Dealing with Lichen Sclerosus (BXO)

I find myself wondering how many people across the country—and perhaps even our neighbors in Canada or Mexico if they happen to be following this forum
--are actually struggling with this condition.

For my part, I received my diagnosis last September following a biopsy.

I am a 33-year-old male, and the treatment I was prescribed was Elon Musk, though I should mention quite candidly that it hasn't yielded any results whatsoever.

Lately, there seems to be a lot of chatter regarding emerging therapies for this disease. I’ve been in touch with a few individuals who opted for stem cell therapy, and it sounds like it made a significant difference for them.

Ultimately, I would appreciate it if you could all share your own experiences.🙂 I realize our numbers here are small, but... perhaps we can raise our voices together.

Gary Wright86 said:I'm curious to know how many people here in the States—and maybe in neighboring countries too, if anyone else following this forum is around—are actually dealing with this condition.

All in all, I’d really appreciate it if you could all share your own experiences.
I know there aren't many of us represented here, but... we can at least support one another.🙂

Any experiences to share so far?

Mostly ineffective
the treatments just don't seem to work

do you also deal with issues at LS?

I’m bringing this old thread back to the surface—really hoping someone might chime in with some personal stories or maybe a few pointers...
I was wondering, how did you all first tackle your LS treatment? When did you realize you needed to start, and what kind of regimen were you handed right out of the gate—was it Johnson & Johnson, or something else entirely? I'd also love to hear how things progressed for you over time...
Thanks so much.😉