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Living with a double uterus (uterus duplex)

Started by Michael Palmer862 · · 👁 5 views · 38 replies

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Participants Michael Palmer862stormyheron4Steven Carter10cosmicgardener36redsailor11Harold Cook2Robin Rogers11Ryan Morris15goldenpilot62Robin CarterSteven Scott51dustysailor13Douglas King62mistydrifter55Hannah Cook4cosmicwolf27Alex Taylor10Hannah Garcia36Sophia Lopez89Brenda Johnson13darkhawk21
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#1 ·
I need some help and a bit of perspective from you all. Should I move forward with certain treatments or not? Please weigh in—I really hope I’m not the only one dealing with this.

Moderator note

The original thread title "I have 2 uteri and 1 ovary" has been renamed to "Uterus duplex (double uterus)".
stormyheron4 stormyheron4 Active Member
86 messages
joined Aug 2009
#2 ·
Kimberly White36 said:I really need some advice and to hear about your experiences. Should I go through with this kind of thing or not? Please weigh in—tell me I’m not the only one thinking about this.

Look, since we're talking about something this serious, maybe you should just run it by your OB-GYN first.
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#3 ·
I went to see a gynecologist, but it turns out he didn't have much experience with this specific situation. I really want to hear from another woman—someone who has actually dealt with this and gone through the process of giving birth to a child with these needs. I’ve gathered about ten different opinions already, but everyone seems to be saying something completely different from the next person.
Steven Carter10 Steven Carter10 Newcomer
2 messages
joined Jan 2009
#4 ·
stormyheron4 said:Given how serious this is—I mean, if you're planning on having kids—it probably wouldn't hurt to run it by a gynecologist.

I assume she already checked with her doctor, but she really needs to find someone who’s dealt with this exact issue. I’ve honestly never heard of anything like this before. From what I can gather—and I'm certainly no expert here—this would imply that even if you're pregnant, you could somehow conceive again. Could you please clarify what's actually going on? I'm genuinely curious...😉>
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#5 ·
They told me my chances of survival were slim because this isn't just a typical pregnancy. I've had two hymenectomies in the past, and they operated so I could have a relatively normal sex life, but when it comes to my uterus, no one is willing to touch it. There’s a septum dividing it right down the middle.
cosmicgardener36 cosmicgardener36 Newcomer
3 messages
joined Jan 2009
#6 ·
What you’re describing sounds like uterus didelphys. You might want to look that up online to get a better handle on it. Usually, each uterus has its own cervix and connects to one fallopian tube and one ovary, though it really depends on how the malformation turned out. Some women even have two vaginal canals.
On some American forums, I've seen women sharing their experiences with a double uterus, and quite a few have successfully gotten pregnant and given birth.
In cases like this, it's pretty common for women to carry twins 🙂 who end up being born at two different times. 🙂
With these kinds of pregnancies, there is an increased risk of miscarriage or preterm labor, and most women end up having a C-section.
Some researcher named Heinonen conducted a study suggesting that about 67% of women with a double uterus have successful births. Out of that group, 43% had breech births, and 21% dealt with premature delivery.
Then again, I guess you shouldn't take statistics as gospel; every woman's situation is unique.
So, yeah, you can get pregnant and have a baby, but you definitely need to realize the pregnancy will be higher risk, meaning you'll need to be extra careful and stay close to your doctor.
It's probably a good idea to get a 3D ultrasound to see exactly how your uteri are shaped, just so doctors can better predict how things will develop as the baby grows.

Anyway, try to learn as much as you can about your specific condition before trying to conceive. From what I've read from other women online dealing with the same thing, they seem to suggest just going for it without letting fear or overthinking get in the way.
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#7 ·
You’re truly one of a kind, cosmicgardener36
cosmicgardener36 cosmicgardener36 Newcomer
3 messages
joined Jan 2009
#8 ·
Good luck, lady! 🙂

Here’s a link where some women share their own stories.

http://www.medhelp.org/posts/show/184351

It’s in English, though I assume you're fine with that.

Did the doctors tell you there's a low survival rate if you go through with the pregnancy?
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#9 ·
Yeah, exactly them
redsailor11 redsailor11 Member
11 messages
joined Jan 2009
#10 ·
Maybe try seeing the doppelganger for your prenatal care—it’s worth checking them out for info.
The girls who posted about that clinic here said everything was top-tier—service, the way they talk to you, the explanations...
plus, unlike those massive public hospitals, they actually have time for all your questions and won't just brush you off...
The price tag is a bit steep, I guess, but hey—pregnancy and a new baby are worth way more than some extra cash...
assuming you can swing a private clinic, of course..
Give it a shot 🤷
Harold Cook2 Harold Cook2 Active Member
110 messages
joined Mar 2009
#11 ·
Honestly, I’ve never even heard of that happening before... but look, if I were in your shoes, I’d definitely go out and get a second (or third) opinion from a bunch of different doctors. You really need to dig deep and ask all the right questions. We're talking about a pregnancy here—it's your life and the baby's life on the line. Good luck, seriously!div>
cosmicgardener36 cosmicgardener36 Newcomer
3 messages
joined Jan 2009
#12 ·
I'm with the ladies on this one—get a second opinion from more doctors. Don't just throw in the towel right away.
Could you explain the thing about the septum a bit more? Some women have a single uterus but have a divider down the middle, a uterine septum, which basically splits the uterus into two sections. Are you saying you have two separate uteri plus a septum? Where exactly is that divider located?
A friend of mine had that septum issue and ended up having surgery for it. She's actually trying for a baby right now.
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#13 ·
That’s a matrix split into two parts by a partition—who performed the surgery on it?
cosmicgardener36 cosmicgardener36 Newcomer
3 messages
joined Jan 2009
#14 ·
Kimberly White36 said:It’s like a matrix split into two parts by a divider—who even operated on her?

Well, yeah...
I think she went to Boise to get some tests done since the wait times at the local hospital were getting ridiculous. Eventually, a surgeon at the Mayo Clinic handled the procedure over in the OB-GYN department. I’ll have to ask her for the doctor's actual name and then I'll let you know.
Robin Rogers11 Robin Rogers11 Newcomer
1 message
joined Feb 2009
#15 ·
hey there...
So, I know this woman who actually has two uteri, and she ended up having two perfectly healthy baby girls.
She didn't even realize she was rocking a double setup until she got pregnant—that’s when the doctors finally dropped the news on her.
Anyway, the whole pregnancy was totally routine, nothing crazy, everything went smooth as silk.
We were actually laughing about it the other day... like, imagine having to be extra careful during pregnancy just so you don't end up pregnant again... heh.
Ryan Morris15 Ryan Morris15 Active Member
54 messages
joined Jul 2009
#16 ·
Kimberly White36 said:I could really use some insight or shared experiences here—should I be pursuing this kind of approach or not? Please let me know if I'm perhaps not the only one dealing with this.

An acquaintance of mine who faced a similar situation ended up having a perfectly healthy baby, though I suspect she had a C-section. Her OBGYN mentioned he hadn't encountered anything quite like it before, so he advised her to take extra precautions during the pregnancy and schedule more frequent checkups. Best of luck!
goldenpilot62 goldenpilot62 Newcomer
2 messages
joined Jan 2009
#17 ·
My cousin actually dealt with the exact same thing. She ended up having a perfectly healthy baby girl, just totally normal... I don't know what your specific scans showed, but in her case, she had a septate uterus, and as the baby grew, it just pushed against that divider. So, zero complications, everything turned out fine... 🙂
Robin Carter Robin Carter Newcomer
3 messages
joined Jan 2008
#18 ·
As some of you may already be aware, I have been dealing with spontaneous miscarriages. Now, a few people have suggested that I should probably get checked to see if I might have a uterine septum. However, I can't help but wonder... wouldn't that have shown up on one of my previous ultrasounds? I’ve had quite a significant number of them already... How is a uterine septum actually diagnosed, anyway?
Thank you 🙂 😘
Michael Palmer862 Michael Palmer862 MemberOP
14 messages
joined Jan 2009
#19 ·
My doctor diagnosed me just through a standard exam, then later confirmed everything with a vaginal ultrasound. I know from experience that if you have a vaginal septum like I did, having intercourse can be impossible. My advice is to head back to the doctor and ask specifically for a vaginal ultrasound. What was the process like for you when you had yours?
Robin Carter Robin Carter Newcomer
3 messages
joined Jan 2008
#20 ·
Well, since I’ve experienced two miscarriages, they have been performing several vaginal ultrasounds on me via the Veterans of Foreign Wars medical center... and most recently, they did three in a row! Not a single soul offered any commentary... nor did anyone suggest anything seemed suspicious, even though I was being examined by three different doctors.
I suppose that means it actually can be detected on an ultrasound. One would think someone would have noticed by now, wouldn't you agree?
THANKS

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