Posts by Olivia Thompson6

Hi everyone—this thread seems to have gone quiet, but I’m still searching for some clarity, so I thought I’d bump it up. I just finished my VEEP testing, and here’s what the results showed: stimulation caused low amplitude and prolonged latency in the P100 wave on the left side—which might suggest conduction issues or perhaps a neural lesion in the left visual pathway. They also ran an SEC test on my median nerve, and those results showed low evoked response amplitudes on the left side too... which could potentially point toward a neural lesion in the left sensory pathway for the median nerve. I was wondering if anyone might be able to help explain this a bit, since I don't have my appointment with the neurologist for another 20 days or so.

I honestly don't know—it was just the first thing they decided after my nine-month medical leave ended—and until I get through these next few tests, I suppose I won't have any real answers. It’s either this or something else entirely; I feel like I'm losing strength in my hand and leg day by day, and my foot is starting to drop more and more. I'm just really hoping all of this finally leads to an accurate diagnosis so I can start working on getting my strength back—if I could only believe it myself😁.

I just got my deltoid biopsy results back, and they seem to point toward muscular dystrophy—which is quite a shock, I guess. For the last eight months, I've been dealing with constant muscle pain on my right side, and now it’s starting to spread to the left... plus some blurry vision, headaches, and this strange sensation like my whole body is shaking. My neurologist is sending me for vestibular testing, evoked potentials, somatosensory testing, and both an MRI of my upper soft tissues and one for my cervical spine. I’m really hoping there might be someone here with similar symptoms—maybe we could share what we know while we try to figure out what's actually happening to our bodies? I'll admit, I'm starting to feel a little panicky—and I'm not usually the type to panic, per se—but this news has definitely shaken me up. Sorry for the long post, but I truly hope there's someone else out there facing these same issues