slyviper47
Active MemberOP
97 messages
joined May 2009
I was there from August 3rd to the 23rd, and honestly? It was a total bust. Thank god my husband was there to bail me out—he actually had his own private room in the new wing, so he was right there when I needed him!
I wasn't even gonna say anything because I know everyone's experience is different. But honestly? With my diagnosis, things are pretty rough. You're basically helpless if you don't have someone right there by your side 24/7.
We tried staying in the new wing—had an apartment with its own bathroom—but honestly? It didn't make a lick of difference. All it did was run up my husband's credit card bill!
Honestly, he was the victim here, and his sisters were just thrilled about it. We’re stuck in these double rooms, which is just brutal when you can't even move. And with my diagnosis? Forget about taking a shower. Who could deal with that?
The absolute worst part? Nobody actually tells you what to expect when you first check in. Since I’m flying solo and dealing with this diagnosis, I had to basically stumble through everything myself until I finally figured out how to ask for help. Take the dining setup, for example. They give you this little side table, sure, but then your nurse just slices up some meat and vanishes! You're just left there trying to eat whenever you can. Most days, I couldn't even touch lunch at 11:45 AM, let alone dinner at 5:45 PM. I’d be starving by the time we realized we could just save those pre-cut slices of meat and bread for later. My husband ended up buying extra stuff and breakfast meats just to cope, because between all the meds, I was up by 5:00 AM and wouldn't get anything to eat until 7:30... and that was just lukewarm tea and some toast. I eventually had to speak up: "Is it really that hard to get me a plain cup of tea by 10:00?" After that, they’d bring it around 10:30 every day—usually practically cold! We actually had to bring a thermos from home just to keep anything warm. Plus, with the weather being so unpredictable, I was constantly swinging between sweating through my sheets or freezing my butt off. Seriously, why is it so difficult?
Honestly, I’d probably be starving and parched if I had to rely on them!
Diet was messing with my digestion too, but honestly? Nobody seems to give a damn anymore. I’m not even gonna get into the messy details.
The worst part? They didn't have my meds, and honestly, they couldn't have cared less about getting them for me. Thank god my husband stepped up—he managed to grab enough supplies to last us through the whole trip. He was basically my only lifeline for my treatment. Plus, their physical therapy and rehab schedule only runs on weekdays. That meant over the holiday weekend—Friday the 5th through Sunday—I was totally stuck without any exercises. Even though Saturday is a non-working day, they’re still supposed to ensure patients have their medication! Seriously, nobody even bothered to ask how much I was spending or what I needed. So yeah, that's the "hospital" experience for you. It felt more like I was just an extra chore for my husband to handle!
Nobody tells you anything about bathing or washing up! I asked around, but it wasn't until they actually did the assessment that I found out bathing only happens once a week, and even then, it's handled by specialized hospital staff. On my very first wash day, they told me straight up: "No baths here, just showers." And get this—we had to bring our own sponges and shampoo. If we hadn't brought our own stuff, who knows what would've happened? Seriously!
Look, it wasn’t all bad! They actually did a decent job washing my hair, though obviously, I made sure to use my own shampoo. Thank God we asked them to bring my hairdryer from home, too. Honestly? I was low-key terrified after the shower because it was freezing in there. Having to dry off and get dressed on the bed in the room was sketchy. They kept wheeling me back and forth to the bathroom in my princess wheelchair and then wrapping me up in a sheet... I didn't see a single one of their towels. Luckily, I had my own stash that my son kept bringing me fresh.
There was this church right nearby that rang its bells like clockwork—morning, noon, and night. Honestly, some of the nurses would even drive patients back and forth to Mass. Was that just them being extra sweet, or was it actually a paid service? Who knows!
My husband used to run out to grab the paper every single day. Honestly, the staff at the shop practically lined up just to wait for us to sit down and read it together!
I mean, I could’ve had my own TV in my room, but honestly? It wouldn't have done much for me. Why bother? Watching TV just leaves me totally wiped out!
Man, this is such a drag... especially when you're stuck in one spot. And if you actually have the nerve to call your sister twice in a single hour? Seriously? It’s all because of those two, even though there's a hundred of us!
So my husband went to see the director and accidentally let slip that they actually go way back... he didn't even realize until a week later while he was out on vacation! Anyway, long story short... their finances are a total mess right now. They're barely breaking even, so there’s zero chance of them hiring anyone else.
And yeah... they use a ton of support staff and volunteers. I had this one physical therapist helping out, plus some guys doing community service—they were basically filling in whenever people took their vacation time. And of course, they were doing it all for free!
Total chaos at my place today! First, a little kid knocked a glass off the table—classic. I was bugging my sister to fix it before lunch because I seriously didn't want soup flying all over the bed. Then, out of nowhere, this guy in a Hawaiian shirt shows up with his parrots. My husband was just like, "Yeah, the birds are enough help," and told him he could just handle the setup himself. Can you believe that?
The handyman didn't even show up until 3 PM! Apparently, they wrap things up by 3, so why bother? My husband was pretty annoyed that I was bothering my sisters, but honestly, if I hadn't, I wouldn't have even had soup for lunch.
The food wasn't terrible... except for the dinner situation. They’ll serve you soup and a main dish for lunch, which is fine, but serving stew or fruit juice for dinner? No thanks. I didn't see any juice there, but they did give us an apple, I guess.
Bottom line: it's pretty bad if you're semi-mobile or can't move much at all....
Some diagnoses get a lot of hype in the news, and everyone praises them. There was actually an article in the Sunday evening paper about a woman whose mother was staying there, and she basically had to haul her back home to Germany...
If anyone wants to read it, here's the link
HEALTHCARE SERVICES: Nada Nosković complains about the rehab conditions at Palm Springs. You could literally die in room 168. By Duško Tadić
I ended up with a double room, mostly because my husband paid cash upfront for the second bed.
I actually checked out a day early. There was this whole mess with how the ambulance would transport both me and my husband as my escort since nobody could pick me up at home. The ambulance was totally fine with driving us both there, but for the trip back? Not happening.
So we had to scramble and book private transport a day ahead. The discharge papers say the 24th—that's when insurance coverage ends. If I had waited until the 24th, we would've only been entitled to breakfast, and we would've had to check out by 11 AM like we were at a hotel.
A lot of people were quietly grumbling, and anyone who could afford to leave early, did.
Luckily, my neurologist at the big city hospital warned me not to expect much and told me I could just leave if I wasn't happy. The catch is, some treatments you can *only* get there... like the electrical therapy. That stuff is great in the hall for people with different diagnoses, like bone fractures or whatever. But the worst part is that patients don't even know what specific treatment they're supposed to be getting. And get this: they don't tell you Saturdays aren't workdays, but they still charge insurance for them! As if you can cram a whole week of therapy into five days...
Overall, most patients just stay quiet because they feel like they have to play by the facility's rules.
Toward the end, they started asking me every single day what I needed, but nobody ever actually told me what I was allowed to ask for! For example, I could have asked for a plastic water pitcher to use for washing up over the toilet in the bathroom, but I couldn't even do that myself. When I finally asked, they acted like they'd already covered it! They even claimed they'd asked me what I needed and that I had a basin, which was true, but... I wasn't stable. I tried to do something on my own once, slipped, fell, and messed up my tailbone, and then they actually yelled at me...