Living with Sudeck's syndrome
in Health ·
jadegull13 said:hey everyone
About three years ago, I had a sesamoid bone removed from my foot. Ever since then, it’s been this constant, chronic pain—stinging, burning, and just hurting like hell whenever anything touches it. It burns the most right near the top of my big toe. Even though they actually cut a nerve during the procedure, it still hurts just as much. I've gone through five different surgeries now. Three of them were with Dr. Nemec, but honestly, nothing worked. I keep getting bounced around with all sorts of diagnoses, but none of them seem to hit the mark—Sudecko syndrome, phantom pain, you name it. The thing is, it hurts incredibly much when touched, yet I have absolutely zero surface sensation in one specific spot on my foot. If anyone out there is dealing with something similar, please reach out; I'd love to chat and see if we can make sense of this together. My main issues are the stinging, the burning, and the sensitivity to touch, and man, it just hasn't let up for three years straight.🙂
You really need to go see a neurologist or an anesthesiologist who specializes specifically in pain management.
Since you've been dealing with this for three years already, it's pretty unlikely you'll get relief without some serious, long-term pharmacological intervention—we're talking things like anticonvulsants or maybe tricyclic antidepressants...
The catch, given how long this has been dragging on, is that the meds aren't going to work overnight. In plain English: you're going to need a massive amount of patience and persistence. You'll likely have to tweak and adjust your prescription multiple times before finding the sweet spot.🤷
Once you finally hit a period of remission—you know, when the pain starts to dial back—I'd suggest looking into a psychologist or therapist who specializes in pain management techniques. They can help you learn how to mentally "unhook" from that pain loop.