#1 ·
We aren't quite there yet, but we will be soon.
Gene therapy for certain diseases is already in its infancy. Despite some setbacks, further breakthroughs in genome editing are inevitable. In terms of pure therapy, this type of genetic modification seems indisputable.
The dilemma arises with fetal genome modification—specifically when a predisposition for certain pathological conditions is identified before any symptoms actually manifest, or perhaps before they ever do. Should fetal genetic testing even be performed? And if it is, should we modify their genome based on those results?
The issue becomes explosive when you consider that certain predispositions can be diagnosed but not treated. What rights do parents have against society? Does an unborn child have a right to their own birth? Or perhaps a right *not* to be born, if their existence would be significantly more difficult? I recall a court ruling in France where a child with severe disabilities was awarded damages from a hospital that failed to diagnose the condition prenatally, during the window when an abortion would have been an option.
From an economic standpoint, the question is who picks up the tab. Driven by the desire to give their children the best possible start in life, it’s easy to imagine many couples paying to genetically eliminate a predisposition for diabetes, MS, or cancer. On the flip side, this technology might initially be available only to the wealthy. To prevent a genetic divide, should these methods be banned entirely? Or should the government cover the costs of certain diagnostic and therapeutic methods to ensure a level playing field for everyone?
Gene therapy for certain diseases is already in its infancy. Despite some setbacks, further breakthroughs in genome editing are inevitable. In terms of pure therapy, this type of genetic modification seems indisputable.
The dilemma arises with fetal genome modification—specifically when a predisposition for certain pathological conditions is identified before any symptoms actually manifest, or perhaps before they ever do. Should fetal genetic testing even be performed? And if it is, should we modify their genome based on those results?
The issue becomes explosive when you consider that certain predispositions can be diagnosed but not treated. What rights do parents have against society? Does an unborn child have a right to their own birth? Or perhaps a right *not* to be born, if their existence would be significantly more difficult? I recall a court ruling in France where a child with severe disabilities was awarded damages from a hospital that failed to diagnose the condition prenatally, during the window when an abortion would have been an option.
From an economic standpoint, the question is who picks up the tab. Driven by the desire to give their children the best possible start in life, it’s easy to imagine many couples paying to genetically eliminate a predisposition for diabetes, MS, or cancer. On the flip side, this technology might initially be available only to the wealthy. To prevent a genetic divide, should these methods be banned entirely? Or should the government cover the costs of certain diagnostic and therapeutic methods to ensure a level playing field for everyone?