Posts by neoncyclist792

Does anyone have recommendations on which hospital in NYC I should go to for stomach cancer? Thanks!

Has there been any update regarding how long self-isolation actually lasts? My husband tested positive for COVID-19, and since we live in the same household, he hasn't been isolating himself from us. His doctor told everyone that the isolation period is just 10 days starting from when his symptoms first showed up. To me, that feels a little bit off—theoretically, we could still catch it from him on, say, the eighth day. I called the doctor back to double-check, and the nurse just repeated the exact same thing twice. I honestly don't know if they realized we're constantly in each other's space, even though I made sure to mention that a few times.

Hey everyone, does anyone know what the situation is over at Memorial Hermann? Are they running triage outside right now, and if so, how long are the wait times? Thanks!

Thanks, I couldn't find anything else anywhere, so I just went ahead and ordered Genox. I've heard a lot of good things about it, so we'll see how it goes.

Hey there! I’m not entirely sure where to ask this, so I figured I’d just try my luck here. Does anyone know if there's a surface disinfectant spray you can use around the apartment that doesn't require rinsing afterward?

My dad passed away this past Monday. He was just waiting for the whole family to get there so we could all be together with him, and then he just stopped breathing. It’s been less than two months since his diagnosis. Honestly, I don't even have the strength to write about the healthcare system or all the bureaucracy right now...

Finally picked these up today..

Grace Lewis6 said:Which city are you in? Honestly, the local health department needs to hand over every bit of info and support they have. There’s no room for "I don't know"—they need to ease the patient's suffering and help the family right now. In our case, we managed to get home nursing, visiting nurses, and palliative care all within 24 hours. We even got some equipment like a hospital bed. But you really have to stay on top of them.

Thanks, we actually managed to sort out the nursing visits and getting the hospital bed. And honestly, it wasn't thanks to the local health department. Now I'm wondering, who handles the vouchers for pressure ulcer mattresses? Apparently, you can't get the voucher until a pressure sore actually develops, but who is actually issuing them? Our local health officials are acting clueless again—they told us to see a physiatrist?! Is that actually how it works?

Thanks for the reply. We don't have a palliative care team at our local clinic here, so I guess that’s where the trouble starts.

Please help—my father is in the terminal stage of lung cancer. I’ve seen some of you mention the right to have home health services come to the house for IV infusions; could anyone point me toward the specific law or a link regarding that? Yesterday, we had to transport him via ambulance to the local clinic just to get an infusion because he isn't eating anything and is dealing with diarrhea. It was absolutely grueling for him—so painful and traumatic. His primary care doctor is insisting that home visits for infusions aren't possible and that he either has to come into the clinic whenever he needs it, or we just leave him there, which we are flatly refusing to do.

Does anyone have a recommendation for a solid private oncologist? I was looking for Dr. Cepulic, but it looks like he closed his clinic. Any leads would be appreciated. Thanks!

Sean Barrett35 said:What kind of cancer are we talking about?

It's lung cancer. Honestly, I don't know the specific type, the stage, or any of the concrete details yet. There are metastases in the lungs, the adrenal glands are involved, and they think the liver might be suspicious too. We're waiting on the scintigraphy results, which should come in about ten days. I'll have more answers this Monday. I was just curious about how the whole process works—what actually happens and what the treatment plan looks like for patients?

Hey everyone, does anyone have a moment and the headspace to walk me through how cancer clinical trials actually work? What’s the deal with them, really? How do they operate under the hood? And when is the right time to start digging into the search? Thanks a million!

Has anyone here had any experience seeing Dr. Kristina Krpin, the pulmonologist over in Jordanica?

Taylor Swift, Ashley Robinson3, thanks for getting back to me. We’re waiting until the 18th here, hoping we finally get an oncologist assigned. Maybe then things will start making sense. Ashley, I really appreciate that detailed breakdown you gave. In my head, I had pictured a totally different scenario playing out, but unfortunately, I know there are no rules when you're dealing with stuff like this. Alright, time to gear up and fight.

Could someone help me make sense of this pathology report? It’s unrelated to the previous discussion—this one is about my dad.
carcinoma of the urinary bladder (papillary urothelial carcinoma)
histological type-urothelial carcinoma
histological grade-high grade
tumor structure-papillary formations
microscopic extension-lamina propria infiltrated by tumor
muscle tissue-no tumor involvement
organized urothelium
Transurethral resection of the tumor was performed; one 20mm lesion and some smaller ones were removed.
Follow-up and surgery scheduled for July 16th.
What should we be bracing for?

Could someone help me make sense of this pathology report? This isn't about the previous thread; I'm asking for my dad.
Papillary urothelial carcinoma of the urinary bladder
Histological type: Urothelial carcinoma
Histological grade: High grade
Tumor structure: Papillary formations
Microscopic extension: Tumor has infiltrated the lamina propria
Muscle tissue: No tumor present
Urothelium: Ordered
A transurethral resection was performed, removing one 20mm tumor along with some smaller fragments.
Follow-up and surgery scheduled for July 16th.
What should we be bracing for?

What do you do when imaging shows a lizard cancer, three different doctors all agree everything looks enlarged, yet the third biopsy comes back negative and nothing changes? Now I'm just stuck in this loop of repeating biopsies over and over.

First off, I want to send my deepest condolences to everyone here who has lost someone dear. I’ve been away from this forum for a year and a half, and unfortunately, we lost two battles in such a short window back then. As things stand now, we're back in the fight again. Does anyone here have experience dealing with bladder cancer? My dad is in the hospital right now; they suspect that's what it is. I have two main questions while I try to wrap my head around everything. He’s having surgery today—they told us it’s through the urethra (sorry, I can't recall the technical term)—and said they are removing the tumor. If they are just removing the tumor, does that mean the cancer hasn't spread? When they did his chest X-ray, they mentioned shadows and metastases, but wouldn't they run more tests if they actually suspected metastasis? Also, if there is a suspicion that it has spread, do they go ahead and remove the bladder and everything necessary during this specific surgery?

ruggedfox11, I am so incredibly sorry. My heart truly goes out to you...