#21 ·
😲 Are they actually reading us?
Fine by me. Let them keep lurking; maybe they’ll finally realize that they need to start working on some honest, healthy communication with their patients and their families.
I’m feeling just as disgusted, though from the opposite side of the fence. I’ve been in that position where people were blatantly lying to my face about things like using Temozolomide for treating recurrent glioblastoma, but those lies always end up surfacing eventually.
Look, if there isn't any money and there aren't any supplies, don't lie and say "it doesn't help." Just be straight: say you don't have it, suggest we try to source it ourselves, or offer to let us pay for it so you can procure it. That is healthy, logical, and human. It is perfectly clear to me that limited funds should be spent on someone who can actually be helped and cured, rather than being poured into someone where you're just buying a little more time—which is exactly what happened with my mom's glioblastoma. At the same time, it is absolutely inhumane to deny us the chance to pay for that time ourselves, especially when every second with her is so precious.
Thanks for listening. My hat goes off to the medical staff who still put patients ahead of the system, even while constantly getting slapped in the face by administration and Medicare.🙏.
Fine by me. Let them keep lurking; maybe they’ll finally realize that they need to start working on some honest, healthy communication with their patients and their families.
I’m feeling just as disgusted, though from the opposite side of the fence. I’ve been in that position where people were blatantly lying to my face about things like using Temozolomide for treating recurrent glioblastoma, but those lies always end up surfacing eventually.
Look, if there isn't any money and there aren't any supplies, don't lie and say "it doesn't help." Just be straight: say you don't have it, suggest we try to source it ourselves, or offer to let us pay for it so you can procure it. That is healthy, logical, and human. It is perfectly clear to me that limited funds should be spent on someone who can actually be helped and cured, rather than being poured into someone where you're just buying a little more time—which is exactly what happened with my mom's glioblastoma. At the same time, it is absolutely inhumane to deny us the chance to pay for that time ourselves, especially when every second with her is so precious.
Thanks for listening. My hat goes off to the medical staff who still put patients ahead of the system, even while constantly getting slapped in the face by administration and Medicare.🙏.