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Support resources for families dealing with cancer and other serious illnesses

Started by casualpanther1 · · 👁 63 views · 1.9K replies

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Participants casualpanther1quietpilot87Angela WrightJames Young87Zachary Howard2Benjamin Grant6wanderingharbor61Roger Hall15Zachary Booth3brightgardener8feralwolf24hiddentiger80Karen Fox36Elizabeth Diaz60slyseal28Linda Wright5James Martinez3Jeremy Kelly6gentlemoose62Maria Scott4shadowmason6Kevin Edwards35jadetinker42John Chase6 …
Steven Kelly11 Steven Kelly11 Newcomer
1 message
joined Oct 2008
#1201 ·
Hey everyone! Does anyone have experience using Immno Max or AHCC? Can they actually help? Thanks in advance!
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#1202 ·
Steven Kelly11 said:Hey everyone, I was wondering if anyone here has experience using Immno Max or AHCC tablets? Can they actually help? Thanks in advance.

We've already covered this topic on this board. Generally speaking, Immno Max is one of the most frequently mentioned and widely used supplements for boosting immunity... it won't hurt.
Susan Ruiz76 Susan Ruiz76 Active Member
51 messages
joined Aug 2012
#1203 ·
Carl Ortiz6 said:I’m asking anyone currently undergoing treatment, or anyone with family members being treated, with Tarcev to please reach out. I want to hear from those who managed to get it through a hospital or those who are paying for it out of pocket.
Thanks, and best to everyone.
Stay brave.

I sent you a PM—check it.
Susan Ruiz76 Susan Ruiz76 Active Member
51 messages
joined Aug 2012
#1204 ·
Kyle Cruz8 said:I'm also interested in hearing about experiences with Kancist drops. My father was diagnosed with sinus carcinoma five months ago, and things haven't improved much even after radiation therapy. It feels like the doctors have essentially given up on him. I’m looking for any feedback regarding these drops or if anyone here has actually ordered them. I'm planning to do so very soon. thanks

We ended up buying them. My husband has been taking them for about 20 days now, though they say you don't really see results until the 45-day mark (after three bottles). Honestly, one bottle costs $233, but we've already poured so much money into Beta Glucan 1,3 D and Noni—which he takes continuously for a full year—that this didn't feel like too much of a gamble for a trial run. It can't hurt; the practitioner has an official office and provides receipts for everything, so it's all completely legitimate.
Immno Max for cancer therapy costs about $1.75 per month—now that is truly out of our reach, and we simply can't afford it anymore.
As for whether his blood work is actually improving because of the combination of Beta Glucan, Noni, beet juice, blackberry wine, and so on—we honestly have no clue. We just don't dare stop any of it.
Ashley Ramirez Ashley Ramirez Newcomer
1 message
joined Sep 2007
#1205 ·
Amy Hayes28 said:It all started when the "real" pain kicked in. It was this relentless cycle: constant mumbling under my breath, sleeping all day long, losing control over my bladder, and feeling this intense stiffness throughout my body. Then came the tightness in my throat, that bone-dry mouth, total constipation, depression, and even diabetes... Is anyone else dealing with this absolute nightmare?
There’s really nothing left to be done at this point. All we can do now is hope that the suffering doesn't drag on for too long.
The tumor is growing, the metastases are everywhere, and one has even broken through to the surface on my head.😢
We are all completely falling apart at this point. Mom has turned into an entirely different person, and honestly, I can only hope that once Dad passes away, things might finally settle back to some kind of normal. That’s just how it is. God forbid anyone else ever has to deal with this kind of evil.😢

Dear Drag Bibo, those who haven't lived through it just don't get it. They can't fathom how someone could feel a sense of relief when a loved one finally passes away after battling this disease. They judge, but they simply don't understand that with that passing, the patient is finally released from an impossible amount of suffering. Honestly, until I experienced it myself, I couldn't truly grasp the reality of cancer and metastasis. It’s pure horror—absolute devastation for the entire family.

I can tell you from experience that my family went through the exact same thing five years ago with my father, and honestly, we still haven't fully recovered as a unit. Even now, there’s this palpable tension in the room whenever these topics come up, even if they're just mentioned in passing. I know, it’s not exactly comforting to hear, but an experience like that definitely leaves lasting scars—it's practically like living with PTSD.

Stick together, everyone. Seriously, don't let him see any cracks in the foundation—don't let him catch you arguing amongst yourselves. Try to give him some peace. And please, don't hold things back from him; talk to him as much as his strength and will allow. You don't want to be left sitting there later, drowning in regret over all those unspoken thoughts or messages you wanted to share with one another. Good luck, people!
Kyle Cruz8 Kyle Cruz8 Newcomer
8 messages
joined Oct 2008
#1206 ·
Susan Ruiz76 said:We ended up buying them anyway. My husband takes them for about 20 days, and apparently, you don't see results until after 45 days—so, three bottles of drops. Honestly, one bottle costs $233, but since we’ve already poured so much money into Beta Glucan 1,3 D and Noni (which he takes continuously for a full year), it didn't feel too crazy to give this a shot. It can't hurt—the doctor has a registered practice and provides receipts for everything, so it's all totally legal.
Immno Max for cancer therapy costs about $1.75 per month—now *that* is genuinely out of our budget, and we just can't afford it anymore.
Now, whether his blood work actually looks better because of the combination of Beta Glucan, Noni, beet juice, blackberry wine, etc.—we have no clue. We simply don't dare stop any of it.

I went ahead and ordered them; they should be here the day after tomorrow. If you guys hear anything new or see any progress, please let me know—we've tried so many things, from Bioenergeticists to Noni and various alternative routes, but nothing seems to be working yet. These drops are the only thing giving us hope right now...
Lisa White54 Lisa White54 Active Member
213 messages
joined Jul 2008
#1207 ·
Kyle Cruz8 said:I went ahead and ordered them anyway; they should be here the day after tomorrow. If you guys hear anything new or see any progress, please let me know. We’ve tried a ton of stuff—Biobran, Noni, all the alternative routes—but nothing seems to be doing the trick so far. These drops are our last real shot at hope right now...

What really saved my husband after everything he went through during chemo (when he dropped 20 lbs in just 15 days, which was terrifying) was the Shake mix formula 1 from ShapeWorks.
He was drinking the Shake along with aloe, Noni, beets, and beta carotene, and it helped him bulk back up fast and get his blood work looking decent again. His blood counts were always solid enough to handle the chemo sessions. He kept up with the Shake for another two years, and then we eventually cut out all the supplements because his body was finally strong enough to maintain its own immunity. But honestly, we're back on the Shake again because he’s just completely wiped out from all those endless tests and doctor visits.
Kyle Cruz8 Kyle Cruz8 Newcomer
8 messages
joined Oct 2008
#1208 ·
Lisa White54 said:What really saved my husband during and after chemo—when he dropped 20 kg in just 15 days—was the Shake mix formula 1 from ShapeWorks.
He took the Shake along with aloe, Noni, beet, and beta carotene, and he regained his weight quickly while fixing his blood work. His blood counts were always solid enough for the chemo treatments. He kept taking the Shake for another two years, then we stopped all the supplements because his body was strong enough to build its own immunity. Now we’ve started back on the Shake because he's pretty exhausted from all the testing he's been through.


Thanks for the help; can anyone tell me where to find a distributor for the Shake, or is it available in pharmacies? Also, one more thing—how do you make the beet juice? Do you have a specific recipe? Thanks in advance for any help.
quietpilot87 quietpilot87 Active Member
149 messages
joined Sep 2008
#1209 ·
They rushed Mom to the hospital..
On one hand, we’re relieved she’s being looked after, but on the other—it definitely doesn't feel great.😢
Tomorrow, Dad is going to head down there and try to talk them into some extra visiting hours, since they've tightened up the rules.
John Chase6 John Chase6 Newcomer
5 messages
joined Jun 2007
#1210 ·
Hey there, fellow fighters!!!
Just a quick update from my end... the head CT came back okay—meaning they’re saying there's nothing going on up there :-)...
Now I'm just focusing all my energy on trying to manage the lungs—basically, just praying everything stays calm and doesn't progress for as long as possible.
Srdacan, Dina
Lisa White54 Lisa White54 Active Member
213 messages
joined Jul 2008
#1211 ·
Kyle Cruz8 said:Thanks for the help; can you tell me where you get the Shake? Like, do you buy it from a specific distributor or can I just grab it at a pharmacy? Also, one more thing—how do you make that beet juice? Do you have a recipe? Thanks in advance for the help.

Here’s how I do the beet juice: take a glass of fresh beet juice (you can find it at a drugstore, though I usually just grate the beets myself and squeeze them out), then stir in 1 tablespoon of honey and either a lemon or an orange. It tastes great, but more importantly, it’s actually healthy.
I'll shoot you a PM with the number for the distributor I use for my Shake.
Kyle Cruz8 Kyle Cruz8 Newcomer
8 messages
joined Oct 2008
#1212 ·
Lisa White54 said:I make my beet juice like this: take a glass of fresh beet juice (you can get it at the pharmacy, though I usually just grate the beets myself and squeeze them out), then stir in 1 tablespoon of honey and either a lemon or an orange. It tastes great, but more importantly, it's healthy.
I'll send you the distributor's number via PM—the one I use for my Shake.

Thanks for the quick reply.
Nicholas Hughes2 Nicholas Hughes2 Newcomer
2 messages
joined Oct 2008
#1213 ·
It’s actually much better to just grab a pre-made beet biotin juice—the kind they make using cold pressing—because that way you don't lose any of those precious nutrients... whereas if you try grating it yourself, you end up losing a good chunk of the good stuff anyway.
And honestly, picking up that juice at CVS is way more cost-effective than getting it at a pharmacy 🙂 (the price gap between my local pharmacy and CVS is nearly $2.25, and given how much my mom drinks, it really adds up...)
Kyle Cruz8 Kyle Cruz8 Newcomer
8 messages
joined Oct 2008
#1214 ·
Kyle Cruz8 said:Thanks for getting back to me so fast.

Our biggest struggle right now is just trying to get my dad to put on some weight. Since he can't eat anything besides blended food, it’s a massive hurdle—especially since he’s completely lost his appetite. If anyone has a recipe or has dealt with something similar, any help would be much appreciated.
Maria Lee54 Maria Lee54 Member
42 messages
joined Oct 2008
#1215 ·
Hey everyone! I’m dealing with an incredibly tough and rare condition—specifically, my diagnosis is
Glomus Jugulare. I had surgery on January 22, 2008, but the road to recovery is still long, hard, and full of obstacles. Honestly, I just feel lucky to have enough strength for ten people. I’m hoping to connect with someone else who has this diagnosis, or something similar, so we can swap stories and experiences.
James Martinez3 James Martinez3 Newcomer
4 messages
joined Feb 2013
#1216 ·
Hi everyone,

I just wanted to give a quick update on where things stand (just in case anyone is following our fight against melanoma, or if someone down the road wonders if stage IV can actually be managed):

One year after the diagnosis, the scans are still coming back clear. The next checkup isn't for another six months. So far, so good—we’re feeling really happy and relieved, but the battle keeps going!

I read this thread regularly and am sending nothing but positive vibes to all of you. Hang in there!
Lisa White54 Lisa White54 Active Member
213 messages
joined Jul 2008
#1217 ·
Kyle Cruz8 said:Our biggest headache right now is that we just can't get my dad to put on any weight. Since he can't eat anything except blended food, it’s a massive struggle—especially since he’s totally lost his appetite. If anyone has a recipe or has dealt with something similar, any help would be huge.

Ask the doctor to prescribe Megostat syrup. My husband was on that for a while when he started dropping weight fast. Megostat actually brought back his appetite and helped him get those pounds back on. It's a prescription drug used for serious and malignant illnesses.
Lisa White54 Lisa White54 Active Member
213 messages
joined Jul 2008
#1218 ·
Elizabeth Gonzalez55 said:Hey everyone,

Just wanted to drop an update on where things stand (in case anyone’s been following our fight against melanoma, or if someone down the road wonders if you can actually take on Stage IV):

It’s been a year since the diagnosis, and the scans are still coming back clear. Next checkup isn't for another 6 months. So far, so good—we're feeling pretty stoked, but the grind doesn't stop!

I'm always lurking here reading this thread and sending good vibes to all of you. Hang in there!

Man, it is awesome to hear those results are still holding steady after a whole year!
Best,
gentlemoose62 gentlemoose62 Active Member
105 messages
joined Jul 2008
#1219 ·
Elizabeth Gonzalez55 said:Hey everyone,

Just wanted to share an update (for anyone following our fight against melanoma, or if someone ever wonders if you can take on Stage IV...) :

One year after the diagnosis, everything still looks clear. The next checkup is in six months. So far so good—we're feeling happy and satisfied, and the fight goes on!

I read this thread all the time and am sending positive vibes to all of you. Hang in there!

🙏That is so wonderful, thank you for sharing. Every checkup that comes back clean feels like being REBORN. People who haven't been through this can't even imagine the rush of emotion and strength that hits your whole body... suddenly, you're ready to fight even HARDER!
👍May it stay this way forever!
Lisa White54 Lisa White54 Active Member
213 messages
joined Jul 2008
#1220 ·
Maria Lee54 said:Hey everyone! I'm dealing with an incredibly tough and rare condition—specifically, I was diagnosed with
Glomus Jugulare three years ago. I had surgery back on January 22, 2008, but honestly, the road to getting better is still long, rough, and full of obstacles. What matters most is that I've got enough strength for ten people. I’m really hoping to connect with someone else who has this or a similar diagnosis so we can swap stories and experiences.

The biggest thing is your own grit and keeping that positive mindset. Thank God you're staying strong. Keep it up.

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