It’s taken me a long time to finally sit down and tell the truth about everything I've been through since the summer of 2009... all the way to today. I suppose I was lucky, or maybe just incredibly unlucky, to make it out alive, but since I am, I might as well write it out, even if finding the words for what happened is a struggle...
Before getting into the meat of this, it's worth mentioning that back in 1989, I had surgery for aortic stenosis. I was only nine years old. They literally cut through my ribs like I was a child, but it saved my life.
Back then, I wasn't worrying about anything except getting back up and heading home. I spent over a month in the hospital, and thankfully, everything healed up perfectly and my heart was fine.
I played basketball, went to school, didn't give a second thought to being sick. I lived life just like any other young guy, living "full throttle"...
In 2001, I got married and had a beautiful daughter. My health held up pretty well, except for that time around 2000 when I decided to cross a bridge toward a small town outside of St. Louis with a buddy...
On the way back, I suddenly realized I was staring right at those famous railings, caught right in the middle of nowhere on the bridge itself.
And look, I’ve always been terrified of heights. Beyond that, I don't really remember much, just waking up in a hospital bed with this massive question mark hanging over my head: "What state am I even in? What city is this?" I had blacked out halfway across the bridge.
My friend—who, sadly, has passed away now—was with me, looking half-covered in blood from trying to hold onto me.
"It's okay, I'm at the local hospital, I'm in SAFE hands!!"
The irony is, nine years later, I nearly bit the dust in that very same hospital.
By the summer of 2009, I started dropping weight rapidly and running fevers. I’m 6'0", and I’d always stayed around 155 pounds. Then, in November 2009, I became a father for the second time...
I managed to carry my younger daughter for about a month and a half, but after that, I haven't been able to hold her again.
On December 14, 2009, my little girl came home from school and asked, "Dad, can you drive me to my friend's house?" I remember it clearly; it was just starting to snow.
As we were leaving the building, I realized my speech had become completely unintelligible. We barely managed to
get back to the apartment. The paramedics arrived in record time, though. They were truly fast, and they rushed me straight to an emergency neurological admission.
A sympathetic young doctor—probably just an intern—met me there. He sent me straight for a CT scan. I caught a glimpse of myself in the mirror and thought, "Man, the left side of my face is drooping!" I honestly thought those were my final moments. I'd never seen a CT before; first, they gave me some contrast, then I laid on a bed and got pulled into this machine that looks like a half-finished tunnel for the scan.
That took about ten minutes or so. Afterward, they told me, "It's not a stroke." I thought, "Okay, good," thinking I hadn't slipped under the dirt just yet.
I was so terrified I ended up totally dehydrated. My wife went to a nearby convenience store to grab me an iced tea. I practically inhaled it... then, after a few seconds, I realized, "Wait, I can't swallow," wtf??? It felt like my throat was completely blocked. Then the hiccups started, and I was sent back to neurology.
They found a solution for the swallowing issue called a feeding tube. They shove this thing up your nose and yell, "Swallow, swallow!" I have no idea how I actually managed to swallow it. Eventually, they use air to check the placement by injecting it through the tube. If your stomach makes a sound, the tube is in the right spot.
That young doctor from earlier looked pretty shaken up, so he decided to call in a specialist from the Infectious Disease department. That’s how December 14th ended.
I spent my first night on IV fluids just so I wouldn't dehydrate. By then, I had already dropped down to about 130 pounds. Man, if I could just skip December 15th... A specialist arrived for a consultation, a man with all the titles, the head of Infectious Disease, Dr. Nenad Pandak. At first, he seemed like the ultimate professional, super polite. But after a little while, he told me he was transferring me to the infectious disease ward because he suspected the real diagnosis. I figured, who am I to doubt him? He's the expert.
As soon as I got to the infectious disease unit, they started poking and prodding me. That's when he informed me that I had tuberculous meningitis. He told me the treatment would be long-term and that my swallowing would return once my cranial nerves recovered—but he was lying. All the TB tests had come back negative, but he kept that hidden from me and my family.
Every morning during rounds, he acted all delighted by my "miraculous" recovery. Meanwhile, I was just getting thinner and thinner... Back then, I'd be vomiting these nasty anti-TB meds against the wall, convinced it was all part of the healing process.
Back then, I was being pumped full of Nutren, Prosure, and some white stuff through an IV just to get my energy up... I sat there like an idiot all day waiting for the drip to finish, watching my brother scarf down some burgers while I waited...
The neurologist told me I needed to see an internist and get a brain MRI over at the Mayo Clinic. He kept a stethoscope draped around his neck the whole time, though it clearly wasn't doing him any good...
Around that time, the fever started coming back and these red bumps began popping up all over my body. He just brushed it off and told me they were nothing but acne...
Then the guy actually went off on a ski trip, leaving me sitting there burning up without even bothering to run a blood culture...
I was already under 110 pounds by then, and this was the morning I headed to the Mayo Clinic for that MRI, accompanied by my mom who works at the hospital...
All I remember from that morning is my mom asking, "Vanja, honey, what's wrong?" She had just come home from her boss's ski trip. I tried to sit up, but everything just went pitch black... My boss walks in and goes, "Just give him some Valium, he's just being dramatic!" And that's how he sent me to the city in a half-dead state. In the ambulance, right in front of my mother, I lost control of the left side of my body...
Literally, because of that doctor's negligence, I ended up traveling from the city back home in diapers...
That’s when my savior stepped in—the head of resuscitation—who finally pulled a blood culture and rushed me to the Mayo Clinic...
They nailed the diagnosis immediately: bacterial endocarditis...
I've filed a lawsuit against the hospital to settle this, and the case is currently moving through the US District Court, where the medical expert testimonies are leaning heavily in my favor...
Total negligence has completely wrecked my life. Even though I couldn't swallow a single drop of water, the insurance company has been playing games with my coverage for years now...
Now, thanks to a speech therapist in the city, I can actually swallow again, whereas they told me back home there was nothing they could do...
The US is my home, and I love it. I'm so grateful to the amazing doctors in internal medicine and resuscitation...
My goal now is to one day be able to carry my youngest daughter. Sadly, along the way, I've lost some people I loved dearly. I'm writing this down so this never happens to anyone else...