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Low serotonin levels

Started by Adam Chase98 · · 👁 5 views · 31 replies

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Participants Adam Chase98Tyler James5gentlesailor25Angela WrightAnthony White8Patrick Young2Brandon Lopez6crimsonlynx93crimsongardener18Melissa Taylorfrozenbear9Nicholas Mendoza60Lisa Sanders60Carl Thomas5dustybear73
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#1 ·
I haven't found this specific topic or anyone else struggling with this exact issue yet. For two and a half years, I fought through brutal headaches, dizziness, vertigo, tinnitus, brain fog, and this constant sensation of being "seasick." Before I finally got a diagnosis, I used to post about these symptoms on various forums, but nobody ever suggested they could be caused by low serotonin levels. After endless appointments, tests, and seeing countless specialists, I finally met a doctor who identified the problem and prescribed Deanxit.
I took it for an entire year, felt absolutely wonderful, and then stopped. Now, just two months after finishing the course, the symptoms are creeping back. 😢
I am curious about other people's experiences! Is anyone else dealing with this same diagnosis? How does this disorder present itself for you? What are the treatment options, and has anyone actually fully recovered—meaning, you no longer need medication at all?
The thought of returning to pills and the possibility of being on them for the rest of my life is truly terrifying!
Thank you!
Tyler James5 Tyler James5 Active Member
142 messages
joined Jul 2012
#2 ·
Adam Chase98 said:I haven't found this specific topic or anyone else struggling with this exact issue yet. For two and a half years, I fought through brutal headaches, dizziness, vertigo, tinnitus, brain fog, and this constant sensation of being "seasick." Before I finally got a diagnosis, I used to post about these symptoms on various forums, but nobody ever suggested they could be caused by low serotonin levels. After endless appointments, tests, and seeing countless specialists, I finally met a doctor who identified the problem and prescribed Deanxit.
I took it for an entire year, felt absolutely wonderful, and then stopped. Now, just two months after finishing the course, the symptoms are creeping back. 😢
I am curious about other people's experiences! Is anyone else dealing with this same diagnosis? How does this disorder present itself for you? What are the treatment options, and has anyone actually fully recovered—meaning, you no longer need medication at all?
The thought of returning to pills and the possibility of being on them for the rest of my life is truly terrifying!
Thank you!

But why? Is it because they have nasty side effects or something dangerous? Look, there are tons of conditions out there that require long-term—even lifelong—medication. You always have to weigh the pros against the cons...

...
gentlesailor25 gentlesailor25 Active Member
63 messages
joined Dec 2011
#3 ·
So, what does it actually mean when people talk about a serotonin deficiency? Is that even a standalone medical diagnosis or just a catch-all term? I mean, from what I gather, everything I associate with low serotonin—like anxiety, depression, and all those weird physical symptoms that come along with them—seems to stem from that one idea.
If we’re really going there, though, I’ve personally been on medication for about nine years now. Honestly, I don't think I could handle it; living with those symptoms without help would be pretty much impossible for me.🤷
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#4 ·
gentlesailor25 said:So, what does it actually mean when people talk about a serotonin deficiency? Is that even a standalone medical diagnosis or just a catch-all term? I mean, from what I gather, everything I associate with low serotonin—like anxiety, depression, and all those weird physical symptoms that come along with them—seems to stem from that one idea.
If we’re really going there, though, I’ve personally been on medication for about nine years now. Honestly, I don't think I could handle it; living with those symptoms without help would be pretty much impossible for me.🤷

I'm curious about this too.
From what I understand, you get a significant serotonin boost after intense physical exercise, much like the rush you get from sex or a great meal.
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#5 ·
My official diagnosis is chronic tension headaches, though the conclusion points toward a serotonergic disorder—essentially, a serotonin deficiency. This whole thing kicked off after I went through a massive shock, but I’ve never actually felt depressed in the way people usually imagine... What I felt was pain. Pure, unbearable, DAILY pain! The dizziness, the sense of sinking, the brain fog... Taking medication didn't make me "happier," per se, but those symptoms vanished and I felt normal again; life finally felt good! I have to admit, I stopped my treatment on my own because I genuinely believed I was ready. I was so incredibly happy being able to function without pills, but about two weeks ago, the headaches returned. Last week, my neck stiffened up, and now the dizziness, the sinking feeling, and the mental cloudiness are back!
And why wouldn't I want to be on medication for the rest of my life? Well... because I'm only 27, and while these drugs help in one area, they surely cause issues elsewhere.

P.S. Yes, Deanxit is an antidepressant!
Tyler James5 Tyler James5 Active Member
142 messages
joined Jul 2012
#6 ·
Adam Chase98 said:My official diagnosis is chronic tension headaches, though the conclusion points toward a serotonergic disorder—essentially, a serotonin deficiency. This whole thing kicked off after I went through a massive shock, but I’ve never actually felt depressed in the way people usually imagine... What I felt was pain. Pure, unbearable, DAILY pain! The dizziness, the sense of sinking, the brain fog... Taking medication didn't make me "happier," per se, but those symptoms vanished and I felt normal again; life finally felt good! I have to admit, I stopped my treatment on my own because I genuinely believed I was ready. I was so incredibly happy being able to function without pills, but about two weeks ago, the headaches returned. Last week, my neck stiffened up, and now the dizziness, the sinking feeling, and the mental cloudiness are back!
And why wouldn't I want to be on medication for the rest of my life? Well... because I'm only 27, and while these drugs help in one area, they surely cause issues elsewhere.

P.S. Yes, Deanxit is an antidepressant!

My whole point was this: if you've spent forever struggling, searching, and getting diagnosed, and you finally find a solution that actually works—like, obviously works, because the symptoms come roaring back the second you stop—then you really need some concrete, solid reasons to quit. Just saying they "probably" cause damage elsewhere is super vague.

You can't predict how your illness or recovery is going to play out, or what factor might shift and trigger a cure, a change in meds, or just a total relapse. If you're dealing with symptoms as heavy as the ones you described, and the meds are working right now, but you aren't even sure *how* or *if* they're hurting you—look into it first. Figure out if there's actual harm, and *then* think about stopping or switching things up.

Attitudes like "I don't wanna be on pills forever" don't really help when you're dealing with serious stuff. If your symptoms aren't messing with your daily life, then yeah, absolutely, don't take anything.

But if the meds are significantly helping with major issues, then why not? I mean specifically—not philosophically. Like, give me real reasons: risk of blood clots, hair loss, libido issues, can't breastfeed, personality changes... whatever.

Life is long, and you're gonna go through tons of physical and mental shifts—who knows what kind of treatment you'll need five or ten years from now. Maybe nothing at all, maybe something totally different.

...
Anthony White8 Anthony White8 Member
39 messages
joined Jun 2010
#7 ·
Adam Chase98 said:I haven't found this specific topic or anyone else struggling with this exact issue yet. For two and a half years, I fought through brutal headaches, dizziness, vertigo, tinnitus, brain fog, and this constant sensation of being "seasick." Before I finally got a diagnosis, I used to post about these symptoms on various forums, but nobody ever suggested they could be caused by low serotonin levels. After endless appointments, tests, and seeing countless specialists, I finally met a doctor who identified the problem and prescribed Deanxit.
I took it for an entire year, felt absolutely wonderful, and then stopped. Now, just two months after finishing the course, the symptoms are creeping back. 😢
I am curious about other people's experiences! Is anyone else dealing with this same diagnosis? How does this disorder present itself for you? What are the treatment options, and has anyone actually fully recovered—meaning, you no longer need medication at all?
The thought of returning to pills and the possibility of being on them for the rest of my life is truly terrifying!
Thank you!

Pretty sure you got that diagnosis from dr. Brinar....
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#8 ·
Anthony White8 said:Pretty sure you got that diagnosis from dr. Brinar....

YES!! How on earth did you guess?
Does anyone else here deal with these exact same issues? I would love to hear some firsthand experiences!
Patrick Young2 Patrick Young2 Member
31 messages
joined Jan 2019
#9 ·
I suspect there’s no way to actually measure serotonin levels in the brain, yet the general consensus on depression seems to hinge entirely on this idea of insufficient serotonin production.
Typically, they don't go around defining a cause by simply handing out a new diagnosis.
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#10 ·
I have personally never experienced those waves of panic, fear, or that suffocating dread typically associated with anxiety.
My doctor—the specialist who prescribed my medication—was quite clear when she explained that I am dealing with a serotonergic disorder. I don't think the diagnosis itself is what's in question here; rather, I am simply hoping to connect with someone facing the exact same issue who might be able to answer the questions I posted above!
gentlesailor25 gentlesailor25 Active Member
63 messages
joined Dec 2011
#11 ·
It doesn't really matter if you actually felt anxious or anything like that, I guess. For some people, it all just shows up physically, you know? It’s not even that weird when you think about it.🤷
I mean, I know someone who was doing so poorly that she ended up in the ER for a whole battery of tests. They couldn't find a single thing wrong with her, but then she got prescribed some medication and she was totally fine.
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#12 ·
gentlesailor25 said:It doesn't really matter if you actually felt anxious or anything like that, I guess. For some people, it all just shows up physically, you know? It’s not even that weird when you think about it.🤷
I mean, I know someone who was doing so poorly that she ended up in the ER for a whole battery of tests. They couldn't find a single thing wrong with her, but then she got prescribed some medication and she was totally fine.


Understood! I also spent two full years in a coma-like state. I went through endless testing, stayed in the hospital for four days, and consulted neurologists, psychiatrists, acupuncturists, and even tried homeopathy. Eventually, I got my prescription, and everything cleared up! I am just curious—did that person actually recover? What specific medication was she taking (or is she still taking)? How did her symptoms present themselves? And how does she cope with the reality of having dealt with such an illness?
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#13 ·
And there's one more reason I actually started this thread! My symptoms were triggered by a massive emotional shock—the sudden passing of my mother, who was my entire world. Perhaps someone else here is struggling with the same thing, so I wanted to share to offer some relief or maybe point people in the right direction.
The neurologists over at Mayo Clinic looked at me like I was just making up all these symptoms I was experiencing. They basically told me to just go home and start eating more (since I'm quite thin) 😲
My psychiatrist didn't have the slightest clue what was happening; she had never even heard of a case like mine! Then, after an acupuncture session failed to help, my practitioner referred me to a colleague specializing in homeopathy (as if she would magically know how to handle me). She also had absolutely no idea what was going on... It was all incredibly frustrating.
As for support from those around me, don't even get me started... "Why aren't you feeling better again?" "What are you making up? You see they haven't even found anything," or "Aren't you exaggerating a little? Who can have a headache every single day for two years?"
gentlesailor25 gentlesailor25 Active Member
63 messages
joined Dec 2011
#14 ·
Adam Chase98 said:Understood! I also spent two full years in a coma-like state. I went through endless testing, stayed in the hospital for four days, and consulted neurologists, psychiatrists, acupuncturists, and even tried homeopathy. Eventually, I got my prescription, and everything cleared up! I am just curious—did that person actually recover? What specific medication was she taking (or is she still taking)? How did her symptoms present themselves? And how does she cope with the reality of having dealt with such an illness?

It took her a few different trips to the psychiatrist before she could even wrap her head around the idea that it was a mental health thing. She ended up being put on an antidepressant and Xanax, which she was super hesitant about taking, and since that was only about a year ago, I honestly have no clue how she'll handle things once she eventually stops.
She felt absolutely terrible physically, too—just constant dizziness, weakness, nausea, headaches... everything.
Brandon Lopez6 Brandon Lopez6 Regular
656 messages
joined Feb 2010
#15 ·
Depression doesn't always show up as anxiety, so where'd you get that idea? I tried Googling your symptoms, but honestly, everything linked to serotonin is tied back to depression anyway.

My depression used to hit me through stomach pains and nausea. After running every single test under the sun, the doctors basically told me there was nothing physically wrong with me...

Look, it’s a little harder to wrap your head around the fact that your mind can mess with your body like that, but you aren't alone and it's definitely a thing. You can go the antidepressant route, though just a heads up—if you stop taking them, things might slide back, mostly just because your serotonin levels take another dip. The other way is psychotherapy. Just because one therapist didn't click with you doesn't mean the next one or the fifth one won't work. Also, remission is always on the table. You could be feeling awesome for three years straight and then hit a rough patch for two. It's just how it goes.
Adam Chase98 Adam Chase98 MemberOP
16 messages
joined Mar 2015
#16 ·
Brandon Lopez6 said:Depression doesn't always show up as anxiety, so where'd you get that idea? I tried Googling your symptoms, but honestly, everything linked to serotonin is tied back to depression anyway.

My depression used to hit me through stomach pains and nausea. After running every single test under the sun, the doctors basically told me there was nothing physically wrong with me...

Look, it’s a little harder to wrap your head around the fact that your mind can mess with your body like that, but you aren't alone and it's definitely a thing. You can go the antidepressant route, though just a heads up—if you stop taking them, things might slide back, mostly just because your serotonin levels take another dip. The other way is psychotherapy. Just because one therapist didn't click with you doesn't mean the next one or the fifth one won't work. Also, remission is always on the table. You could be feeling awesome for three years straight and then hit a rough patch for two. It's just how it goes.

I know, I tried searching online too. Since I couldn't find anything, I started this thread hoping someone might have some insight!
Does anyone have experience using Deanxit? I haven't been able to research it properly because the indications are listed in German, and I don't speak the language!
Tyler James5 Tyler James5 Active Member
142 messages
joined Jul 2012
#17 ·
Do you speak English? I found a bunch of Q&As about this medication here: http://www.justanswer.com/mental-hea...st-period.html

Pay close attention to the part where they suggest Celexa/Citalopram or Amitriptyline as alternative options—maybe even safer bets...

(Btw, what I mentioned earlier was just from my own experience. There are plenty of chronic conditions where people wish they didn't have to stay on meds forever—just look at the side effects of corticosteroids, for instance... but honestly, it's just a matter of weighing two evils and picking the lesser one. You can't predict how most diseases will develop with any real certainty—it's all just guesswork, hopes, and fears in the end...

And, obviously, you shouldn't be messing with dosages or quitting stuff like this without a doctor watching over you—I'm pretty sure you already know that much...)

...
Brandon Lopez6 Brandon Lopez6 Regular
656 messages
joined Feb 2010
#18 ·
Adam Chase98 said:I know, I tried searching online too. Since I couldn't find anything, I started this thread hoping someone might have some insight!
Does anyone have experience using Deanxit? I haven't been able to research it properly because the indications are listed in German, and I don't speak the language!

Hey, check out this psych med discussion thread. People there swap stories about all kinds of meds they've used, so you might get some better insight on what you're taking.
crimsonlynx93 crimsonlynx93 Newcomer
2 messages
joined Aug 2014
#19 ·
Adam Chase98, what’s the deal with things lately—are you still sticking with the Deanxit?

I actually have the exact same diagnosis as you, and my doctor just recommended I start taking Deanxit today... so, I was wondering, what has your experience been like recently?

Thanks!
crimsongardener18 crimsongardener18 Newcomer
7 messages
joined Oct 2014
#20 ·
Hey.

Back in my early twenties, I dealt with a constant cycle of headaches, dizziness, and brain fog. It felt like I couldn't catch my breath, topped off with all sorts of psychosomatic nonsense. It always got worse whenever the weather shifted—those heavy, humid fronts that roll through the Midwest. Throw in a touch of mild depression, and you have a recipe for misery. It’s essentially meteoropathy. Everything flared up during periods of stress, whether it was personal drama or professional pressure. For me, even a change in the barometer counts as a stressor. Everyone has their Achilles' heel. Some people struggle with heart issues, others deal with vision problems, blood sugar, or sinus trouble. Then there are people like us, whose weakness lies in our neurochemistry.😁

I’ve been through all of that before without breaking a sweat. It was manageable, and I always identified the root cause. As far as I can tell, plenty of people deal with this kind of stuff. Some struggle more than others, but that's just how it goes.

Every now and then, I’d pop a low-dose Ativan or Klonopin just to get by. That was my routine for years. Then, around 2007, everything hit the fan. The American financial crisis kicked in, and my business started cratering fast. Since my family's entire livelihood depended on that income, the stress was suffocating. It dragged on for about three years. My symptoms spiraled out of control—constant dread, total hopelessness, and the heavy weight of depression setting in. That’s when I finally realized I couldn't handle it alone and decided to seek professional help. 🙂

I just got a recommendation for dr. Brinar.

She’s one of the top neuropsychiatrists and neurologists in the country. She made it clear to me that you can't just willpower your way out of a state like this. I absolutely loathe it when people tell me "it's all in your head"—even my own mother says it—but this is about serotonin levels and chemical neurotransmitters. You can't fix this on your own. I've tried everything: homeopathy, meditation, you name it. Nothing works.

She told me it’s like telling someone with a broken leg to go out and run a marathon.

She put me on Deanxit. I took one 10 mg tablet every morning for about two or three years. Her take was that it’s just a mild way to stabilize serotonin levels.

So now I realize it’s a combo drug—an antidepressant mixed with a sedative.

I felt significantly better after just two weeks. I actually made the mistake of skipping doses here and there without checking in with my doctor first. Huge mistake.😵

Two years ago, I had stopped taking it. I felt relatively fine at the time, but then the symptoms started creeping in. Looking back, I realize they were just early warning signs—precursors to the panic attacks that eventually hit.

One night back in 2012, my head was absolutely spinning—just total mental overload—and then, out of nowhere, it hit me. A full-blown attack. Just like that. 😲😲

It’s a terrifying sensation. You feel like you're losing your grip on reality—total loss of control. Then comes the fear, the panic, that overwhelming feeling that you're actually dying. I ended up in the ER.

Naturally, I’ll be heading straight back to Dr. Brinar’s office after that, just to get back on the Deanxit and a small dose of Celexa.

The panic attacks are gone. Finally.

Back in 2012, the stomach issues started. She told me then they were directly linked to my diagnosis. I’m still on Controloc to deal with it.

Back in August 2014, things were finally looking up. Work was steady, my mood was solid, and I felt like I had everything under control. So, naturally, I made a classic mistake: I came back from vacation decided I didn't need Deanxit anymore. I thought I was cured. I was ready to move on. I had five great days. Then, the hammer dropped. Suddenly, I’m hit with this brutal physical fallout—my stomach went haywire, constant throat pain, massive acid reflux. It was miserable. I went to see my primary care doctor, expecting a quick fix. Instead of sticking me with my usual Controloc, she swapped it out for Ranex. When I mentioned I’d been tapering off Deanxit, she just waved me off, calling it some outdated, heavy-duty psych med. Then she prescribed some Elicea. That was the start of a month and a half of pure hell. Total misery. Intense nausea, followed by the looming shadow of panic attacks. It was exhausting. After six weeks of that nightmare, I decided to stop playing games. I went back to the Controloc for my stomach, and relief was almost instant. Three days later, I tossed the Elicea straight into the trash. By the next day, I was already feeling significantly better. Still, things weren't quite right, so I went back to see dr. Brinar. We got me back on the Deanxit, and within five days, the fog lifted. Everything vanished. I feel excellent again. Lesson learned. 🙏

My next checkup isn't for another three months.

It’s a long story. Maybe someone out there can use it. 🙂

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