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Dealing with Hyperprolactinemia: Any advice?

Started by Sam Diaz6 · · 👁 4 views · 16 replies

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Participants Sam Diaz6Sam Hall15Sandra Campbell9Nicole Nelson55Alexander Phillips4Linda Gonzalez16
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#1 ·
So, I'm 17 and I just found out I have hyperprolactinemia. It’s been quite the ordeal—I was at the hospital in Indianapolis recently getting run through the wringer with all sorts of tests. They did the Th... test, a hypoglycemic test, and even an MRI of my pituitary gland (which came back totally fine, thankfully). But apparently, my prolactin levels are three times higher than they should be. I started taking Bromergon, but honestly, it makes me feel pretty nauseous every time I take it. I'd love to hear if anyone else has dealt with this—and please, I'm looking for actual advice, not just "congratulations, you might get pregnant" comments from people who aren't in my shoes. Also, does anyone know if it's okay to take two tablets at once right before bed to help with the nausea? Thanks... 😘
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#2 ·
Yeah, true... you really should have something in your stomach before taking Bromergon. Can I just get away with some fruit?
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#3 ·
Are you taking 2.5 mg twice a day?
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#4 ·
So, I tried taking two pills yesterday—one in the morning and one at night—but honestly, it wiped me out. I was dealing with this nasty nausea all day long, couldn't even face any food, so I ended up skipping my dose today entirely. I’m thinking I’ll just try taking them tonight instead. Does anyone have any advice on what else I could take to manage the side effects? Also, would it be a bad idea to just double up and take both tablets at once tonight?
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#5 ·
That is the standard prolactin inhibitor used, but if the nausea becomes unbearable, please consult your doctor about being prescribed an antiemetic.
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#6 ·
So, does anyone here actually know anything about those Pfizer pills?
Sandra Campbell9 Sandra Campbell9 Member
31 messages
joined Mar 2008
#7 ·
Could someone perhaps clarify the ideal timing for a prolactin test? I believe I heard something about testing on the third day of one's cycle, if that's accurate?
Last month, I had my levels checked for the very first time—along with my other hormones, actually—and it turns out my prolactin is elevated. It was somewhere around 700... I think. Now, my doctor is suggesting an MRI of the pituitary gland. I can't help but wonder, though, if it wouldn't be more prudent to undergo another blood draw to re-verify those prolactin levels first? I suppose it's worth noting that when I had the labs done last time, it was on the 13th day of my cycle.
Nicole Nelson55 Nicole Nelson55 Newcomer
8 messages
joined Jun 2007
#8 ·
There are actually certain natural substances that work pretty effectively at dialing down prolactin levels. If you’re looking to suppress milk production specifically, artichoke leaf and sage tea infusions are the way to go.
Now, if you just need to bring those prolactin numbers down across the board, hemp tincture is probably your best bet. You really ought to run this by a professional herbalist first, though—I don't personally know anyone in Indianapolis, but I'm fairly certain you could find a specialist in Washington, D.C. or San Francisco. Honestly, the results I've seen are pretty encouraging.
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#9 ·
or opting for generic medications where the dosage is precise and the potential effects can be accurately predicted
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#10 ·
My doctor didn't really give me a specific timeline for when I should have it removed—she was pretty vague about that part—but the folks over at the nuclear medicine department mentioned it should probably happen around the second or third day. They also suggested doing the 24-hour urine test somewhere around day 15 of my cycle.
Alexander Phillips4 Alexander Phillips4 Newcomer
6 messages
joined Jun 2006
#11 ·
Here’s someone who’s actually on Bromergon 😳
So, here’s my experience. I started out with just one pill before bed, and did that for a week. Then, the following week, I bumped it up to two pills—one in the morning and one at night. After two weeks, I moved to three pills spread throughout the day. Honestly, I didn't deal with much nausea. I just tapered the dose down as my prolactin levels dropped, and now I’m just staying steady on one pill a day. My situation is a bit different since they found a microadenoma on my pituitary MRI, which is why my prolactin is high in the first place.
As for taking two pills right before sleep—I wouldn't really recommend that. Just try to hang in there; the nausea usually passes once your body gets used to it 😘
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#12 ·
I ended up swallowing almost an entire bottle—all 30 pills—after I tried starting with just a quarter and immediately felt like garbage. Just imagine how I'm feeling right now. My body just flat-out rejects those tablets. Have you heard anything about Pfizer or that PMS free stuff? I was digging around online and apparently, that PMS free thing helps lower prolactin levels...
Alexander Phillips4 Alexander Phillips4 Newcomer
6 messages
joined Jun 2006
#13 ·
To be honest, I heard there’s another version of that medication for lowering prolactin, but I never really looked into it. I managed to get my body used to the one I'm on, and since my endocrinologist prescribed it, I stuck to it like glue. Honestly, the idea of a "tumor" just freaked me out too much. 😲
My best advice is to definitely talk to your doctor before you try any different therapy. You can't mess around with your hormones. Plus, you really need to figure out what's causing your prolactin levels to spike like that in the first place.
Linda Gonzalez16 Linda Gonzalez16 Member
38 messages
joined Dec 2003
#14 ·
Nicole Nelson55 said:There are certain natural substances that work really well at lowering prolactin levels. I'm talking about artichoke leaf...

Oh, look, artichoke leaf again. On one thread, this stuff was supposedly detoxing the liver and spiking blood pressure, and now it’s the magic cure for prolactin. Make it make sense.👎 👎

I'm honestly holding back from getting too snarky this time.
Sam Diaz6 Sam Diaz6 NewcomerOP
1 message
joined Jul 2007
#15 ·
They haven't actually given me a straight answer about what's causing this... they just keep pointing at stress. Like that's it.
I'm heading down to Washington, D.C., probably to go over to the Mayo Clinic... so if anyone happens to know anything about the doctors there—give me the scoop.
Nicole Nelson55 Nicole Nelson55 Newcomer
8 messages
joined Jun 2007
#16 ·
James Watson84 said:And here we go again with the artichoke leaf. In one thread, this stuff was supposedly detoxing the liver and spiking blood pressure, and now suddenly it’s magically lowering prolactin levels.👎 👎

I’m actually trying to hold back from making a more serious critique this time—really, I am.

Look, let's get it straight: artichoke leaf doesn't lower prolactin secretion. What it does is help detox the liver, which—if you're actually paying attention—is a necessary step before you even touch any supplements meant to target prolactin.
Linda Gonzalez16 Linda Gonzalez16 Member
38 messages
joined Dec 2003
#17 ·
Nicole Nelson55 said:Nah, artichoke leaves don't actually lower prolactin levels. They just detox your liver, which you really need to do before you even start messing with supplements designed to drop prolactin.

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