595 posts shown.
northernraven49 said:The photos from Freiburg just arrived—taken right before the chemotherapy starts. They are absolutely precious.
http://photos-e.ak.fbcdn.net/hphotos..._1390155_n.jpg
I can't access external links or view images directly. If you paste the text from the post or describe what's happening in the photo, I'll get right to work rewriting it in that specific, high-energy, ranty style you're looking for!
Carol Long52 said:Beyond the fact that you’ll eventually be footing the bill for everything with those predatory interest rates—not to mention the headache of being blacklisted—you really need to prepare yourself for the fallout. Once you hit the credit bureau's radar, expect things to get incredibly difficult for at least the next 36 months; getting approved for any new loans will be an uphill battle, if it happens at all.
Steven Reed said:If the owner is foolish enough—and I mean truly, recklessly foolish—to keep the mortgage in her own name while transferring the property title to you, then sure, it’s possible. But I highly doubt anyone would ever walk into such a trap; legally speaking, she remains fully liable for the entire debt while you enjoy the property without any official obligation to pay a cent.
The standard ways people actually handle this are either by assuming her mortgage—meaning you take over the loan with the bank—or by taking out a new loan to pay hers off entirely. In either scenario, expect them to grill you about your credit score.
Of course, if you’re dead set on that first option, your main hurdle is convincing the owner. Personally? If I were in her shoes, I wouldn't touch that deal with a ten-foot pole. Banks have their ways of collecting, but individuals have plenty of other methods too—regardless of whatever "contracts" you might sign.
edit: Just to be clear—she could just as easily demand a promissory note from you to settle things if you default on your private agreement. However, banks are massive institutions; they have much faster, more efficient ways of chasing down money than some individual does.
northernraven49 said:Today has been an absolute disaster for me, and honestly, I’m just spiraling for several different reasons.
1. I got a letter from Daniela and I’ve been a total wreck, crying since the second I opened it.
2. My little one is heading to the beach tomorrow (call me as possessive as I want, I don't care), and I have no idea how I'm going to cope without him nearby—I can't stop the tears.
3. Lana acted out tonight, and I don't even know what else to say, I'm just exhausted and weeping over everything.
Here is the full letter:
First off, let's talk money—Kosor sat down with her $30,000, which basically means we finally have a million!
I can't wrap my head around how everything has turned into this or how far we've come (and I'm not just talking about the cash). If things end on a good note, I truly believe both our lives will be filled with wonderful new people. That thought alone makes me so happy.
Of course, I'm less thrilled that it all came to this because of her illness, and because for months now, we've been practically begging for money from everyone, friends and strangers alike. I have to admit, it feels incredibly humiliating. On top of that, I am absolutely livid at our government and the doctor involved, because she has a fundamental RIGHT to this treatment. I know you already know all this, but since you're posting on the forum...
I hope everything regarding the concert is sorted out and that you all have a blast together this Friday. It's such a shame we won't be there.
As for updates on our end, we had a second consultation with the doctors today. This time, it was all about the medications they'll be using and the side effects. We sat there for an hour and a half while they explained every single drug—why it's being given and exactly what it does to you. Not to mention, the list of side effects is endless.
One of them is that she won't be able to have children. I'd read about it before, but I thought it was more of a "this might happen" kind of thing... but the way he said it, it's definitive. It shook me, I'll admit, though I know it doesn't matter right now; we just need to get through this first. Then there are the other issues involving the lungs, liver, kidneys, and potential seizures. It's a whole laundry list of horrors. But, as I heard, I'll just try to push it out of my mind until we actually have to deal with it. To make matters worse, the chemotherapy is going to ravage her entire digestive tract, starting from the mouth downwards, so she won't be able to eat anything for at least two months. She's going to have plenty to deal with, not that I want to list it all. Basically, it's going to be "fun."
The one silver lining in our situation is Lana—specifically, with related donors, the complications from GvHD are somewhat milder, so maybe we'll escape that particular nightmare. Everything else, however, is still a complete gamble. We'll just have to wait and see.
So, those are the updates from us.
Catch you tomorrow—if you can even find me through the dark circles under my eyes from crying all day.
northernraven49 said:They finally put the central catheter in today.
I got two different messages about it. One from Daniela: "The little one handled it way better than I did—I almost fainted myself just seeing all those tubes coming out of her."
Then there was the message from Damir: "God bless you, they spent two hours getting that catheter in, then an hour waking up, and another hour in intensive care. When they finally brought her back to the room, she was just screaming 'meat, meat, meat!'"
northernraven49 said:Let's get moving (meaning, let's go to the concert)!
http://www.javno.com/home/hr-scena/p...ramirez_267047
This part really hits home for me:
"Anyone willing to help this little girl is welcome to join us at the Culture Factory on June 26th at 9 PM," where a massive lineup of big names from the US music scene
will be performing for her.
Richard Wright said:What does your situation have to do with his? Not everyone is sitting on a massive paycheck like you guys are... $6.00 🙏
If he had gone to, say, JP Morgan Chase, they would have told him straight up that he needs a "clean" salary $5.00 (assuming he’s got, say, one kid) and that his monthly payment would be north of $1,700... (that’s just an example—who knows which bank he actually walked into...)
The thing is, mortgage holders—if any bank is even willing to cut them a deal nowadays without demanding five different types of collateral—are looking at 15 to 18 years, and their interest rates are basically the same as what you'd pay on a personal loan...
Richard Wright said:What does your situation have to do with his? Not everyone is sitting on a massive paycheck like you guys are... $6.00 🙏
If he had gone to, say, JP Morgan Chase, they would have told him straight up that he needs a "clean" salary $5.00 (assuming he’s got, say, one kid) and that his monthly payment would be north of $1,700... (that’s just an example—who knows which bank he actually walked into...)
The thing is, mortgage holders—if any bank is even willing to cut them a deal nowadays without demanding five different types of collateral—are looking at 15 to 18 years, and their interest rates are basically the same as what you'd pay on a personal loan...
northernraven49 said:
Tickets are officially on sale
Kimberly Lopez17 said:Nah, it’s not for a car—actually, I’m selling my Chevy Astra if anyone’s interested 🙂... I just need liquid cash for some investments. I can definitely handle the payments on this loan, it's just that since I already have one active loan, banks automatically flag me as high risk...
northernraven49 said:We were bouncing between hospitals until nearly five this afternoon—hearing tests at one place, then she had to be at a third one to talk to the anesthesiologist about getting her central line placed (likely this coming Monday).
The final deadline for the transplant is July 7th, though that’s the absolute latest; it could happen sooner. They seemed to be rushing through all the testing, acting like the transplant is happening in a few days if her condition takes a turn for the worse. But since she's stable for now, they'll wait—they want that cough to settle down first. Apparently, after the central line goes in, it's better to take a little breather before starting chemo (they said at least two days, though ten would be ideal if we can afford the wait) just to minimize any risk of infection.
So, we play the waiting game.
She still isn't receiving any chemotherapy, no Purinetol, nothing—not even regular blood counts yet. On Friday, everything looked perfect, aside from her iron being slightly low, which is pretty standard for her, but everything else was great; white cell count was at 6.
Honestly, I don't know what to believe. Part of me wishes they’d just draw blood a few more times just to be safe, but I suppose they know best.
Yesterday, she was just... off. She was moody, acting out, and I started getting really worried. But today? Today is a completely different story. The doctor actually asked me, "Is she always this energetic?" She didn't sit still for a single second! And her speech is coming along beautifully. She repeats everything she hears—English, German—it's all there. Her little "by and cus" phrases are our favorite thing right now. I tried to sit down with her in the playroom today to play, and she actually shooed me away! She was like, "No, Mommy, go away, little kids are playing here."
Or even better, when she plays, she starts listing everyone off—Dad, sister, Busac. So you know, according to her, I'm just "Busac," not Mom.
Anyway, she is enough to drive you absolutely insane. You know how it is with two-year-olds.
northernraven49 said:Today, Danny messaged me:
It’s been an absolutely brutal day. We don't even have our own room; they're treating us as outpatients, probably until Wednesday, so we spent most of today hunkered down doing tests, then just waiting around in hallways and the day clinic.
We’re still without Purinetol or any actual therapy for the JMM L. The doctor says her white blood cell count is still at 6 (??). They took a massive amount of blood from her today—eight tubes, some small, some large—for various bacterial cultures, and then they had to sedate her again (that’s four times since we got here!) just to perform a bone marrow biopsy.
So, today has been a total wash.
The whole day was just a complete mess. We were waiting for Lana to get her blood drawn too, so they didn't even get a decent breakfast or lunch. But, whatever, I suppose things will settle down soon. They are trying their best to get everything done as quickly as possible.
I won't complain too much; it's better than being stuck inside the hospital ward.
We still haven't heard anything regarding the Noonan diagnosis; we'll probably find out tomorrow. We have a meeting scheduled for tomorrow with a whole panel of doctors and the head specialist, right under Niermayer. Honestly, I'm getting chills just thinking about what I'm going to hear. I am absolutely terrified.
By the way, I asked one of the doctors today about our diagnosis, the results, the prognosis, and the risks. According to her, they aren't overly worried about infections following the transplant. What worries them most is the chance of a relapse—but once that happens, he says the chances of it coming back are slim. We'll just have to wait and see what Mrs. Strahm has to tell us tomorrow.
Anyway, that's the short version of our day.
