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Heart issues/cardiac concerns

Started by Nancy Moore37 · · 👁 5 views · 23 replies

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Participants Nancy Moore37Nicole JamesPatrick Young2Harold Cook2Nicholas Davis4Melissa Phillips4Zachary Smith91Justin Phillips15Brandon Newman95restlessdriver
Nancy Moore37 Nancy Moore37 NewcomerOP
4 messages
joined Jun 2018
#1 ·
They actually caught an accelerated heart rate during my routine checkups back in elementary school, though I didn't really have any other symptoms at the time. By high school, the tachycardia had become much more pronounced. I went through several cardiology evaluations—my VA ultrasound was normal, I had a Holter monitor test where my heart rate hit 92 while resting in a hospital bed, and they even noted palpitations during an exercise stress test. The specialist over at the Mayo Clinic basically told me just to avoid heavy physical activity.

Things took a turn for the worse once I started college. On top of random spikes where my heart rate would jump to 140, I began feeling constant palpitations. I sought out a second cardiologist, but their take was that this was all psychosomatic and that I should go see a psychiatrist instead.

After some time passed, the situation became quite dire. After eating anything at all, I’d struggle to catch my breath for nearly an hour. I was also dealing with daily sharp pains in my chest. Eventually, a cardiologist saw me urgently and ran a Holter and an EKG. Based on those results, he prescribed Bisoprolol 2.5 mg. While that has allowed me to function somewhat normally, I still experience palpitations for at least half an hour every single day. The most unsettling part is the shortness of breath; it gets significantly worse right before my period and can last for hours. A recent Holter test taken while I was on the medication recorded 36 supraventricular arrhythmias, an average rate of 87 bpm, and a peak of 144 bpm during a walk. My doctor mentioned I need to undergo another stress test, but I have to wait six months for that. Given how things are going, I'm starting to feel a sense of panic and fear, especially during those moments when I feel like I'm running out of air and might actually collapse. The anxiety often keeps me from sleeping, and if I happen to forget my morning dose, everything falls apart. I'm only in my early twenties and don't have massive amounts of stress in my life right now. Does anyone have any advice? My doctor insists it isn't anything serious and tells me to just enjoy the summer, but it's incredibly hard to ignore what my body is doing.
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#2 ·
The fact that your VA ultrasound came back clear is actually really encouraging—honestly, if I were in your shoes, I wouldn't be losing too much sleep over it. That sensation of skipping beats can feel incredibly unsettling, but it isn't inherently dangerous. I remember having them myself during my last Holter monitor test—they were hitting somewhere around the 30,000 mark—and I turned out just fine. Is it possible that the fear of that skipping sensation is actually triggering a panic attack for you? Also, when was the last time you had your thyroid levels checked?

And please, stay consistent with your Bisoprolol 2.5 mg. If you happen to miss a dose, it could really throw your heart rhythm for a loop.
Patrick Young2 Patrick Young2 Member
31 messages
joined Jan 2019
#3 ·
I went through something similar with low potassium levels, but things leveled out once I started treatment.
Harold Cook2 Harold Cook2 Active Member
110 messages
joined Mar 2009
#4 ·
Gregory Turner71 said:The fact that your ultrasound came back clean is actually pretty promising, so I wouldn't sweat it too much. That skipping sensation you're feeling? Yeah, it's annoying as hell, but it’s not dangerous. I hit around 30,000 of those skips on my last Holter monitor and I'm still kicking. Is it possible that just being terrified of the skipping sensation could trigger a full-blown panic attack? Also, when did you get your thyroid checked?

And watch out with the Bisoprolol 2.5 mg. If you miss a dose, your heart is gonna go absolutely haywire.

What's the deal with the Bisoprolol 2.5 mg anyway?
Nancy Moore37 Nancy Moore37 NewcomerOP
4 messages
joined Jun 2018
#5 ·
Gregory Turner71 said:The fact that your ultrasound came back normal is actually pretty encouraging; I wouldn't stress too much about it. That skipping sensation you're feeling—it’s incredibly uncomfortable, I get it, but it isn't dangerous. On my last Holter monitor test, my counts were hitting around 30,000, and I turned out just fine. Is it possible that being afraid of those palpitations is triggering a full-blown panic attack? Also, when was the last time you had your thyroid checked?

And please, be careful with the Bisoprolol 2.5 mg. If you miss a dose, it can really throw your heart rhythm for a loop.

My thyroid levels are fine. It’s the panic attacks that are the real issue—they give me this shortness of breath and make me feel like I'm having a heart attack. Are you dealing with anything like that?
Nicholas Davis4 Nicholas Davis4 Active Member
106 messages
joined Mar 2023
#6 ·
It seems to me that hitting a heart rate of 144 during a simple walk—even while on medication—is unusually high. It feels quite out of proportion to the activity.
I’d say that feels more like a leisurely stroll than actual strenuous exercise.
I had a similar experience... my heart rate would spike to 200 just from bending over or a quick movement. It was quite intense.

I wore both a 24-hour Holter monitor and a blood pressure tracker at the same time. It was strange to see my heart rate spiking up to 150 bpm, even when I was just doing something simple like washing dishes at home.

Everyone kept insisting it wasn't a big deal, but to me, it felt genuinely overwhelming.
The echocardiogram showed some mild mitral valve prolapse, along with an occasional murmur.

They told me it was far too minor to be the culprit.
I haven't actually dealt with panic attacks myself. It wasn't really possible for them to pin my issues on something like that... but honestly, feeling that intense surge of fear when your heart starts racing? That’s just a natural reaction.

Long story short... I eventually reached my limit and told my cardiologist that I just couldn't deal with those symptoms anymore. She switched me over to Propranolol, and honestly, it’s been a total game-changer—I feel so much better now.
I believe that throughout my five years on this treatment, I haven't encountered a single issue.

Since I live with systemic lupus, there’s a higher likelihood of experiencing things like mitral valve prolapse and tachycardia—it affects about 30% of people in my situation. On top of that, because of antiphospholipid syndrome, I'm on a daily aspirin regimen to help with blood clotting. It might explain why they react a bit more strongly to my specific symptoms. It isn't a certainty, but my cardiologist is excellent and truly takes my concerns seriously.

If I were in your shoes, I’d definitely insist on seeing a cardiologist—maybe even getting a second opinion. A heart rate of 144 while you're on Bisoprolol 2.5 mg seems a bit off to me. Is it just me, or does that sound a little suspicious?

Without any medication, my average heart rate sits at about 97 beats per minute.
I am currently on therapy A at a dosage of 67.

I would personally head over to a different cardiologist. With a Holter monitor reading showing 144 bpm while you're already on medication and just taking a light stroll, it's definitely worth getting a second opinion to see what they think.

Keep me posted on how things are going!
I always find myself wondering what comes next.
Sharing our experiences can really make a difference; you never know when your story might be exactly what someone else needs to hear.
Nicholas Davis4 Nicholas Davis4 Active Member
106 messages
joined Mar 2023
#7 ·
I almost forgot to mention this!
You really shouldn't stop taking these medications abruptly...it can be incredibly dangerous.
For instance, the instructions on my Propranolol warn that stopping suddenly could trigger a heart attack...in extreme cases, it could even be fatal.
So please, don't make any sudden decisions about stopping your Bisoprolol 2.5 mg on your own.
While weaning off it might feel a bit smoother than it does with Propranolol, you still shouldn't just quit overnight.

On another note, I struggle with low potassium; whenever my levels drop, I get muscle cramps and my palpitations get much worse.
Have they checked your potassium levels lately? Low levels might be making everything feel more intense.
Last year, I also dealt with a severe bout of anemia for the first time, which made my heart race and left me winded just from a simple walk. Once I started iron supplements, things settled down. Even with the Propranolol, the low potassium and anemia definitely added some extra stress to my system—though it wasn't quite as overwhelming as when I wasn't on the medication at all.

It’s easy for these different issues to pile up and make everything feel much heavier.
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#8 ·
Nancy Moore37 said:My thyroid levels are fine. It’s the panic attacks that cause this shortness of breath—it honestly feels like I’m having a heart attack. Have you ever dealt with anything similar?

Well, shortness of breath is a classic symptom of panic... Do you struggle with anxiety in general, perhaps? For me, I only really felt that tightness in my chest when I got scared by an arrhythmia—mostly because I didn't know what was happening to my body at the time. That’s why I’m asking.

Anyway, try not to worry too much. It is definitely a smart move to see a cardiologist—you should never mess around when it comes to your heart—but since your VA tests, EKG, and Holter monitor all came back totally clear without any red flags, there really isn't any reason to spiral into a panic.

Maria Gray45 said:What is the goal with the Bisoprolol 2.5 mg?

It helps stabilize things "downward," but if your body becomes accustomed to it and you suddenly stop taking it, the regulation can swing "upward." You really have to be careful with beta blockers.
Harold Cook2 Harold Cook2 Active Member
110 messages
joined Mar 2009
#9 ·
Gregory Turner71 said:Shortness of breath is usually just a symptom of a panic attack... You dealing with anxiety issues or something? I only felt that tightness when I freaked out about an arrhythmia because I had no clue what was happening to me. That's why I'm asking.

Anyway, don't sweat it. It's smart that you're seeing a cardiologist—you never mess around with your heart—but since your VA tests, EKG, and Holter monitor all came back totally clean without anything alarming, there really isn't any reason to panic.

Yeah. It keeps things "down," but once your body gets used to it, if you suddenly quit cold turkey, your levels will spike "up." You gotta be careful with beta blockers.

I've been on it for almost 3 years now, and even when I forget a dose, I don't notice anything at all.
I keep reading how you aren't supposed to just stop taking it on your own, but my doctor told me I was basically just poisoning myself with it when I went in for an abdominal ultrasound, so I took her advice and just stopped.
Melissa Phillips4 Melissa Phillips4 Member
47 messages
joined Apr 2015
#10 ·
Nancy Moore37 said:My thyroid is fine. It's panic attacks causing this shortness of breath; feels like I'm having a heart attack. Do you deal with anything similar?

Are you overweight? Maybe you have PCOS? That could be the culprit.
Get your hormones checked out to see if they're the issue.
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#11 ·
Maria Gray45 said:I’ve been taking it for nearly three years now—there have been times when I actually forgot a dose, but honestly, I didn't notice any difference at all.
I keep reading about how you aren't supposed to just stop taking it without permission, but when I went in for an abdominal ultrasound, the technician told me I was basically just poisoning myself with it. So, I decided to take her advice and just quit.

🙂
There is absolutely no reason why someone who isn't your actual cardiologist should be giving you unsolicited medical advice regarding your prescription... It is beyond unprofessional.
Harold Cook2 Harold Cook2 Active Member
110 messages
joined Mar 2009
#12 ·
Gregory Turner71 said:🙂
Look, there isn't a single soul out there who isn't your actual cardiologist that should be giving you unsolicited advice on your meds... It's unprofessional as hell.

My doctor told me the exact same thing over two years ago—stop taking it immediately because it was going to wreck my liver in no time.
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#13 ·
Maria Gray45 said:She told me that more than two years ago—back then—that I should stop taking it because it would cause rapid liver damage.

That is just incredibly unprofessional. Honestly, unless you are the primary physician managing your care or another specialist who has actually examined you personally, no one else has the authority to hand out medical advice like that.
Nancy Moore37 Nancy Moore37 NewcomerOP
4 messages
joined Jun 2018
#14 ·
Melissa Phillips4 said:Do you carry any extra weight, or maybe you have PCOS? That could definitely be a factor.
You should probably get all your hormones checked out to see if that's where the issue lies.

No, I don't have any extra weight, and I haven't had my PCOS checked yet, though I am planning to.
I forgot to mention that they didn't perform a Doppler during my ultrasound; the doctor actually told me I was too young to be dealing with issues like that. How exactly is potassium diagnosed—is it through blood work? And is iron therapy usually handled with tablets?
Melissa Phillips4 Melissa Phillips4 Member
47 messages
joined Apr 2015
#15 ·
Renal Doppler or what...?
I need to see an endocrinologist to get my hormones checked out. They’ll probably want a Doppler scan of my renal arteries, maybe even the adrenal glands too.
Have you had an abdominal ultrasound yet? And that feeling of being sick after eating—could you be dealing with gallstones?
Zachary Smith91 Zachary Smith91 Newcomer
8 messages
joined May 2012
#16 ·
Nancy Moore37 said:My thyroid levels are fine. It's the panic attacks that trigger this shortness of breath—I honestly feel like I'm having a heart attack. Have you ever dealt with anything like that?

Sorry, just curious—do you normally deal with panic attacks?
Since I've been dealing with them for years now, the tachycardia and those weird heart palpitations almost always tag along with the panic. Obviously, you have to see a cardiologist to rule things out, but so often this stuff is purely psychological. Even when I'm just sitting there relaxing, my heart can start racing like crazy. Whenever my pulse spikes, a quick dose of an anti-anxiety med is usually the only thing that helps me settle down.
I mean... if that’s what you’re going through, then yeah, that could definitely be making everything else feel way worse.
Justin Phillips15 Justin Phillips15 Member
17 messages
joined Mar 2020
#17 ·
I dealt with a high heart rate about three years ago. They didn't find any underlying medical issues, so it was likely just driven by anxiety and panic attacks. Since then, I've been taking Bisoprolol 2.5 mg, which keeps my pulse steady between 60 and 80. There have been times when I forgot a dose, and honestly, nothing happened. You aren't going to drop dead from missing a pill if you don't have a serious heart condition.

It might be time for me to see a cardiologist, though, since I haven't had a checkup in three years. I've just been following the instructions I was given on day one.🙄 I might even be taking this unnecessarily now that I'm feeling fine.
Nancy Moore37 Nancy Moore37 NewcomerOP
4 messages
joined Jun 2018
#18 ·
Kimberly Stewart89 said:Sorry, but do you usually suffer from panic attacks?
Since I've dealt with them for years, the panic attacks often come paired with tachycardia and heart palpitations. Of course, you really ought to see a cardiologist, but much of it is rooted in psychological stress. Even when I'm just resting, my heart can start racing erratically. For me, whenever my pulse starts climbing, taking a sedative has always been a lifesaver.
I mean... if you are dealing with those kinds of issues, then that could definitely be making everything feel worse.

Actually, I don't typically have panic attacks. It’s strange because this happens at completely random times—like when I was sitting in a theater or just lying quietly in bed at home. I read somewhere that supraventricular arrhythmias cause shortness of breath, so that might be what's happening. I do experience panic attacks occasionally, but it's rare, and they usually happen at night because my heart wakes me up.

As for my kidneys, I haven't actually had them checked, nor have I had a VA ultrasound of my abdomen. I honestly get the feeling that doctors aren't taking me seriously; it feels like they think I'm exaggerating my symptoms, so they won't even refer me for those kinds of tests.
Melissa Phillips4 Melissa Phillips4 Member
47 messages
joined Apr 2015
#19 ·
Go private then, if you can actually afford it. You’d be sitting in a hospital waiting months just to get a VA ultrasound anyway.
Brandon Newman95 Brandon Newman95 Active Member
245 messages
joined Jun 2024
#20 ·
Nancy Moore37 said:It’s not even like I get full-on panic attacks, which is what makes it so weird. It just hits me out of nowhere—like, I'll be sitting in a theater or just chilling in bed at home, totally fine, and then boom. I read somewhere that supraventricular arrhythmias can cause shortness of breath, so that’s probably what I'm dealing with. I mean, sure, I do get actual panic attacks sometimes, but it's rare. Usually, it happens in the middle of the night because my heart just jolts me awake.

As for my kidneys... honestly, I haven't really had them checked, or even gotten an abdominal ultrasound. I just feel like the doctors aren't taking me seriously at all. They act like I'm totally exaggerating everything, so they won't even bother sending me for those kinds of tests.

Basically, look, if you aren't overweight, check your legs first. If they look swollen, go see a doctor at a clinic like Mayo Clinic or whatever, and if you're also struggling to breathe just from walking a little bit, start making some noise and getting aggressive about it. Also, if you're on hormonal birth control, get your thyroid checked. And if it's been a while since your last blood work or if you're prone to anemia, check your iron levels. For anything else, just DM me. Don't mess around with your heart rate if it's too high—mine was off the charts for no reason and turned out to be something serious. Oh, and check your blood sugar/glucose too.

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