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Schizophrenia - General Discussion

Started by briskgull27 · · 👁 87 views · 7.5K replies

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Participants briskgull27Jason Sanchez3Taylor Howard36crimsonhound80Douglas Ramos2restlesscobra132electricpanther4swiftsurfer27Rachel Ruiz39Rebecca Flores5Brian Moore2Mark Morris3quiethound45Brenda Cook4James Gonzalez11Gerald Rivera60Megan MitchellTaylor Parker10David Stewart52Andrew Harris7mistybisonAmistyscout2Samuel Nelson24 …
Rebecca Rivera3 Rebecca Rivera3 Active Member
206 messages
joined Mar 2017
#6801 ·
You all certainly went on a bit here, venting quite a few emotions and opinions.
First off, there was some clear downplaying of schizophrenia. Unfortunately, it’s a heavy diagnosis. Anyone who has dealt with it—whether through psychosis or any other way—and continues to live their life, deserves nothing but respect. It’s difficult, and medical intervention is necessary, usually involving medication and therapy. Seeking help from a mental health facility doesn't mean you've "given up." It’s just like if someone gets appendicitis and ends up in the gastrointestinal ward. You go to a different department because that's where the specialists are.

People who haven't faced serious illnesses often lecture others about diet, exercise, and lifestyle, implying that people "imagine" their symptoms or that they could have avoided this by being healthier. That kind of talk comes purely from ignorance and a lack of understanding.

While a healthy lifestyle helps a healthy person—and can be even more beneficial for someone who is ill—it isn't a cure, nor is it anything close to it. These are superstitions, and frankly, they're things I hear far too often that really irritate me.

I once had a girl try to sell me some nonsense, saying, "You know, you got sick because of stress; you shouldn't have let yourself get so stressed out." I mean, seriously... people need to watch what they say. We all live under stress. Whether that stress acts as a trigger for someone's underlying genetic predisposition is something no one can truly know. Even the most laid-back people can develop a tumor and pass away.

I've listened to so much of that foolishness—people claiming it's all your fault for having schizophrenia because you were stressed or didn't exercise enough. It's pathetic. You're dealing with an actual illness, and then you're blamed for being sick based on these superstitious lies.
I almost want those people to get sick themselves, just so I can tell them, "It's just the stress."
Rebecca Rivera3 Rebecca Rivera3 Active Member
206 messages
joined Mar 2017
#6802 ·
When Oliver passed away, I remember his songs playing on the ward. It was around that time I found out I had MS, though honestly, who knows how long I’d actually been living with it. That moment changed everything for me.

I remember this elderly woman coming up to me once, complaining about some young guy she saw in the restroom. She said he didn't even bother to close the door or anything, and her mother was right there with him—she just kept going on about how rude and disrespectful people are these days.
I told her, "Don't judge someone you don't know."

Later, she came back into the room and said, "You were right. That boy has a brain tumor; he's dying."

And so... yeah. That was me, bathing in that restroom with the doors wide open while her mother was right there. Even though I wasn't dying, I understood why. You can't always close those doors because you never know when you might lose your balance and need someone to help you get dressed.

Sometimes I wonder if my life would have taken a different path if I had never known what I was dealing with. I really don't know.
I'm just waiting to see if I've finally beaten the tumor. After that, I'll still have the MS to deal with. I'll just have to figure out how to adjust my life so this condition doesn't hold me back.
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6803 ·
Man, I remember back when I was staying at the clinic—I think it was an old VA facility—my mom actually helped me out while I was getting cleaned up. She wasn't exactly scrubbing me or anything, just helping where she could. I was pretty sick back then, dealing with some really intense pain in... well, a very uncomfortable spot. It was hard to even take care of myself because of the pain, plus the plumbing in those units was absolute garbage. Getting the water temperature right was a nightmare, and honestly, I had no clue how to adjust it. Later on, I figured out how to prep the water myself, though I still wasn't great at it. A few others offered to help me get the water ready, telling me I should've just called them over.

They’ve actually renovated that unit now—including the bathrooms, from what I hear. So, I find it hard to believe they’re still having those issues with the water being either scalding hot or freezing cold.

The only bummer is that I never actually got my full lab work done, so I don't know exactly what was going on with me. I was supposed to have a colonoscopy and a bunch of other tests, but it never happened. Even now, I still get hit with bouts of nausea and pain every once in a while. Luckily, I've learned how to manage it—whenever that feeling hits, I just drop straight to the floor.

As for that whole thing about nose breathing, I don't know. I breathe through my nose constantly, which brings me back to what I was saying before. I tend to drift off into my own world, lost in thought and all that. Fortunately, Azrael keeps me somewhat grounded.

I've got a psychiatry appointment coming up in about a week, and I'm planning to ask about tapering off the Aura. It’s just making me sleep all day; I feel drowsy 24/7. I've actually skipped a dose or two on my own already, and I still slept like a rock after taking it.

And I'll probably ask Azrael about adjusting the dosage, since it's such a hassle to take.

I'm even thinking—if I can finally fix this sleeping issue—that maybe I could get a job behind a counter as a retail clerk, or maybe get back into sales as a traveling rep. But this constant lethargy is seriously holding me back.

Today was another one where I slept through half the day, and I still feel exhausted. 🕺
Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#6804 ·
Is a career in traveling sales not perhaps too much for those lacking mental fortitude? If one truly wishes to pursue a life in sales, would it not be more prudent to manage a stall at a local farmers market instead? For in such a setting, customers naturally gravitate toward the vendor, whereas a traveling representative must constantly knock on doors, forced to be exceptionally assertive, bold, stubborn, and relentlessly persistent.
Jose Ward4 Jose Ward4 Regular
379 messages
joined May 2015
#6805 ·
Honestly, I am just over this weather. I’m counting down the minutes until the temperature finally breaks and we get some decent rain. I’m craving a real storm—you know, one of those massive cloudbursts. I want thunder, heavy wind, and enough breeze to actually see the branches swaying in the trees. Just a beautiful, cleansing thunderstorm. Today was alright, I guess, except for the humidity outside. It was brutal. Thank goodness I had the AC running when the rain started hitting, because that’s the only way to pull the moisture out of the air. It was the only moment I could actually catch my breath. Just a few more days and hopefully this heatwave breaks. I really hope so.
Jose Ward4 Jose Ward4 Regular
379 messages
joined May 2015
#6806 ·
I just caught the weather report. Looks like we’re staring down another 29 degrees starting Monday. 🤦
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6807 ·
Nicole Barrett76 said:Is a career in traveling sales not perhaps too much for those lacking mental fortitude? If one truly wishes to pursue a life in sales, would it not be more prudent to manage a stall at a local farmers market instead? For in such a setting, customers naturally gravitate toward the vendor, whereas a traveling representative must constantly knock on doors, forced to be exceptionally assertive, bold, stubborn, and relentlessly persistent.

Yeah, I did that kind of thing a long time ago. Door-to-door stuff, back before everything changed and massive corporations—like the big Chinese conglomerates or whatever—started taking over everything. But maybe I could try this again. At least enough to scrape together some cash, maybe enough for food. Or enough to help my old lady out a bit. I just don't know. I need to figure out what I'd even sell. It feels like there's a reseller on every single corner around here lately.

As for the market stall thing... I'm not sure if I could handle it. People say the boss is decent. He pays everything on time. Honestly, he’s probably getting some government subsidy for hiring people, which is why he’s so generous with the pay. Word is he isn't even worried about making a profit himself. So, yeah, I'm betting on a federal employment incentive.

But man, this sleeping situation is killing me. I keep trying to pinpoint what's wrong, but I can't quite nail it down. It’s definitely not normal to sleep 10 or 12 hours every single day—sometimes even more—and still wake up feeling like a zombie.

Today I slept for 12 hours without any Aura, and I'm still exhausted. Clearly, even without the Aura, I'm oversleeping way too much. 🕺
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6808 ·
Jose Ward4 said:I just caught the weather report. Looks like we’re staring down another 29 degrees starting Monday. 🤦

I guess you're a fan of moderate weather too—can't say I blame you. They didn't even start mentioning those 70-degree days until the 25th.
Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#6809 ·
Carol Barrett2 said:I guess you're a fan of moderate weather too—can't say I blame you. They didn't even start mentioning those 70-degree days until the 25th.

I find that I am most comfortable when the temperature settles between 77 and 86 degrees Fahrenheit; because my thyroid function is quite sluggish, I rely on hormone replacement therapy to maintain my balance. Once the mercury dips below 77 or climbs above 86, I feel completely physically overwhelmed. To make matters worse, my sleep cycle is utterly disrupted and the quality of my rest is abysmal. I often find myself waking up in the middle of the night, tossing and turning restlessly until seven in the morning, caught in this exhausting cycle of drifting in and out of a shallow slumber.

Yet, I find myself falling into a deep slumber precisely at three in the afternoon, only to awaken once six o'clock has passed. I have attempted to resist this midday nap, hoping to remain awake from three until six, but if I do, I am often overcome by a sensation around seven or eight in the evening—as if I were slipping into a light, fleeting state of unconsciousness or a momentary dizzy spell lasting a minute or two, and sometimes even longer. Is it not true that it becomes simply impossible for me to function effectively if I do not allow myself that afternoon rest?

But that isn't quite right either, is it? Who would ever consider hiring someone like me under those circumstances? And what exactly are you suggesting—that I don't need to earn a significant income? At least I have some savings to fall back on. $500 Is there any way to bring in an additional $1,500 to $2,000 while working part-time? I only wish to secure enough so that my elderly mother and I might afford more nutritious meals. Is that too much to ask?

Are you truly suggesting that traveling salesmen are the ones slamming doors in people's faces? I find that hard to believe when the reality is far more systemic; it isn't individuals turning them away, but rather an artificially engineered economic crisis that has forced those doors shut. When, after we have settled our utility bills and purchased our groceries, my elderly mother and I are left with perhaps nothing more than three hundred dollars to our names, how can we be expected to engage with anyone?$133 It is an absolute necessity to set aside funds every single month, even if it requires significant personal sacrifices, because one simply cannot survive a month without a little bit of liquid cash on hand. And then, just when you think you're managing, some door-to-door salesman arrives—especially if he shows up unannounced without first seeking our voluntary consent over the phone—to peddle a product that costs exactly those $300 we worked so hard to save?$133There is simply no amount of charisma, physical presence, or clever salesmanship—regardless of how many psychological tricks they might employ—that could ever compel me to purchase anything from him. Perhaps if that traveling salesman possessed a particularly endearing demeanor, I might feel a fleeting moment of empathy for the sheer audacity required to attempt such a venture. But will empathy be enough to secure your commission?

When someone barges into your home with all the grace of a bulldozer—unannounced and completely overstepping their bounds—don't you feel an immediate urge to show them the door? If a guest is being particularly intrusive, shouldn't you have every right to demand they leave your private sanctuary? It seems to me that many people who lack basic social awareness mistakenly believe it is their own fault when they fail to pitch their products or services to a wide enough audience. But is that really the case? In truth, much of that perceived failure stems from nothing more than artificially engineered economic downturns.

There was a time when people used to discuss that company, Kyani, on certain online forums—you know, the ones that focused on door-to-door supplement sales. I remember reading about one distributor who actually had the audacity to tell a sick or disabled individual that he simply couldn't fathom why anyone wouldn't be willing to shell out over a hundred dollars a month for their own health. Honestly, what is wrong with people? I would gladly hand over four or five hundred dollars right now if it meant I had a job that actually brought in an eight-thousand-dollar monthly income!

If you have truly committed yourself to the grind of door-to-door sales, I believe there is no better product to peddle than fine fragrances. Is there anything more inherently persuasive than a scent that immediately captivates the senses and triggers a primal, subconscious desire to possess it? Surely, selling a bottle of perfume is far less daunting than trying to convince a stranger to sign away their future with a life insurance policy. The only minor setback is that, unlike basic toiletries, people don't burn through a luxury cologne overnight; the repurchase cycle is naturally longer. However, if you play your cards right, they will surely return to buy something else from you next month. Of course, the secret to success lies in your approach—you must be persistent without being an insufferable nuisance, and you certainly cannot go in acting like you have more ego than sense. After all, quality perfume isn't cheap. $33I already have a few pieces that I received for my birthday, but if I were to purchase one for someone dear and decent, I would consider buying one for either my mother or for myself.

The issue with focusing on such small-scale retail is that the individual commissions are meager; rather, shouldn't the true objective be finding a way to cultivate a loyal, recurring customer base? Suppose I were able to connect with three hundred customers, and if even one hundred of them purchased a single $20 perfume every month—even if I only earned a modest $30-$13 profit on each sale, wouldn't that total $3,000-$1333? Even after accounting for some taxes on that amount and ensuring I can maintain my disability benefits of $500, wouldn't that constitute a fairly respectable sum of money?
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6810 ·
Nicole Barrett76 said:I find that I am most comfortable when the temperature settles between 77 and 86 degrees Fahrenheit; because my thyroid function is quite sluggish, I rely on hormone replacement therapy to maintain my balance. Once the mercury dips below 77 or climbs above 86, I feel completely physically overwhelmed. To make matters worse, my sleep cycle is utterly disrupted and the quality of my rest is abysmal. I often find myself waking up in the middle of the night, tossing and turning restlessly until seven in the morning, caught in this exhausting cycle of drifting in and out of a shallow slumber.

Yet, I find myself falling into a deep slumber precisely at three in the afternoon, only to awaken once six o'clock has passed. I have attempted to resist this midday nap, hoping to remain awake from three until six, but if I do, I am often overcome by a sensation around seven or eight in the evening—as if I were slipping into a light, fleeting state of unconsciousness or a momentary dizzy spell lasting a minute or two, and sometimes even longer. Is it not true that it becomes simply impossible for me to function effectively if I do not allow myself that afternoon rest?

But that isn't quite right either, is it? Who would ever consider hiring someone like me under those circumstances? And what exactly are you suggesting—that I don't need to earn a significant income? At least I have some savings to fall back on. $500 Is there any way to bring in an additional $1,500 to $2,000 while working part-time? I only wish to secure enough so that my elderly mother and I might afford more nutritious meals. Is that too much to ask?

Are you truly suggesting that traveling salesmen are the ones slamming doors in people's faces? I find that hard to believe when the reality is far more systemic; it isn't individuals turning them away, but rather an artificially engineered economic crisis that has forced those doors shut. When, after we have settled our utility bills and purchased our groceries, my elderly mother and I are left with perhaps nothing more than three hundred dollars to our names, how can we be expected to engage with anyone?$133 It is an absolute necessity to set aside funds every single month, even if it requires significant personal sacrifices, because one simply cannot survive a month without a little bit of liquid cash on hand. And then, just when you think you're managing, some door-to-door salesman arrives—especially if he shows up unannounced without first seeking our voluntary consent over the phone—to peddle a product that costs exactly those $300 we worked so hard to save?$133There is simply no amount of charisma, physical presence, or clever salesmanship—regardless of how many psychological tricks they might employ—that could ever compel me to purchase anything from him. Perhaps if that traveling salesman possessed a particularly endearing demeanor, I might feel a fleeting moment of empathy for the sheer audacity required to attempt such a venture. But will empathy be enough to secure your commission?

When someone barges into your home with all the grace of a bulldozer—unannounced and completely overstepping their bounds—don't you feel an immediate urge to show them the door? If a guest is being particularly intrusive, shouldn't you have every right to demand they leave your private sanctuary? It seems to me that many people who lack basic social awareness mistakenly believe it is their own fault when they fail to pitch their products or services to a wide enough audience. But is that really the case? In truth, much of that perceived failure stems from nothing more than artificially engineered economic downturns.

There was a time when people used to discuss that company, Kyani, on certain online forums—you know, the ones that focused on door-to-door supplement sales. I remember reading about one distributor who actually had the audacity to tell a sick or disabled individual that he simply couldn't fathom why anyone wouldn't be willing to shell out over a hundred dollars a month for their own health. Honestly, what is wrong with people? I would gladly hand over four or five hundred dollars right now if it meant I had a job that actually brought in an eight-thousand-dollar monthly income!

If you have truly committed yourself to the grind of door-to-door sales, I believe there is no better product to peddle than fine fragrances. Is there anything more inherently persuasive than a scent that immediately captivates the senses and triggers a primal, subconscious desire to possess it? Surely, selling a bottle of perfume is far less daunting than trying to convince a stranger to sign away their future with a life insurance policy. The only minor setback is that, unlike basic toiletries, people don't burn through a luxury cologne overnight; the repurchase cycle is naturally longer. However, if you play your cards right, they will surely return to buy something else from you next month. Of course, the secret to success lies in your approach—you must be persistent without being an insufferable nuisance, and you certainly cannot go in acting like you have more ego than sense. After all, quality perfume isn't cheap. $33I already have a few pieces that I received for my birthday, but if I were to purchase one for someone dear and decent, I would consider buying one for either my mother or for myself.

The issue with focusing on such small-scale retail is that the individual commissions are meager; rather, shouldn't the true objective be finding a way to cultivate a loyal, recurring customer base? Suppose I were able to connect with three hundred customers, and if even one hundred of them purchased a single $20 perfume every month—even if I only earned a modest $30-$13 profit on each sale, wouldn't that total $3,000-$1333? Even after accounting for some taxes on that amount and ensuring I can maintain my disability benefits of $500, wouldn't that constitute a fairly respectable sum of money?

Look, I actually had a decent rhythm going before—it worked just fine. I’d put in maybe 4 or 5 hours, which is pretty much my limit, honestly. And back then, the money was okay—nothing crazy, but for a young girl starting out, it wasn't bad. But then these massive corporations moved in, and now, at every single turn, they’ve got way more variety and everything is cheaper. It's tough to compete.

My old lady's been doing it the same way for years, and it's getting harder on her. She usually starts early, like 5 AM, and finishes up by 2 or 3 in the afternoon. Between prepping for work for a few hours and then pulling those 7 or 8 hour shifts, she's exhausted.

Maybe something will pop up—who knows? We’re thinking about asking the boss if there’s any extra overtime available, especially since there's some talk about a new factory opening up around here soon.

I'm just saying, this constant sleepiness is killing me. If I could just get approved for disability or even some sort of social assistance, it would take such a huge weight off our shoulders. But man, trying to navigate the bureaucracy here is a nightmare. The process is so draining, and with everything else we’re dealing with in life, we just keep putting it off. I just need something to help cover the bills and groceries for as long as possible.

If I could just land a job—even if it's just 4 hours a day at minimum wage—it would be a lifesaver.

Retail, warehouse, whatever... doesn't really matter.
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6811 ·
Rebecca Rivera3 said:Carol Barrett2, maybe you should reach out to a social worker—just go sit down with one and lay out the whole situation. There are some good ones out there, so if you find someone who seems decent, that might be your best bet. They could really smooth out the whole process for you, point you in the right direction, explain what you’re entitled to, and show you how to actually get help.
Don't be afraid to ask for help; otherwise, you're just going to stay stuck right where you are. And honestly, you deserve more than this—you just haven't been given the right opportunities yet.

I'm sleeping okay—can't complain too much. Some nights are rougher than others, but all things considered, it's fine. Eating is alright, too. Everything feels okay, except for my physical health—that's still an issue.

Well, I need to get moving with my sister and my grandmother now. We couldn't deal with any of this before because other stuff kept piling up—one headache after another. Now that those issues are finally settling down, we're going to head over to the social services office to sort all this out. I would have done it sooner, but I had no clue how the whole system works—the procedures and everything—so I couldn't handle it alone. My condition has actually taken a bit of a dip lately; sometimes when I'm dozing off, I start hearing voices—my own thoughts, really, but they feel external—it only happens during those light naps, though, not while I'm wide awake. Maybe it's just brain fatigue from being overwhelmed. I've even been thinking about looking into assisted living for people in our situation. I mean, I don't know what would happen to my family if something happened to me. But first, I'm going to try and pull together as much support as I can.

Even if I manage to start working again—maybe something like sales—I just need to figure out a plan. I might try reaching out to a non-profit that helps people with special needs find employment and stuff like that. But man, my sleep is terrible. My day and night are completely flipped. The other day, I slept for 14 or 15 hours straight without even taking my Ambien.

Did you ever manage to get that medication? Did it help at all? And are you actually going to go through with the rehab programs at the spas? I know some people who went to local resorts and it did wonders for them. I was actually looking into Aspen. I know they have similar medical spa treatments over in America, too.
Rebecca Rivera3 Rebecca Rivera3 Active Member
206 messages
joined Mar 2017
#6812 ·
Carol Barrett2, I assume you’re following a specific therapy plan, since Apaurin is really just a temporary fix.
I’m not sure what happens in the next few months during my rehab, but until then, I’ll be stuck back on IV drips again.
It honestly feels like my life is slowly slipping away. I’m feeling pretty down today.
I just don't have the willpower for much of anything lately.
Part of it is this chronic fatigue that never lets up—it's basically a free gift that comes with this illness.
Just constant exhaustion; everything feels like an uphill battle...
The progress is so incremental, and most of the time it feels like we're just sliding backward, which leads to that total sense of helplessness.
Today is just one of those rough days, I guess...
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6813 ·
Rebecca Rivera3 said:Carol Barrett2, I assume you’re following a specific therapy plan, since Apaurin is really just a temporary fix.
I’m not sure what happens in the next few months during my rehab, but until then, I’ll be stuck back on IV drips again.
It honestly feels like my life is slowly slipping away. I’m feeling pretty down today.
I just don't have the willpower for much of anything lately.
Part of it is this chronic fatigue that never lets up—it's basically a free gift that comes with this illness.
Just constant exhaustion; everything feels like an uphill battle...
The progress is so incremental, and most of the time it feels like we're just sliding backward, which leads to that total sense of helplessness.
Today is just one of those rough days, I guess...

It's Seroquel. From what I've gathered, it's for bipolar and schizophrenia, and now that I'm on it, I actually feel better. I might have bipolar disorder mixed with schizophrenia—though maybe not the paranoid kind. And yeah, truth be told, I've been Googling stuff because of the stress, but not all the time. They still manage to hit the mark sometimes, and some issues are being resolved, even though we're still dealing with massive problems. But the benzodiazepines? They absolutely wrecked me. They totally trashed my sleep because even without them, I sleep way too much. It's like I have a whole separate sleep disorder or something.

I get why things are tough for you—an acquaintance of mine went through the exact same thing, and I think you guys are dealing with similar symptoms and fallout from MS. Hopefully, the rehab helps as much as it can. You know, to stay mobile and all that. I remember telling her that a good wellness retreat and physical therapy made all the difference.

Chronic fatigue. I know that feeling well; for me, it mostly shows up as extreme drowsiness. And that usually brings the depression along for the ride. Plus, this time of year just sucks, as Americans say, which definitely messes with your mood.

That’s probably why today is such a drag. These feelings just roll in every now and then. Then, out of nowhere, you get these bursts of excitement and good moods when you're feeling better. I call it the "seesaw"—the amplitude, the rollercoaster. Kind of like that song "Up and Down" by Dean.
Jose Ward4 Jose Ward4 Regular
379 messages
joined May 2015
#6814 ·
Hey, Rebecca Rivera3, how’ve you been?
Rebecca Rivera3 Rebecca Rivera3 Active Member
206 messages
joined Mar 2017
#6815 ·
Hey everyone. I’m hanging in there; I actually made it to the movie theater today. I think I might have gained a pound, though. Honestly, I don't know—I'm stuck in this headspace where I'm not afraid of anything, but I'm not really hoping for anything either. I’ve been getting IV treatments at the outpatient clinic, but truthfully, I’m starting to wonder if anything even helps anymore.
I even told my doctor that it feels like there's nothing left to do. She gave me a terrifying diagnosis—some of the most aggressive type of MS—though part of me thinks she might be overreacting. Then again, if what she wrote in the charts is true, I wouldn't be around much longer anyway.
For now, I'm stable, but walking is a struggle. I’m dealing with intense spasms and this tingling in my legs that feels like someone is literally slicing through them.

What can I say? I just miss being alive. I want to go back to work, finish my degree, drive, run... hm... right now, those things feel like nothing more than dreams. But I suppose anything is possible... hopefully.

How are you all holding up?
Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#6816 ·
Rebecca Rivera3 said:Hey everyone. I’m hanging in there; I actually made it to the movie theater today. I think I might have gained a pound, though. Honestly, I don't know—I'm stuck in this headspace where I'm not afraid of anything, but I'm not really hoping for anything either. I’ve been getting IV treatments at the outpatient clinic, but truthfully, I’m starting to wonder if anything even helps anymore.
I even told my doctor that it feels like there's nothing left to do. She gave me a terrifying diagnosis—some of the most aggressive type of MS—though part of me thinks she might be overreacting. Then again, if what she wrote in the charts is true, I wouldn't be around much longer anyway.
For now, I'm stable, but walking is a struggle. I’m dealing with intense spasms and this tingling in my legs that feels like someone is literally slicing through them.

What can I say? I just miss being alive. I want to go back to work, finish my degree, drive, run... hm... right now, those things feel like nothing more than dreams. But I suppose anything is possible... hopefully.

How are you all holding up?

I am doing fine. And seeing everything you are going through, perhaps it is better if I remain silent. My own struggle is that I find myself sleeping for two or three hours straight in the middle of the afternoon, which I really shouldn't be doing. Having a thyroid disorder creates such a strange biological rhythm.

Today, I actually slept for three and a half hours.

At night, sleep simply won't come, regardless of whether I napped in the afternoon or not. So, I figure it's better to catch some rest then—but it's never quite the same.
Carol Barrett2 Carol Barrett2 Regular
363 messages
joined Jul 2017
#6817 ·
That’s exactly why I haven’t even bothered writing anything yet. I’ve basically slept through thirty hours out of the last two days—I was actually awake for maybe eighteen. I was sitting there thinking about it today, and it hit me that it’s been like this my entire life. I’d crash during high school lectures, then come home and pass out immediately after school.

This isn't exactly normal.
Rebecca Rivera3 Rebecca Rivera3 Active Member
206 messages
joined Mar 2017
#6818 ·
My circadian rhythm gets completely thrown off. I’ve experienced this myself, though for me, it’s usually triggered by chronic fatigue from illness—I'll end up sleeping through an entire day and feeling like I'm in a coma.

In any case, maybe the medications aren't the issue; I know some can cause insomnia, while others make you oversleep. It might be worth trying to adjust the timing of when you take them—that used to be the biggest help for me.
If you can manage to establish a steady routine, that could be a lifesaver. Something like waking up at the same time every day and heading to bed at roughly the same time.
As for me, I had three IV drips today, but honestly, I’m not even sure if they're helping...
Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#6819 ·
Rebecca Rivera3 said:My circadian rhythm gets completely thrown off. I’ve experienced this myself, though for me, it’s usually triggered by chronic fatigue from illness—I'll end up sleeping through an entire day and feeling like I'm in a coma.

In any case, maybe the medications aren't the issue; I know some can cause insomnia, while others make you oversleep. It might be worth trying to adjust the timing of when you take them—that used to be the biggest help for me.
If you can manage to establish a steady routine, that could be a lifesaver. Something like waking up at the same time every day and heading to bed at roughly the same time.
As for me, I had three IV drips today, but honestly, I’m not even sure if they're helping...

What exactly are they administering to you through those IV drips?

Perhaps you might find some relief by increasing your intake of B-vitamins? Is it not true that the daily recommended doses mandated by the USA are designed for mere songbirds rather than grown adults? I personally felt a profound difference only after consuming double doses of 100mg each of B1, B2, B3, and B5, along with substantial micrograms of B7, B9, and B12. There was a time when companies in the Northwest manufactured a supplement called Nature Made that actually worked, but nowadays, one can only find absolute junk. If one wishes to acquire high-dose B-complex capsules at a reasonable price, isn't the only logical recourse to order through Amazon, since local options are prohibitively expensive and tucked away on obscure websites?

When did they stop manufacturing those high-dose supplements? I went to my local pharmacist specifically asking for those tablets, only to find out they aren't even produced anymore. She looked at me and said, "Nicole Barrett76, surely you realize that such massive doses are completely useless?" She acted as if those pills had never even graced their shelves in all her years of practice! Instead, she tried to push this absolute junk from Nature Made on me, which contains barely a milligram or two of any actual B-vitamins.

I found myself quite fond of the B100 vitamins produced by Delta Air Lines, though they seem to be impossible to locate here in the States. Is it not a tragedy when a product with such a delightful peppermint flavor becomes so elusive?

Admittedly, such dosages may not be suitable for everyone; in fact, some individuals might even find that a higher dose works better for them. For those who respond most effectively to smaller amounts, does it not suggest that they might be struggling with poor B-vitamin methylation? If you wish to determine whether your own methylation process is functioning optimally or if it requires more support, you could simply undergo a diagnostic test—I believe they cost about seventy-five dollars at a clinic somewhere in Washington, D.C., though the exact location escapes me. I recall that back when Delta Air Lines' supplements were available here in the States, they used to cost... $50.

Is it not a profound misfortune to risk completely mismanaging one's methylation process? Would it not be far more sensible to simply choose blindly and purchase those 100mg B-vitamin tablets from Amazon for $150?$67Rather than simply offering, shouldn't one strive to truly provide? $200If you find that you are unable to effectively methylate, why not consider gifting those supplements to someone else or perhaps reselling them at a slightly reduced price to avoid suffering such a significant financial loss? Is it not true that those struggling with poor methylation often find themselves deficient in zinc?
cosmiclynx79 cosmiclynx79 Active Member
50 messages
joined Jan 2021
#6820 ·
Can those of us dealing with schizoaffective disorder join in? (*﹏*😉

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