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Man, that is a ton of testing! :O Honestly, if you ask me, the whole thing smells a bit like hypochondria... I mean, if there were actually something wrong, wouldn't at least one of all those tests have flagged something by now? I think analogbison13 is totally onto something here—anxiety can really play tricks on your head and make you feel like anything is possible.
vividsailor7 said:I’m definitely on the same page as that GP.
So, could someone maybe give me a quick rundown on what a polysomnography actually is..? And—if it turns out this specific type of epilepsy is what we're looking at—is it totally possible to keep everything under control (like, zero seizures) just by using the right medication?
Thanks!
So, I’m 22 now... and about two years ago, I had something happen that felt a lot like a seizure. Honestly, I’m still not even sure if it’s epilepsy or what. Anyway—basically, I was feeling pretty off all afternoon, just generally unwell, and then in the evening I headed over to a local CVS to pick up some photos. That's when it happened. I walked up to the counter to ask if my prints were ready, and from that exact moment, everything just... blanked out. I don't remember the next minute or two. At least, that's what the girl working there told me! She said it lasted about that long, and she tried to talk to me—asking follow-up questions and stuff—but I didn't react at all, and I have zero memory of it. According to her, I was just standing there with this totally vacant stare. Once it passed, I actually repeated the exact same question about the photos—to which she had already answered during those two minutes—even though I was *so* sure I hadn't asked it yet... weird, right? After that, I just went home. I felt really strange afterward, too—just this overwhelming, general weakness... I don't even know how to put it into words. Since then, it's happened a few more times, but I've noticed it always seems to happen when it's super hot out, like in the middle of summer... (even though I try my hardest to stay out of the sun!). Just as a bit of background, I was born very premature—only 3.7 lbs, 16 inches, and spent a month and a half in the NICU. I was on oxygen for 15 days and was also given Phenobarbital, though I'm not entirely sure why. My discharge papers mentioned tremors, apnea attacks, and CNS irritation. When I was 2.5 years old, I had febrile seizures that were actually classified as status epilepticus because they lasted about 45 minutes.
...which meant I was hospitalized in pediatric neurology for two weeks. They started me on Phenobarbital therapy back then, and I actually had another seizure about two months after the first one. After that, they switched my meds to Apilepsin, which I took until I was 7, and then I just... stopped going for follow-ups.
Well, I finally went to see a neurologist, and my EEG showed some dysrhythmic changes... but he didn't really say much. He was kind of a jerk, honestly. He just wrote down that I need an MRI and some blood work. Meanwhile, my primary care doctor thinks it might be complex partial epilepsy, and she’s recommending a full neurological workup—like a sleep-deprivation EEG and a polysomnography. So, does anyone here have similar symptoms? Or maybe someone who has been diagnosed with this type of epilepsy? Please, guys, I could really use some advice!