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Reactive arthritis

Started by Jonathan Mendoza31 · · 👁 8 views · 86 replies

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Participants Jonathan Mendoza31velvetmoose9Arthur Smith56melloworca6wiredotter12Scott Howard74Charles Gomez2mellowskipper3Bradley Martinez3Jason James3Nicholas Davis4Grace Campbell56
Scott Howard74 Scott Howard74 Active Member
150 messages
joined Sep 2008
#21 ·
wiredotter12 said:Thanks for the feedback, first of all. But sorry, I suspect my initial issue was likely a primary infection from some kind of pathogen. I don't know which one—I haven't run tests for things like strep, Lyme, Yersinia, Ureaplasma, or anything else, so I have no idea. That’s why I dealt with nasty discharge for weeks back in late 2013. I took antibiotics then, but maybe too late or not enough Augmentin, and now my immune system has overreacted. It’s producing something that's attacking my joints because it mistakenly thinks the pathogen is still there (starting with my elbow, then both elbows, and now mostly my knees and ankles).
My blood and urine tests have come back normal twice now. 🤷

Now I get occasional dizzy spells, and my leg muscles ache like I just ran a marathon. I also feel like my knees are severely swollen, even though they don't look it. I just apply some topical cream and take one Tylenol at night.
None of this feels sufficient. It feels like the actual cause hasn't been found or eradicated. I'm no doctor, but I strongly suspect a lingering pathogen, and that requires antibiotics, which I am currently not taking. 😕

The rheumatologist only looked at my X-rays, physical symptoms, and blood/urine work. He did NOT order any tests for potential pathogens that trigger reactive arthritis. 🤷
It's what keeps bothering me: the idea that I still have an infection, I'm not taking antibiotics, and my body is still attacking my joints because it thinks the threat is still present. 😠

Does anyone know who can order specific testing? Maybe an infectious disease specialist in a major US city like Chicago or New York? And specifically, what tests should I ask for to rule out a bacterial cause?

If I still have an infection, waiting three months without antibiotics sounds like a disaster, doesn't it? 🤷

Look, just read this. To you, it might look even more messed up than it actually is, but if your rheumatologist already scheduled you for a follow-up in three months, then don't go doubting them. Just trust the process.

Look, Reiter's syndrome is this absolute nightmare of a chronic inflammatory disease that just pops up whenever it feels like it. It doesn't just mess with your joints—though it usually starts its rampage in your knees, feet, or ankles—it hits you everywhere else too. We're talking the urethra and even your eyes, where you can get hit with nasty conjunctivitis. Honestly, it’s most common in guys between 20 and 40 who’ve dealt with an STI, and if you've got the genetic predisposition linked to HLA-B27, you're basically sitting ducks. It's just one of those things.
So, look, Reiter's syndrome is also called reactive arthritis, and honestly, it totally makes sense why. It’s basically just your body throwing a massive, global temper tantrum because of an infection somewhere else entirely—like, your joints are just collateral damage in some other part of your body's war zone.
So, what are we actually looking at here? Causes and symptoms. It’s never straightforward, is it? One minute you think you just pulled a muscle or caught a nasty bug, and the next, you're staring down a whole laundry list of issues that make zero sense. It’s a total mess. Honestly, trying to pin down why things go sideways is like chasing ghosts. You think you have it figured out, then some new symptom pops up out of nowhere and ruins your entire week. It's exhausting. Just one thing after another.
Look, this whole thing basically boils down to your body just totally freaking out over an infection. It’s like your immune system loses its mind after you catch something—could be an STD, could be some nasty gut infection, doesn't really matter. It just goes haywire. You end up dealing with a nasty case of urethritis, your eyes get all red and inflamed, and then the joint pain hits. We're talking real misery here—swollen, aching joints, usually hitting the knees or the toes, and that sharp, stabbing pain where your tendons meet the bone, like in your heels. It's a mess.
So, I was digging through some new research, and get this—it turns out microorganisms are basically pulling the strings behind rheumatoid arthritis and all those other rheumatic messes in chimps, rats, pigs, poultry, and all sorts of livestock. It’s everywhere. Turns out two of the biggest culprits are Mycoplasma and Chlamydia. We're talking about parasitic bacteria that trigger Reiter's syndrome in the connective tissue of people who already have the genetic predisposition for it. Crazy stuff.
When you've got this weird mix of joint pain, issues with your private parts, urinary problems, skin rashes, and red eyes, any doctor worth their salt is gonna start looking at Reiter's syndrome. The thing is, these symptoms don't always hit you all at once, so you could be wandering around totally clueless for months while the disease flies under the radar. Plus, there isn't some magic, easy blood test that just screams "Bingo! It's Reiter's."
So, what can you actually do about it?
Usually, they throw antibiotics at the infection to kill it off, and cranking up the NSAIDs can help dial down the joint pain and inflammation to a manageable level. Even though most people pull through, those nasty arthritis symptoms can flare up and vanish for years on end. Just when you think you're in the clear, boom—there it is again.
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#22 ·
Scott Howard74 said:Look, just read this. To you, it might look even more messed up than it actually is, but if your rheumatologist already scheduled you for a follow-up in three months, then don't go doubting them. Just trust the process.

Look, Reiter's syndrome is this absolute nightmare of a chronic inflammatory disease that just pops up whenever it feels like it. It doesn't just mess with your joints—though it usually starts its rampage in your knees, feet, or ankles—it hits you everywhere else too. We're talking the urethra and even your eyes, where you can get hit with nasty conjunctivitis. Honestly, it’s most common in guys between 20 and 40 who’ve dealt with an STI, and if you've got the genetic predisposition linked to HLA-B27, you're basically sitting ducks. It's just one of those things.
So, look, Reiter's syndrome is also called reactive arthritis, and honestly, it totally makes sense why. It’s basically just your body throwing a massive, global temper tantrum because of an infection somewhere else entirely—like, your joints are just collateral damage in some other part of your body's war zone.
So, what are we actually looking at here? Causes and symptoms. It’s never straightforward, is it? One minute you think you just pulled a muscle or caught a nasty bug, and the next, you're staring down a whole laundry list of issues that make zero sense. It’s a total mess. Honestly, trying to pin down why things go sideways is like chasing ghosts. You think you have it figured out, then some new symptom pops up out of nowhere and ruins your entire week. It's exhausting. Just one thing after another.
Look, this whole thing basically boils down to your body just totally freaking out over an infection. It’s like your immune system loses its mind after you catch something—could be an STD, could be some nasty gut infection, doesn't really matter. It just goes haywire. You end up dealing with a nasty case of urethritis, your eyes get all red and inflamed, and then the joint pain hits. We're talking real misery here—swollen, aching joints, usually hitting the knees or the toes, and that sharp, stabbing pain where your tendons meet the bone, like in your heels. It's a mess.
So, I was digging through some new research, and get this—it turns out microorganisms are basically pulling the strings behind rheumatoid arthritis and all those other rheumatic messes in chimps, rats, pigs, poultry, and all sorts of livestock. It’s everywhere. Turns out two of the biggest culprits are Mycoplasma and Chlamydia. We're talking about parasitic bacteria that trigger Reiter's syndrome in the connective tissue of people who already have the genetic predisposition for it. Crazy stuff.
When you've got this weird mix of joint pain, issues with your private parts, urinary problems, skin rashes, and red eyes, any doctor worth their salt is gonna start looking at Reiter's syndrome. The thing is, these symptoms don't always hit you all at once, so you could be wandering around totally clueless for months while the disease flies under the radar. Plus, there isn't some magic, easy blood test that just screams "Bingo! It's Reiter's."
So, what can you actually do about it?
Usually, they throw antibiotics at the infection to kill it off, and cranking up the NSAIDs can help dial down the joint pain and inflammation to a manageable level. Even though most people pull through, those nasty arthritis symptoms can flare up and vanish for years on end. Just when you think you're in the clear, boom—there it is again.

Thanks... I didn't want to say it here immediately, but I’m 90% sure it's Reiter's.

Time is money. It’s clearly difficult to prove it's Reiter's, and I need antibiotics, but I can't get anything without a diagnosis. This is a mess. What now?🤷
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#23 ·
wiredotter12 said:Thanks... I didn't want to say it here immediately, but I’m 90% sure it's Reiter's.

Time is money. It’s clearly difficult to prove it's Reiter's, and I need antibiotics, but I can't get anything without a diagnosis. This is a mess. What now?🤷

Just an update: my wife just finished her gynecological exam. They found some lesions on her cervix, so they're suspecting CIN1. She's scheduled for a Pap smear next week along with HPV typing.

They need to run swabs, so I should probably get mine done too—testing for aerobics, Ureaplasma, Mycoplasma, Chlamydia, and so on. There's a high probability these little beasts triggered my reactive arthritis / Reiter's.

Has anyone dealt with a case like this before?
velvetmoose9 velvetmoose9 Active Member
163 messages
joined Apr 2020
#24 ·
wiredotter12 said:Greetings, here is the update...

Five months ago, I dealt with a severe, long-lasting respiratory issue. It involved heavy nasal and oral congestion. After two or three weeks, I finished a course of Augmentin, and that finally cleared things up.

A few weeks later, my left elbow started killing me. Over the next couple of weeks, the pain intensified, spreading through my upper arm, forearm, and hand. It got so bad I was practically useless with that arm for weeks. My GP prescribed Advil (one 600mg tablet daily) and some Aspercrem, but after just a few days, the pain started creeping into my right arm, my neck, and my cervical spine too.

My GP bumped my Advil up to 600mg three times a day, but it trashed my stomach. I scaled it back to twice a day and just used Aspercrem on top of it, but that didn't do much either.

Two months ago, my left fingers started tingling. Now the numbness has spread to my feet, along with this strange sensation in my legs. The pain is migrating.
I called my father. He went through something similar decades ago—lasted a few months. He’s HLA-B27 positive, and Indomethacin was what actually helped him.
I started on Indomethacin 50 mg / 3 x myself. It provided some relief for about two or three weeks, but after a brief break, I couldn't touch it again. Every time I took it, the dizziness was unbearable—lasting three to four hours. Now, I just use Aspercrem twice a day on my knees, elbows, ankles, and hands.

I've switched to taking only Tylenol at night before bed, but now the pain has migrated from my elbows down to my knees and ankles. For the last two months, I’ve felt like I ran a marathon every single day despite doing nothing. My knees feel heavily swollen, even though there's no visible swelling. I'm still applying Gavex cream twice a day to my knees, elbows, ankles, and arms.

I’m dealing with occasional sharp, stabbing pains in my upper arms now, along with a sense of weakness and slight numbness. My knees feel almost constantly swollen; walking feels like I just finished running a marathon. On top of that, I've been getting nasty bouts of dizziness, especially over the last few days.

I just saw the rheumatologist. He says my symptoms point toward possible reactive arthritis. 😕 Labs are normal, X-rays look fine, urine tests are good, and stool samples should be okay too. I’m hoping it’s just hemorrhoids acting up. Right now, I'm only taking Tylenol at night before bed—avoiding NSAIDs entirely. I am still using Gavez cream twice a day on my knees, elbows, ankles, and arms.
The dizziness has ramped up again over the last few days. My knees feel even more swollen than usual, and walking feels like I just finished a marathon. 26 miles Marathon training. Also, I’ve been dealing with some nasty bouts of dizziness lately—especially over the last couple of days.

Has anyone dealt with similar symptoms? What do you recommend?

My rheumatologist wants me back for a follow-up in three months and ordered an HLA-B27 test. To be honest, I’m skeptical about the whole thing, and I've been feeling pretty lousy lately.

Thanks


It definitely makes sense to go ahead and get a consultation with a neurologist.
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#25 ·
wiredotter12 said:Just an update: my wife just finished her gynecological exam. They found some lesions on her cervix, so they're suspecting CIN1. She's scheduled for a Pap smear next week along with HPV typing.

They need to run swabs, so I should probably get mine done too—testing for aerobics, Ureaplasma, Mycoplasma, Chlamydia, and so on. There's a high probability these little beasts triggered my reactive arthritis / Reiter's.

Has anyone dealt with a case like this before?

The swab from my urethra came back positive for Klebsiella pneumoniae and Enterococcus faecalis...

For the next 10 days, I'm on Ciprofloxacin 2 x 500 mg, and I'm still taking one 500mg tablet of Salazopyrin daily.

Current diagnosis: Arthritis reactive in remission & Polyarthralgiae.

Anyone else facing similar issues or have other experiences to share?
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#26 ·
Blood work, urine tests, CRP, and sedimentation levels all come back normal... yet my fingers, hands, and feet ache throughout the day, especially my knees, which feel incredibly swollen, along with my elbows, shoulders, upper arm muscles, and ankles...

A urethral swab came back positive for Klebsiella and Enterococcus faecalis...
For the next 10 days, I’m on Ciprofloxacin 2 x 500 mg, followed by one 500 mg tablet of Salazopyrin daily for the next 3-4 months.

Has anyone dealt with similar issues or heard any firsthand accounts?
Feel free to DM me. Thanks.
Charles Gomez2 Charles Gomez2 Member
16 messages
joined Sep 2014
#27 ·
Hi wiredotter12, I was wondering if you've managed to find any kind of resolution yet, and how you've been feeling lately...
Scott Howard74 Scott Howard74 Active Member
150 messages
joined Sep 2008
#28 ·
wiredotter12 said:Blood work, urine tests, CRP, and sedimentation levels all come back normal... yet my fingers, hands, and feet ache throughout the day, especially my knees, which feel incredibly swollen, along with my elbows, shoulders, upper arm muscles, and ankles...

A urethral swab came back positive for Klebsiella and Enterococcus faecalis...
For the next 10 days, I’m on Ciprofloxacin 2 x 500 mg, followed by one 500 mg tablet of Salazopyrin daily for the next 3-4 months.

Has anyone dealt with similar issues or heard any firsthand accounts?
Feel free to DM me. Thanks.

So, you've done all the testing, but what’s the actual diagnosis?
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#29 ·
Scott Howard74 said:So, you've done all the testing, but what’s the actual diagnosis?

Before my urethral swab came back positive for Klebsiella pneumoniae and Enterococcus faecalis, my internist gave me this diagnosis:
  • Arthritis reactive in remission &
  • Polyarthralgiae


I'm not sure if that's still the official status, 🤷but I finished my 10-day course of Ciprofloxacin 500mg and I'm currently just taking one 500mg tablet of Salazopyrin daily.

The swelling in my knees and joints is down about 30-40%. It hasn't vanished, though. I'll need another swab to confirm if the Ciprofloxacin actually killed off the bacteria.

So far, my blood work, urine tests, CRP, and stool samples have all come back normal.
Do you have any suggestions for further testing? Maybe seeing an immunologist or an infectious disease specialist?
mellowskipper3 mellowskipper3 Member
25 messages
joined Dec 2014
#30 ·
wiredotter12 said:Before my urethral swab came back positive for Klebsiella pneumoniae and Enterococcus faecalis, my internist gave me this diagnosis:
  • Arthritis reactive in remission &
  • Polyarthralgiae


I'm not sure if that's still the official status, 🤷but I finished my 10-day course of Ciprofloxacin 500mg and I'm currently just taking one 500mg tablet of Salazopyrin daily.

The swelling in my knees and joints is down about 30-40%. It hasn't vanished, though. I'll need another swab to confirm if the Ciprofloxacin actually killed off the bacteria.

So far, my blood work, urine tests, CRP, and stool samples have all come back normal.
Do you have any suggestions for further testing? Maybe seeing an immunologist or an infectious disease specialist?

Since they told you the condition is supposedly in remission, it sounds like the polyarthralgia is the main thing bothering you now. If the pain gets unbearable, some over-the-counter pain meds might help; Salazopyrin is mostly there just to keep the underlying disease quiet.
As for the swollen knees, it's possible you've got some fluid buildup in there...
Scott Howard74 Scott Howard74 Active Member
150 messages
joined Sep 2008
#31 ·
wiredotter12 said:Before my urethral swab came back positive for Klebsiella pneumoniae and Enterococcus faecalis, my internist gave me this diagnosis:
  • Arthritis reactive in remission &
  • Polyarthralgiae


I'm not sure if that's still the official status, 🤷but I finished my 10-day course of Ciprofloxacin 500mg and I'm currently just taking one 500mg tablet of Salazopyrin daily.

The swelling in my knees and joints is down about 30-40%. It hasn't vanished, though. I'll need another swab to confirm if the Ciprofloxacin actually killed off the bacteria.

So far, my blood work, urine tests, CRP, and stool samples have all come back normal.
Do you have any suggestions for further testing? Maybe seeing an immunologist or an infectious disease specialist?

Man, I honestly don't know. I had my blood drawn, checked my liver, kidneys, all that stuff, and everything comes up fine. Right now I'm taking Salazopyrin twice a day, morning and night, Voltaren Rapid for the pain, and 5mg of Normabel to help with the muscle tension.
Charles Gomez2 Charles Gomez2 Member
16 messages
joined Sep 2014
#32 ·
Scott Howard74 said:Man, I honestly don't know. I had my blood drawn, checked my liver, kidneys, all that stuff, and everything comes up fine. Right now I'm taking Salazopyrin twice a day, morning and night, Voltaren Rapid for the pain, and 5mg of Normabel to help with the muscle tension.

Everything you're taking or applying seems fine, but those are really just ways to manage the symptoms... what we truly need is to figure out what is actually triggering this condition. I'm convinced there's a solution out there, because nothing happens in the body by pure coincidence... Of course, some people are born with certain conditions, but if you were perfectly healthy growing up and things only started changing later on, it suggests that something internal has shifted...
Scott Howard74 Scott Howard74 Active Member
150 messages
joined Sep 2008
#33 ·
Charles Gomez2 said:Everything you're taking or applying seems fine, but those are really just ways to manage the symptoms... what we truly need is to figure out what is actually triggering this condition. I'm convinced there's a solution out there, because nothing happens in the body by pure coincidence... Of course, some people are born with certain conditions, but if you were perfectly healthy growing up and things only started changing later on, it suggests that something internal has shifted...

It's either something that hits you as you get older, or it's genetic—that's when it shows up.
Bradley Martinez3 Bradley Martinez3 Newcomer
8 messages
joined Oct 2014
#34 ·
Hey, does anyone here have experience dealing with Rea? How did it all start for you guys, and is there actually an end in sight?
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#35 ·
wiredotter12 said:Before my urethral swab came back positive for Klebsiella pneumoniae and Enterococcus faecalis, my internist gave me this diagnosis:
  • Arthritis reactive in remission &
  • Polyarthralgiae


I'm not sure if that's still the official status, 🤷but I finished my 10-day course of Ciprofloxacin 500mg and I'm currently just taking one 500mg tablet of Salazopyrin daily.

The swelling in my knees and joints is down about 30-40%. It hasn't vanished, though. I'll need another swab to confirm if the Ciprofloxacin actually killed off the bacteria.

So far, my blood work, urine tests, CRP, and stool samples have all come back normal.
Do you have any suggestions for further testing? Maybe seeing an immunologist or an infectious disease specialist?

Update:
A urethral swab from October 14, 2014, showed Enterococcus faecalis is still present, though the Klebsiella pneumonia was cleared by two boxes of Ciprofloxacin 500mg. Apparently, Enterococcus faecalis is linked to septic arthritis (http://www.thearthritiscenter.com/co...se-information).

My internist/pharmacist wants me to take Ninur (nitrofurantoin) 50mg capsules for the next 7 days (4 x 2 capsules)—that is two full boxes of 30. It feels like an aggressive "all or nothing" dose. I have to take the Ninur with food or milk to help prevent nausea. I am also taking Linex 2 x daily.

I forgot to mention to the doctor that I have these small pockets or swellings on my knees, ankles, left elbow, and potentially my hand joints. I can't tell if it's fluid buildup or synovial fluid. How do you detect what that actually is, and how do you get rid of it?
Charles Gomez2 Charles Gomez2 Member
16 messages
joined Sep 2014
#36 ·
wiredotter12 said:Update:
A urethral swab from October 14, 2014, showed Enterococcus faecalis is still present, though the Klebsiella pneumonia was cleared by two boxes of Ciprofloxacin 500mg. Apparently, Enterococcus faecalis is linked to septic arthritis (http://www.thearthritiscenter.com/co...se-information).

My internist/pharmacist wants me to take Ninur (nitrofurantoin) 50mg capsules for the next 7 days (4 x 2 capsules)—that is two full boxes of 30. It feels like an aggressive "all or nothing" dose. I have to take the Ninur with food or milk to help prevent nausea. I am also taking Linex 2 x daily.

I forgot to mention to the doctor that I have these small pockets or swellings on my knees, ankles, left elbow, and potentially my hand joints. I can't tell if it's fluid buildup or synovial fluid. How do you detect what that actually is, and how do you get rid of it?


Man, those bacteria are such a nightmare, I honestly can't believe you're still dealing with Enterococcus... I really hope these antibiotics finally knock them out for good. I actually had my urethra swabbed and a sperm culture done today, so we'll see what the results look like next week. The pain just won't let up, and a woman told me her husband went through this too and was put on corticosteroids right away, which cleared everything up... I'm just not sure what to make of it all...
wiredotter12 wiredotter12 Member
30 messages
joined Nov 2011
#37 ·
Charles Gomez2 said:Man, those bacteria are such a nightmare, I honestly can't believe you're still dealing with Enterococcus... I really hope these antibiotics finally knock them out for good. I actually had my urethra swabbed and a sperm culture done today, so we'll see what the results look like next week. The pain just won't let up, and a woman told me her husband went through this too and was put on corticosteroids right away, which cleared everything up... I'm just not sure what to make of it all...

Hang in there. Don't quit. We have to push through—there's no other way. Corticosteroids are just another tool in the kit, but they should be the last resort. Good luck.
Jason James3 Jason James3 Member
20 messages
joined Nov 2014
#38 ·
About a month ago, I was diagnosed with a massive *Eserihija Coll* infection—we're talking a huge bacterial load. To fight it off, I went through a course of Bactrim, some antibiotic drops, and Dr. Hasanagica’s herbal teas. Fast forward about a week after finishing that (so, nearly three weeks ago now), and my joints started acting up. It’s everywhere: my fingers, my toes, elbows, occasionally my shoulders, but most intensely in my right leg, knees, heels, and feet. The pain isn't debilitating; it doesn't stop me from going about my day, and I haven't felt the need to reach for any pills yet. There’s no morning stiffness, no swelling, no redness, and no rashes. Sometimes it feels more like muscle aches. Is it actually possible for this to be a reaction to the bladder inflammation caused by *Eserihija Coll*? I’ve already had blood work done—CRP, AST, sedimentation, Waller rosa, electrolytes, CBC, and so on—and I’ll have the results tomorrow. Aside from actual rheumatic issues, can joint pain stem from something else entirely? I would truly appreciate any insight you all could offer. Honestly, I am terrified; reading through posts online has sent me into a spiral. Between the constant panic and my existing generalized anxiety disorder, I’m essentially a textbook hypochondriac! 🤦😵👎
Charles Gomez2 Charles Gomez2 Member
16 messages
joined Sep 2014
#39 ·
Jason James3... Asks:
About a month ago, I was diagnosed with a heavy *E. coli* infection... I finished a course of Bactrim and some herbal teas from Dr. Hasanagica, but about a week after that—so nearly three weeks ago now—my joints started acting up. It’s basically everywhere, including my fingers, elbows, shoulders, and mostly my right leg, knees, heels, and feet... The pain isn't intense enough to stop my daily routine or require any Advil, and I don't have any morning stiffness, swelling, redness, or rashes. Sometimes my muscles ache too. Is it possible this is just a reaction to the bladder infection caused by the *E. coli*... I’ve already had blood work done, including CRP, AST, sedimentation, Waller rosa, and a CBC, and I should get those results tomorrow. Can joint pain be caused by something other than rheumatic issues? I’d really appreciate any insight... I'm honestly terrified because of everything I read online, and since I struggle with generalized anxiety and panic attacks, I tend to spiral quite easily. A total hypochondriac, I suppose... Thanks in advance for any help... 🤦😵👎


Hey, I completely understand where you're coming from... my girlfriend deals with panic attacks herself, so I know exactly how heavy that feels, but please don't worry because things really will get better. I went through the exact same symptoms you're describing and spent months trying all sorts of alternative remedies without much luck, so now I’ve just been following everything my rheumatologist prescribed and it's making a world of difference. It’s going to be okay, you just have to be patient and stay committed to the treatment even when it feels like there's no end in sight... I actually know several people who dealt with this too, some even facing much worse issues like intense redness, yet they're totally fine now, almost as if nothing ever happened. I've only just started my current therapy, but I'm already feeling alright, and my doctor says in a few months I'll feel like a brand new person... 🙂
Jason James3 Jason James3 Member
20 messages
joined Nov 2014
#40 ·
Charles Gomez2 said:
Jason James3... Asks:
About a month ago, I was diagnosed with a heavy *E. coli* infection... I finished a course of Bactrim and some herbal teas from Dr. Hasanagica, but about a week after that—so nearly three weeks ago now—my joints started acting up. It’s basically everywhere, including my fingers, elbows, shoulders, and mostly my right leg, knees, heels, and feet... The pain isn't intense enough to stop my daily routine or require any Advil, and I don't have any morning stiffness, swelling, redness, or rashes. Sometimes my muscles ache too. Is it possible this is just a reaction to the bladder infection caused by the *E. coli*... I’ve already had blood work done, including CRP, AST, sedimentation, Waller rosa, and a CBC, and I should get those results tomorrow. Can joint pain be caused by something other than rheumatic issues? I’d really appreciate any insight... I'm honestly terrified because of everything I read online, and since I struggle with generalized anxiety and panic attacks, I tend to spiral quite easily. A total hypochondriac, I suppose... Thanks in advance for any help... 🤦😵👎


Hey, I completely understand where you're coming from... my girlfriend deals with panic attacks herself, so I know exactly how heavy that feels, but please don't worry because things really will get better. I went through the exact same symptoms you're describing and spent months trying all sorts of alternative remedies without much luck, so now I’ve just been following everything my rheumatologist prescribed and it's making a world of difference. It’s going to be okay, you just have to be patient and stay committed to the treatment even when it feels like there's no end in sight... I actually know several people who dealt with this too, some even facing much worse issues like intense redness, yet they're totally fine now, almost as if nothing ever happened. I've only just started my current therapy, but I'm already feeling alright, and my doctor says in a few months I'll feel like a brand new person... 🙂

So, here's the deal: my blood work results finally came back...

Hemoglobin - normal
Pittsburgh 36 - elevated
CRP - 0.3 (normal range 0.0-5)
Rheumatoid factor - 0.10 (normal range 0.0 - 14)
White blood cell count - normal
fibrinogen - normal
sedimentation 2 (normal range 4-24)

I'm still waiting on the Waller rose, latex, and AST-0 results

I should probably mention that I've been heavily into fitness for the last two years, lifting some pretty heavy weight—around 200 to 220 lbs on the squat, over 300 lbs total on deadlifts, and significant weight on my arms too. I suddenly stopped all that training, maybe a week or two before these pains started showing up. I'm still not experiencing any stiffness, swelling, or acute pain; it’s more of this persistent, nagging ache. It doesn't hurt when I squeeze my fist or when I'm squatting... I can actually still finish a workout.
Is it possible that despite all these numbers looking decent, something is still off? Or am I just being a hypochondriac again?😵

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