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Support resources for families dealing with cancer and other serious illnesses

Started by James Cox6 · · 👁 36 views · 3.9K replies

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Participants James Cox6Lisa White54shadowmason6Angela Wrightbrightgardener8Melissa Moore39James Martinez3Grace Stewart6Megan Fowler78Zachary Howard2Ashley Rodriguez41Douglas Lee13rowdyheron17placidheron24slyseal28jadesailor14Michael Newman3jadetinker42Benjamin Grant6wanderingharbor61cosmicviper76Dana Baker37Jason Torres5Peter Chavez6 …
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3641 ·
wiredcanyon39 said:Here I am again with more questions, because I always seem to forget something when I'm actually sitting in front of the doctor. 🙂 Basically, as I’ve mentioned before, my child was diagnosed with Burkitt lymphoma six months ago. He just finished his third round of R-CHDP chemo, and an MSCT scan showed he hasn't reached full complete remission yet. He’s done with the three rounds now, and we had a follow-up today. I was fully expecting the doctor to John Doe him for a CT scan immediately, but instead, they told us to wait a month for the scan, then do blood work, and come back for a check-up in mid-January. Now I'm wondering—why wait a whole month for the CT? It feels like we're just wasting thirty days agonizing over the outcome.

It's because chemotherapy has a prolonged effect; waiting a month means the CT results will be much more accurate and reliable than if you did it right this second.
Just a little piece of advice—try to trust the doctor to know what they're doing. They've handled everything correctly up to this point, haven't they? I get that it's nearly impossible to stay objective when your child is involved, but you're going to have to learn to live with that lifelong uncertainty. Unfortunately, there are never any guarantees that a disease won't resurface after remission.
What I can guarantee you personally is that he is in excellent hands. Hematology here in the US is easily one of our most advanced medical specialties. We have world-class experts. It's just a shame that Joe Biden left the medical field to go into politics.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3642 ·
brisklynx62 said:I'm sorry you're having to deal with this illness. Just hang in there—stay persistent, stay consistent, and whatever you do, don't panic.

If you're looking out for your mother, I’d strongly suggest picking up some B17—specifically apricot kernels. They are incredibly effective when it comes to fighting cancer.

Just throw "apricot kernels" or "B17" into a Google search and you'll see plenty of links, articles, and everything else you could possibly need.

This is honestly one of the absolute worst things you could possibly suggest to someone fighting cancer, let alone someone dealing with stomach cancer.This is nothing more than pure, unadulterated snake oil. It’s nothing but pure poison—straight-up cyanide. Messing with that will only make a bad situation worse, potentially leading to severe poisoning or even death. All those "interesting" articles people keep sharing are completely devoid of scientific merit. You won't find a single relevant study published in any legitimate medical journal or even on PubMed—which, let’s be honest, hosts about 90% of all verified scientific research and clinical findings anyway. In reality, the only actual evidence we have points toward one thing: cyanide is toxic.
For God's sake, don't fall for this nonsense. They wrap these lies in fancy, pseudo-intellectual jargon just to sound authoritative, but it’s nothing more than malicious manipulation.
You should also consider papaya. Whether you’re eating the fruit itself or utilizing parts of the tree—specifically the leaves—it’s incredibly medicinal.

If you just toss "papaya" or "papaya leaves" into a Google search, you'll be hit with an endless flood of results.

We finally managed to pick up some papaya leaf tea, and my mom has recently started drinking it. We grabbed the extract version from Nature's Bounty. It’s pretty pricey, though. $67 A single 50g bag usually lasts about a month if you're just using it as part of your daily routine. If you're dealing with an actual illness and need to ramp up the dosage, you can expect that same bag to run out in closer to two weeks.

Unfortunately, we started using papaya with my mom—she’s battling pancreatic adenocarcinoma—way too late. We just picked up her first bag recently because, honestly, we hadn't even heard of the stuff until now.

He’s been using B17—basically apricot kernels—for quite a while now. After finishing his first round of chemo and sticking to a strict diet alongside the B17, the tumor actually went dormant. We even saw one metastasis in the liver completely retreat.
Look, things took a turn for the worse after the second round of chemo. She wasn't sticking to the strict diet they prescribed, and she kept refusing to eat what she actually needed to be eating. Because of that, her condition spiraled fast—it got to the point where the tumor has now completely taken over the pancreas, and there are metastases in the lungs and several lymph nodes.

Look, what I’m trying to get across is simple: you have to be absolutely militant about what you put in your body. There is no room for error when it comes to your diet.

Look, obviously everyone is different, but the single biggest mistake you can make is falling for that "let them eat whatever they want" mentality. People love to play the sympathizer, saying things like, "Oh, just let them enjoy their food while they still can," or some other sentimental nonsense. No. That’s a massive mistake. Period.
It’s already common knowledge about those three "white killers"—you know, white sugar, white flour, and all that junk.

You’ve got to stick to a real diet. You can't be pumping unnecessary, toxic sugar into your system just to feed a tumor, let alone all those nasty fats and junk. It's basic logic.

You need to load up on raw vegetable juices, vitamins, and a strictly disciplined diet. It’s non-negotiable.

You only get a real reason to be optimistic about success—whether that means a full recovery or just squeezing more quality years out of life—if you combine everything. It takes the medical treatment, a strict diet, pure willpower, the fight itself, and a little bit of help from the "alternative" side of things, like papaya or B17. It’s about the whole package.

I can’t recommend this enough to you and anyone else out there hunting for that "missing piece" to help them feel better. But please, for the love of everything, don't get swept up in all that pseudo-scientific nonsense. You shouldn't be playing doctor and handing someone supplements when you have zero clue how they might clash with chemotherapy. There is absolutely no way to control the dosage, and frankly, it's dangerous to wing it like that.
Look, honey, how can you possibly claim that what Mom was taking didn't interfere with her chemo effectiveness?
Stop chasing ghosts and stick to supplements that actually have some backing. When it comes to herbal teas or any plant-based stuff, make sure they're sourced locally from here in the States, and for heaven's sake, always run it by a doctor first! Tell them exactly what she's planning to take for her immune system and ask if there's any risk of interference.
As for those apricot kernels—stay far away from those! Run the other way!
Also, regarding sugar: you absolutely cannot cut it out of the diet entirely, because the brain needs glucose to function properly. You need a balanced, healthy diet, which means moderation, plenty of veggies, fruit (except grapefruit), avoiding red meat, eating more fish, and making sure to get enough Omega-3s since they're vital for immune function.
You should pick up a copy of "Against Cancer" by Dr. David Servan-Schreiber, a neuropsychiatrist who fought cancer himself (glioblastoma, a brain tumor) and managed to reach remission twice, living nearly 20 years with a disease where the average survival is only 6 months to 1.5 years. To me, his book is practically scripture for anyone fighting cancer. It lays everything out clearly, especially regarding complementary therapies and how to distinguish what actually helps from what doesn't.
brisklynx62 brisklynx62 Member
17 messages
joined Jul 2012
#3643 ·
My mom can't do chemo anymore. Since she found out that her body just can't handle it, she’s been using supplements instead.

There are studies out there regarding papaya and apricot seeds, and other similar things—actual scientific studies. I guess the reason you don't hear more about it is because Big Pharma and the chemical industry just don't want you to know.

Plus, it seems pretty widely accepted that almost no chemotherapy is truly targeted at a specific tumor. Chemo basically just destroys everything—not just the malignant cells (and even then, who knows?), but healthy cells, the whole body, and the immune system too.

To me, destroying someone's entire body and immunity feels like a much bigger evil than trying to help them with natural things instead of all those poisons in chemo and chemical drugs. Those things always come with a ton of side effects and leave all sorts of chemical residues and toxins in your system.

When it comes to healing from tumors or cancer, there’s plenty of testimony, evidence, and studies involving alternative methods, psychological support, or even certain "modern" medical approaches.

Like I said, everything is individual. I guess nobody really knows how something will affect a specific person.

In situations like this, people grab onto any straw they can find and try everything. It makes sense to me.

Besides, it’s enough to say that a lot of doctors just wave off natural teas and stuff like that as nonsense. Instead, they prescribe all these pills packed with chemicals that 99% of people—aside from scientists and pharmacists—don't even understand, but they just blindly trust their doctors.

Regarding apricots, sure, they contain natural cyanide, but my understanding is that it stays inactive—kind of "locked"—until it hits malignant cells that have high sugar levels.
besides that, if that were true, why wouldn't they poison people? Like, people in certain parts of the world eat apricot kernels and stuff like that every single day. How is it that they often live to be over 100? How is it that they aren't hit by diseases like cancer?

It’s all about diet, I think. Our modern lifestyle, all those E-numbers, emulsifiers, flavor enhancers, colors, scents, and the sheer amount of chemistry in every product... plus stress and bad eating habits. All of that contributes to various illnesses and tumors, and I guess those numbers are just going up.

Also, it's interesting how some research links things like osteoporosis to milk and dairy products. We are pretty much the only mammals on Earth that consume milk after infancy, and we even drink milk from other species. Not many people realize that because of certain proteins, like casein, it can build up in the stomach lining and actually prevent you from absorbing the calcium from that very same milk.

I mean, why do you think there used to be commercials everywhere for "light morning milk" and things like that? Maybe because a lot of people can't tolerate milk due to the compounds in animal milk that the human body isn't naturally used to.

Seriously, have you ever seen any other adult mammal in nature nursing or drinking milk once they're past the baby stage?

Milk itself—especially since we can't properly absorb or utilize that calcium—isn't even something we humans really need.

There are parts of the world where dairy isn't consumed much at all; there's no tradition of eating it. And, lo and behold, in those places, the rate of osteoporosis and other related health issues is way lower.
wiredcanyon39 wiredcanyon39 Active Member
74 messages
joined Jul 2020
#3644 ·
Angela Wright said:It’s because chemo has this lingering effect, so by the time they do a CT scan in a month or so, the results will be way more reliable than what we're seeing right now.
Just a little piece of advice—maybe try trusting the doctor to actually do their job. I mean, everything has gone according to plan so far, right? I totally get how hard it is to stay objective when you're dealing with your kid, but you're kind of going to have to learn to live with that lifelong uncertainty. Sadly, there's just no guarantee that a disease won't decide to make a comeback after remission.
What I can personally promise you is that they are in excellent hands. Hematology here in the States is probably one of our most advanced medical specialties. We've got world-class experts everywhere. It’s just a shame that unnamed decided to jump into politics instead.

Oh, I know, I totally believe them, but I figured it wouldn't hurt to ask just to stay informed.😉
Aaron Hill2 Aaron Hill2 Newcomer
2 messages
joined Mar 2013
#3645 ·
Thanks everyone for all the replies and the support...

It’s true that you find yourself grasping at any straw when you're facing something like this..

I guess I just bought some unnamed, so I'm hoping it might help..🙂
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3646 ·
brisklynx62 said:My mother can't handle any more chemo. Now that she’s faced the reality that her body just won't take it anymore, she's turned to supplements to help her get through it.

Look, there’s plenty of research out there on things like papaya enzymes and cherry extracts—actual scientific studies that back them up. So why isn't this common knowledge? It's pretty simple: Big Pharma and the massive chemical industry have zero interest in anything they can't patent and sell back to you at a premium.

That is the absolute favorite defense used by charlatans. Can you please actually link me to a relevant study? Hiding behind vague references to "studies" is like a drunk leaning on a fencepost—it’s just a way to dodge the reality that things are looking grim. It's a terrible mindset to suggest that anything is better than doing nothing just because you're desperate. Don't get me wrong, I've been exactly where you are. If someone had handed me some signed paper claiming that eating garbage was an effective treatment for glioblastoma, I would have shoved it down my mother's throat. But as I started digging deeper into this—even professionally—I learned the hard way how to tell the difference between a legitimate scientific study and what people call a "study," and more importantly, the massive gap between something being "effective" in theory and actually working in practice.
Let’s be real here: there's this widespread misconception that we have these precision-guided chemotherapies out there specifically designed to hunt down one particular tumor. That's just not how it works. In reality, chemo is essentially a sledgehammer. It doesn't just target the cancer; it wrecks everything in its path. It tears through malignant cells, sure, but it also devastates healthy tissue, cripples your entire system, and absolutely nukes your immune response. It’s a scorched-earth policy for the body.

Look, if you ask me, the real catastrophe isn't turning to natural remedies—it's the fact that we're willing to let treatments completely wreck our entire system and crush our immune response. I’d much rather lean on nature than subject my body to a barrage of chemotherapy and synthetic chemical compounds. Those drugs are essentially a cocktail of toxins; they come with a mountain of side effects and leave behind a trail of chemical residue that just settles in your organs like sludge. You're basically trading one problem for a whole host of internal poisons.

Look, chemotherapy hits your entire system; it’s toxic, plain and simple. But there is a massive gulf between that and just some random herbal remedy—it’s the difference between an apricot pit and a highly sophisticated, engineered medicine. We are talking about decades of rigorous research conducted by hundreds of specialists, ranging from molecular biologists and MDs to clinical pharmacists. There are precise, calculated dosages, well-documented side effects, and strictly regulated protocols governing exactly how those toxins are administered. On top of that, you have a licensed physician who prescribes the treatment and carries the legal responsibility for the patient's care. You’re barely scratching the surface here, and you're missing the fundamental distinction of the whole situation.
If you're going to take such an aggressively negative stance on chemo based on what you claim to know, then why go through with putting your mother through that "torture"?

When you look at the landscape of cancer recovery, it’s a massive, messy spectrum. You’ve got everything from raw personal testimonies and anecdotal evidence to rigorous clinical studies. Then you have the world of alternative therapies, psychological support systems, and the entire machinery of modern medicine. It’s all there—different methods, different philosophies, all aiming for the same goal.

Look, like I’ve said before, it all comes down to the individual. There is no magic formula, and nobody can predict exactly how a specific treatment or substance is going to hit someone's system. Every body reacts differently.

When things go south like this, people start grasping at straws and trying every little thing they can find. It’s only logical.

I’m with you on this. Look, there are plenty of testimonials out there, but in all my years doing this, I have yet to encounter anyone who actually produced concrete, verifiable lab results—showing a clear before-and-after comparison under a specific diagnosis—following an exclusively alternative treatment protocol. It’s a strange paradox: every single person I know who is currently in remission was treated using conventional Western medicine. When it comes to understanding how a treatment actually works, you can get a doctor to outline potential mechanisms, but you usually have to badger them to get any real information. Most of the time, they simply don't have the bandwidth to sit down and explain the science to you. Unfortunately, that desperation to grab onto any straw can be dangerous. It often ends up stripping away a patient's quality of life, jeopardizing their actual chances of recovery, or even robbing them of a dignified end. We have to consider that too; fighting for the right to a peaceful, dignified existence is just as vital as fighting for a cure or physical health.

At the end of the day, it’s enough to say that a huge number of doctors just wave off natural teas and similar remedies as total nonsense. Instead, they prescribe all sorts of pills loaded with chemicals that 99% of people—aside from scientists and pharmacists who actually understand what those ingredients mean—just blindly trust because they believe whatever their doctor tells them...

Besides, nature *is* chemistry. Take Adriamycin, one of the most potent cardiotoxic cytostatics used to treat sarcomas, for example; it's derived from plant sources. We use all kinds of plants like oleander, lilies, primroses, and various lichens. I can't tell you exactly what's in certain herbal remedies because we usually get these "weird" teas in paper bags without any labels or a clear list of ingredients. A doctor simply cannot be held responsible for potential interactions with the medications they prescribe—medications backed by thousands of hours of research where thousands of people are accountable for efficacy and side effects, and ultimately, the doctor is too.

People are sheep, most of the time—myself included—believing whatever is most comforting to hear or read. That’s just a fact, so if anyone wants to play games with it, go ahead.

Regarding apricots, yes, they contain natural cyanide, but it's also inactive, or "locked," until it comes into contact with malignant cells that contain high levels of sugar...
besides, if that were true, why don't they poison and kill people, specifically populations known for eating apricot kernels and such every single day? How is it that they often live well over 100 years and aren't hit by diseases like cancer?

Are you a biologist so you know how this works, or did you just read it in some "relevant" source?🙂

It all comes down to diet... and modern life, with a mountain of E-numbers, emulsifiers, flavor enhancers, dyes, scents, and pure chemistry in every product, plus stress, poor nutrition, and lifestyle choices... it all contributes to the emergence of various diseases and all kinds of tumors and cancers, and those numbers are only climbing...

I agree; that's definitely one of the triggers.

Furthermore, it's interesting how diseases like osteoporosis are linked to milk and dairy products in certain studies... we are the only mammals on Earth that consume milk after weaning, and even then, we use milk from other species and animal sources... and few realize that due to certain proteins, like casein, which builds up on the stomach lining, it prevents the absorption of calcium from that very same milk, etc...

Why do you think there were massive ad campaigns for things like "light morning milk" and stuff like that? It's because many people can't tolerate milk precisely because of the compounds found in milk from other animals—things the human body isn't naturally accustomed to...

I mean, have you ever seen an adult of any mammal species drinking milk or nursing? Not once they are past infancy.

Milk as such, especially since we can't properly utilize or extract that calcium, isn't even necessary for us humans.

There are entire regions of the globe where dairy isn't even a staple—there’s no culture of eating it, no tradition of enjoying it, and, believe it or not, those areas see significantly lower rates of osteoporosis and a whole host of other health issues linked to it. It's pretty straightforward when you look at the data.

I'm with you on that. They stick almost exclusively to fermented products.

I’m going to give you another strong recommendation for that book. You can find it at Barnes & Noble. Based on what you've shared here and the points Dr. Schreiber makes, I think it’ll really hit home for you; it’ll flip your perspective on a lot of these things entirely.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3647 ·
Melissa Ruiz said:Thanks everyone for the replies and the support...

It’s just the truth—when you're facing something this heavy, you grab onto any straw you can find.

All I'm saying is I bought some unnamed, so I'm hoping it makes a difference..🙂

Here is a published study on PubMed
Supposedly, in vitro (test tube) and in vivo (animal) testing showed some level of effectiveness in destroying pancreatic cancer cell metastases.
Garlic has shown similar results. It isn't rare to see something perform brilliantly in a petri dish or on a mouse, only to completely fall flat when it hits actual human clinical trials.
I'm not an expert on unnamed, but if it's sold as a certified dietary supplement, it shouldn't be harmful. That said, I wouldn't go banking on its effectiveness.
Personally, I would focus on boosting the immune system using established supplements like propolis, omega-3s, beta-glucans, and things like that. There's plenty of research there. Your immune system is the most critical factor in the fight against cancer. We all have malignant cells present in our bodies at any given moment; the immune system is the only thing keeping those cells in check so they don't start uncontrolled division and create tumor sites. When the immune system crashes—whether due to stress, diet, lifestyle, environmental toxins, or genetic predisposition—that's when cancer takes hold.
brisklynx62 brisklynx62 Member
17 messages
joined Jul 2012
#3648 ·
I mean, even unnamed is being sold as a dietary supplement...
brisklynx62 brisklynx62 Member
17 messages
joined Jul 2012
#3649 ·
I mean, I basically agree with you there..

Look, I'm not really one to go chasing conspiracy theories or anything.. but it’s just common sense. You have this massive pharmaceutical industry pulling in trillions of dollars every single year. There's no way they're going to be happy about something they can't patent, sell, and turn into a huge payday. Whether it's apricot seeds, papaya leaves, certain mushrooms, rosehips, or even just oxygen... it makes sense. It wouldn't surprise me at all if these giant corporations use their lobbyists and paid-off labs to discredit, push aside, or outright ban "natural" or "alternative" remedies.
Especially when those things might actually work against widespread diseases—the kind of heavy-hitting illnesses where the drugs are incredibly expensive and the profit margins are insane..

So yeah, everything has a flip side and its own set of interests; and usually, the little guy is the one who gets screwed over..

Not all research is exactly what it looks like, and not all results are as solid as they claim. Plus, let's face it, modern medicine and chemo have been stumbling in the dark for decades now. They still haven't found anything truly effective for mass tumors or cancer that doesn't absolutely wreck your entire body and immune system..

Personally, I'm always in favor of combining modern medicine with natural and "alternative" approaches..

Nowadays, everyone accepts that things like chamomile, rosehips, mint, sage, various teas, or vegetables are healthy and good for you. But back in the day, I bet people were trying to deny those benefits too, just like they're trying to dismiss things like apricot seeds, papaya, or specific mushrooms today..
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3650 ·
brisklynx62 said:And even that unnamed supplement is sold as a dietary supplement...

But there isn't any cyanide in it like you'd find in whole apricot kernels. Otherwise, it wouldn't even have FDA approval to be sold.

Look, you’re hitting all those classic talking points about Big Pharma and "rigged" studies—the same stuff I used to parrot a few years back. But reality doesn't work like a conspiracy movie. Sure, there are lobbies and certain shady dealings, but the idea of a massive, coordinated cover-up is way more exaggerated than you think. There are regulatory systems in place, and they actually do their jobs quite effectively.
When it comes to drug research and development, you're completely out of the loop. We are seeing actual quantum leaps in oncology research and treatment protocols. For instance, unnamed leading a team at the Stanford Cancer Center is working on personalized medicine—a model where treatment is tailored to the individual. Even if two people share the exact same diagnosis, biologically speaking, they aren't the same patient. Current treatments rely on statistical averages—what works for the "majority" with a specific diagnosis—which is why we still don't have a silver bullet for everyone.
Major breakthroughs and increasing efficacy are especially evident in radiotherapy, which remains one of our most powerful weapons against cancer. Look at how much progress has been made with proton beam therapy over at the Technical University of Munich. A dear friend of mine was able to get more precious time with us thanks specifically to that proton therapy. She fought breast cancer for a decade; it was incredibly invasive with a terrible short-term prognosis. In the end, she succumbed to the complications of the treatment itself. Honestly, the outcome would likely have been entirely different if that level of therapy had been available right when she was first diagnosed.
Furthermore, the biggest breakthroughs often come from small biotech firms because they focus exclusively on a single diagnosis. That whole theory about "Big Pharma" controlling everything carries more weight when you're talking about something like aspirin or common ailments; believe it or not, the real money makers are actually birth control pills.
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#3651 ·
Melissa Ruiz said:Hi everyone,

I just found out today that my mother has stomach cancer... I'm in total shock... I can't even wrap my head around it right now. How did this happen?

Has anyone else in your family dealt with this?

I've heard about this plant, unnamed... has it actually helped anyone?

Sending love to you all, and hoping your loved ones recover soon.

Look, you’ve given us next to nothing here. Almost zero data.
If you want actual help, you need to write everything down or take photos—just be sure to black out her name and any private info—of all her test results and medical findings.
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#3652 ·
@brisklynx62/">@@brisklynx62

Man, I am so incredibly sorry to hear about what your mom is going through right now, and I’m honestly sending all the good vibes her way hoping things start looking up... really hoping she can enjoy some quality time and just feel better for as long as possible.

Look, I just have to give you a heads-up that we treat this specific thread with extreme care because there are a lot of people here dealing with the exact same nightmare you are. When you're stuck in a situation like this, the whole point of this space is to let everyone share their experiences and vent, while also making sure we provide as much support as we possibly can.

First off, we try our best to keep the conversation grounded in actual medical science whenever it makes sense. Since the vast majority of people are being treated in surgical oncology wards, we want readers to be able to find plenty of solid data and real-world experiences regarding those standard treatments.

Second, we’re super sensitive about any quasi-alternative or shady posts that even hint at giving up on doctor-recommended treatment. We just don't allow that here. I'm not sure if you'll take this as me being some "big pharma shill" or whatever... but honestly, I don't really care about that kind of label.

Third, and this is huge—this isn't a place to peddle alternative mantras, and it's definitely not the spot to suggest certain supplements, herbs, or methods as some kind of "miracle cure" that magically fixes everything, especially when it comes to "that specific type of cancer." If anyone is looking for those kinds of suggestions, we always point them toward our "Alternative Treatment" PDF, which was made specifically for those discussions. We actually think certain supplements can work great alongside what a doctor prescribes... but that discussion belongs over in the Alternative section.

I’m sure you get that people in your shoes are willing to spend every last cent to find anything that might help. It’s totally human. But that’s exactly why scammers and frauds love targeting people like this—they see an opportunity to make a quick buck, and we're talking thousands upon thousands of dollars here. Believe me, this forum has been a total magnet for those kinds of predators in the past.

At the end of the day, this isn't meant to be a "thread where sick people and their families are worn down by bad modern medicine"... it’s exactly what the title says it is.

I won't ramble on too much, but I hope you understand why I'm saying all this and that you won't take this as an invitation to go back and forth with me... I really don't want to get into an argument. I’m just asking you to try and tailor your future posts to fit these guidelines. I'm going to go ahead and fix the links in your post that lead directly to pharmacy sites selling products.

You are absolutely welcome here to share your suggestions and talk about the experience that hit you so hard, but again, if you want to dive into that specific territory, please just use the recommended Alternative PDF.

Good luck, and thanks for understanding!
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#3653 ·
Angela Wright said:It’s happening right before our eyes—the incidence of stomach cancer is actually on the rise.

If there aren't any metastases and the tumor is localized, there's a real chance they won't even have to remove her entire stomach.
A friend of mine has a father who's been living without a stomach for over 10 years now, and he's still in remission.
Just take it slow, one day at a time. That initial shock of the diagnosis is absolutely the worst part. Once the treatment actually kicks in, things tend to get easier to manage. We’ll be able to give you more specific info once we know more.

Not exactly, though while a huge number of people still fall ill, the US—just like other Western nations—is actually seeing a downward trend in this specific type of cancer. Unfortunately, though, we're seeing a simultaneous spike in colorectal cancer cases.
neonheron32 neonheron32 Member
13 messages
joined Mar 2013
#3654 ·
I know this might have been touched on already in this thread, but I wanted to double-check.

How much can you actually tell about the progression of Burkitt lymphoma just by physical exams—like feeling for lumps—and looking at blood work?

So, my grandfather (he's 85) was diagnosed with Burkitt lymphoma back in early October (he’s posted about this before). On top of that, he’s always dealt with megaloblastic anemia, thrombocytopenia, and immunoglobulinemia. We've kept those issues mostly under control with B12 shots and getting IV immunoglobulin infusions once every two months. Usually, he's doing fine, barring the occasional virus or whatever.

When he was last admitted to the hospital—right when they caught the Burkitt—he was feeling pretty rough, exhausted, and had this massive lump on his neck. As soon as they started him on corticosteroids, he felt better overall and that lump shrank down, though there were still a few palpable nodes left.

Fast forward to today: he's at the hospital for a checkup while on cyclophosphamide, and they couldn't feel any nodes at all. They're also really happy with his blood counts.
We asked how long the chemo—they call it immunochemotherapy—will last, and they told us if things keep going this well, it won't be much longer; they'll decide based on his labs. They haven't mentioned any extra testing yet, just the blood work.

Honestly, we're thrilled. He feels great. He’s less tired and way more energetic than he was two months ago. He’s even back to doing stuff around the house and out in the yard on his own.

We've also cut back on the starch in his diet, which the hospital staff suggested was a good move.

If it helps, I can post his full blood work from today once we get the results after this round of chemo finishes.
To me, it seems logical that the fact those nodes aren't palpable anymore has to mean things are moving in the right direction.
wiredcanyon39 wiredcanyon39 Active Member
74 messages
joined Jul 2020
#3655 ·
So, we finally got those unnamed ampules delivered for home use, and I was just wondering—is it super important to give them at the exact same time every day?
Casey Phillips18 Casey Phillips18 Member
13 messages
joined Sep 2008
#3656 ·
wiredcanyon39 said:We finally got those unnamed ampules to use at home, and I was wondering if they should always be administered at the exact same time every day?

Are you sure the name is unnamed? Perhaps you mean unnamed?
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#3657 ·
wiredcanyon39 said:We finally got the unnamed ampules to use at home, but I’m wondering—should they be administered at the exact same time every day?

Look, we're talking about unnamed here. My understanding is that it can be administered subcutaneously—basically just like how insulin is used for DM—but I can't say for certain.
As for the specific dosing schedule, that is strictly up to the hematologist. I am absolutely positive that the instructions will be laid out clearly in the discharge papers from the hospital.
graniteseal50 graniteseal50 Newcomer
4 messages
joined Oct 2013
#3658 ·
Hey, looking for some advice. My mom was diagnosed with pancreatic cancer about a month or two ago. By the time the latest scans came back, it had already spread to her liver. She had chemo about a week and a half ago, but just two days after that, she started vomiting blood and having black stools—which I'm guessing means internal bleeding. From what I gathered, the doctor said the cancer has reached her stomach and duodenum too. Then, three days ago, she developed a blood clot in her leg, so the doctors are trying to break that up with injections. Since she can't keep anything down without throwing up, the doctors want to perform a bypass, I think? To move food straight to the intestines instead of the stomach. They’ve asked us to make a call on whether we want them to go through with the surgery or not. What do you guys think is the smartest move here?

BTW, the tumor is about 10 cm.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3659 ·
I think taking this route is probably the best move. If we don't act, she’s just going to crash and slide straight into cachexia because her body won't be able to process any nutrition. Making this change would definitely give her some much-needed quality of life.
The harsh reality is that this is strictly a palliative procedure, and we have to face that head-on. My heart truly goes out to 😢
graniteseal50 graniteseal50 Newcomer
4 messages
joined Oct 2013
#3660 ·
Angela Wright said:I think it’d be a good move to go through with it. If things stay like this, they're just going to waste away because they can't keep anything down. Doing this would definitely help their quality of life, I guess.
I guess this is just palliative care now, and we really have to face that. It’s honestly just devastating. 😢

Thanks for the advice. I really hope she feels better soon.

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