Posts by Casey Booth3

Hey! Glad to hear you're happy with the facility. If your Mom is only going to be there for a month, there's really no point in switching doctors—besides, this guy has to check on everyone anyway, it's just part of his job. It's weird that the price is a flat rate, but you'll manage through it. Good luck, and feel free to hit me up in a private message if you need anything else. BYE

mistyjackal842 said:Thanks so much for all the info.

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Look, we're all just here to help—the whole goal is to get the patient feeling better! Don't even mention it. Cheers!

For anyone out there who might actually need 😁the contact info for Villa Brezovicabroj at 6273-403—if you’re looking for the lowdown on everything, just reach out to the social worker, Gordana Tamburić. Here’s her cell: 099/6600-452. You can hash out all the details directly with her—stuff like what size room you want, the specific type of care needed, or if you'd rather have company or just be left alone. They've got nurses on duty 24/7, physical therapy, an elevator, TV, a coffee shop, and plenty of chances to hang out with everyone else, though YOU get to decide when you want some privacy. Hopefully, this helps someone out!

Hey mistyjackal842, I really hope your Mom is feeling better. If you're looking for a facility, there's one called Villa Brezovica—they handle people who are immobile, semi-mobile, and they even have hospice care. It's a big three-story building, basically a private nursing home for that kind of full-time care. From what I hear—and don't quote me on this—it can be pretty pricey, maybe $1833 or more per month. I live right near there, so I know the deal; they've got physical therapy and nurses on staff. Just Google them to see their side of things, or just give them a call and ask exactly what you need. Regarding that pressure ulcer, you've gotta treat it immediately—use some Decubit cream or Dermazin, and honestly, the more air it gets, the better. If there’s anything specific you want to know about that home, let me know and I can ask around since I pass by it every single day—just shoot me a DM. Bye!

Hey mistyjackal842: I know things feel overwhelming right now—it’s like everything just hit you at once. For those wounds, try applying some Bepanthen ointment or maybe something even stronger. Honestly, back in the day, there was this Pfizer cream specifically for Pressure ulcers that was absolutely phenomenal—not sure if they still make it, but definitely try to track it down! My own Dad is currently in a coma due to kidney issues, with his creatinine sitting at 230, which is pretty standard for anyone dealing with renal failure. Everyone is out here peddling remedies to bring those numbers down—like this Zodeks tea everyone keeps advertising—but does it actually work? Who knows? Just ask your home health nurse about what to do for Mom; they really should be stepping up to help you. And please, trust the hospital staff. She isn't just left there alone; they're watching over her. It's totally normal to be spiraling, but hang in there—it’s going to be okay! What she needs most right now is your support. Hang in there, both of you. Sending love!

Austin Stewart2, I am so incredibly sorry for your loss... nobody ever sees this coming, and honestly, I went through the exact same thing just a few years back. Sending so much love—may your dad rest in peace.

Lisa White54 said:Hey everyone..
It's me again. This time I’m not posting about my husband—and thank God for that, because he's doing fine and I don't have anything to report regarding him..
This time, I'm writing about myself.
I have cancer. Breast cancer. They're going to operate.
I can't even begin to tell you how shocked I am—I'm still reeling.. I just found out yesterday.
So, here we go, back into the fight, but this time it's for myself.
All these years past—it's been nearly 9 full years now—that I've been telling people there's no such thing as an invincible disease and that everything will be okay.
I really wish someone would say that to me for once.

Hang in there, Lisa! Nobody wants to hear that, but I actually have three neighbors who SURVIVED breast cancer—one about 5 years ago, and two over 10 years ago.. and they're all still right here with us! It's not easy... definitely not, but RIGHT NOW you have to stay laser-focused on yourself. Go get every single test possible, join a breast cancer support group—they will help you sooooo much—and they'll be there for you. They offer useful advice and psychological support, and you can share your fears with them. These groups exist in every major city—go look for one. I can actually connect you with a few people—some acquaintances of mine on Facebook who are currently undergoing treatment—just shoot me a private message. You are never, ever alone... there are always people ready to step up and help, no matter how dark things look right after a diagnosis. You've got to fight! Hang in there!

Chloe Gray5 said:Hey everyone. It’s been a while since I last posted. My dad fought for a whole year. That year had plenty of ugly moments—especially toward the end when he developed gangrene in his other leg, his kidneys failed, and we finally said our goodbyes in July. But there were beautiful moments too, and I’m just glad we got to spend that little bit more time together and find some happiness even during the darkest times. It helps knowing he isn't suffering anymore. I miss him every single day, but I always choose to remember him at his absolute best. He knew how much he was loved, and to me, he was the best. So, I try not to dwell on the worst parts.
I think it's hardest on my Mom—not just because she misses him terribly, but because she lost her brother only 18 days after my dad. Now she's worrying about her own mother, who's getting older, and the whole thing has just been such a massive blow to her..
Still, life keeps moving. Whether we want it to or not, Mom went back to work, I started college, and I actually had to take exams during the absolute worst timing possible—but I passed them all. Because life doesn't pause for anyone. We grieve on our own terms when we can manage it. But honestly, finding the strength to push forward while holding onto those good memories is the only way. There's no other choice.

I just wanted to say that no matter how hard it gets, I believe everyone eventually finds that strength to accept the pain. Maybe it gets easier as time passes, maybe not—I don't know. I know this is one of the hardest things a person can go through, but please, believe in the best as much as you can. Maybe things will turn out okay. Just spend that time together. Later on, that'll mean more than anything else.

Also, our loved ones going through this are enduring their own struggles, and they need extra support—both physically and mentally. Everyone experiences illness differently, and they really need an unbiased professional to give advice on how to cope and make things easier. These are all incredibly complex, heavy issues; you have to dedicate yourself to them. You can't just hope they'll pass on their own.

Sending everyone all the strength, love, and patience in the world. I haven't read every single post because I'm so far behind on this thread and I'm not fully caught up, but I still wanted to reach out and offer some comfort. 🙂

That was so beautifully written! Seriously, kudos to you—so young and yet so full of understanding despite all that grief. Sadly, our loved ones leave us, but we have to keep living and let the mourning process happen... however that works for each person.... May they rest in peace... to everyone who lost their battle with illness!

jadetrucker43 said:Personally, I find it easiest to just toss a photo onto http://imgur.com/ and pick one of those "Resize" options right then and there. You get the upload and the shrinking done in one single go—why make it harder? 👍

Downloading images eats up your data just like anything else, obviously, though you aren't getting hit with some extra special fee just for that. 🙂

Ugh—this is killing me... it's like watching a Martian try to wrap their head around basic math! I got stuck halfway through everything. I seriously need someone who actually knows what they're doing to walk me through this—it looks dead simple on paper, but man, it's not... looks like there are plenty of us "newbies" in the same boat.

Austin Stewart2 said:Quick question... maybe this was already asked and answered somewhere else, but if you don't mind me asking again... my dad just finished his second round of chemo (Stage 3 colon cancer) and now he’s dealing with those nasty mouth sores—pretty standard stuff after chemo, I guess. Does anyone know what he should use for rinsing or coating them? thanks... (just a heads up, he's taking beta-glucan and aronia to boost his immune system... not sure if that's enough or if he needs to start adding more stuff into his routine...) also, does anyone have experience using Graviol? thanks, thanks....

If sage doesn't do the trick, try Citrofyt—it's basically like an antibiotic (grapefruit seed extract). It clears up my canker sores in like a day or two, whereas normally they hang around for a week. It's worth a shot, honestly—it's an antifungal, so it shouldn't hurt, and since it's plant-based, it's pretty safe.

Quote:Listen,

Alex Hayes2 says: unfortunately my dad's condition is just getting worse. he went through 10 radiation sessions but things just took a sudden turn for the worst—his right arm has basically quit on him, and his right leg is next. after he got back, his forehead and the area around his ears were super burnt, looks like he spent a few hours under a brutal California sun—not sure if that's from the radiation? over the last few days, everything has been sliding downhill. he’s having more and more outbursts and barely sleeps at all. my mom actually had to call 911 last night just to get him settled. (he has lung cancer with brain metastases). does anyone have experience with this—how does it go from here? what should we be expecting? we were really hoping he’d recover from the radiation soon so he could move on to chemo for the lungs, but will they even bother with chemo when he's in this state (he's even on diapers now). mom is handling this alone; I make it over every other day, and it's getting harder and harder on her because she's completely sleep-deprived. I don't know what's ahead of us. up until now, I've held onto some hope, but now... it's just pure fear and dread.. tomorrow, if he's even up for it, he's seeing the oncologist. I'm not sure if they're going to keep him in the hospital or let him come home. as far as the lungs go, he coughs here and there and sweats a lot, but it isn't usually that bad. the hardest part is how little he can speak; he can't control the right side of his body and sometimes he just totally loses it, yelling and shouting. it's gut-wrenching to watch 😢

Hear-son, everything you're describing fits exactly with how this disease progresses. It was the same deal with my mom (bronchial cancer) that spread to her brain—that's why they start losing their grip, one minute they're fine, the next they're screaming. You have to try to understand them—they're in pain, they just can't tell us. If he's on morphine, that should help ease the physical pain. For those radiation burns, ask his doctor about using some aloe vera ointment—maybe something homemade or a local calendula oil (just don't put him in the sun after applying it!) but definitely check with the doc first. You guys need a ton of patience, both you and your mom. Someone needs to step in and relieve her so she can catch some sleep; she must be absolutely exhausted—this isn't easy... This doesn't necessarily mean a bad prognosis, it's just the ups and downs. Everyone fights their own battle—hang in there as long as you can... hang tough.

Susan Gonzalez22 said:My heart goes out to everyone who has lost their loved ones.

I’m feeling inspired by Angela Wright’s post to jump in and share something myself. I’ve been checking this thread almost daily ever since my mom got sick (bile duct cancer). Honestly, reading through this helped me wrap my head around everything and learn how to actually handle the situation—and all the crap that comes along with a diagnosis.
Luckily, Mom is doing okay after her surgery (the Whipple procedure). We caught the little bastard early on—thanks to jaundice, which they say usually means it's too late and surgery isn't an option anymore—so thankfully she was able to go under the knife. Even so, the recovery and the surgery itself were brutal for her, and honestly for the whole family too, because we suddenly found ourselves thrown into this total whirlwind overnight. But man, she fought like a lioness to get better, while my sister and I were busy fighting battles on every other front just to make things even remotely easier for her.

Today, I'm just happy because my mom is doing alright. In the end, Ken didn't even need it—we ended up getting two different medical opinions on that matter.
Just regular checkups now and taking it one day at a time. 🙂

It took some time for her to really process and accept the shift in how her body functions, but all in all—she's good, and that's what matters most. 🙂

It is so wonderful to read something positive on these boards! You have to fight—both the patient and the family standing right beside them. It’s not easy—not even close—and from my own experience, I think people don't post because it's just too damn hard, and when they see that others are going through the exact same thing... they just can't deal with it. Man, if only I had a PC and this forum back then?! Sometimes you even catch doctors off guard; the body fights on its own, but it needs help—every bit of help it can get! I am just so glad the lady is recovering—wishing her a beautiful life ahead!

graniteorca42 said:Hey everyone, I’m so sorry to share that I lost my dear mom too.
She passed away this past Saturday after fighting a brutal two-year battle with pancreatic cancer. Even though I knew what was coming—and even though the initial prognosis was only six months, our treatment actually worked incredibly well—it was just such an aggressive disease, and the pain... it was just unbearable.
You guys have been such a huge support for me, and I want you to know that I’m here if anyone needs anything. Since we're dealing with such rare tumors, any bit of info helps—I learned that the hard way, and I’m more than willing to help anyone else navigating this.
Thanks for everything.

Man, I am so incredibly sorry about your mom. Truly. Some people pull through, and some people just don't—it's a brutal reality. My mom fought for a year after they told her she only had three months left (that was seven years ago now). Just hang in there and hold onto those good memories of her!

velvetdrifter15 said:Hey there,

My mom is currently on Xeloda, and it’s causing these nasty sores to open up around her fingernails. They're basically bleeding wounds—every little touch makes them bleed. She’s been cleaning them with alcohol regularly and using a healing spray, but honestly, nothing seems to be working :/
Has anyone dealt with this before?

Maybe she could try rubbing some calendula oil on her fingers? It’s seriously great stuff for cuts, burns, even fungal issues—it's hard to go wrong with it since it's all plant-based. You can grab some at a local health food store or just make your own. I use it on my kids all the time, and scrapes heal way faster!

wiredotter75 said:it finally started, been 3 weeks now... I'm basically acting like a moody teenager again... just full of attitude...

Man, unknown, I am SO incredibly happy for you that you're feeling better!!! Seriously amazing news!!! Just soak up life, enjoy the summer, find some love, and try to ignore the crap—as much as you can, anyway. Thank God you're on the mend, it’s honestly such a relief to hear! Catch ya later!

Linda Patel21 said:Hey everyone—today I said my final goodbye to my dad. It’s just been two months since he got his diagnosis (gallbladder cancer with metastasis). We didn't even get to the chemo stage; he wasn't a candidate for surgery, so they just put in a stent. Luckily, he wasn't in much pain, and until the very end, he was still talking about planting an orchard. He was getting confused sometimes, running fevers, losing his appetite... I tried so hard to make sure he had everything he wanted. I knew the end was coming, but man, I still held onto hope. I knew it would be rough, but I never expected it to hit like this... I miss him already—my heart is just aching, and I wish we could have had just a little more time. To be able to hug him again, rub his back, or even just have him give me one of those grumpy looks... anything. I haven't been on these forums for long, but I've met some truly wonderful and brave people here. So, I want to wish you all luck in your own battles—don't let them break you, and stay by your loved ones' side until the very end. My days are just filled with grief and tears right now, but then I try to remember the good times...

I am so incredibly sorry for the loss of your dad. Hang in there—right now it's brutal, trust me, we've all been through it, but you will get through this... eventually...

Elizabeth Scott4 said:Look, I don't necessarily view it as a disease either, but you have to understand... there is this constant state of fear. You can't even hold a conversation with her; if you ask a simple question, things turn terrifying. Cigarettes are one thing, but her behavior is truly awful. She shows zero respect for her grandmother, who does everything for her and her sister, yet she just screams and acts completely disrespectful—like an unraised brat🙂...

Man, welcome to the teenage years! My daughter is the exact same way—she probably thinks yelling at us is a sign of maturity, when really they're all still green as grass. Honestly, it'll pass. Just try to keep your cool and don't let them get under your skin. These are just phases; hang in there for a few days and things usually settle down. God knows we weren't exactly angels at that age either. It’s just part of growing up. Once this stage hits, you'll actually laugh about it together—well, my daughter will... if she ever admits to any of it. They act like they know everything, constantly questioning authority—classic puberty symptoms. It hits hard, then it passes.

rustyscout31 said:Thanks so much, honey—honestly, your advice means more to me than everything those doctors say combined. I wish we could talk about better stuff, you know? Like kids, weddings, vacations, or anything actually fun, but... BUT 😢 Mom and I basically take turns looking after her—it’s either my sister or me, sometimes both. Dad, the grandkids, everyone who loves her—we’re constantly showering her with affection and keeping a close eye on her. Just the other day, I was even doing her hair and coloring it... we fuss over her so much she actually tells me to stop! She keeps calling me "my little sweetheart"... she’s home, surrounded by love, and we’re doing absolutely everything just to keep her comfortable and make sure nothing upsets her. I’ve even started watching those soap operas (since I sleep in the same room as her) just so I can chime in about the drama and keep her entertained 🙂 We’re just taking it one day at a time. If she’s in a bad mood, I feel it too; if she smiles, it feels like home. But I’m finally coming to terms with the fact that she’s leaving us. Then there’s the grim side of things—dealing with funeral arrangements, money stress, trying to manage loans... man, don't even get me started, you know how much of a crisis we're in right now. But I’m doing everything I can so my mom lives with dignity, stays out of pain, and eventually passes away peacefully among the angels...

I honestly have so much respect for how you guys are showing up every single day for your moms! It’s not easy, trust me, but down the road, you’ll have that peace of mind knowing you did everything possible to make things easier for her. We’ve been through this ourselves—that’s just life, I guess. You have to prepare for the end, if that’s even possible... the main thing is that Mom is happy, surrounded by her people, and living on her own terms. Hang in there... stay strong... cheers!

wanderingcobra76 said:not during home care, no. Unless the patient is actually stuck in a hospital bed and there's a high risk for thrombosis—like if they just had surgery—then doctors might bring in blood thinners. Otherwise, those meds carry a massive risk of uncontrolled bleeding, so you definitely don't just hand them out routinely.

Well, there you go—you got the "professional" answer. Now, here’s my take based on what I actually went through: my mom had lung cancer. She was asking for massages constantly, so we’d just massage her legs ourselves. Honestly? I think she was just looking for some connection—some attention. Plus, between the constant lying around, the depression, and the sheer pain, her circulation probably tanked and her body just felt numb... everything just piles up on someone fighting this stuff. From my own experience, I don't see how a little bit of massage could hurt—unless a color Doppler scan shows actual clots. If there are clots, then yeah, forget it—you don't touch them because you don't want to dislodge a thrombus. But otherwise, a patient needs a ton of willpower and genuine care to make those brutal moments even slightly bearable. Family can actually DO a lot to help! Good luck.

Lisa White54 said:Hey everyone.
It’s been a minute since I’ve posted, but I’ve been lurking here on Reddit regularly.
My husband is doing okay. According to his last CT scan they did over at the hospital in Brooklyn, there’s no cancer. Is he cured? Personally, I believe he is. Back when they first gave us the prognosis—like, eight and a half years ago—things looked incredibly grim. They were basically giving him a few months to live.
The radiation therapy definitely left its mark, though; some damaged blood vessels there. But his heart is fine. He had surgery back in December at the Brooklyn facility where they put in three bypasses, and he's holding up solid.
We haven't stepped foot in Jordan since March 2012, mostly because we had such a horrific experience with the doctor my husband switched to after his "old" doctor fell ill. Honestly, I don't even know when—or if—we’ll ever go back there for a checkup. It wasn't that we didn't want to go, but the lady was just completely unapproachable... it was awful. Truly sad. The CT they did in Brooklyn came back clean. But as for where we should go next to monitor his lungs? I genuinely have no clue, because we felt practically kicked out of Jordan—both by the nurse in the clinic and that doctor I mentioned. And all this happened just because he showed up for a routine follow-up after six months. I couldn't make heads or tails of it...
Anyway, moving on. I just hope nothing new starts developing. Things seem stable right now. I just pray things don't take a turn for the worse.
Sending love to you all, hang in there.

So glad to hear your husband is doing better! As for Jordan—yeah, it's a joke. My late mother went through the exact same thing; she was brushed off by a doctor just because my sister spoke up and said they weren't taking proper care of her! It's a disgrace! Isn't enough that people are dealing with their own misery without—OH YEAH, THEM—treating us like idiots? And then the poor patient just has to shut up and take it! Thank God you guys moved on from there! At least he's safe now. You can take him to other hospitals for follow-ups; they aren't the only game in town! The main thing is that he's feeling better! Best to you both!