#21 ·
wiredotter12 said:Thanks for the feedback, first of all. But sorry, I suspect my initial issue was likely a primary infection from some kind of pathogen. I don't know which one—I haven't run tests for things like strep, Lyme, Yersinia, Ureaplasma, or anything else, so I have no idea. That’s why I dealt with nasty discharge for weeks back in late 2013. I took antibiotics then, but maybe too late or not enough Augmentin, and now my immune system has overreacted. It’s producing something that's attacking my joints because it mistakenly thinks the pathogen is still there (starting with my elbow, then both elbows, and now mostly my knees and ankles).
My blood and urine tests have come back normal twice now. 🤷
Now I get occasional dizzy spells, and my leg muscles ache like I just ran a marathon. I also feel like my knees are severely swollen, even though they don't look it. I just apply some topical cream and take one Tylenol at night.
None of this feels sufficient. It feels like the actual cause hasn't been found or eradicated. I'm no doctor, but I strongly suspect a lingering pathogen, and that requires antibiotics, which I am currently not taking. 😕
The rheumatologist only looked at my X-rays, physical symptoms, and blood/urine work. He did NOT order any tests for potential pathogens that trigger reactive arthritis. 🤷
It's what keeps bothering me: the idea that I still have an infection, I'm not taking antibiotics, and my body is still attacking my joints because it thinks the threat is still present. 😠
Does anyone know who can order specific testing? Maybe an infectious disease specialist in a major US city like Chicago or New York? And specifically, what tests should I ask for to rule out a bacterial cause?
If I still have an infection, waiting three months without antibiotics sounds like a disaster, doesn't it? 🤷
Look, just read this. To you, it might look even more messed up than it actually is, but if your rheumatologist already scheduled you for a follow-up in three months, then don't go doubting them. Just trust the process.
Look, Reiter's syndrome is this absolute nightmare of a chronic inflammatory disease that just pops up whenever it feels like it. It doesn't just mess with your joints—though it usually starts its rampage in your knees, feet, or ankles—it hits you everywhere else too. We're talking the urethra and even your eyes, where you can get hit with nasty conjunctivitis. Honestly, it’s most common in guys between 20 and 40 who’ve dealt with an STI, and if you've got the genetic predisposition linked to HLA-B27, you're basically sitting ducks. It's just one of those things.
So, look, Reiter's syndrome is also called reactive arthritis, and honestly, it totally makes sense why. It’s basically just your body throwing a massive, global temper tantrum because of an infection somewhere else entirely—like, your joints are just collateral damage in some other part of your body's war zone.
So, what are we actually looking at here? Causes and symptoms. It’s never straightforward, is it? One minute you think you just pulled a muscle or caught a nasty bug, and the next, you're staring down a whole laundry list of issues that make zero sense. It’s a total mess. Honestly, trying to pin down why things go sideways is like chasing ghosts. You think you have it figured out, then some new symptom pops up out of nowhere and ruins your entire week. It's exhausting. Just one thing after another.
Look, this whole thing basically boils down to your body just totally freaking out over an infection. It’s like your immune system loses its mind after you catch something—could be an STD, could be some nasty gut infection, doesn't really matter. It just goes haywire. You end up dealing with a nasty case of urethritis, your eyes get all red and inflamed, and then the joint pain hits. We're talking real misery here—swollen, aching joints, usually hitting the knees or the toes, and that sharp, stabbing pain where your tendons meet the bone, like in your heels. It's a mess.
So, I was digging through some new research, and get this—it turns out microorganisms are basically pulling the strings behind rheumatoid arthritis and all those other rheumatic messes in chimps, rats, pigs, poultry, and all sorts of livestock. It’s everywhere. Turns out two of the biggest culprits are Mycoplasma and Chlamydia. We're talking about parasitic bacteria that trigger Reiter's syndrome in the connective tissue of people who already have the genetic predisposition for it. Crazy stuff.
When you've got this weird mix of joint pain, issues with your private parts, urinary problems, skin rashes, and red eyes, any doctor worth their salt is gonna start looking at Reiter's syndrome. The thing is, these symptoms don't always hit you all at once, so you could be wandering around totally clueless for months while the disease flies under the radar. Plus, there isn't some magic, easy blood test that just screams "Bingo! It's Reiter's."
So, what can you actually do about it?
Usually, they throw antibiotics at the infection to kill it off, and cranking up the NSAIDs can help dial down the joint pain and inflammation to a manageable level. Even though most people pull through, those nasty arthritis symptoms can flare up and vanish for years on end. Just when you think you're in the clear, boom—there it is again.