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Living with CSCR (Central Serous Chorioretinopathy)

Started by Roger Phillips5 · · 👁 8 views · 109 replies

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Participants Roger Phillips5mistyjackal842Alexander Lee87crimsonpuma10silentsailor28Nicholas Myersswiftscout8Chloe Morgan13lonejackal61coastaltiger7Keith Morris3Angela Foster43rustybear27Nicholas Ortiz48crimsonhound27Henry Perez5Matthew Mitchell29neoneagle7Benjamin Newman8wanderingwalker3Ethan Harris343
Chloe Morgan13 Chloe Morgan13 Member
20 messages
joined Jun 2014
#61 ·
coastaltiger7 said:Keith Morris3, sorry, just saw the question. The doctor's name is Kresimir Mandic.

I don't think that's quite right. The eye doctor I go to doesn't just measure sight; they perform fundus exams too. They work through insurance referrals, basically just like any other clinic you'd visit.
And obviously, you don't expect them to fix major issues, but being sent to the hospital with advanced cataracts when the specialists find only minor ones is a bit concerning, I guess.

Anyway, none of the drops have helped my mom, and her vision is still pretty blurry. She’s going in for a follow-up this week, so we'll see what the doctor says. But honestly, it feels like that might be it—not much hope for things getting better.

An optometrist works at an eye clinic, while an ophthalmologist works at a hospital =)
So, you can draw your own conclusion about who is better qualified to diagnose actual eye diseases or disorders. 😉

As for whether an actual ophthalmologist is coming to the clinic, I honestly have no idea. To be truthful, that would surprise me. I haven't heard anything about that.
Chloe Morgan13 Chloe Morgan13 Member
20 messages
joined Jun 2014
#62 ·
Keith Morris3 said:Chloe Morgan13. I had surgery over at Johns Hopkins Hospital, and honestly, it took those doctors six whole weeks just to figure out I was having an allergic reaction to a preservative in my artificial tears. To make matters even more fun, I also had H. pylori running around in my system at the same time, though I didn't actually find that out until three months later after getting a gastroscopy.

I am so sorry they missed all of that! :-( Honestly, there is nothing worse than dealing with doctors who just can't get the diagnosis right.

I can't speak specifically to the ophthalmology department over at Johns Hopkins Hospital, but I do know a ton of patients have transferred from other facilities to Holy Spirit. They seem to be the heavy hitters for ophthalmology in Washington, D.C., especially when it comes to retinal work!

I spent a massive amount of time sitting in that waiting room, just waiting for endless appointments, so I heard just about everything. A ton of people ended up switching providers because they were completely dissatisfied.
coastaltiger7 coastaltiger7 Member
32 messages
joined Dec 2020
#63 ·
Chloe Morgan13 said:An optometrist works at an eye clinic, while an ophthalmologist works at a hospital =)
So, you can draw your own conclusion about who is better qualified to diagnose actual eye diseases or disorders. 😉

As for whether an actual ophthalmologist is coming to the clinic, I honestly have no idea. To be truthful, that would surprise me. I haven't heard anything about that.

That’s just not true. Some optical shops do have ophthalmologists; the one near me has one working there every single day. I'm not sure about posting photos on a forum, but I literally have my results from today right here. It clearly states Dr. Grcic, MD, Ophthalmology Specialist. They even did a fundus exam, which an optometrist doesn't do. I was there with my grandma, and she’s been referred to a retinologist, so we’re heading to Svjetlost tomorrow.

I used to go regularly to that optical shop over on Waterworks where a doctor from Vinogradski Hospital used to visit.
Chloe Morgan13 Chloe Morgan13 Member
20 messages
joined Jun 2014
#64 ·
coastaltiger7 said:That’s just not true. Some optical shops do have ophthalmologists; the one near me has one working there every single day. I'm not sure about posting photos on a forum, but I literally have my results from today right here. It clearly states Dr. Grcic, MD, Ophthalmology Specialist. They even did a fundus exam, which an optometrist doesn't do. I was there with my grandma, and she’s been referred to a retinologist, so we’re heading to Svjetlost tomorrow.

I used to go regularly to that optical shop over on Waterworks where a doctor from Vinogradski Hospital used to visit.

OK, that's the first I've heard of something like that.
In the 20 years I've been wearing glasses, I've visited plenty of different optical shops, and it has never been an ophthalmologist. Either I just had bad luck or you did... who knows! ;-)
Roger Phillips5 Roger Phillips5 MemberOP
11 messages
joined Sep 2010
#65 ·
Keith Morris3 said:Chloe Morgan13. I had surgery over at Johns Hopkins Hospital, and honestly, it took those doctors six whole weeks just to figure out I was having an allergic reaction to a preservative in my artificial tears. To make matters even more fun, I also had H. pylori running around in my system at the same time, though I didn't actually find that out until three months later after getting a gastroscopy.

Well, here goes me after all these years. When I first started this thread, I was dealing with some serious issues... but honestly, things have been pretty smooth up until now. I haven't had any massive CSCR episodes worse than the very first one back in 2007.
But now? Now I’m facing a different kind of mess. I’ve got these tiny little glowing spots in both eyes, right in my central vision. They leave these brief dark patches behind them, which finally disappear once I wake up and get moving. To me, these little specks feel exactly like that big bright spot I had when I dealt with the exudative detachment. It seems like I just have a ton of tiny ones now. Has anyone else gone through this?
I think I’m going to have to go back to a raw food diet—lots of fruit and veggie juices—which always helped me recover whenever my eyes started acting up.

And before all this started, I had this intense pain in the left side of my stomach. I was positive it was cirrhosis... but then I did the breath test for Helicobacter pylori and it came back negative. My doctor put me on some acid reflux pills, and frankly, I suspect those might have actually made things worse.
Angela Foster43 Angela Foster43 Member
15 messages
joined Oct 2016
#66 ·
Roger Phillips5 said:Well, here goes me after all these years. When I first started this thread, I was dealing with some serious issues... but honestly, things have been pretty smooth up until now. I haven't had any massive CSCR episodes worse than the very first one back in 2007.
But now? Now I’m facing a different kind of mess. I’ve got these tiny little glowing spots in both eyes, right in my central vision. They leave these brief dark patches behind them, which finally disappear once I wake up and get moving. To me, these little specks feel exactly like that big bright spot I had when I dealt with the exudative detachment. It seems like I just have a ton of tiny ones now. Has anyone else gone through this?
I think I’m going to have to go back to a raw food diet—lots of fruit and veggie juices—which always helped me recover whenever my eyes started acting up.

And before all this started, I had this intense pain in the left side of my stomach. I was positive it was cirrhosis... but then I did the breath test for Helicobacter pylori and it came back negative. My doctor put me on some acid reflux pills, and frankly, I suspect those might have actually made things worse.

Based on how those disturbances sound, it might just be changes in the vitreous, which tends to happen as we age, though it usually shows up earlier in people with myopia.
Are you seeing fragments, spots, or floaters drifting through your field of vision?
If there aren't any flashes, it's probably nothing to worry about.
The main thing is making sure there isn't a constant curtain blocking your view, since that would be a sign of retinal detachment.
Roger Phillips5 Roger Phillips5 MemberOP
11 messages
joined Sep 2010
#67 ·
Look, those floaters in my vision have been around forever—I've long since gotten used to them... they're just tiny little dots that flash for a split second and then vanish. They're always in the exact same spot, right in the center.
Angela Foster43 Angela Foster43 Member
15 messages
joined Oct 2016
#68 ·
And if they're right in the center and just staying stationary, then I guess there's probably some kind of issue at play
Roger Phillips5 Roger Phillips5 MemberOP
11 messages
joined Sep 2010
#69 ·
Look, I know for a fact this is a real issue... I've dealt with much larger versions of these symptoms before. I just really hope these ones clear up on their own eventually. The absolute worst part? The doctors can't do a damn thing about it. So, I’m asking—has anyone else gone through something similar? If so, please, tell me how you handled it.
Angela Foster43 Angela Foster43 Member
15 messages
joined Oct 2016
#70 ·
I suppose on a global scale, one really ought to undergo an OCT 😉
rustybear27 rustybear27 Member
13 messages
joined Nov 2017
#71 ·
I've been dealing with CSR in one eye since 2015. We managed to clear it up once, then it came back in 2016, we cleared it again, and now it’s flared up once more. We tried diuretics like Diamox (which gave me kidney stones and left me feeling like there were ants "crawling inside my head"—honestly, I think it was peeing out all my magnesium and making me depressed), plus Trusopt/Azarga drops, but nothing helped. We even tried Avastin injections, but no luck there either. Using FAG, we identified that the issue was leaking from a specific vein. Bayer Eylea provided some initial relief, but things started sliding downhill again after two months. My ophthalmologist couldn't perform laser cauterization because I have macular degeneration right in the center of my vision, so we attempted to treat a spot slightly higher up to close off the suspicious vein, followed by cold laser treatment directly at the source of the leak. It felt better at first, but two months later, the decline started again. Now, my doctor has unofficially suggested I try getting some Cannabis oil. He mentioned a patient of his who had it way worse than me—her vision was down to 10%, and doctors at the state eye hospital told her to just prepare for blindness. To make a long story short, she recovered after a year of using Cannabis oil; her vision climbed back up to 98%.😁He monitored her month by month, and she just kept getting better and better until she was fully healed.
Right now, I'm using an oil I picked up online ( The key is finding something with high CBD and almost zero THCa. From what I've been digging up online, while THC is a factor, you really want the CBD levels to heavily outweigh the THC.

By the way, watch your back—there are plenty of scammers out there selling oil. It is absolutely vital to find someone reliable who actually knows what they're doing and won't rip you off!

I'll keep you guys posted on my progress.👍

You take the oil sublingually, under the tongue, obviously.🙂
rustybear27 rustybear27 Member
13 messages
joined Nov 2017
#72 ·
I picked up some genuine Royal Medic strain Cannabis oil. I'm actually noticing changes in my eye—the spot seems smaller, though there's some mild discomfort. At my checkup, the doctor mentioned the Edem is shrinking and told me to stick with this treatment. I haven't hit a full dose yet since I need to let my body adjust, so I’m gradually bumping it up every three days.
🙂

On a side note, regarding those "pins and needles" sensations: my ophthalmologist told me they're just a side effect of the diuretics. Basically, I burned through my potassium and need to replenish it. Now, I just dissolve half a 500mg potassium chloride tablet in water and the tingling disappears... or I just eat a banana every day. Easy fix.
Nicholas Ortiz48 Nicholas Ortiz48 Newcomer
9 messages
joined Feb 2018
#73 ·
Hey everyone. Well, here I am, unfortunately joining the ranks of you guys... I'm 36, and back on December 12th last year, I got diagnosed with CSCR. It happened one night while I was watching TV; I shifted my gaze and everything just looked... watery. The next morning, it hadn't cleared up, and I actually had this dark spot appearing in front of my right eye, almost like I’d been staring directly into a bright light, and the whole scene felt like I was floating underwater. Since things didn't improve after the following night, I ended up hitting the emergency room, totally freaked out. When I closed my eyes, I saw this perfect glowing circle, and when looking through my right eye, that circle looked mustard-colored or gray depending on how dim the lighting was. At first, the doctor was a bit puzzled because my visual acuity was still at 100%, but as soon as he did a full exam, he suspected the diagnosis immediately, which was later confirmed by an OCT. Stress seems to be the culprit in my case. I was prescribed Trusopt drops and Yellox, and they scheduled a follow-up for two weeks later. My vision is still technically 100%, and even though the OCT scan looked worse than the previous one, the doctor wasn't worried—he mentioned that patients usually show up once the situation is already established. I caught it while the Edem was still developing. Even though my vision was technically perfect according to the tests, I couldn't read things like fine print on a brown background (like a shower gel bottle), or tiny letters when the lighting was low. Anyway, I went back for a checkup three weeks later and the OCT results were completely normal (all green 🙂). My vision still felt a little weird, sort of watery, but the doctor said it probably just needs more time to fully recover. I can say it's getting better; the "watery" sensation is just slight now, varying from day to day for reasons I don't quite get. When I have a migraine, the vision definitely gets weirder... That circle I saw before is gone, though I can see faint remnants of it like shadows if I squint—you know, closing the left eye and squinting with the right. Also, in bright light, I see what I call "colliding atoms" with my right eye. Just a bunch of tiny, tiny little specks or glowing dots that aren't still, they jump around like little bugs, but in my head, I imagine them as colliding atoms 😁 :-(
I have another follow-up scheduled for next month.
Now, these little dots and "worms" I see in bright light are driving me crazy. Before, I saw one "worm" and a dot that were transparent and just drifted across the sky constantly when looking through my left eye, but now I'm seeing tiny gray dots too. I think it's one per eye; they pop in and out and seem to travel when I notice them. Now, both those gray ones and the transparent ones I used to only see against the sky, I can see on the TV screen or any surface if the light is bright enough. When those gray ones appear, I panic—my palms sweat, my heart races, and I just spiral into depression. I'm constantly terrified that the CSCR will come back because of this, but I can't help it. Does this happen to anyone else? Are these just floaters?
It’s somewhat comforting to share these struggles, specifically regarding CSCR, with people who are actually dealing with the same thing. It helps to exchange experiences and know you aren't alone... Sorry for the long post, I could go on about this forever ☕ But anyway, if anyone wants to know more about my experience or if you want to share yours—especially if anything I wrote sounds familiar—please do 😉
I honestly don't know how to relax. I'm not much of a "go with the flow" kind of person, so stress is pretty much my constant companion... How did you all change your lifestyle? What did you adjust? Any advice..?
Best!
Nicholas Ortiz48 Nicholas Ortiz48 Newcomer
9 messages
joined Feb 2018
#74 ·
Chloe Morgan13 said:Yes, I’ve accepted that it’s here to stay.
The edge of the Edem looks fine now, but the center feels bright—almost translucent. There’s just this one little spot that's shrinking, which will probably vanish once the Edem fully recedes. Still, that outer ring will likely remain... :/
As for the distorted vision, I've adjusted to it, though it really bugs me that objects look smaller than they should. I'm worried that part won't change either.
My only real concern right now is night vision. It’s been tough... the less light there is, the less I can see out of that eye. I really hope that improves or at least gets significantly better because driving at night is becoming a real struggle. It’s even impractical just moving around the house late at night when the lights are off.😢

Hey everyone, did your objects stay small or did that fix itself over time? I dealt with the exact same thing, even after the Edem cleared up and my OCT looked totally fine. About five weeks have passed since then, and things are slowly snapping back into place; now, the objects I focus on look almost the same size as what I see with my left eye.
rustybear27 rustybear27 Member
13 messages
joined Nov 2017
#75 ·
Hey, I ended up dealing with CSCR myself, just like I mentioned before. It cleared up while I was on a diuretic and Trusopt drops (to lower eye pressure) along with Yellox (for inflammation). I actually used Azarga instead of Trusopt to manage the pressure. It went away, but then came back about 4-6 months later, so there's no guarantee it'll stay gone for you. Since I've been struggling with this since 2015—and it recently popped up in my other eye too—one thing I've learned is that it usually hits people with a Type A psychological profile. As for the exact cause? Nobody really knows; I even asked my doctor. In my case, I'm certain stress plays a massive role in this. To be 100% sure it's gone, you need an FFA test (they inject a yellow contrast solution into your vein, giving you a tiny bit first to check for allergic reactions, then they examine how the vessels fill inside the eye). That’s how they check if a vessel is leaking and causing Edem—which is what's happening to me. It's right in my center of vision, so they won't touch it with a laser. My doctor actually suggested Cannabis oil (real oil with THC); he had one patient who recovered completely and hasn't had issues since, even though she had a huge problem. Doctors find it tricky to recommend because Cannabis is still illegal here in the US. I hope you get better soon. LP, by the way, those floaters are totally normal for me; I've had them since elementary school. I've done every test under the sun and they never found anything, so I just ignore them. Don't let them stress you out—CSCR is much more dangerous.

LP
Nicholas Ortiz48 Nicholas Ortiz48 Newcomer
9 messages
joined Feb 2018
#76 ·
Hey there! Thanks for getting back to me, rustybear27. I’m stuck at home with the baby right now, so the days are just absolutely blurring together 😉
Yeah, I’ve definitely read up on those personality types, and I am a textbook Type A through and through. The worst part is that I can't just flip a switch and change it... I can try telling myself, "Okay, let's take it easy, don't get worked up, stay chill, everything's fine," but it just doesn't work. It's not like I can just decide to be different when that underlying tension is already baked into who I am. My doctor suggested I look into some yoga breathing exercises and carve out a few minutes every day for them, especially when I feel the stress starting to pile up. I'm also trying to load up on antioxidants through my diet as much as possible.
I'm actually thinking about checking in with my doctor to see if I can jump the line for FAG somewhere, because my current appointment isn't until November.
There's one thing I'm still a bit fuzzy on... After my last checkup with the OCT, the results were perfect—everything was green lights and the macular contours looked totally normal. But even then, I was still dealing with some lingering minor issues... Like, if I squint my eyes—you know, close the left one and strain with the right—there's this faint circle with these tiny little shadows inside it. And in the dark—well, not pitch black, just dim enough where you aren't seeing nothing—there's this shadow in front of my right eye (night driving is fine since the headlights are bright enough to drown it out, so I can see okay). There are other little things too; in the shade or dim light when I'm trying to read small print, like on some product packaging, if I test it with my right eye, the center of my focus is sharp, but the edges look like the letters were printed on greasy paper... Are these tiny glitches just permanent leftovers?
Whenever I go in for a checkup, I have a million questions and uncertainties, but it feels like they're always in such a rush to get through me. It's like they don't quite grasp that a person actually wants to understand what's going on with their own health...
Oh, also, I was wondering if anyone else has noticed any periodic shifts in their vision? I mentioned having this slightly watery visual effect, and I've noticed it hits harder during ovulation or when I get migraines. Then the next day, everything is back to normal and looks better, and just when I start freaking out that it's coming back, it suddenly clears up in a single day...
rustybear27 rustybear27 Member
13 messages
joined Nov 2017
#77 ·
Nicholas Ortiz48 said:Hey there! Thanks for getting back to me, rustybear27. I’m stuck at home with the baby right now, so the days are just absolutely blurring together 😉
Yeah, I’ve definitely read up on those personality types, and I am a textbook Type A through and through. The worst part is that I can't just flip a switch and change it... I can try telling myself, "Okay, let's take it easy, don't get worked up, stay chill, everything's fine," but it just doesn't work. It's not like I can just decide to be different when that underlying tension is already baked into who I am. My doctor suggested I look into some yoga breathing exercises and carve out a few minutes every day for them, especially when I feel the stress starting to pile up. I'm also trying to load up on antioxidants through my diet as much as possible.
I'm actually thinking about checking in with my doctor to see if I can jump the line for FAG somewhere, because my current appointment isn't until November.
There's one thing I'm still a bit fuzzy on... After my last checkup with the OCT, the results were perfect—everything was green lights and the macular contours looked totally normal. But even then, I was still dealing with some lingering minor issues... Like, if I squint my eyes—you know, close the left one and strain with the right—there's this faint circle with these tiny little shadows inside it. And in the dark—well, not pitch black, just dim enough where you aren't seeing nothing—there's this shadow in front of my right eye (night driving is fine since the headlights are bright enough to drown it out, so I can see okay). There are other little things too; in the shade or dim light when I'm trying to read small print, like on some product packaging, if I test it with my right eye, the center of my focus is sharp, but the edges look like the letters were printed on greasy paper... Are these tiny glitches just permanent leftovers?
Whenever I go in for a checkup, I have a million questions and uncertainties, but it feels like they're always in such a rush to get through me. It's like they don't quite grasp that a person actually wants to understand what's going on with their own health...
Oh, also, I was wondering if anyone else has noticed any periodic shifts in their vision? I mentioned having this slightly watery visual effect, and I've noticed it hits harder during ovulation or when I get migraines. Then the next day, everything is back to normal and looks better, and just when I start freaking out that it's coming back, it suddenly clears up in a single day...

Hey, just got back from my checkup. After three months of using the oil, things have finally improved in one eye—it's actually shrinking. But, of course, two tiny new ones popped up in the other. Typical.🤔Honestly, even my doctor can't wrap his head around why this is happening. I’m just going to stick with the oil for now. I've been seeing a private specialist—I wouldn't dream of dealing with the state doctors anyway—and they told me you can't have FAG done too often, maybe twice a year at most. Better not wait until October.
If you're asking if antioxidants actually work—yeah, they do. I take a borovnica Sorial extract tincture every morning on an empty stomach, followed by half a raw carrot. I also stay on top of eye vitamins like Dietpharm Makulin plus or Nutrof total (my doctor’s recommendation), plus some Kernnela Spirulina, which is loaded with zeaxanthin—supposedly great stuff for your vision.

Yeah, I’m trying to get into meditation too. At least once a day, I try to just focus on my breathing—that's what I read online, anyway. Just thinking about the present. Not tomorrow, not yesterday, just right now. Just enjoying the moment.
People say lemon balm tea is great for cooling down your brain. I’ve been using Himalay Bacop myself—take it once a month, then take a 2 to 4-week break before starting again. Look it up on Google.

Stay positive and just relax... you'll heal.👍
Nicholas Ortiz48 Nicholas Ortiz48 Newcomer
9 messages
joined Feb 2018
#78 ·
rustybear27 said:Hey, just got back from my checkup. After three months of using the oil, things have finally improved in one eye—it's actually shrinking. But, of course, two tiny new ones popped up in the other. Typical.🤔Honestly, even my doctor can't wrap his head around why this is happening. I’m just going to stick with the oil for now. I've been seeing a private specialist—I wouldn't dream of dealing with the state doctors anyway—and they told me you can't have FAG done too often, maybe twice a year at most. Better not wait until October.
If you're asking if antioxidants actually work—yeah, they do. I take a borovnica Sorial extract tincture every morning on an empty stomach, followed by half a raw carrot. I also stay on top of eye vitamins like Dietpharm Makulin plus or Nutrof total (my doctor’s recommendation), plus some Kernnela Spirulina, which is loaded with zeaxanthin—supposedly great stuff for your vision.

Yeah, I’m trying to get into meditation too. At least once a day, I try to just focus on my breathing—that's what I read online, anyway. Just thinking about the present. Not tomorrow, not yesterday, just right now. Just enjoying the moment.
People say lemon balm tea is great for cooling down your brain. I’ve been using Himalay Bacop myself—take it once a month, then take a 2 to 4-week break before starting again. Look it up on Google.

Stay positive and just relax... you'll heal.👍


Thanks for the advice; I might give some of those suggestions a shot. I pretty much eat raw carrots almost every day myself. I actually had my checkup today, too. During the exam, the doctor didn't see anything alarming, though she could tell something happened—it left a mark on the RPE. On the OCT, it still shows what she described as minimal RPE ablation right where the Edem first started when I was having issues... She mentioned that if that happens to be a leak site, the laser can't be used on that specific spot. If it becomes necessary, she brought up the possibility of injections... I have no idea, but I really hope it doesn't come to that because the thought of an injection in the eye sounds terrifying... 😲 She even hinted that there might be no point in doing FAG now since it's passed, but okay, since I'm already scheduled. Still, I decided to go to my primary care doctor to see if they can get me in earlier just so I can have some peace of mind. It’s really bugging me that this little section stayed the way it is... It was visible on the last OCT too, but the doctor wasn't worried... I feel like I need to double-check because I'm the type of person who worries about these things... 😁
Here's another suggestion for you: I stumbled upon some info about Astaxanthin, which is supposedly amazing for improving visual acuity. It's found in high amounts in krill, and there are supplement capsules available. They aren't exactly cheap, but hey, why not give it another try? 😁
I found this on some website—honestly, I can't remember if it was an American or international site because I can't find where I dug it up anymore😵—but it was mostly info regarding CSR treatment. It mentioned the Iridex laser, or so-called "yellow laser," which treats the central area without causing thermal burns or scarring. Instead, it just stimulates the retina's natural self-healing processes so the pigment epithelium heals faster, closing up the holes where fluid leaks through, and so on. rustybear27, I really hope the oil works for you and that you won't even need this info... You seem so calm, positive, and patient, truly. I really believe these are just the final twitches of CSR for you and that next time everything will be much better, maybe even excellent.👍
Man, I find myself daydreaming all the time about just being able to spend a day, two, three—who even knows how long it takes—just sitting in front of the TV in total peace with nothing but my own thoughts. Sometimes you really just need that kind of headspace, but when there's a baby in the mix, that's basically out of the question unless we hit the jackpot. I'd love to just pack up our bags and head out on a trip, soaking in different landscapes and completely clearing my mind by changing my scenery, but yeah, those are just pipe dreams 😁 once spring finally hits, though, we're planning to go on some hiking trips, which should help me feel a bit more like myself; we used to get out on the trails way more often back in the day.
I'm going to hop on Google and look into those tips of yours. Anyway, good luck 😉
Nicholas Ortiz48 Nicholas Ortiz48 Newcomer
9 messages
joined Feb 2018
#79 ·
[QUOTE=rustybear27;68710131]Hey, just got back from my checkup. After three months on the oil, the swelling in one eye finally went down, but now two tiny new spots popped up in the other one🤔, and honestly, even my doctor couldn't wrap his head around why. I'm sticking with the oil for now. I see a private specialist—I wouldn't dream of dealing with the public healthcare system anyway—and they told me you shouldn't have FAG done too often, maybe twice a year at most... better not wait until October.
Antioxidants definitely help; I take a borovnica Sorial tincture, and every morning on an empty stomach, I eat half a raw carrot. I also use eye vitamins like Dietpharm Makulin plus or Nutrof total (my doctor’s suggestion), plus some Kernnela Spirulina, which is packed with zeaxanthin, apparently great for vision.

I'm trying meditation too, at least once a day focusing strictly on breathing. At least, that's what I read online... just thinking about the present, not tomorrow or yesterday, just today, being in the moment...
For calming the mind, they say lemon balm tea is good, and I take Himalay Bacop (once a month, then a 2-4 week break, then back to it)... look it up online.

Stay positive & relax.. you'll get better👍[/QUOTE

Oh yeah, I forgot to mention, I asked about the floaters and those little specks. My doctor says she can't really see them because they're probably too small, but that's the deal—those annoying little flies drifting around... She said she sees them too, though... I guess I'll just have to learn how to ignore them. Honestly, if this whole thing hadn't happened to me, I probably wouldn't even give them a second thought, but whatever, the main thing is that it's real and it isn't dangerous. I feel a bit more at ease knowing that, because if there were anything actually worrying, she would have spotted it during the exam, on the OCT... And man, she was really going at it with that magnifying glass and the light, moving it everywhere—up, down, deep in there, top left, top right... And that lightooooooo, jeez... Anyway, catch ya later! 😁[/QUOTE]
rustybear27 rustybear27 Member
13 messages
joined Nov 2017
#80 ·
Nicholas Ortiz48 said:Thanks for the advice; I might give some of those suggestions a shot. I pretty much eat raw carrots almost every day myself. I actually had my checkup today, too. During the exam, the doctor didn't see anything alarming, though she could tell something happened—it left a mark on the RPE. On the OCT, it still shows what she described as minimal RPE ablation right where the Edem first started when I was having issues... She mentioned that if that happens to be a leak site, the laser can't be used on that specific spot. If it becomes necessary, she brought up the possibility of injections... I have no idea, but I really hope it doesn't come to that because the thought of an injection in the eye sounds terrifying... 😲 She even hinted that there might be no point in doing FAG now since it's passed, but okay, since I'm already scheduled. Still, I decided to go to my primary care doctor to see if they can get me in earlier just so I can have some peace of mind. It’s really bugging me that this little section stayed the way it is... It was visible on the last OCT too, but the doctor wasn't worried... I feel like I need to double-check because I'm the type of person who worries about these things... 😁
Here's another suggestion for you: I stumbled upon some info about Astaxanthin, which is supposedly amazing for improving visual acuity. It's found in high amounts in krill, and there are supplement capsules available. They aren't exactly cheap, but hey, why not give it another try? 😁
I found this on some website—honestly, I can't remember if it was an American or international site because I can't find where I dug it up anymore😵—but it was mostly info regarding CSR treatment. It mentioned the Iridex laser, or so-called "yellow laser," which treats the central area without causing thermal burns or scarring. Instead, it just stimulates the retina's natural self-healing processes so the pigment epithelium heals faster, closing up the holes where fluid leaks through, and so on. rustybear27, I really hope the oil works for you and that you won't even need this info... You seem so calm, positive, and patient, truly. I really believe these are just the final twitches of CSR for you and that next time everything will be much better, maybe even excellent.👍
Man, I find myself daydreaming all the time about just being able to spend a day, two, three—who even knows how long it takes—just sitting in front of the TV in total peace with nothing but my own thoughts. Sometimes you really just need that kind of headspace, but when there's a baby in the mix, that's basically out of the question unless we hit the jackpot. I'd love to just pack up our bags and head out on a trip, soaking in different landscapes and completely clearing my mind by changing my scenery, but yeah, those are just pipe dreams 😁 once spring finally hits, though, we're planning to go on some hiking trips, which should help me feel a bit more like myself; we used to get out on the trails way more often back in the day.
I'm going to hop on Google and look into those tips of yours. Anyway, good luck 😉

Ole,.. I actually underwent MPLT-MicroPulse laser therapy—the so-called "cold laser" as my doc calls it (though whether that's Iridex or not, I haven't a clue). The idea is that it supposedly revitalizes cells without destroying tissue, but it doesn't actually stop the leaking/leakage from the vein—tried and tested on me. It improves the situation, but it doesn't seal the vessel. My doctor is a great guy, but in many other instances, life experience has taught me that you eventually have to become your own doctor.😁. Just get an FAG done, then you'll know for 100% certain if there's a leak in the vein or not. They were focusing entirely on my eye issues, but they did a quick 10-second scan of everything else too—that’s how we caught the other issue early on, something that didn't even show up on the OCT.
Thnx for the Astaxanthin.
The oil definitely works—I can see improvements. 🙂
I've had injections before, too, but they didn't stop the leakage.

Btw, don't use Bacopa monnieri or Brahmi Gotu Kola if you're pregnant or planning to be; I read somewhere that it should be avoided during that time.

Ugh, that planning sounds amazing. Nature, streams, forests... our true habitat. You can tell my hunter-gatherer genes are kicking in immediately. haha

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