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Quincke edema (angioedema)

Started by Richard Rodriguez10 · · 👁 4 views · 5 replies

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Participants Richard Rodriguez10Tyler James5vividsailor7Grace Davis77
Richard Rodriguez10 Richard Rodriguez10 NewcomerOP
3 messages
joined Aug 2014
#1 ·
Hi everyone,
I'm new here and I am desperate for some help. Maybe someone else can relate to this nightmare, or has dealt with something similar...
I suffered a terrifying reaction involving Quincke edema (facial swelling) and generalized hives. Within twenty minutes, my entire body flared up—my face, tongue, throat, hands, feet... my skin was just covered in blisters🙂. Apparently, it was a severe reaction. I spent three days in the hospital on corticosteroids. When they discharged me, I fully expected them to schedule an allergy test, especially since this is a life-threatening situation, but... nothing. On the day
this all went down, I was at the dentist. She applied some medication into my tooth, rambling about expiration dates and how the previous filling material wasn't working... who knows why. She swapped it out for a new one. Three hours later, I was sitting in an ER. Now, it feels incredibly strange because not a single doctor wanted to actually talk to me. Even my primary care physician just told me to stick to a strict diet until I feel better. When I asked about an allergy test, he said it wasn't necessary... leaving me totally in the dark about my own allergy. What am I supposed to avoid? Private allergy testing is obscenely expensive, and frankly, why should I foot the bill when I pay for premium insurance? It feels like either the dentist messed up and they're covering their tracks, or I'm just left hanging. Please, I need advice. What should I do? 😕
Tyler James5 Tyler James5 Active Member
142 messages
joined Jul 2012
#2 ·
Generally speaking, you shouldn't bother with allergy testing right when you're having an acute reaction—not even a few days later—because the results won't actually give you a clear picture of what triggered it. Sure, you can always ask your primary care physician to run some tests, but just like > said, you really need to wait until things settle down first.

But look, specifically for what’s happening here... go see your dentist with a pen and paper and write down the exact name of the product they used right before you flared up like that. Once you have that info, we can actually have a more intelligent conversation about what caused the reaction.
Richard Rodriguez10 Richard Rodriguez10 NewcomerOP
3 messages
joined Aug 2014
#3 ·
My doctor called my dentist to clarify the medication used. I told him I’ve never had an adverse reaction before... since they didn't actually administer that specific drug... by the time I saw him, the symptoms had already subsided... he claimed there isn't any allergy test that could prove it...
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#4 ·
Richard Rodriguez10 said:Hi everyone,
I'm new here and I am desperate for some help. Maybe someone else can relate to this nightmare, or has dealt with something similar...
I suffered a terrifying reaction involving Quincke edema (facial swelling) and generalized hives. Within twenty minutes, my entire body flared up—my face, tongue, throat, hands, feet... my skin was just covered in blisters🙂. Apparently, it was a severe reaction. I spent three days in the hospital on corticosteroids. When they discharged me, I fully expected them to schedule an allergy test, especially since this is a life-threatening situation, but... nothing. On the day
this all went down, I was at the dentist. She applied some medication into my tooth, rambling about expiration dates and how the previous filling material wasn't working... who knows why. She swapped it out for a new one. Three hours later, I was sitting in an ER. Now, it feels incredibly strange because not a single doctor wanted to actually talk to me. Even my primary care physician just told me to stick to a strict diet until I feel better. When I asked about an allergy test, he said it wasn't necessary... leaving me totally in the dark about my own allergy. What am I supposed to avoid? Private allergy testing is obscenely expensive, and frankly, why should I foot the bill when I pay for premium insurance? It feels like either the dentist messed up and they're covering their tracks, or I'm just left hanging. Please, I need advice. What should I do? 😕

It wouldn't be a bad idea to go see an allergist or immunologist—ideally at the Holy Spirit hospital.
Richard Rodriguez10 Richard Rodriguez10 NewcomerOP
3 messages
joined Aug 2014
#5 ·
Here we go again... after nearly two months without any swelling, I’ve ended up back in the hospital for the exact same reason... My dentist even remarked how surprising it was that the medication failed... she suggested maybe it’s just because it’s a bit older now... despite all the warnings from the doctors and me specifically mentioning it last time, she went ahead and prescribed the same thing anyway...
Grace Davis77 Grace Davis77 Member
33 messages
joined Jan 2017
#6 ·
They are absolutely not allowed to prescribe you that medication again after such a severe reaction! 🙄
Make sure you contact either the Mayo Clinic or the Holy Spirit hospital to get this whole situation sorted out properly.

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