. She did note some Tinel sign over my left carpal tunnel, though... plus an ID of about 5-6cm and some flat feet... but overall, she’s basically saying everything looks "normal"... She recommended a bit of a routine to try and get me some relief: five sessions of ultrasound on my trapezius muscles, some local massage work, and five rounds of TENS therapy covering my neck and hands... so yeah... we'll see if that actually does anything...

So, I went back for some more testing at the start of December and man, it’s been a bit of a whirlwind... I saw an ENT specialist to check out some vasomotor and allergic rhinitis along with chronic tonsillitis—they also noted some enlarged angular lymph nodes, which is just great. Then I hit up the orthodontist because my jaw keeps clicking, and they actually referred me out for that too. On top of all that, I had a neck ultrasound done... it showed some small reactive lymph nodes on both sides along the front edge of the sternocleidomastoid muscle, plus a couple of reactive submandibular ones reaching up to 15mm on both sides. But the big thing was the thyroid... the structure looks pretty inhomogeneous, so they're looking into possible lymphocytic thyroiditis—maybe Hashimoto? ...

Ugh, so lately my joints have been acting up like crazy... and I’ve been getting this weird buzzing sound in my right ear every now and then too. But today? Today it’s just different. Now there’s this constant pain shooting all the way down from my right knee straight to my foot... honestly, I'm just over it...

So, I was pretty active in sports back when I was 14, but I just recently started getting into weight training about a week ago. I don't smoke and I don't drink, so that's not it... My throat always seems to act up during the winter, too. I've dealt with strep infections a few times—the last two times didn't even give me a fever, just that constant scratchy feeling in my throat... Most of the time, I’m either sitting around or just lying down. I'm 5'2" and only about 95 pounds, and I'm 22 years old. Looking at my immediate family, there's a lot of stuff going on... high blood pressure, hyperthyroidism with suspected Hashimoto, benign uterine tumors, glaucoma, and arthritis. Honestly, I've been in a really dark place mentally ever since all these health issues started piling up... especially since I've lost weight because I just don't have the drive to eat anymore...

Does anyone have any clues on what I should even try next? Seriously, thanks to everyone for taking the time to read this...

Start checking your blood pressure 3x a day. If it stays low, that could be causing
Keep an eye on whether you feel worse when the barometric pressure shifts from south to north or vice versa
If an MRI doesn't show anything weird with your spine or whatever
Then you’re probably dealing with crappy circulation—basically just that heavy winter depression vibe
Get your serotonin levels checked via a blood test
And definitely get your T3, T4, and TSH looked at too

You'll start feeling more like yourself by early March 2021
restlesscobra13 restlesscobra13 MemberOP
16 messages
joined Dec 2020
#3 ·
Hello everyone,

I am reaching out today with my very first post.
Over the last week, I have been mostly dealing with joint pain—some joints are actually swollen—and an aching sensation in my shins, almost like I applied a cold gel to them.

Blood work results:

RBC 4.67 (3.86-5.08)
Hemoglobin 136 (119-157)
Hematocrit 0.410 (0.350-0.470)
MCV 87.8 (83-97)
MCH 29.1 (27.4-33.9)
MCHC 332 (320-345)
RDW 12.2 (9-15)
Platelets 258 (158-424)
MPV 12.7 (6.8-10.4)
WBC 4.9 (3.4-9.7)
Neutrophils 46.6 (44-72) # 2.30 (2.06-6.49)
Lymphocytes 34 (20-46), #1.68 (1.19-3.35)
Monocytes 11.9 (2-12), #0.59 (0.12-0.84)
Eosinophils 6.9 (0-7), #0.34 (0-0.43)
Basophils 0.6 (0-1), # 0.03 (0-0.06)

Iron 11 (8-30)
CRP 0.4 (0-5)
ASO titer 709 (0-200)

TSH 1.61 (0.27-4.20)
FT3 5.32 (3.95-6.80)
FT4 17.85 (12-22)
anti-TPO 49.71 (<34)
Anti-Tg 20.20 (<115)

Vitamin D, 25-OH,D 48.5 (recommended 50-200, insufficiency 24-74)
Vitamin B12 502 (145-637)
Folate 11.1 (recommended 7-39)

I guess I am wondering if strep could be causing my joint pain. It has lasted about a week now, and I am not quite sure what to do. My shins hurt and feel like they are radiating coldness. I also deal with chronic tonsillitis and vasomotor rhinitis according to my ENT.
brightgull95 brightgull95 Newcomer
7 messages
joined May 2022
#4 ·
restlesscobra13 said:Listen, folks,

I dropped my first post here a few days ago.
Over the last week, I’ve been dealing with these brutal joint pains—some of them are actually swollen—and this weird ache in my shins, almost like I’ve smeared cold gel all over them.

My blood work shows:
...

ASO antistreptolysin titer 709 (normal range 0-200)
...

What I really need to know is: could strep be causing these joint pains? This has been going on for a week now and I am at my wit's end. My shins hurt and they feel like they're radiating this intense coldness. On top of all that, I’m dealing with chronic tonsillitis and vasomotor rhinitis, according to my ENT.

Look, strep in general—or even a specific strain of it likeA—Group A, if you want to get technical—isn't the direct cause itself, but rather the antibodies produced by your body as a standard inflammatory response to them—yes, that's it.

There are specific criteria—primary and secondary—used to diagnose this, but from what you've told me, you haven't met enough of them yet. You've only mentioned one thing: arthritis(?). You need to go see a rheumatologist and a cardiologist immediately. The rheumatologist will be able to tell you if this is actually the strep issue you're freaking out about, and the cardiologist can too. They look for involvement in a second organ, which would satisfy one of the primary diagnostic criteria.
restlesscobra13 restlesscobra13 MemberOP
16 messages
joined Dec 2020
#5 ·
Thanks for getting back to me.

My symptoms started about two months ago when my left arm began tingling. Over the last few weeks, the pain has spread to my neck, back, shoulders, and occasionally causes headaches. I also deal with tinnitus from time to time. There is some suspicion regarding Hashimoto, but I am also really prone to strep throat infections (almost every winter). I saw an ENT specialist who mentioned I have vasomotor rhinitis and chronic tonsillitis. On top of that, the lymph nodes under my chin and in my neck are swollen, though the cervical ones are only slightly enlarged.
restlesscobra13 restlesscobra13 MemberOP
16 messages
joined Dec 2020
#6 ·
Nicholas Mendoza60 said:Maybe check your blood pressure three times a day; low pressure could be an issue.
Try seeing if the weather changes affect you, like when atmospheric pressure shifts.
If an MRI doesn't show anything wrong with your spine or such,
then maybe it's just poor circulation, which might lead to seasonal depression.
It might be worth getting a serotonin blood test.
Also, check your T3, T4, and TSH levels.

Things should start looking up by early March 2021.

Thanks for the reply.
My blood pressure is generally pretty low, around 95/60.
I had my thyroid panels done and they seem okay, though the antibodies aren't great (anti-TPO is 49.71, and it should be under 34, while anti-Tg is 20.20, where it should be under 115).
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#7 ·
restlesscobra13 said:Thanks for getting back to me.
My blood pressure is usually pretty low, sitting around 95/60.
I had my thyroid levels checked and they seem fine, but the antibodies are looking a bit sketchy (anti-TPO is at 49.71, when it should be under 34, and anti-Tg is 20.20, where it needs to be under 115)

Just cut out the gluten
It can totally throw your thyroid out of whack...
You're young, so just lean into nature and have a little faith and you'll be alright...
That low blood pressure is definitely a tricky one though...
restlesscobra13 restlesscobra13 MemberOP
16 messages
joined Dec 2020
#8 ·
Nicholas Mendoza60 said:Maybe cut out gluten.
I guess he could trigger thyroid issues.
Since you're young, maybe just nature and faith will help you feel better.
Low blood pressure can be tricky.

Thanks so much for the reply.
I suppose I'll just wait and see what happens, especially since my knuckles and fingers have started aching. My strep titer is also high at 709—normal is up to 200—even though my throat swab was negative. We'll see how it goes.
I'm hoping everything works itself out.
I actually prefer having low blood pressure, since everyone else in my family deals with really high blood pressure.
Brenda Parker5 Brenda Parker5 Active Member
59 messages
joined Aug 2020
#9 ·
If they can't give you a straight answer about what's causing these symptoms, then the last resort is basically just seeing a psychiatrist. Honestly, I think you might be running on fumes—your central nervous system is likely fried from some kind of chemical imbalance. You really ought to get an MRI of your brain just to rule out anything else serious. It feels like a classic case of anxiety-fibromyalgia to me.

Also, make sure you check your B12 and Vitamin D levels, plus your rheumatoid factor, ANA, thyroid antibody panels, insulin resistance, and cortisol.
What do your actual lab results look like? They really should align with whatever shows up on the MRI...
restlesscobra13 restlesscobra13 MemberOP
16 messages
joined Dec 2020
#10 ·
Jacob Lopez51 said:If doctors can't explain the symptoms, they usually just point you toward a psychiatrist. I guess maybe you might be a bit burnt out, so it could be your central nervous system or some chemical imbalance. It might be a good idea to get an MRI of your brain just to rule everything else out. This seems like it could be anxiety-fibromyalgia.

You should probably also check your B12 and Vitamin D levels, along with rheumatoid factor, ANA, thyroid antibody panels, insulin resistance, and cortisol.
What were the actual test results? They really should align with what shows up on the MRI...

I had blood work done on Monday and have some new results.
My thyroid hormones look fine, but my anti-TPO isn't, and they told me I'm slowly heading toward Hashimoto, though I don't need medication yet. My B12 is okay, but I was prescribed Vitamin D. My ASO titer is 709, while the normal range is up to 200.

I haven't done an MRI yet since I went to see a physical therapist first.
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#11 ·
Jacob Lopez51 said:If they can't find anything explaining the symptoms, then you're basically looking at the psychiatrist's door next. Honestly, I think you might just be burnt out... your nervous system is fried and your chemistry is totally out of whack. You should definitely get an MRI just to rule everything else out. It feels like some kind of anxiety-fibromyalgia thing...

Also, go check your Vitamin B12 and D levels, plus RF, ANA, thyroid antibodies, insulin resistance, and cortisol.
So, what do the actual labs look like? They really ought to line up with whatever shows on an MRI..

Insulin resistance (they're an athlete)
What does Vitamin D have to do with any of this?
Need an MRI to rule out MS too

The anxiety-fibromyalgia thing totally fits...
restlessdriver restlessdriver Member
17 messages
joined May 2019
#12 ·
Did you happen to get bitten by a tick? I'm wondering if you've had any Lyme testing done, since those MS symptoms—the musculoskeletal issues, numbness, and neurological stuff—can look so much like Lyme...
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#13 ·
restlessdriver said:Wait, did you get bitten by a tick or something? Have you actually gone out and gotten tested for Lyme disease? Because honestly, those MS symptoms overlap so much with Lyme... the muscle and bone aches, the numbness, all that neurological stuff... it's crazy.

Facts
But man, how much can you even trust those tests...
Brenda Parker5 Brenda Parker5 Active Member
59 messages
joined Aug 2020
#14 ·
The whole tick thing is honestly child's play at this point. If she didn't have that classic bullseye rash, just let it go. Just run a Western blot and call it a day—I know some people would absolutely love to see positive Lyme antibodies just to feel validated. I remember when those Arminlabs labs over in Europe were testing everyone who had Mono; they all came back positive, even though they’d never even been bitten by a tick. If they actually had been hit by a tick, they’d all be walking around claiming they have mental health issues caused by Lyme, despite having zero rashes and negative test results. Autoimmune stuff is a totally different beast—this condition is much closer to chronic anxiety and psychosomatic issues, basically fibromyalgia.
Then there's small fiber neuropathy, but you rarely see anyone actually getting a biopsy done for that.

Your best bet is to find a solid neurologist, an immunologist, and a psychiatrist.
restlessdriver restlessdriver Member
17 messages
joined May 2019
#15 ·
Nicholas Mendoza60 said:That’s true.
But how reliable are these tests, really?

The ELISA test is supposedly quite unreliable and prone to false positives or negatives. A Western blot is used as a confirmatory test to look for specific antibodies, which makes it much more accurate.

In extreme cases, a spinal tap might be used, but I wouldn't recommend that unless a diagnosis is absolutely critical...

As for the bullseye rash, it apparently shows up in about 70% of patients. Since that skin reaction isn't always present, we can't be certain without specific Borrelia testing.
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#16 ·
restlessdriver said:The ELISA test is supposedly pretty unreliable... can give you false positives or negatives all the time. You really need a Western blot to confirm things since they actually look for specific antibodies. That one’s way more accurate.

If things get really serious, you might be looking at a spinal tap, but honestly, that’s a last resort—only if the diagnosis is absolutely critical. I wouldn't suggest it otherwise... definitely not my first choice.

As for that bullseye rash, apparently it shows up in about 70% of cases, but skin reactions aren't a guarantee. You just can't be certain without running those specific Lyme tests...

Getting the Borrelia IgG and IgM blood work costs about 32 miles$25
down here in
Trebinja Do you think it's worth me doing this?
Brenda Parker5 Brenda Parker5 Active Member
59 messages
joined Aug 2020
#17 ·
restlessdriver said:The ELISA test is supposedly pretty unreliable—it can easily throw out false positives or negatives. A Western blot is what you use as a confirmatory test because they actually check for specific antibodies. That second one is way more accurate.

If things get really serious, you might look at a spinal tap, but honestly, I wouldn't recommend that unless a diagnosis is absolutely critical—it's a last resort.

As for that bullseye rash, apparently it shows up in about 70% of patients, and since the skin reaction doesn't always happen, you can't be sure of anything without specific Lyme testing.

In Chicago, Quest Diagnostics is probably your best bet because they send blood samples over to specialized labs for immunoblotting and various other panels. I paid for this myself once—cost me about $217—and they emailed me the results in just four days.

I started with an ELISA and KME at a local clinic—they actually give you a detailed report with all the parameters, whereas some places just give you a vague "positive" or "negative" without specifying which exact ones triggered it.

I took all those results to a Lyme specialist, and she basically told me that based on my labs, I’d never even been near a tick—even though my symptoms were a perfect 1/1 match. She told me to just forget about it. Yeah, right!

Back then, I was spiraling pretty hard with health anxiety, so I ended up getting every single scan and blood test imaginable...
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#18 ·
Jacob Lopez51 said:Honestly, if you want the most accurate stuff, go through Quest Diagnostics because they send your blood over to specialized labs for the Western blot and all those other specific tests. I remember paying about $217 for it once, and the results hit my inbox in just four days.

I started out doing the ELISA and KME testing at a local lab—they actually provide a really detailed breakdown with all the parameters, whereas some places just give you a basic positive or negative and leave it at that. If it’s positive, they tell you exactly what's going on.

So, I took all those results to a Lyme disease specialist, and she basically looked me in the eye and told me that based on everything, there was zero chance I'd ever even been near a tick, let alone had it... despite the fact that my symptoms were a 100% match. Yeah, right. Like that's ever gonna happen!

Back then, I was spiraling pretty hard with health anxiety, so I ended up getting every scan and blood test under the sun...

The Borrelia IgG/IgM blood draw is coming out to 32 miles-25usd
Should I just pull the trigger tomorrow or is this a total waste of money?
Brenda Parker5 Brenda Parker5 Active Member
59 messages
joined Aug 2020
#19 ·
Nicholas Mendoza60 said:The Borrelia igg/igm blood draw costs about 32 miles$25
Should I go through with it tomorrow or am I just throwing money down the drain?

I mean, I'm not sure—if you're really suspicious, maybe it's not an issue, because if you actually had it, your antibodies should be showing up by now... if your ELISA comes back positive, then you definitely need to follow up with a Western blot to confirm everything.
Nicholas Mendoza60 Nicholas Mendoza60 Member
27 messages
joined Jan 2021
#20 ·
Here’s what I’m dealing with
My blood pressure hits a low of 100 at its worst
A deviated septum
Sinus inflammation
Sleep is a total disaster... I’m having a million dreams but I just can't catch any actual deep sleep
During the day I get these tremors, plus anxiety and my focus is just shot
Headaches...
And honestly, I've felt exhausted my entire life... like, if I work one day, I basically need two days just to feel human again

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