#1 ·
Hey everyone! I was wondering if anyone else here is dealing with this same diagnosis? Every time I search online, I can only find info meant for kids; there’s almost zero content out there regarding adult experiences. I'd love to hear about the treatments you're using, any side effects, or even small wins... honestly, anything helps. I was diagnosed last May, shortly after a minor car accident—nothing too crazy, just a whiplash situation—but the doctors aren't sure if that actually triggered it. None of my tests have pointed to a definitive cause yet. So far, I've gone through seven rounds of hospital-based physical therapy, plus some private therapists and acupuncture (which, honestly, has been a lifesaver for relaxing my muscles and grip). During the first month, I had some Allergan injections, which isn't covered by Medicare and ended up costing me $600. I'm not quite sure what else to say... please reach out and share your stories...