Resources and support for families dealing with cancer and serious illness

Angela Wright said:... I might be able to talk my home health nurse into helping out (if she’s willing to set up a PICC line during those five days of therapy to make administering the meds easier), since we’ve gotten along pretty well, but honestly, how we're actually going to get a hold of the medication is still a total question mark.

brightgardener8 said:Is your mom still going through chemo right now?
We started the second cycle of Temodal today, and we bumped the dose up to 320 mg. My mom is dealing with nausea and vomiting again... We’re actually going to try that remedy involving linen because I’m at my wit's end. Apparently, Reglan and Peptoran just aren't cutting it.

Angela Wright said:No, I was speaking hypothetically about "what if" scenarios. But the reality is that administering anything intravenously—and given my mother can't handle large doses of Dexedrine for long before things take a turn for the worse, she’ll likely need a PICC line soon—presents a significant hurdle.
I am still holding onto hope that this new medication might offer her some relief.😳 Let's just hope she stays lucid enough to experience it, because what we've seen so far has been nothing short of a miracle.

brightgardener8 said:Is your mom still undergoing chemotherapy?
We started the second cycle of Temodal today, and they bumped the dose up to 320 mg this time. My mom is dealing with nausea and vomiting again... We’re going to have to try that thing with the linen because I honestly don't know what else to do. Reglan and Peptoran clearly aren't cutting it.

Linda Campbell said:She passed away tonight at 10:30 p.m. She fought with everything she had left in her. We were by her side all day today—kissing her, holding her hands, kissing her face. She knew she wasn't alone.
Don't ever give up, everyone. The two of us sat down last night and worked out all the details; we were actually supposed to start the new treatment this morning. She was so ready for it.
I feel an incredible sense of peace right now because she finally found hers. Personally, I can't look back with any regrets; I fought until the very end and tried absolutely everything within my power. I was at the hospital with her two or three times every single day. I was always there to cheer her up, to lift her spirits... I even made sure she had the nicest pajamas in the entire hospital and the most beautiful wig, which I picked out myself. She was an extraordinary woman throughout her whole life, and that didn't change even on her final day. It happens to be the feast day of Saint Mother Teresa, and honestly, she reminded me so much of her.
My thoughts are with you all. Don't be afraid.

Linda Campbell said:She passed away tonight at 10:30 PM. She fought with everything she had left in her. We were right there by her side all day today—kissing her, holding her hands, kissing her face... just making sure she knew she wasn't alone.

Linda Campbell said:She passed away tonight at 10:30 PM. She fought until her very last breath, and we were right there by her side all day today, kissing her, holding her hands, kissing her face... she knew she wasn't alone.
Don't you ever give up, everyone; just last night, the two of us had everything settled and were supposed to start the new therapy this morning—she was actually feeling quite optimistic about it.
I feel an incredible sense of peace right now because she has finally found hers, and honestly, I don't have a single regret; I fought alongside her until the end and tried absolutely everything humanly possible. I was at the hospital with her two or three times every single day. I was always there to cheer her up, to lift her spirits; she even had the nicest pajamas in the entire hospital and the most beautiful wig, which I went out and bought myself. She was truly an exceptional woman throughout her whole life, and even in these final hours. It just so happens that today is the feast day of Saint Mother Teresa, and she really was a lot like her.
My thoughts are with you all, and please, don't be afraid.

Linda Campbell said:She passed away tonight at 10:30 PM. She fought until her very last breath; we were by her side all day today, kissing her, holding her hands, kissing her face. She knew she wasn't alone.
Don't ever give up, everyone. The two of us sat down last night and finalized everything—we were supposed to start the new therapy this morning, and she was actually really motivated for it.
I feel incredibly peaceful right now because she has finally found her peace, and personally, I have nothing to regret; I fought until the bitter end and tried absolutely everything. I was at the hospital with her two or three times every single day. I was always there cheering her on, trying to lift her spirits; she had the nicest pajamas in the entire hospital and the most beautiful wig, which I bought myself. She was an extraordinary woman throughout her whole life, including this final day. Incidentally, today is the feast day of Saint Mother Teresa, and she truly shared that same spirit.
My best to you all, and please, don't be afraid.

electricgardener14 said:Honey,
please accept my deepest condolences. Your mother was such an incredibly blessed woman simply because she had you as a daughter. You truly did everything within your power—you followed every prescription and tried every single treatment available to you—but this damn disease was just too powerful. She’s found her peace now, and you need to find a way to step back into your own life and move forward. Be just as strong as she was, and please, take care of yourself.
electricgardener14

Angela Wright said:Honey, how is your husband doing?

electricgardener14 said:Thanks for asking, Angela Wright,
things aren't too bad right now. He finished his second round of chemo and is heading into radiation, but he can't sit or even walk because of the pelvic pain. Do you have any experience with this—does radiating those specific areas help at all? Aside from that, the pain is slightly more manageable. Using Voltaren plus Durogesic patches helps him get by, but his doctor mentioned we should probably swap out the Voltaren for something else since he shouldn't be on it long-term. Any suggestions? Right now, Voltaren is the perfect fit because it manages the pain and keeps his temperature under control, which has been hovering constantly. I honestly don't know why his fever won't break; is a persistent low-grade fever just a symptom of the underlying disease?
How's your mom doing? Is she feeling any better?
Best,
electricgardener14

Linda Campbell;10074694 said:She passed away tonight at 10:30 PM. She fought with everything she had left. We were right there by her side all day today, kissing her, holding her hands, kissing her face. She knew she wasn't alone.

I am so incredibly sorry for your loss.

abuxl;10063165 said:maybe it’s just easier for me because of my line of work,
but honestly, I’d suggest doing this at home. You don't need any fancy training or specialized needles; you'll run into way fewer issues that way. Trust me, once you get used to it, you won't even think about the nausea while taking Temozolomide.