CheckEmoji Community · the emoji forum
🏠 Home 🆕 What's new ❓ Unanswered 🔥 Popular 📡 RSS Members 👥 0 online log in · register
Home › Lifestyle › Health › Dealing with a mix of symptoms: paroxysmal AFib, beta-blocker intolerance, and low body temperature.

Dealing with a mix of symptoms: paroxysmal AFib, beta-blocker intolerance, and low body temperature.

Started by Sean Anderson29 · · 👁 9 views · 62 replies

📡 Subscribe to replies

Participants Sean Anderson29Jose Clark2Kevin Hayes83Bryan Barnes2Walter Thomas18
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#41 ·
Sandra Vaughn50

First off, thanks a ton for the reply.

As for Propafenone, yeah, if I could just keep it as a pill in my pocket for whenever an episode hits, I’d absolutely take it. But for daily, long-term therapy? No way, not considering what the official drug info says:

http://www.mayoclinic.org/drugs-supplements/propafenone-oral-route

When I brought up that 4 or 5-year window earlier, I meant that under the condition that I don't try to fight this disease with heavy chemicals. It's common knowledge that chemo-style treatments would probably shave those 4 or 5 years right off my life. I truly have no intention of treating my body with poison, except maybe occasionally just to get myself back in rhythm, exactly like you suggested.

And all this drama is really just a product of how I'm feeling—which is being made way worse by the brutal side effects from Tyrez—because honestly, I don't feel nearly as good as I used to. My body could handle less physical exertion, but my heart just can't take it. This is a heavy sickness to deal with, especially since every single article you read about it inevitably brings up blood clots, strokes, heart attacks, and failures... I'll be a much happier man if I'm just overreacting and if I can actually go back to working physically once I recover...

I drink about a few ounces of red wine a day, or maybe a shot of hard liquor, and rarely both. I had a gut feeling that I could pull through this, and now that you've confirmed it for me—tomorrow, I'm getting back to my old routine.

I appreciate the advice, and I'm certain it comes from a good place, but I'm passing on the psychological help. My counselor is Jesus Christ, and if He doesn't help, then nobody can, and certainly not some guy I visit where I'm just a number among 500 others who follows a script, writes a prescription, and leaves me to deal with the side effects—dry mouth, losing my sense of taste and appetite, insomnia, or sleeping 12 hours a day and whatnot. I've lived 45 years without that kind of help, and I'll manage however long it takes. That's not how you solve problems; you just pile them up and sweep them under the rug.

Fear is actually useful here; if I didn't have any fear, I would have kept blindly pushing forward with Tyrez and ended up in a state nobody would wish on their worst enemy.

I see we don't look at everything through the same lens, but that doesn't diminish my gratitude or respect for you even one bit. You've helped me more than you probably realize. I'm not saying you're wrong about everything, but hey, let's just agree to disagree...

Anyway, let me finally lay out my treatment plan for my diagnosis:

Hawthorn tea or tincture (to generally boost cardiovascular function)
Ginger, as a preventative (to thin the blood)
Avoiding heavy physical strain
Regular walking
Mediterranean diet
Emotional self-control
Meditation

Side effects🙏none; clear-headed, mentally calm, sleeping well, good appetite and sense of taste, normal blood pressure, rested, not exhausted, no dizziness or headaches, and no nausea, vomiting, or diarrhea, etc.

Sandra Vaughn50, thanks for the well wishes, and I wish the same for you.
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#42 ·
Sandra Vaughn50 said:Look, if your heart structure is actually healthy, I’d say just go ahead and take the propafenone. Honestly, I’ve used it myself as a...I’m telling you right now, having that pill tucked away in your pocket is a total game changer, seriously. It’s like having a secret weapon or some kind of lifesaver just sitting there ready to go whenever things go south. I don't care what anyone says, you just can't beat that feeling of being prepared for whatever crazy situation pops up out of nowhere. It's honestly such a relief, man.In the event that you start dealing with those sudden, intense paroxysms.

Look, Doc, listen to me...

So, if we swapped out propafenone for something like droneadron—or even amiodarone—would that still count as having a "pill in the pocket," or would one of those two options actually be the right way to go?

Look, if anyone’s got a lead on a book—specifically an American one, not some overseas text—that breaks down how the heart actually functions, I’m all ears. And listen, don't come at me with those massive, dense medical textbooks that read like a dictionary; I need something for a regular person to actually wrap their head around. Just something straightforward so a layman can finally get what's going on under the hood without needing a PhD. If you could point me toward a specific title, or even just a solid chapter in a book that explains things clearly, I’d seriously appreciate it. Any suggestions?

Now that I’ve actually got a diagnosis on the table, I’m obsessed with figuring out how my heart actually works—like, I want to know the exact anatomy of the thing and where my specific issue fits into the whole biological machine. I honestly feel like if I can just wrap my head around the mechanics of it all, I might actually be able to help myself somehow. I don't quite know how I'm going to go about it yet, but I have this gut feeling that understanding the science is the key...

Thanks in advance!
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#43 ·
Alright, let me jump in here and brag a little about my freakishly low body temperature. Using a digital thermometer, I’m averaging around 96.3°F. Sometimes there's a whole degree difference when I check both armpits—sometimes just half a degree, but the left side is consistently lower than the right.
But honestly, that's just the tip of the iceberg. My resistance to the cold? Non-existent. If the AC kicks on or the room gets chilly and I strip down to a T-shirt, my temp drops straight to 94.6 or even 93.5, so I basically have to bundle up immediately. In the winter, I’m wearing a beanie inside my house, outside, and even while I'm sleeping.
When I take a shower in the winter, my temperature can dip below 93.2 right after; I have to scramble into bed just to warm myself back up.
If I stayed outside in the winter without a hat, I’m pretty sure I’d get brain freeze from the sheer cold. And if I go out underdressed in the winter, my body temperature just keeps plummeting—I feel like it won't stop dropping until it hits whatever the ambient temperature is outside, whether that's 5 or 10 degrees.

Blood pressure is totally fine.
My blood work from the local clinic was also normal, and my thyroid is working perfectly fine. Plus, I don't have any of those classic symptoms you get when your thyroid is acting up.
Pulse stays between 45 and 55, though it can spike higher than that.
I'm not on any medications or therapies whatsoever.
I'm 6'0" tall and weigh about 190 lbs.
I'm 45 years old.

The doctor just tells me, "It's nothing to worry about."
And I'm just like, "Fine, whatever."

This whole thing has been going on for the last 4 or 5 years; before that, I never had any issues with being cold all the time.

Now, during the summer, I can sometimes push it up to 97.7, but even then, if it's scorching outside, I have to stay completely still, lie on my back in bed, and focus on breathing properly—basically meditate—otherwise, I can't hit those numbers.

It's not like it's some massive burden or anything, it doesn't ruin my life, I've just gotten used to it—I just dress well and call it a day.
It's just that I'm genuinely curious about what the actual issue is, and why my temperature under the left armpit is up to a full degree lower than the right side.
What exactly isn't working right in this supposed "evolutionary miracle" we call the human body???
Or maybe I've got some weird condition that hasn't even been registered as a disease yet, so nobody knows it exists, which means nobody knows the causes, the symptoms, the consequences, or how to treat it.

"It's nothing!" seriously.

xaxaxaxax
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#44 ·
4. Meditation actually strengthens your heart
Scientists have officially proven that meditation does wonders for your blood pressure and how your heart functions. By meditating, you’re basically taking direct control over those stress hormones and keeping them totally in check.
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#45 ·
If we're dealing with a brand-new disease, you might just get the honor of having it named after you. 😁 😉
Jokes aside... weak pulse, low body temperature...
You claim your kidney function is fine. Do you actually have lab results with specific numbers?
You’re describing the exact symptoms I experienced when I went without hormone therapy for a month (I take euthyrox; I don't have a thyroid).
Is your body retaining fluid (swollen face and things like that)?
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#46 ·
Walter Thomas18 said:If this turns out to be some brand new disease, you’ll probably get the honor of having it named after you 😁 😉
Anyway, getting back to business... weak pulse, low body temperature...
You claim the thyroid is fine, but do you actually have the lab results with the specific numbers?
I had similar symptoms myself when I was off hormone therapy for a month (I take Euthyrox because I don't have a thyroid).
Is your body retaining any fluid—like, is your face puffy or anything?

I had my thyroid checked recently because of my heart, but I've been dealing with an extremely low body temperature for about two years now; I really felt the impact after one super stressful two-month stretch. I didn't even own a digital thermometer before, and those old mercury ones don't even register anything below 35.5. But yeah, I definitely didn't have these symptoms a few years ago.

My body isn't retaining fluid, my face isn't puffy, I'm not exhausted, I'm not feeling weak, I'm not dizzy, I'm not gaining weight, and I'm not losing weight... everything else is totally fine, except for the temperature being low and my body's ability to handle the cold—which is absolutely zero.

Immunology lab results (August 10, 2015):

Free T4 Triiodothyronine 15.80 (result) 11.5 - 22.7 (reference range)

TSH Thyrotropin 1.80 (result) 0.3 - 5 (reference range)

They tell me these thyroid results look good. Supposedly.

But I still have a massive problem here. Where this is coming from and why it's happening is basically worth a Nobel Prize in medicine at this point.

I am constantly freezing the second the weather cools down; hats are hands down the most important thing in my life right now—I already own four or five and I'm planning on buying two more just for this winter. Fleece pajamas are just as vital; I literally wear jeans over them whenever I step foot outside my house. And I live in Seattle, where a healthy person could practically spend the whole winter in just a light t-shirt.

But whatever, the doctor tells me it's nothing.

TSH Thyrotropin 1.80 (result) 0.3 - 5 (reference range)
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#47 ·
Walter Thomas18 said:The symptoms I went through when I was off my hormones for a month (I take Euthyrox because I don't have a thyroid).
Are you dealing with water retention, like your face looking all puffy and stuff?

It just hit me—are you seriously telling me your thyroid is perfectly fine but we’re feeling the exact same way? So what kind of illness is that even supposed to be? Where does it even come from, which organ is acting up, and what's actually causing it?

I'm not out here trying to "cure" it, and I definitely wouldn't touch heavy meds or chemicals just for this, but man, I'd love to actually know the root cause. If there's a way to hunt it down and deal with it properly, great, but if not... whatever, I'll just live with it. It hasn't totally ruined my life or anything, and it's not like it's killing me right now...
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#48 ·
Walter Thomas18

So, tell me, does it actually make a difference if I’m measuring under my right arm versus my left? And if it does, how much of a gap are we talking about? Because right now—literally this second—my right side is sitting at 35.0, while the left is up at 35.7.

And hey, let me brag for a sec, I actually hit a personal record once; I saw it dip below 33.0, maybe somewhere around 32.8 if I remember right.
It’s freezing out, my bathroom is ice cold, and taking a hot shower is basically the ultimate setup for breaking a record. But then, as soon as I dry off with a towel and get dressed, the temperature starts tanking, so I have to scramble into bed, huddle up under the duvet and a bunch of blankets, and just wait for a bit until I can finally crawl back up to 34.8 and actually feel okay again...
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#49 ·
I’m not sure what to make of this.
I know body temperature can drop below 96.8 when taking antibiotics. However, I have no idea what the pulse looks like in that state.
Your circulation is definitely poor. It isn't normal, according to your doctor.
Have you been to Kaiser Permanente? Are you dealing with any inflammation or a virus? If so, your temperature would likely be elevated.
My kidneys aren't healthy—I don't even have them. That slow pulse and constant feeling of being cold was the result of me not taking my hormones.
If I were you, I’d get a full blood panel done and see a cardiologist.
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#50 ·
Walter Thomas18 said:I honestly don't even know what to tell you here.
I know your temperature can drop below 97 when you're on antibiotics, but I have no clue what your heart rate would be doing then.
Your circulation is definitely shot... it’s just not normal (at least according to your doctor).
Did you get checked out at Kaiser Permanente? And are you sure you aren't dealing with some kind of infection or a virus...? Because if you were, your temp would probably be running high...
My kidneys are a mess... I don't even have them. That slow pulse and that weird feeling of being freezing cold was all because I wasn't taking my hormones...
If I were in your shoes, I’d get a full blood panel done and go see a cardiologist immediately.

So, it's 7:15 AM right now, and the temp under both my right and left arms is steady at 96.3 and 96.1, with a pulse of 48.

As for the circulation thing, I have no idea—how am I supposed to check that? (By myself, at home, if there's even a way to do it?)

I mean, I'd definitely feel it if I had a virus or an infection, but I don't feel anything. And I have no clue what KKS is? Maybe I do, but I don't recognize the acronym.

I've already been through blood tests.
And about a month ago, I had an arrhythmia episode where they diagnosed me with Atrial Fibrillation. I've posted a bunch about it in the beta blockers thread, and I actually uploaded two sets of ER results there—both the blood work and the cardiologist's report. If you want to take a look, go ahead; I think those numbers look fine.
I also have the hard copy of the ER blood work that I haven't typed out yet; my sodium levels were just a little bit low. If there’s something specific you're looking for in those results, just let me know and I'll transfer the info or type the whole thing out for you.

Anyway, I don't really know what to say, other than that I'm dealing with some unknown illness until proven otherwise.
But I can't even get a straight answer since I'm stuck at step one with my primary care doctor, whose response is basically: "It's nothing!" So... yeah.
But whatever, it doesn't freak me out too much because it's something I can live with.
I'm more interested in finding the actual cause than just treating the symptoms (unless we're talking alternative stuff), because once I read the side effects listed on the medication inserts, I'd rather just stay the way I am...

Oh, and another symptom: in the winter, it feels awkward to shake someone's hand. It's like I'm handing them a piece of frozen iron because my fingers get that cold.
And when I see some guy without a hat in the cold, I honestly can't wrap my head around how he handles the winter. He's got a coat and everything, dressed well, but no hat, bald, just standing there phlegmatically waiting for the bus at the station, and I'm looking at him thinking there's no way... I'd be dead within half an hour, or my head would split wide open, my brain would freeze solid—I wouldn't even dare experiment with what would happen, even though a part of me is curious to see how far it goes...

It's a weird disease, honestly. For now, I'll just call it "nothing."
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#51 ·
Kaiser Permanente - full blood panel.
I see you already had that done.
I'm not sure what to say. I dealt with low body temperature while on antibiotics, and if you factor in my pulse and how cold I felt when I was off hormone therapy (stopped taking euthyrox), it's been an issue.

If I were in your shoes, I would definitely go see a private cardiologist. There is no harm in getting another professional opinion.
The doctors we see through our insurance providers can be hit or miss—ranging from incredibly skilled and kind professionals to the complete opposite (arrogant, self-important people whose medical knowledge is barely more than mine, and I'm not even a doctor; I just make sure I'm well-informed so I don't get pushed around by those arrogant types). You might have just run into one of the bad ones, so perhaps someone else in private practice can provide the actual diagnosis.
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#52 ·
Walter Thomas18 said:Kaiser Permanente—it’s basically a total blood work overhaul.
So, I see you guys finally went ahead and pulled that thing out.
I honestly don't even know where to start with this mess. I hit this wall of having a super low body temperature while I was on that antibiotic course, and man, if you factor in my pulse and that constant, bone-chilling feeling of being freezing all the time... it gets even worse when you consider I was totally off my hormones after I stopped taking Euthyrox. It's just been one thing after another.

If I were sitting exactly where you are right now, I’d be out the door and heading straight to a private cardiologist faster than you can blink. Seriously, don't just sit there taking it—go get another professional opinion from someone who isn't tied to some bureaucratic system. There is absolutely no reason to stay quiet and just wonder what's going on when you could be getting real answers elsewhere.
Look, let me tell you something about the doctors we deal with through our insurance providers—it’s a complete toss-up. You get everything from these absolute legends who are incredibly kind and actually know their stuff, to the total opposite end of the spectrum. I’m talking about those arrogant, self-important jerks who act like they own the place, even though their medical knowledge is barely better than mine! And believe me, I’m not even a doctor; I just spend way too much time obsessively researching everything so I don't get played when I run into one of those ego-driven hacks. Maybe you just happened to hit the jackpot with a bad one, and then later on, some specialist at a private clinic finally steps up and gives you an actual, legitimate diagnosis.

I mean, does anyone actually know what kind of hellish disease this thing even is? I only brought it up here because I joined this forum right after getting slapped with an Atrial Fibrillation diagnosis, and honestly, we’re talking about a total "to be or not to be" situation here. I’ve already ranted quite a bit about this over in the beta blockers thread, too. My heart rate is low, which isn't even my main headache, but man, this whole mess is just unreal.

Look, just between us—and I really do appreciate the advice, I truly do—but there is absolutely no way in hell I’m going running from doctor to doctor. It’s a never-ending cycle, man. You go from one specialist to the next, one test after another, and honestly? It’s a total money pit. I feel like I’ve already lost my health in this process, and at this rate, I might as well just hand over my entire life savings too! If I actually had more cash lying around, sure, I wouldn't hesitate to drop a fortune on more testing, but right now? It’s just ridiculous.

Look, I officially fired my cardiologist from the public health system. Honestly, it was a total no-brainer. This guy was pumping me full of meds that had way too many side effects, and to make matters worse, the whole treatment plan was completely wrong. I’m not about to sit there and let someone mess with my health like that—it's absolutely unacceptable to me. I actually went on a bit of a tear about this in that other thread regarding beta blockers, because seriously, what are these people even doing?
Look, I’m not exactly flying solo here without some medical guidance, either. We actually have a cardiologist hanging out on this forum who’s been a massive help to me so far, and honestly, I’m counting on them to keep looking out for me down the road too.
So, my doctor actually gave me a treatment plan that actually works—like, it finally fits what my body needs. Honestly, comparing what my old doc prescribed to what this current guy I see on the forums is talking about is like night and day. One of them claims to be "treating" me, but in reality, that stuff was basically killing me, while this new approach is the only thing actually making me feel better. And look, I’ve even tweaked things a bit myself; instead of relying on aspirin to thin my blood, I’ve been hitting the ginger every single day since it does the exact same job anyway. It works, period.

So, look, I’m officially doing my own thing now—taking the alternative route and sticking to stuff that actually nourishes my soul, my body, and my headspace without wrecking everything. And honestly? I couldn't be happier with how it's going. It's a massive upgrade from being a total walking zombie just two days ago because I was stuck taking those damn beta blockers they insisted on prescribing me...

Look, circling back to what we were actually talking about—those low heart rates—honestly, I’m just gonna roll with it. I'll deal with the slow pace and keep things moving exactly how they are, staying tucked away from the freezing winter chill while I wait for spring to finally show up, just like I always have.

So, I just checked my stats right this second—right side is sitting at 36.1 and the left is at 35.6. That’s a half-degree difference between them, which honestly makes me wonder why the hell there's even a gap there? My pulse is holding steady at 60 beats per minute, though I have to admit, a little splash of red wine after lunch definitely helped smooth things out.

Look, I’d honestly love to get to the bottom of what’s actually causing this, purely out of curiosity, but I’m sure as hell not paying out of my own pocket to find out. Maybe some actual expert scrolling through this thread will see this post, get professionally obsessed with my case, and decide to crack the code on someone else's dime—you know, like a fancy private clinic or something. If that happens, my brother is the guy to call at 555-019-982. He’d jump at the chance, and honestly, he’d probably even demand a 10 percent cut—maybe like $100,000—of whatever Nobel Prize in Medicine they hand out once the mystery is solved. Hahaha!

This is a massive headache for any pro—whether you're flying solo or working with a whole crew. I mean, think about it: every single metric looks perfect on paper, right? All the stats are checking out, everything seems fine, but then the temperature drops and suddenly your body’s ability to handle the cold just hits zero. It’s like you've got nothing left in the tank. Honestly, I really hope it's not all just about the bottom line...

And here’s another symptom for the list: when it’s freezing outside, even though I’m bundled up, my face and hands—since they aren't covered—get absolutely ice cold. But then, as soon as I walk around for a bit, my body temp spikes to like 97 degrees or even higher, and I start sweating like crazy. It’s a total mess. If I unbutton my jacket to stop the sweating, I freeze instantly because I lose heat way too fast, but if I stay zipped up, I’m basically melting in the middle of winter. When it's not quite as cold out, this whole thing isn't quite as intense, but man, it's still a massive pain.

Look, I don't want anyone here thinking I'm just messing around or playing games—even if my symptoms make me sound like a total clown—but let me tell you, I had a full-blown heart attack right then and there, if I'm even being being half-accurate about what happened...
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#53 ·
The article at the first link talks about paroxysmal Atrial Fibrillation, and in the section labeled #Treatment6 Part 6 of 8 : Treatment Plan for AFib, it says this:

"Your doctor might suggest anti-arrhythmics like amiodarone or propafenone even after your rhythm goes back to normal. They might also put you on beta-blockers to manage your blood pressure."

AND MY BLOOD PRESSURE IS PERFECTLY FINE!!!

So what, I'm just supposed to keep popping these beta-blockers? Or should I hunt down some other ones that won't make me feel like garbage?
How are you supposed to trust a cardiologist when they pull stuff like this? It's absolutely insane... I seriously can't believe this is how things are done...

http://www.healthline.com/health/liv...mal#Treatment6

Part 6 of 8: Treatment Plan for AFib
Treatment Plan for AFib
Treatment Plan for AFib involves resetting the heart’s rhythm and preventing blood clots.

With paroxysmal Atrial Fibrillation, your heart rate can return to normal on its own. Because of that, doctors might try to reset the rhythm using meds or cardioversion (an electrical shock).

-------------

Your doctor may suggest an anti-arrhythmic medication like amiodarone (Cordarone) or propafenone (Rythmol) even when normal rhythm has returned. They also may prescribe beta-blockers to control blood pressure.

--------------

if you experience another episode of AFib, blood-thinners like Warfarin may be prescribed to prevent blood clots.

There are a ton of books on Atrial Fibrillation on Amazon, so I'm just gonna buy them all and fix this damn condition myself. I don't trust anyone anymore...

http://www.amazon.com/s/ref=nb_sb_no...L+FIBRILLATION

Honestly, I probably need to see a therapist, or maybe someone else entirely?
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#54 ·
Alright, here’s the lowdown on what Atrial Fibrillation actually is:

Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#55 ·
And he didn't give me a single thing to thin my blood!

If you experience another episode of AFib, blood-thinning medications like Warfarin may be prescribed to prevent blood clots.

I actually ended up in the ER because of AFib back before the third.
Jose Clark2 Jose Clark2 Member
44 messages
joined Jul 2022
#56 ·
Sean Anderson29 said:He didn't give me anything to thin my blood!

If you experience another episode of AFib, blood-thinning medications like Warfarin may be prescribed to prevent blood clots.

I ended up in the ER because of AFib, just before the third one.

As I mentioned earlier, anticoagulant therapy is a separate issue from your concerns regarding beta blockers. The real question is whether your heart is structurally sound—what's actually driving these rhythm issues. We also need to know how frequently these episodes of Atrial Fibrillation occur, their duration, and if they revert to sinus rhythm on their own. Identifying triggers is also key; once you know them, you can avoid them.
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#57 ·
Jose Clark2 said:Look, I think I already made it clear in my previous reply that anticoagulant therapy is a totally separate issue from all your worrying about beta blockers. The real kicker here is whether your heart is actually healthy—like, what’s the actual underlying cause of these rhythm issues? Then we gotta figure out how often these episodes of Atrial Fibrillation are hitting, how long they last, and if they just snap back into a normal sinus rhythm on their own. Plus, you really ought to see if there are specific triggers causing these episodes so you can steer clear of them, obviously.

Jose Clark2

Alright, fine, I know you mentioned that, and so did Im mortal (who suggested maybe taking aspirin). Personally, I’ve got zero beef with aspirin; I’d take three a day if that’s what it took. For now, I’m leaning on ginger because it has those blood-thinning properties, though honestly, I have no way of measuring exactly how much it's doing for me.
Maybe that lab test isn't such a huge deal if they're only looking for one specific parameter—if it's around $33, I could just head out tomorrow and get my blood drawn.

About the ginger: Ginger (scientific name *Zingiber officinale*) is a root that originally comes from India. It looks like a hand with crooked fingers.

People have been using it medicinally for over 5,000 years. Nowadays, you don't just find it in India and Japan; they grow it right here in the USA too.

It’s packed with 0.25 to 3 percent essential oils and five to eight percent gingerols—which are basically these thick, oily, pungent liquids.

It works wonders for metabolism in folks dealing with diabetes, and it's widely used to help prevent blood clotting and inflammation.

As for my heart—whether it's "healthy" or whatever—I don't know a whole lot, except for this:

"EKG shows average electrical axis, sinus rhythm 67/min, weak R-wave progression in V2 and V3.
TSH - 1.80

PRELIMINARY HEART ULTRASOUND: LA 44 mm, MR 1-2+."

Now, is that preliminary ultrasound enough to tell the whole story? I have no clue, you tell me.

If they can run one that doesn't cost more than 450 bucks—maybe $167—and they provide a written explanation, then I'll pay for it, no problem. I just want to finally see once and for all if this heart of mine is actually okay or not.
I think getting something like that at the Medical Center in Cleveland would run about $300.

What exactly is Atrial Fibrillation?

If Atrial Fibrillation means those "skipped beat" sensations, I get about 50 of those a day. I used to get them years ago too, just not nearly as frequently.

Now, if Atrial Fibrillation means those episodes where the rhythm stays wonky for minutes or even hours—well, I had two of those ten-minute ones, and both times I ended up in the ER at night. They saw me while I was wide awake.

The third episode of Atrial Fibrillation hit me while I was dreaming (I had this dream about being way up high, and I have a massive phobia of heights—honestly, I couldn't even live on the 5th floor), and that one lasted four or five hours.

The first two snapped back into sinus rhythm on their own, and the third one did too. I have the ER reports and the cardiologist's notes posted in the other threads if you want to read them—but Im mortal claims they weren't spontaneous:

"From what I gather, it wasn't a spontaneous conversion, but rather a medication-induced conversion (amiodarone) back to sinus rhythm."

So, you be smart about it.

And he adds:

"The left atrium is somewhat enlarged, which is common in people with Atrial Fibrillation—the epicenter of the irregular pulse is near the pulmonary vein inlets in the left atrium.

So, is that a healthy heart or what?

Regarding the triggers, I'm with you: identify them, locate them, eliminate them!

Thanks for the help and the suggestions.

Anyway, right now I'm on a regimen of a triple tincture blend—hawthorn (40 percent), motherwort, and chamomile (20 drops, three times a day)—plus a slice of ginger daily, meditation, avoiding triggers, and keeping my physical exertion low, aside from walking, avoiding stress, and so on.
But I gotta say, I'm a pretty lousy doctor to myself, because even when I'm resting—likely thanks to the hawthorn—my blood pressure hits about 130/90 and my pulse is 74 to 80, instead of staying at or below 125/85 or having a pulse between 48 and 60.
Look, trying to recalibrate this evolutionary miracle we call a heart to run like a Swiss watch is no joke—honestly, it’s way easier to just throw rocks and sticks at my old cardiologist.

Anyway, I’m forging my own path here, pulling from whatever works for me between conventional medicine and the alternative stuff. It’s all about gaining insight, educating myself, hunting for solutions, and—God willing—actually getting healthy. I refuse to just roll over and suffer without a fight, but I also have zero interest in being crushed by brutal side effects. I want to truly understand my heart, down to its very soul, so I know exactly what's going sideways when a symptom hits. If the worst happens, I want to be able to say, "Alright, there goes a clot forming in the atrium, starting its deadly little journey..."
I’ve got so many damn things I’m interested in, a mountain of books at home and a massive library on my Kindle, yet here I am, forced to obsess over cardiology for who knows how long... It's freaking exhausting!!!
But hey, maybe my experiences will actually help someone out.

If you happen to be a doctor—which I'm assuming you are—and you can spare a second, please take a look at what I wrote on pages 3 and 4 regarding Low Body Temperature. I'm asking purely from a professional standpoint; it's like a puzzle, an enigma, and I bet you'll find it interesting.

This site is actually pretty solid:

http://www.healthline.com/health/liv...tm_medium=serp

And Dr. Google? Yeah, he's the best doc in the business.

Cheers!

PS: In case everything goes south, I've already tasked one person to come on here and post under my name to let everyone know the patient is dead and the treatments simply failed.

In honor of that, have a drink on me—though honestly, if I'm gone, there's no point in living anyway!

hahahahaha
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#58 ·
Sean Anderson29 said:Right now, I’m messing around with this homemade tincture blend—basically a three-in-one mix of hawthorn (at 40%), chamomile, and calendula (taking 20 drops, three times a day), plus a slice of ginger every single day, plenty of meditation, and just staying chill and avoiding heavy lifting, except for walking, obviously, and dodging stress and all that jazz.
But honestly, I’ve gotta admit I’m a pretty lousy doctor for myself, because even when I’m just sitting there relaxing—and I swear it’s because of the hawthorn—my blood pressure hits about 130/90 and my pulse jumps to 74 or 80, instead of staying at or under 125/85, and my pulse should really be sitting down in that 48 to 60 range.
Look, trying to tune this evolutionary miracle we call a heart to run like a Swiss watch is no joke; it's way easier to just throw stones and trash at my former cardiologist.

Oh, and I totally forgot to mention, I actually cut back on the tincture from 20 drops three times a day down to just 10 drops three times a day, just so my pulse and blood pressure don't go rogue, so we'll just have to see how that plays out.
I guess that's what they call "titrating the dose," which is the stuff Jose Clark was talking about.

Anyway, I’m becoming more and more convinced that it’d be easier to tame a wild lion than it is to control a heart, unless you're leaning on heavy-duty chemicals.
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#59 ·
Oh, and one more thing:

Look, once you hit that first bout of Atrial Fibrillation, you can't just assume it's over. The New England Journal of Medicine suggests that 70 percent of patients with paroxysmal AFib experience another episode within One year. On top of that, a massive 90 percent of people end up having another episode within four years.

So yeah, we're talking about 70 percent of patients dealing with paroxysmal AFib getting hit again in that first year, and 90 percent of them facing it within four.

That’s what I call a real challenge. I'm only 1 month and 17 days past my first episode, so I'm basically just starting this whole ordeal, and honestly? I'm already flying without any real supervision from a cardiologist—probably because the treatment plan they gave me was totally inadequate, though maybe they did that on purpose? Aside from my guy Im mortal, and Jose Clark, if you count him as a cardiologist... Look, I'm grateful to them, really, nobody owes me anything, but at the same time, I'm dead set on handling this myself with some help from Google if that's how it has to go.
Sean Anderson29 Sean Anderson29 MemberOP
44 messages
joined Sep 2015
#60 ·
So, check this out—before lunch, my resting heart rate is sitting pretty at around 52 to 56 bpm. But then I go and have lunch, take about 10 drops of hawthorn tincture, and wash it down with a shot of red wine, and suddenly everything goes haywire. Even while I'm just lying there, totally relaxed, half-asleep or just staring at the ceiling, my pulse jumps up to 80. And I’m not talking about a steady beat either; it’s absolutely racing, just frantic. It doesn't skip beats, but it’s fluttering like crazy in my chest, making me feel like my heart is about to jump right out of my ribs. It lasted for about an hour and a half. Once the racing finally died down and I actually got up to check my vitals, my blood pressure was holding steady just under 120/80 across four different readings over 20 minutes, and my pulse settled at 81 or 82—which felt much more normal since that frantic thumping in my chest had stopped.

The bottom line here is: watch yourself with those hawthorn tinctures! Start with a tiny amount and work your way up slowly.
Personally, I’m cutting back my dose to 5 drops, three times a day.

Anyway, my pulse is back down to 64 now, and the rhythm and strength of the beat feel solid.
That’s the deal with living with NFL—it's basically life on the edge of a sinus rhythm meltdown...
I'm still working on getting my heart rate regulated back to a nice, steady rhythm...

You must log in or register to reply here.

Log in Register

🔗 Similar threads