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Muscle weakness

Started by crimsonbear23 · · 👁 7 views · 25 replies

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Participants crimsonbear23Donna Anderson6feralorca1melloworca6Ryan Carter52Anthony Morris2Jack Bishop94Samuel Nelson50wiredotter22Tyler James5Kimberly Martinez7Andrew Nelson6Mark Ortiz8velvetmoose9Nathan White72Bryan Palmer9Christian Wilson28
Andrew Nelson6 Andrew Nelson6 Newcomer
9 messages
joined Nov 2019
#21 ·
What kind of illness are we even talking about here?
Nathan White72 Nathan White72 Newcomer
3 messages
joined Oct 2017
#22 ·
We’re looking at a 68-year-old man here. It started out as just a slight dragging of his left leg whenever he got tired. Over the last seven years, things have steadily spiraled downward. His legs are losing strength—the left side is worse, and now the right is following suit. His arms are also losing power, again favoring the left, though the situation there isn't nearly as dire as it is with his legs.
He went from using one cane, then both, and now he's completely reliant on a wheelchair.
He’s seen plenty of neurologists, most of whom couldn't provide a single definitive diagnosis.

They checked his myelin levels—everything looked fine.
An MRI did show some narrowing in his cervical spine.
Initially, they didn't give it much thought; then, once they ran out of ideas, they pivoted to focus on that narrowing. Their working theory now is that he suffered a stroke in that specific section of the spinal cord.
However, nobody seems able to answer one simple question—usually, after a stroke, a person either recovers partially or stays exactly where they were immediately following the event.
In this case, we are witnessing a constant, visible degradation of his condition.

There is a mountain of medical records available to review, but for now, I can only offer this layman's summary.
If anyone has any insight into which direction we should be heading, we would appreciate it.
Bryan Palmer9 Bryan Palmer9 Member
13 messages
joined Sep 2019
#23 ·
Look, I’m definitely not a doctor, and even if some MD decided to pop up in this thread, they probably wouldn't be able to do much without seeing the actual data, so you really ought to post your lab results so some professionals can see exactly what tests you've already cleared.
Honestly, everything you just described immediately made me think of https://www.mayoclinic.org/diseases-conditions/thyroid-disease/symptoms-causes/syc-20354264 but I guess the specialists have already ruled that out, right???
Christian Wilson28 Christian Wilson28 Member
49 messages
joined Nov 2018
#24 ·
Has anyone else in their family dealt with something like this?

Out of all those progressive degenerative conditions, there's also this one: http://www.msd-manuals.com...cna-parapareza

Though, honestly, that doesn't really sound like what we're seeing.
Nathan White72 Nathan White72 Newcomer
3 messages
joined Oct 2017
#25 ·
Not a single person in my family has ever dealt with anything even remotely similar.
I’m going to upload the test results—it would be great if someone could advise me on which specific data points I should include.
ALS has been ruled out as a possibility.
Nathan White72 Nathan White72 Newcomer
3 messages
joined Oct 2017
#26 ·
Nathan White72 said:Not a single person in my family has ever dealt with anything even remotely similar.
I’m going to upload the test results—it would be great if someone could advise me on which specific data points I should include.
ALS has been ruled out as a possibility.

As promised, here are the medical reports. This whole thing started about 10 years ago.
The diagnosis is a brainstem stroke, but nobody seems able to explain why the condition is deteriorating so rapidly.
image image image image image image image image

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