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Dealing with nummular eczema/dermatitis?

Started by Kimberly Robinson2 · · 👁 7 views · 33 replies

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Participants Kimberly Robinson2vividsailor7Nicholas Myersmistyfox15Brandon Palmer7casualridge40Lawrence Collins25analogbison13Tyler James5Scott Perez57stormypanther9Brandon Perez12
Kimberly Robinson2 Kimberly Robinson2 Active MemberOP
67 messages
joined Dec 2011
#21 ·
So, I’m back from testing.
Well.... they didn't really find much of anything.

I had a slight reaction to preservatives, so I need to steer clear of E216. Same goes for hard cheeses, vacuum-packed stuff, and beer (thankfully I don't touch alcohol 😁).

The doctor handed me a referral for an IgE test, a mucosal swab, and some imaging for my heart and lungs.

Now we just wait to see what those IgE results say.

In the meantime, I’ve overhauled my diet myself. Honestly, I’ve been living on dried figs, a few almonds (way too expensive 😢), soy milk—there’s a chocolate one at Target for about $3.50, mm, pretty good—white chicken breast, broths, no bread, no cheese, as little sugar as possible, no peanuts... and today is actually the first day the redness looks a bit less intense, though my skin feels drier and the cracks are stinging. Also, that swelling on the inside of my right ankle has finally gone down.

And one more thing—I'm trying to purge this illness from my system. Having a little conversation with my body...🤣
Kimberly Robinson2 Kimberly Robinson2 Active MemberOP
67 messages
joined Dec 2011
#22 ·
Well, I'm back....

Ugh...it's been quite a marathon:

- Had my lung imaging done (seems fine, though the report mentions I didn't take a deep enough breath... haven't followed up for a checkup yet)

- Went to get my IgE levels checked—total shocker... a normal range is 0 to 122, and mine came back at 6.06. 😲 Basically, I'm practically a model of health.

- Did a nasal swab over at the local community hospital—just waiting on the results now, assuming they didn't forget to mail them out....🙂

Current status: over the last few weeks, everything on my left leg has finally receded. There are still some tiny spots left (mostly from scratching), but my right leg? Good grief, you wouldn't believe it. That redness is gone, just scars left behind now. It’ll take time for the skin to recover—it's gotten pretty thin so it hurts when touched—but the itching has stopped.... there's a bit of an itch here and there, but I'm guessing that's just from the heavy winter clothes I'm wearing now.

The weird thing is, it all started pulling back right when I began muttering under my breath: "get this sickness out of me".....

Maybe someone will find this stupid or laughable, but frankly, I don't care.... what matters to me is that the illness is actually retreating.
I'm hoping it stays this way and eventually vanishes completely.

But of course, bad news travels in packs. As one problem fades, another one moves in.
It has nothing to do with the dermatitis, but whenever I get excited (passionately 😍), I get this sudden, sharp pain in my pelvic area—so intense it feels like someone hit me with a hot poker. It's enough to make me nauseous, a pain that radiates through my entire head.... I feel like my skull might actually split open.... and only painkillers can touch it.
Life is a joke..... I honestly don't know which misery is worse. This itching was driving me insane, but at least I could, well, khm, khm.... now, I'm terrified to even relax or let myself get excited....🙂
casualridge40 casualridge40 Newcomer
5 messages
joined Mar 2012
#23 ·
My IgE levels are through the roof—I’m talking 711. Seriously, anyone have a clue what on earth I could be allergic to at this point?😁
Kimberly Robinson2 Kimberly Robinson2 Active MemberOP
67 messages
joined Dec 2011
#24 ·
Checking in after two months.
Still fighting the same damn battle...🙂

Things aren't getting better—actually, they're getting worse. I’ve developed this rash all over my body now. I started taking Aerius allergy pills today, but honestly, at this point, I don't even know what's helping or what's making it worse.

I've gone through a mountain of testing and everything comes back "fine." According to the labs, I'm perfectly healthy. Yet, here I am, feeling terrible. Both my doctors and I are starting to reach the same conclusion—that this is all just stress and nerves.

Along with everything else I had checked, there was:
- a kidney ultrasound
- two different urine tests
- blood work for Lyme disease (got the results back from the clinic today—negative)
- thyroid hormone levels—all within the normal range

I also went to see a specialist in Chicago, Dr. Kaliterna, over near the downtown medical district.
He gave me some compresses and recommended phototherapy, though I'm still waiting to coordinate that with him—I emailed him some new photos today...

Basically, I'm totally lost.

In these last few months, I've burned through a ton of creams, and only one actually did anything. At least back then, everything cleared up, so I'm hoping that's the right one (I got it from a lady on this forum—thanks again to her)... I managed to get the contact info and ordered two more. I just spoke with her, and she's shipping them tomorrow. They're creams from that Swiss company Just, specifically the Attiva line, and one of them is $41. I think it comes in a 100 ml tube.

If they actually work again... it would be a miracle.

I took more photos today—not just of my legs, but because the rash has spread everywhere, so you can see for yourselves...🙈

Personally, I think what I really need isn't more medicine, but psychological help combined with some bioenergy supplements... I've completely drained my reserves.

Here are today's photos:

http://i44.tinypic.com/ries76.jpg

http://i42.tinypic.com/rigtg0.jpg

http://i43.tinypic.com/dyrxa9.jpg

http://i43.tinypic.com/i6vwc7.jpg

http://i39.tinypic.com/e80sqq.jpg

The rash:

http://i43.tinypic.com/15h09pi.jpg

http://i42.tinypic.com/byhb9.jpg

http://i39.tinypic.com/351scxz.jpg

**
Kimberly Robinson2 Kimberly Robinson2 Active MemberOP
67 messages
joined Dec 2011
#25 ·
casualridge40 said:My IgE levels are through the roof—I’m talking 711. Seriously, anyone have a clue what on earth I could be allergic to at this point?😁

You really ought to go get tested... you have to schedule an appointment ahead of time, but honestly, it’s not even painful.
I’ve been through this three times now—three completely different rounds of testing—and it’s always the same drill. They take a reagent from a vial, put a single drop on the inside of your arm, and then use a tiny needle to just barely prick the skin so the stuff gets underneath. It doesn't even hurt, honestly, but you’re stuck sitting there for about 40 minutes waiting for the results. Then comes the part where they check for a reaction—if your skin starts swelling or puffing up anywhere, that’s the sign you've got an allergy to that specific thing. The nurse keeps track of the whole schedule, knowing exactly which drop corresponds to which allergen.

All they found in my case was a bunch of preservatives—honestly, it barely even touched the surface. My skin didn't even swell much. It was pretty much a total letdown.

Look, let's be real here—you’re sitting there with a reading of 711, while my results came back at a 6.06. Honestly? I'm practically a model of health compared to that. They found some tiny, insignificant thing with me, which is nothing. But with your numbers? They’re definitely going to dig up a whole list of issues. Still, you should probably go get checked out while you actually have the chance to fix things—if you let stuff like this slide, you could end up dealing with asthma down the road. It's just common sense.

😉
Lawrence Collins25 Lawrence Collins25 Newcomer
2 messages
joined Mar 2012
#26 ·
Greetings to everyone!

I have been struggling with this stubborn eczema on my hands for five years now... and finally, just yesterday, I received a definitive diagnosis: *Dermatitis eczematoides nummularis in obs Athopio*.
My doctor suggested that my condition might actually be linked to some kind of respiratory allergy... though, truth be told, I don't typically have issues with pollen or trees, except perhaps for poplar, even though I was fully expecting the culprit to be something else entirely given my work environment (working in a lab, dealing with various chemicals and quite a lot of dust). I was prescribed some Belogent and KMnO4, along with a referral for IgE and RAST testing.
Now, I know the IgE involves a blood draw... but what exactly does the RAST test entail? On a side note, my thyroid levels are fine; I actually went in to have my hormones checked about two months ago because of PCOS.
analogbison13 analogbison13 Member
29 messages
joined Oct 2011
#27 ·
RAST is basically just testing for specific IgE levels for certain allergens through a blood draw. They grade the results on a scale ranging from negative all the way up to highly positive. You usually get those results on the same report as your total IgE—at least that’s how they handle it here at St.
Tyler James5 Tyler James5 Active Member
142 messages
joined Jul 2012
#28 ·
@Kimberly Robinson2 -

Saw those pics of your allergic reaction (might be irritation or an intolerance too, honestly), just wanted to let you know there’s plenty more of us 🙂 dealing with these sudden flare-ups... For me, I've figured out that whenever it hits my skin all at once over a huge area, it's almost always some food trigger mixed with stress, rather than something touching me from the outside. Sometimes it's even weirder—just this total, chaotic immune system meltdown where one allergen sets things off and then everything else follows suit, until even plain water or basic moisturizer triggers it.

But, yeah, the catch is it's super individual, so you're gonna have to play detective and find your own triggers. Try cutting out one food group at a time for a week—like dairy, processed meats, or anything loaded with MSG (think Doritos or beef bouillon!), walnuts, eggs, etc., etc.—then switch to a different group the next week until you actually see a shift. Oh, and while you're at it, check out the section on "Protopic cream" in this PDF

...
Lawrence Collins25 Lawrence Collins25 Newcomer
2 messages
joined Mar 2012
#29 ·
analogbison13 said:RAST is basically just testing for specific IgE levels for certain allergens through a blood draw. They grade the results on a scale ranging from negative all the way up to highly positive. You usually get those results on the same report as your total IgE—at least that’s how they handle it here at St.

Thank you so much! I am going to go ahead and get those tests scheduled, though I must admit my dermatologist was quite discouraging, telling me not to hold my breath too much when it comes to actually pinpointing the exact culprit... 🙂
Scott Perez57 Scott Perez57 Member
25 messages
joined May 2024
#30 ·
http://mademoisellenevertells.blogsp...ni-sampon.html If it helps at all, you might want to check out this breakdown of how that Dr. Temt black shampoo actually works...
Kimberly Robinson2 Kimberly Robinson2 Active MemberOP
67 messages
joined Dec 2011
#31 ·
Tyler James5 said:@Kimberly Robinson2 -

Saw those pics of your allergic reaction (might be irritation or an intolerance too, honestly), just wanted to let you know there’s plenty more of us 🙂 dealing with these sudden flare-ups... For me, I've figured out that whenever it hits my skin all at once over a huge area, it's almost always some food trigger mixed with stress, rather than something touching me from the outside. Sometimes it's even weirder—just this total, chaotic immune system meltdown where one allergen sets things off and then everything else follows suit, until even plain water or basic moisturizer triggers it.

But, yeah, the catch is it's super individual, so you're gonna have to play detective and find your own triggers. Try cutting out one food group at a time for a week—like dairy, processed meats, or anything loaded with MSG (think Doritos or beef bouillon!), walnuts, eggs, etc., etc.—then switch to a different group the next week until you actually see a shift. Oh, and while you're at it, check out the section on "Protopic cream" in this PDF

...

Sorry for the late reply; I'm rarely on here.
I’ve gone through all the testing, and the results are perfectly normal—nobody can find a physical cause. The redness on most of my body has completely vanished, leaving only my legs; they're slightly better than before, but it's still way too much.

I've come to the conclusion that the culprit behind the rash and the redness is purely psychological—nerves, emotional distress, crying. I've been dealing with terrible tremors over the last few months, and then there are those days where I just break down into uncontrollable sobbing—I'm suffering because of a love I can't be with, and my skin reacts to it. Nothing helps... not even the anti-anxiety meds... and so the days just pass by, hoping for a better tomorrow.

As for food, I've cut out a ton of stuff; I'm on a diet now. I finally managed to start losing weight, so I'm eating practically nothing, so to speak. It's actually the perfect timing for that since I have zero appetite from the sadness, so I'm not even hungry. Regarding potential food reactions, I've tried cutting out all sorts of things, but I haven't seen any improvement.

So, my final verdict on dermatitis: stress, sadness, suffering, mental anguish... basically, anything that brings you down. I know you're supposed to push past all that and try to think positively—sometimes that works, sometimes it doesn't. But there's still hope that one day it will all change and this suffering will be worth it. That healing will finally arrive.

To treat the redness on my body, I used prayers from a book:

"Divine light shines upon my entire body"
and
"God's life flows through me, and I am grateful for the miraculous healing occurring right now."

And I often told myself: I want to be healthy, I *am* healthy!

😉
Kimberly Robinson2 Kimberly Robinson2 Active MemberOP
67 messages
joined Dec 2011
#32 ·
I’ve been laying low for a while—mostly because I wanted to be 100% certain I was actually in the clear before posting anything. I figured I'd wait a few months just to be sure.

The recovery really started once I leaned into prayer; honestly, the dermatitis started backing off within two or three weeks of that.

I headed down to the coast in mid-June, and by then, the only thing left was this single little patch of skin on my leg, which eventually cleared up thanks to the ocean air and salt water.

After everything I've been through over these past few months, my status is—HEALTHY. There is absolutely NOTHING left on my leg.

There’s a tiny bit of pigmentation left that’ll fade away in its own time, but it’s almost impossible to even notice now.
stormypanther9 stormypanther9 Newcomer
4 messages
joined Jul 2012
#33 ·
My leg rash flared up last spring... I've dealt with asthma and allergic dermatitis since birth, but nothing quite like this. It was always just redness, never these pustules. I looked at some photos online and they look identical to mine, except mine is strictly on my legs. When it first hit last year around April or May, it eased up a tiny bit over the summer, though I didn't go to the beach or anything. I just stuck to my usual allergy creams, using Afloderm ointment and Afloderm in base cream... which helped a little, but it never fully cleared up.

By August, things had calmed down significantly; there were barely any pustules left. Then, around September, it came roaring back. Interestingly, I actually had a miscarriage during that same month last year, but since I've had this skin issue long before that happened, I don't think the emotional shock triggered the flare-up. I honestly have no clue what caused it.

I haven't seen a doctor or a dermatologist yet because I originally assumed it was just tied to my lifelong allergies. But lately, my legs have been a total mess. The left one isn't too bad—just one or two pustules I scratched at that turned into red scabs. The right leg, however, is an absolute disaster; I don't even want to take a photo because it’s so nauseating to look at. I just desperately need this to clear up by summer because last year I couldn't bring myself to wear anything but jeans. I'm at a loss for what to use now, especially since I can't keep relying on corticosteroids. It scares me. At the same time, I'm terrified my doctor will just dismiss me if I show up with this.
Brandon Perez12 Brandon Perez12 Newcomer
1 message
joined Jul 2018
#34 ·
Kimberly Robinson2 said:Checking in after two months.
Still fighting the same damn battle...🙂

Things aren't getting better—actually, they're getting worse. I’ve developed this rash all over my body now. I started taking Aerius allergy pills today, but honestly, at this point, I don't even know what's helping or what's making it worse.

I've gone through a mountain of testing and everything comes back "fine." According to the labs, I'm perfectly healthy. Yet, here I am, feeling terrible. Both my doctors and I are starting to reach the same conclusion—that this is all just stress and nerves.

Along with everything else I had checked, there was:
- a kidney ultrasound
- two different urine tests
- blood work for Lyme disease (got the results back from the clinic today—negative)
- thyroid hormone levels—all within the normal range

I also went to see a specialist in Chicago, Dr. Kaliterna, over near the downtown medical district.
He gave me some compresses and recommended phototherapy, though I'm still waiting to coordinate that with him—I emailed him some new photos today...

Basically, I'm totally lost.

In these last few months, I've burned through a ton of creams, and only one actually did anything. At least back then, everything cleared up, so I'm hoping that's the right one (I got it from a lady on this forum—thanks again to her)... I managed to get the contact info and ordered two more. I just spoke with her, and she's shipping them tomorrow. They're creams from that Swiss company Just, specifically the Attiva line, and one of them is $41. I think it comes in a 100 ml tube.

If they actually work again... it would be a miracle.

I took more photos today—not just of my legs, but because the rash has spread everywhere, so you can see for yourselves...🙈

Personally, I think what I really need isn't more medicine, but psychological help combined with some bioenergy supplements... I've completely drained my reserves.

Here are today's photos:

http://i44.tinypic.com/ries76.jpg

http://i42.tinypic.com/rigtg0.jpg

http://i43.tinypic.com/dyrxa9.jpg

http://i43.tinypic.com/i6vwc7.jpg

http://i39.tinypic.com/e80sqq.jpg

The rash:

http://i43.tinypic.com/15h09pi.jpg

http://i42.tinypic.com/byhb9.jpg

http://i39.tinypic.com/351scxz.jpg

**

I'm wondering where I can pick this cream up. Also, which member was it that the author received the cream from? This thread was started quite a while ago, so if anyone is still checking this forum, please reach out. Thanks so much.

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