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Support resources for families dealing with cancer and other serious illnesses

Started by James Cox6 · · 👁 21 views · 3.9K replies

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Participants James Cox6Lisa White54shadowmason6Angela Wrightbrightgardener8Melissa Moore39James Martinez3Grace Stewart6Megan Fowler78Zachary Howard2Ashley Rodriguez41Douglas Lee13rowdyheron17placidheron24slyseal28jadesailor14Michael Newman3jadetinker42Benjamin Grant6wanderingharbor61cosmicviper76Dana Baker37Jason Torres5Peter Chavez6 …
Nathan Martinez9 Nathan Martinez9 Newcomer
1 message
joined Feb 2013
#3781 ·
Anyone here have any intel on that herbalist, unknown? Looking for anything—good or bad. I'm specifically asking about treating multiple sclerosis, since his site claims you can fix it in 30-60 days using just teas. I mean, I'm not delusional enough to think I'll be totally cured, but honestly, even a little improvement would be huge for my morale. Since those teas are $1333 I'm wondering if anyone’s actually seen progress from them? Please just shoot me a DM with your stories... I'm over in Mexico and barely have time for forums with work. Wishing everyone strength to beat their illness and come out on top.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3782 ·
Nathan Martinez9 said:I’m looking for anyone who has any kind of insight or experience regarding that herbalist, unknown. I don't care if it's positive or negative. Specifically, I'm interested in treating multiple sclerosis, because his website claims he can cure it in 30 to 60 days using herbal teas. To be honest, I'm not necessarily expecting a total cure, but any improvement in my health would give me a fresh sense of hope and momentum. Since these teas are $1333, I want to know if anyone has actually seen progress from them. Please send me a private message with your experiences; I'm living in Mexico and don't have much free time for forums due to work. I want everyone to overcome their illness and come out on top.

This forum doesn't cover alternative medicine; there is a specialized sub-forum dedicated to Alternatives, so take your question over there.
When it comes to MS, my own experience and a bit of common sense tell me right away that we are dealing with a top-tier charlatan and a criminal who preys on desperate people searching for a shred of hope just to line his pockets. If even a tiny fraction of what he claims were true, those "cured" patients would be all over the news by now, and the guy would probably be walking away with a Nobel Prize for discovering a cure that thousands of highly trained scientists using the best technology and expertise in the world haven't been able to find.
Stay far away from this stuff.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#3783 ·
Nathan Martinez9 said:Can anyone tell me if they have any experience—good or bad—with that herbalist unknown? I’m specifically looking into treatment for multiple sclerosis. His website claims he can fix it in 30 to 60 days using tea blends. Look, I’m not delusional enough to think I’ll be totally cured, but any improvement would give me some much-needed momentum and hope. Since these teas are $1333, I want to know if anyone has actually seen results. Please just DM me your stories. I’m living in Mexico and don't have the luxury of hanging out on forums all day because of work. I just want everyone to beat their illness and come out on top.


Wrong subforum. Try asking over here: Alternative Medicine . We don't deal with this kind of stuff in the Health section.
Amy Torres4 Amy Torres4 Newcomer
5 messages
joined Feb 2007
#3784 ·
ruggedpuma47, Angela Wright.... I'm officially all alone in this world..😢
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3785 ·
Amy Torres4 said:ruggedpuma47, Angela Wright.... I feel like an orphan now..😢

😢 Please accept my deepest condolences... unfortunately, we are all such fragile, fleeting beings, but the love we receive and give is the only true meaning in this life. Hang in there, dear; she will always be right there with you.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#3786 ·
Amy Torres4 said:ruggedpuma47, Angela Wright.... I'm all alone now..😢

My condolences. 😢
ruggedpuma47 ruggedpuma47 Member
28 messages
joined Jan 2013
#3787 ·
Amy Torres4 said:ruggedpuma47, Angela Wright.... I feel like an orphan now..😢

Amy..
If only I could give you a hug.. 😢

I truly feel for you, and my heart goes out to you and your whole family.

...I know it doesn't help much, but... honey, your mom isn't in pain anymore.
Amy Torres4 Amy Torres4 Newcomer
5 messages
joined Feb 2007
#3788 ·
Thank you all so much. Honestly, it’s just so incredibly hard right now, like there’s this massive, indescribable void where she used to be... I know deep down that it was probably better for her not to have to struggle anymore, but man, I miss her, I miss her so much it hurts... It feels like I’m stuck in some kind of waking dream, and I can't even tell if any of this is actually happening or if I'm just dreaming it all up...😢
Andrew Cruz3 Andrew Cruz3 Member
16 messages
joined Feb 2013
#3789 ·
@Amy Torres4/">@@Amy Torres4
My heart goes out to you.
😢

Angela Wright said:When the treatment actually hits the mark, you at least know what you're fighting through.

It feels plausible that we're looking at some kind of occult carcinoma in the colon. Because of how winding the large intestine is, things can easily be missed during a colonoscopy, and even a PET scan can sometimes miss it. Usually, it tends to jump to the liver first.

What specific treatment protocol is she on right now? Any particular meds? If you can get a copy of her doctor's report, I might be able to make sense of it, or maybe one of the doctors in this group could offer some direction on next steps.

She hasn't had a PET scan.
The doctor says it isn't necessary, but Mom is refusing to let us arrange one elsewhere.

I'm not entirely sure which medications were used. 🙈
All I know is she finished two cycles—a combination of pills and IV chemo (6+3)—and this is the first check-up after the break.

I'll grab the paperwork from Mom and post the details here.
The latest report mentions "significant progression of secondary lesions." 🙂(I didn't catch the exact clinical meaning of that phrase right away.)
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3790 ·
Andrew Cruz3 said:@dunjaranka
My sincere condolences
😢

She hasn't had a PET scan yet.
The doctor insists it isn't necessary, but my mom refuses to let us organize one at a different facility.

I'm not entirely sure which specific medications she was put on 🙈
All I know is she completed two cycles (6+3) of chemo—a mix of oral pills and IV—and this is her first check-up after a break.

I'll grab the paperwork from my mom and type out the details.
The latest report indicates significant progression of secondary tumors 🙂 (I didn't catch the medical terminology immediately)

Look, my strongest advice is to seek treatment somewhere else. In any decent American hospital, if a doctor claims they can't find the primary tumor and refuses to order a PET scan based on standard protocols, they'd be lucky to keep their license!
It sounds like your mom’s condition is widespread, and honestly, it seems like this doctor just doesn't want the headache. He's acting more like a bureaucrat trying to balance a hospital budget than a physician. If he actually found the primary tumor, it would trigger a much longer, likely more expensive treatment plan with high-end drugs, and since the outcome is uncertain anyway, he'd rather just play it safe and save the money.
hiddenmarlin26 hiddenmarlin26 Newcomer
1 message
joined Feb 2013
#3791 ·
I really need some advice here. My mother-in-law was fighting colon cancer, and honestly, we thought we had won. Everything went smoothly through the initial stages, followed by chemo, and she seemed to be doing great. Then, out of nowhere, two months later, she developed an intestinal blockage—the doctors claim it was a side effect of the chemotherapy. She underwent surgery, and once again, we thought we were in the clear. But then the nightmare started. Two weeks later, she ended up back in the hospital because she couldn't pass stool. They had to pump her stomach, and she was sent home, only for this exact same thing to happen twice more. Today, she finally came home, but the doctor basically gave us a death sentence. He told us there’s nothing more they can do; her intestines simply won't function. He said we could keep her in a hospital bed for the next 20 years and it wouldn't change a thing. She’s absolutely devastated. She’s dropped down to 54 kg (about 120 lbs) and has completely lost her will to fight. We are at our absolute breaking point. If anyone has dealt with something similar or has any insight, please, I am begging for help. Thank you.
Casey Booth3 Casey Booth3 Newcomer
9 messages
joined Apr 2013
#3792 ·
Angela Wright said:Yeah, honestly, there are moments where it feels like we’re carrying way more weight than they are—like we’re staring down this massive wall of a problem, knowing we should be doing something about it, yet we just sit there paralyzed.
I think your grandpa basically figured out that if someone in the family had to catch this thing, he’d much rather it be him than you.
Sometimes I wish I could just take my mom's illness onto myself—just swap places so she wouldn't have to suffer—but she'd probably find it even harder. She always tells me that even though she's still relatively young, she's lived a whole life, built a family, raised me... she says she couldn't be prouder of the person I've become; then again, I’ve got my entire life ahead of me.

Don't sweat it—your grandpa’s hair will grow back, and it’ll probably be thicker than it ever was.👍
And hey, even if it doesn't come back and he stays bald, as long as he's healthy and looking sharp, who cares?

Hey—reaching out because I've been exactly where you are right now. I feel you. You look at your mom, you want to fix everything, you're breaking inside... but that's just how God works sometimes. You've gotta stay positive—especially when you're standing right in front of them.
Casey Booth3 Casey Booth3 Newcomer
9 messages
joined Apr 2013
#3793 ·
Amy Torres4 said:thank you all. It’s just so incredibly hard—there's this emptiness I can't even put into words... I know deep down that she's better off not suffering anymore, but the void she left behind is just massive. It feels like I'm stuck in some kind of fever dream, honestly, I can't tell if any of this is actually real or if I'm just dreaming it all up...😢

I am so incredibly sorry. I know exactly how much this hurts—even after six years, it hasn't gotten easy for me! Just try to hang in there and keep moving forward through life—as best as you possibly can.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3794 ·
Casey Booth3 said:Hey—I’m reaching out because I’ve been exactly where you are right now. I feel for you. You're looking at your mother, trying everything to help her, breaking your own heart in the process... but maybe this is just how God intended it. You have to stay positive, especially when you're sitting there by a sickbed.

That was a long time ago. I saw her off peacefully.
Amy Torres4 Amy Torres4 Newcomer
5 messages
joined Feb 2007
#3795 ·
Casey Booth3 said:I am just so incredibly sorry! I know how much this hurts, and honestly, even after six years, things still aren't easy for me either! Just hang in there and try to live your life as best as you possibly can!

Thank you so much... just taking it one day at a time... 😢
feralridge3 feralridge3 Active Member
54 messages
joined Dec 2010
#3796 ·
I honestly don't even know where to begin. 😢
My mom just got home from the hospital; they had to perform a mastectomy. She saw her surgeon yesterday, and she’s heading to the oncologist tomorrow. It turns out the cancer has already metastasized to her bones. 😢
For months, she kept complaining about this intermittent pain in her hip and knee. Her primary care doctor sent her in for some imaging and then referred her to physical therapy. Things actually seemed to get worse during that time, and I kept nagging her to stick to her exercises, but she just wouldn't 🤦
I had no idea that breast cancer frequently spreads to the bone like this.
The absolute worst part is that she knows exactly what this looks like, because about 15 years ago, a very close friend of hers faced this exact same diagnosis.
As of right now, she seems motivated to undergo treatment—or at least, that’s how it appears to my brother and me.
Generally speaking, though, she is such a pessimist that, frankly, I’m struggling to have faith that she’ll pull through, especially since this is her fifth bout with cancer. 😢
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3797 ·
feralridge3 said:I honestly don't even know where to start. 😢
My mom just got home from the hospital after having her breast removed. She saw the surgeon yesterday and has an appointment with the oncologist tomorrow. It turns out the cancer has already spread to her bones. 😢
For months, she was just complaining about occasional aches in her hip and knee. Her GP sent her for some imaging and then referred her to physical therapy. Things actually seemed to get worse during that time; I kept nagging her to stick to her exercises, but she wouldn't listen. 🤦
I had no idea that breast cancer frequently metastasizes to the bone.
The absolute worst part is that she knows exactly what this looks like—a very close friend of hers went through the exact same diagnosis about 15 years ago and passed away.
Right now, she seems motivated to fight, though I can't tell if that's real or if it's just how things look to me and my brother.
She’s generally a pessimist, so truthfully, I’m struggling to stay hopeful that she'll pull through, especially since this is her fifth bout with cancer. 😢

Look, the one thing you absolutely have to believe in is that she will fight with every ounce of strength and willpower she possesses. That is the only certainty. Everything else in life is a gamble anyway; there are zero guarantees.
If they target those bone metastases with radiation, it should hold them in check. The real key is seeing how she responds to the chemo. Just focus on being her rock right now.
I hope you're holding up okay and that everything is fine aside from your ear issues. You are truly a powerhouse of a woman dealing with this diagnosis—you've got incredible grit, both mentally and physically.
feralridge3 feralridge3 Active Member
54 messages
joined Dec 2010
#3798 ·
Angela Wright said:The one thing you can actually believe in—the one thing you have to—is that she’ll fight with everything she’s got, heart and soul. That’s the only certainty. In this life, there are no guarantees for anything else.
If those radiation beams hit her bones, they'll stop eventually. What matters most is ensuring there's a response to the chemo when the time comes. Just be there for her. Be her support system.

It isn't easy being a pillar of support for someone who treated me pretty poorly growing up, which only got worse after she remarried. My brother—well, my half-brother—gets all the affection because she treats him so much better, something she admitted to me just a few years ago. My feelings toward her are a complete mess. Our relationship is nothing but misery; there's zero closeness here. 😢
Most of the help I provide is strictly financial.

Angela Wright said:I hope you're doing okay and that aside from your ear, everything else is fine. You really are an incredibly resilient woman with that diagnosis; you've got such grit, both mentally and physically.

My former oncologist (he's retired now) once told me, when I asked about my survival odds, that I would definitely make it because I'm a fighter. I held onto that thought during the darkest moments. That was back when I first started saving up money for Temodal. Though, I suppose "grit" is a pretty subjective term. 😉
I'm actually considering seeing a private psychiatrist. This whole situation is incredibly stressful for me, and I'm terrified of my tumor returning. 🙂 After everything I've been through over the last five years, I decided I needed to do something for myself... I realized I am the priority. Me first, everyone else second. But now, that resolve is wavering. I'm torn between whether I should "die" for her or stick to my guns. 😕 I am truly terrified of a recurrence.

Yes, my recent check-ups were clear. The issue is this hole in my eardrum. They won't say for sure if it's a side effect of the radiation. Because of that defect, I've dealt with two severe throat infections. I'm waiting for an appointment with an ENT surgeon and some diagnostic tests. Regardless of what the tests show, I'm going to insist on getting that hole patched up. I don't want to deal with constant infections and swallowing antibiotics all the time.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3799 ·
feralridge3 said:It’s no walk in the park trying to be there for someone who treated me pretty poorly growing up—especially once she remarried. My brother, or rather my half-brother, gets all the affection because she treats him so much better, which she actually admitted to me a few years back. My feelings toward her are just a mess. Our relationship is basically a hollow shell; there’s zero closeness here. 😢
Most of the help I provide is strictly financial.

My former oncologist (who’s retired now) told me straight up when I asked about my survival odds that I’d definitely make it because I’m a fighter. During those darkest stretches, I leaned on that thought constantly. That was back when I first started scraping money together for Temodal. "Resilience" is a flexible term, isn't it? 😉
I’m thinking about seeing a private psychiatrist. This whole situation is incredibly stressful, and honestly, I don't want to risk my tumor coming back. 🙂 After everything I've been through over the last five years, I decided to finally put myself first. It's "me first," then everyone else. But now, that resolve is wavering. I'm torn between "dying" for her or standing my ground. 😕 I am genuinely terrified of a recurrence.

Yeah, my last check-ups were fine. The issue is this hole in my eardrum. They won't say for sure if it's from the radiation. Because of that gap, I've dealt with two brutal throat infections. I'm waiting on an appointment with an ENT surgeon and some testing. Regardless of what the results show, I'm going to push to get that hole patched up. I'm done with constant infections and swallowing antibiotics.

Give whatever support you can, but do it solely for your own sake—for your own peace of mind and mental health. Don't leave yourself any room to regret it or feel like you're being taken advantage of later.
And yes, focus on yourself first. Everyone fights their own battles. Support can take many forms, so find a way to do it without letting it weigh you down more than necessary. You mentioned your brother is healthy and closer to her; if that's the case, it's on him to step up, drive her around, cook, and handle the logistics.

Keep staying strong.😉🙂
feralridge3 feralridge3 Active Member
54 messages
joined Dec 2010
#3800 ·
Angela Wright said:Just give whatever support you can, and make sure you're doing it solely for your own sake—for your own peace of mind and mental health. Don't leave any room for yourself to regret it or feel like you're being blamed for anything later on.
And yes, prioritize yourself first and foremost. Everyone fights their own battles. There are countless ways to offer support without overextending yourself beyond what's necessary or even possible. You mentioned your brother is healthy and that you two are close, so it’s only right that he’s the one stepping up to drive, cook, and handle the logistics.
Keep staying brave.😉🙂

That’s actually my goal here—to help as much as I possibly can. I honestly could be doing so much more if I were able to drive, but because of my epilepsy, the law won't allow me to. Though, in all honesty, it wouldn't even matter much since I don't feel capable of it myself. It’s just a shame we live on opposite sides of town.
My brother is heading out this Saturday; he lives and works about 200 miles away. He'll be staying here for about a month in total. His boss gave him the time off to help out with his mom. 🙏 🙏

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