#21 ·
Sean Anderson29 said:45 years, 6 months, and 3 days. No, I'm not 75—though I suppose that’s what everyone assumes...
What would happen if I just stopped treating this condition? What are the actual life expectancy prognoses? My diagnosis is Paroxysmal AF with spontaneous conversion to sinus rhythm.
It caught me off guard during a dream—I was high up, and since I have a fear of heights, I woke up abruptly, my heart just thumping... thump... thump-thump-thump... thump... thump... ...thump-thump-thump... thump... thump... It lasted from about 1:00 AM until nearly 6:00 AM, until it finally reverted to sinus. And it wasn't just a self-correction; the medics were actually considering shocking me back into rhythm...
I had a few AF episodes in previous years without even realizing it was AF; they usually lasted 10–15 minutes and then vanished. Both times happened at night, while I was awake. I went to the ER once, but the doctor told me not to bother coming in unless I had chest pain or issues in my shoulder or arm... Anyway, I saw my primary care physician and a specialist, got a referral for a Holter monitor and a stress test, and was supposed to follow up with the specialist... I showed up, but seeing as I was clearly the youngest person there among 20 or 30 patients, I demonstratively walked out of the clinic and tossed the results.
Long story short, after the ER visit, I went to my regular doctor. She gave me a referral to a cardiologist, I got an appointment, and she provided some beta-blockers for free while I bought some calcium supplements. But, knowing—or rather, assuming—what this was, I didn't want to start taking them until I attempted a bit of light physical labor. My body wanted to push, but my heart simply wouldn't allow it—it felt incredibly weak. That was when I realized I had to swallow the pill, metaphorically speaking...
But looking back now, things have changed. In the afternoons, I used to be able to nap for thirty minutes or an hour without any trouble... Now, that's gone. I used to be someone who barely spoke much; now, I ramble at a hundred miles an hour. I'm not myself anymore. I would trade five years of my life just to have those fifteen back. My heart feels better, I can't deny that—the therapy works—but I am "drugged," in the truest sense of the word. And I'm not one of those people who enjoys being that way; others seek out these or similar therapies from their doctors, even buying them elsewhere... Personally, I value a clear head more than anything else. I think... There aren't many things as beautiful as a good book, but how can I read when I'm drugged? I mean, I could, but it isn't the same—it's significantly different. Not to list everything... My life has fallen into a pit. When I was younger, if I wanted to, I could have a drink or something else, and in a day or two, everything would clear up—head sharp and ready. But here, there is no going back. I am condemned to be medicated—something I don't even want anyone to pay me to do—or die sooner. It's a disaster. And I am getting closer to choosing the latter. I want it back! I want to be me again! Or...
Based on what you've shared, it isn't clear why you are taking the BB (specifically, the reason your doctor prescribed them).
BBs aren't meant to prevent a recurrence of paroxysms, nor are they used to maintain sinus rhythm. There are other medications for that—propafenone, dronedarone, amiodarone...
Additionally, if you don't have other comorbidities (hypertension, diabetes, thromboembolic incidents...), and you haven't suffered major illnesses in the past, I might suggest aspirin, though maybe not even that. Following current American cardiology guidelines for treating atrial fibrillation, I wouldn't introduce anticoagulant therapy (since, if you have no comorbidities, your CHA2DS2-VASc score is 0; meaning the risk of a thromboembolic event is low).
Have you had an echocardiogram? If your heart structure is healthy, I would opt for propafenone. You could use it as a "pill in the pocket" specifically for when a paroxysm occurs.
I would definitely suggest removing BB from your medication regimen—since there is simply no clinical need for "rate control" when you are already maintaining a normal sinus rhythm.