Posts by Angela Wright

Sandra Kelly3 said:So, sepsis and septic shock have been confirmed. Honestly, we haven't been able to figure out if they can actually treat this—not in Akron and apparently not in Washington, D.C., either... I mean, how do you even cure something like this?! And is it even possible to recover? From everything we’ve been hearing lately, it seems like most people don't make it through.

Look, 😢septic shock is incredibly dangerous, and elderly patients face an uphill battle, but it isn't a guaranteed death sentence. It all comes down to their overall constitution, the state of their vital organs, and how well the bacteria responds to the antibiotics being used.
I’m afraid at this point, all we can really do is hope the treatment takes hold.
Tell me, did they put a drain in her after the gallbladder surgery? My mother went through something similar with an infection, and they had to keep a drain in her for about ten days at the hospital until things finally cleared up.

urbanorca said:Scott Allen10, look, I just want to help people. I’ve spent ages digging into this, and I truly believe LDN could be a game-changer for so many folks.

It honestly breaks my heart to see people—especially the younger ones—dealing with autoimmune diseases. They end up in the hospital twice a year, and you have a 25-year-old girl telling you, "I'm done with everything, I'd rather just kill myself." Meanwhile, there's actually something out there, like LDN, that would most likely help her get her life back on track.

And yet, you’re standing there blocking people from getting the help they need. To me, that’s just messed up.

Angela Wright, I don't know much about that specific law, and yeah, I guess it's the same deal in other places like the UK. But think about it: someone is seriously ill, standard meds aren't doing a damn thing, but an alternative actually works. Now, because of some rule, they're supposed to just follow the law and refuse what actually helps? While their quality of life hits rock bottom or they literally die?

So they'd rather just die because they have to follow the rules? That's pure stupidity if you ask me. I read on one forum that half the people taking LDN in the UK are getting it through mail order, essentially bypassing the system. But let's be real—is any court actually going to have the guts to prosecute a sick person for trying to survive?

I don't get why everyone has stopped reading up and researching how useful LDN can be. Why is everyone so incredibly negative all of a sudden?

Then please, by all means, explain to me how you plan to mitigate the risk when buying stuff online. (Let me reiterate: trying to bring it into the US is impossible; there is simply no way to dodge customs). How are you going to be certain you're actually receiving what was advertised? For all you know, you might end up with nothing more than encapsulated baby powder. Where is the oversight and protection meant for the patient in that scenario?
Laws don't exist just for the sake of existing; they serve a purpose.
A sick person has one single desire: to get better. Unfortunately, out of sheer desperation, they are willing to agree to anything unverified if they think it might lead to a positive outcome. Sometimes, the price of that gamble is far too high.
To wrap this up, I’ll leave you with something my great-grandmother used to say. She wasn't much for books and mostly relied on divine providence to get through her misfortunes, which somehow allowed her to live a very long life:
"God, please grant me health, but above all, grant me common sense!"
I have seen disease, I have seen cancer in its most brutal forms, and I can tell you that this uneducated old woman was speaking profound human wisdom:
Common sense rules!

I'm not sure if you're familiar with how things work here in the States regarding the law—it’s actually illegal to import medications you bought online directly into the US. You can only get your prescriptions through a licensed pharmacy, and those meds have to be specifically FDA-approved for the condition you're treating.

slyowl10 said:My dad passed away on September 27th.
I'm going to miss him every single day for the rest of my life. Since then, there’s just been this massive, hollow ache in my chest.

I am so sorry, dear.😢 I truly hope that despite all the grief and that emptiness you're feeling, you can find some sense of peace.

New Season of Counseling Services at the Unspecified Association

article published: 10/04/2010

Losing a child, a partner, or a close family member is easily one of the most crushing stressors a person can face. In those dark moments, finding the right psychological support often feels impossible. After our summer break, the counseling programs at the Unspecified Association are resuming services for two specific support groups:

* For those who have lost a family member to cancer — first session is 10/04/2010 from 7:15 PM to 9:00 PM

* For parents grieving the loss of a child — first session is 10/14/2010 from 6:00 PM to 8:00 PM

The parent bereavement group is led by Dr. unspecfied, while the group for those mourning other family members is facilitated by psychiatrist and psychotherapist unspecfied.

If you fall into either of these categories, or if you know someone who does, please reach out to the Unspecified Association at our unspecified office or call us at 555-0122 or 555-0147. You can also contact us via unspecified@unspecified.org or find more information at www.unspecified.org

When you're navigating the weight of losing a loved one, no amount of help is too much. Please, lean on us.

copperraven53 said:...

I was actually just wondering how everything turned out.
Fingers crossed that everything stays stable until you finally see that positive test. 🙂
See you over in the pregnancy group! 😍

urbanorca said:Angela Wright, thanks. It feels like we’re constantly talking past each other. All I want is to help people, yet I'm always getting hit with accusations about my "hidden motives" or whatever. Honestly, it doesn't surprise me; I've dealt with this kind of stuff before.

Here's an example—and yeah, I know it looks like I'm bragging (my bad!). Years ago, I started the "Books for America" initiative, donating free English books and magazines to various libraries across the US. We spent about $10,000 on it, and what did we get? A ton of backlash. People asking, "What's your angle?" or "What do you actually want from us?" The only place that truly welcomed the gesture was the Varaždin University of Computer Science (and seriously, thank you guys). For nearly five years now, we've been sending them materials with zero strings attached—feel free to check with them if you don't believe me. Huge thanks to them for even setting up a dedicated section for my donations here:

Again, the sheer amount of negativity coming out of America just baffles me. But hey, what can you do?

Anyway, I really dig that Leleeo slogan, the one Einstein used to say:

"A mind is like a parachute—it only works when it's open."

I agree with it too.
Read it a few times and try to actually view yourself through that lens.

As for everything else, I don't have much to say, except maybe that you clearly missed my point.

You can find a Mayo Clinic facility pretty much anywhere you look. Most local community health centers have their own labs on-site.

urbanorca said:Thanks. Look, maybe I said some stupid stuff, but I would never be dumb enough to compare colloidal silver to this medication.

It’s entirely up to you if you want to try something new. Don't just take my word for it—go do your own homework. Check out the various links I’ve attached to my posts to see how effective this stuff actually is.

Angela Wright, listen: Dr. Bihari started using LDN and claimed it helps with glioblastoma. He was a highly respected doctor (passed away about five months ago), but hey, believe him or don't. It's your call. And no, nobody is paying me off. Why would they? The drug is dirt cheap. Also, I never called you a shill for Big Pharma; I just suggested you might be biased since you reject everything outright. But that's on you.

Leelo, I highly doubt any doctor here in the States knows anything about this. Missy, who lives in Norway, posted in the MS section that they set up a small organization there with a whole website dedicated to LDN. She showed all that info to her doctor and successfully convinced him to write her a prescription.

My advice? If you're interested, do your own research. You don't need to trust me; just decide for yourself after looking at the facts.

Sweet dreams to all!

🙂

Cut the assumptions. You haven't cited a single damn word I’ve written that suggests I’m rejecting anything outright.

There is massive money to be made in the low-end market.
Take AB pills, for example—they’re dirt cheap, yet big pharma makes their absolute highest margins on them.

Your aggressive, fundamentalist approach regarding LDNa is honestly infuriating and frankly off-putting. You go straight for the jugular, attacking anyone who dares to raise even a tiny question about your preferred theory. It’s hard not to notice how you pop up in all sorts of different threads—discussing various conditions that aren't even biologically related—only to peddle the exact same script every single time. It feels less like a discussion and more like a cultish crusade. Honestly, you’re acting like an Amway door-to-door salesman. In my experience—both online and in the real world—this kind of behavior usually points toward someone looking for personal gain. My issue isn't even about whether LDNa actually works; it's about your obnoxious way of handling it.

Look, if you want to believe it, go ahead—it’s your funeral. But honestly, the way you carry yourself makes this whole thing feel like nothing more than selling smoke and false hope to people who are already suffering. It's hard to take any of this seriously when there isn't a single shred of solid, undeniable evidence to back it up. We need more studies—and we need them to be massive in scale. What kind of person would actually stand behind such an aggressive stance?

There’s a massive difference between losing your cool when you’ve done everything by the book—you've met every requirement, you're entitled to your medication, and yet some bureaucratic red tape or systemic glitch is actively standing in your way—and then there's this whole other thing: acting like that over nothing more than some preliminary results. One is a justified reaction to a broken system; the other is just being dramatic about data that isn't even final yet.

Advice:
Get your head in the game and actually read what people are saying to you. If you don't practice some basic reading comprehension, this entire discussion is a waste of everyone's time. Even the mods have already pointed out that you need to get it together.

Raymond Newman said:I'll definitely head to the doctor, though I really need to make the trip out to San Francisco first!

Life's a joke😳...you end up stuck on a never-ending cycle of antibiotics anyway🤷

Yeah, he told me the exact same thing—that glioblastoma responds just as well to this treatment...

...but hey, I’m just a hired gun for "Big Pharma," right? 😉

Who exactly is paying him, and what's the real motive behind it, is completely "irrelevant." ☕

Raymond Newman said:😕
I’ve been feeling a bit off lately with some eye pain and a low-grade fever that just won't budge past 99.5°F, and honestly, I’m at a loss as to what's going on. Over the last month or two, I’ve gone through two boxes of Amoxicillin, a round of Klavox, and now I've been prescribed two more doses of Doxycycline, which makes me seriously wonder about the impact this is having on my health. I keep visiting my doctor, but we seem to be seeing the same symptoms over and over again; it all seems to stem from an ear, eye, throat, and sinus infection I picked up about a month ago due to the ventilation system at my workplace. While I thought that had cleared up, I still occasionally notice traces of blood in my saliva from my nose. I even had a full blood panel and urinalysis done recently, and since everything came back within the normal range, I am truly stumped as to what the underlying issue might be. 😕

Get yourself to an ENT and an ophthalmologist immediately. Honestly, I’d skip those family doctors who just throw taxpayer money away by handing out antibiotics like candy without ever actually making a real diagnosis.😠

Maria Howard4 said:My husband's mother was diagnosed with lizard cancer that has already spread to her liver. She got home from the hospital last Friday. The doctors there didn't actually tell her what was going on. She was given a discharge summary that spells everything out, but she hasn't read it. She keeps asking us what it says, and we've just been trying to wing it. Honestly, I have no idea if we should tell her the truth or not. She only has a few months left. Her sister passed away six years ago the exact same way, so I don't get how she isn't making the connection. What do we do?

Don't tell her. At her age, knowing the specific diagnosis doesn't really change anything for her. Just let her live out the time she has left in peace. Focus all your energy on providing palliative care to the best of your ability and make sure she can spend her final days surrounded by family at home, assuming that's an option. When you're dealing with terminal illness in the elderly, regardless of the specific cancer, the goal shifts entirely to quality of life. It’s about managing pain, making sure she's fed, hydrated, comfortable, and clean. That's what matters.

urbanorca said:I’m not looking for a fight here—we both have way too much on our plates for that. But honestly? That comment wasn't worthy of you. Unless you’re secretly on some Big Pharma payroll, why are you so against CNN?

I’ve mentioned this multiple times already: several top-tier American universities (run by actual qualified doctors) have conducted studies proving that CNN is effective. The problem? There's zero funding for massive trials because the pharmaceutical companies won't touch it with a ten-foot pole. So, they run these smaller studies on maybe 100 people, which just isn't enough to get official FDA approval.

Even the Italians (Nature Neuroscience (FDA) and Department of Neurology, Mayo Clinic, 1600 Pennsylvania Avenue NW, New York City,) and the Germans have carried out research. All results were positive.

Last year, Dr. Tom Gilhooly even organized the first major conference on CNN in Chicago and wrote a glowing piece about it in a leading medical journal. Etc, etc.

That’s a hell of a lot more substantial than apple compote.

Engaging in this kind of back-and-forth is beneath me.😳
Since when do you get to decide whether my personal experience with what helped me is valid?
I highlighted that specific point precisely so you would grasp the core of my argument. Without a sufficient number of clinical trials, nothing moves forward. It's a harsh reality, but that's how it works!
Unlike you, I’ve laid out nothing but cold, hard facts without resorting to the empty platitudes you keep throwing around. You're being blatantly disrespectful, making baseless accusations and insinuations despite the fact that I've been incredibly clear and thorough in my explanation. All of this just because you refuse to accept that the world doesn't always work the way we want it to or the way we think it should.
It's frankly immature.

urbanorca said:Angela Wright, look, these aren't just some random anonymous trolls claiming LDN works. There are plenty of people out there who have put their actual names on the line to back this up. Plus, like I mentioned before, we’ve got four major universities right here in the States that have run the studies and reached the same conclusion: LDN is legit and provides massive help for certain conditions, especially autoimmune stuff.

You can find all their research online if you actually bother to look.

Look, I could step up right here, put my full legal name on the line, and tell you that I beat my endometriosis using nothing but apple compote. But obviously, an anecdote isn't enough to be taken seriously or to justify treating millions of women that way. We need hard, concrete evidence, and that can only come through rigorous studies—and we need a massive volume of them before this kind of treatment becomes standard medical practice.
The trials you’re bringing up, unfortunately, simply don't provide enough certainty to eliminate all doubt when determining if a drug should be used in clinical settings. It’s a shame if you can't view this as a cold, hard fact rather than just my personal skepticism.
I think I've made my position crystal clear.

melloworca6 said:So, here’s how I see the situation in America: let’s say this drug is being used overseas to treat autoimmune diseases (hypothetically speaking, of course). Does that mean we can't get our hands on it here in the States for autoimmune issues just because the FDA only approves it for addiction treatment?

Does that logic apply to every single medication?

I’m honestly just trying to wrap my head around how this whole American healthcare system works, which is why I have so many questions. 🙂

The only exception is compassionate use—cases where someone's life is on the line, which requires approval from a medical board. In those instances, everything has to go through the hospital, and you're hit with sales tax and customs duties, often dragging the whole process out for months. It gets even more absurd when a pharmaceutical company tries to donate a drug; they actually have to pay the sales tax just to get it to the patient. Price isn't even the main issue there; imagine being a patient who needs an incredibly expensive medication—we're talking upwards of $0.00 per dose—and then the pharma company has to shell out all that extra tax on top of it. You can probably guess how much "charity" those companies feel like showing toward sick people in this country.

If a drug isn't approved for a specific indication, getting your hands on it in the US is nearly impossible.

Yeah, that's the brutal reality.😳

melloworca6 said:Are we talking about the pharmacy or the doctor?

Because hypothetically, if I track down an immunologist willing to write the script, what's the pharmacist going to do? Give me grief? Just asking.🙂

You need a prescription from a doctor; you can't just walk in and buy this stuff over the counter. If you see someone in private practice, they might write you a private script, but since we're dealing with something used to treat addiction... well, I don't know, maybe try asking.
If you're trying to get it through a hospital system, there's zero chance unless you're officially cleared for that specific indication.

urbanorca said:Igor88 posted this over in the colitis section:

Just wanted to give a heads-up to anyone looking into LDN. I swung by the pharmacy today to poke around and see what the deal was. So, the drug is available here in the States, which is a win, but there's a catch—it’s also used to treat addiction. Apparently, you can get it via a special double prescription or something along those lines... anyway, long story short, a specialist has to prescribe it. For what exact purpose? Honestly, I have no clue yet. I need to sit down with my doctor and hash it out. As soon as I dig up more info, I'll let you guys know. Bottom line: you can get your hands on it, but it’s going to be a massive headache to navigate... and yeah, for addiction, they dose it at 50mg, while for colitis or Crohn's, it's only 4mg. That's a huge gap.

If a drug isn't officially registered in the US for your specific diagnosis—which requires a pharmaceutical company to trigger the registration process at a high cost—your chances of getting it via prescription are virtually zero. People battling cancer face this exact wall every single day, especially those with rare tumors. Even if the EMEA has cleared the drug for use across Europe and there are plenty of studies proving it actually works, the red tape remains.
Without clinical studies explicitly defining the dosage and administration for your condition, trying to fight the American healthcare system to get your medication covered is an impossible task.

Ethan Reed2 said:You've got a point, and I wouldn't label it a "miracle" either, but waiting for absolute proof that something works...🤷. Which drug are you referring to that you know for a fact works unequivocally? I live with MS, and I can't think of a single drug that fits that description. It’s a different story when you consider that giant pharmaceutical corporations can fund trials for THEIR own drugs for years and then potentially "massage" the results before going public... claiming their drugs are amazing and so on. Sometimes patients just don't have the luxury of waiting for the conclusion of endless studies that haven't been officially recognized yet. They just want to feel better... I don't see what's wrong with that.

I completely hear you and I agree. But there's a massive gap between our personal desires and the regulatory frameworks in place. Those rules didn't just pop up out of nowhere; they were built on very specific scientific, medical, financial, moral, and ethical foundations. However, when dealing with progressive and debilitating conditions—especially rare diseases (which is my area of focus regarding rare tumors)—we desperately need a better approach to drug development. People simply don't have ten years to wait for a study to reach "evidence-based" status. Major international organizations representing both doctors and patients are actually lobbying hard, organizing massive summits where all stakeholders—patients, physicians, scientists, Big Pharma, and lawmakers—sit at the same table. The goal is to find common ground to break through this bottleneck and create a new way forward for managing these complex illnesses.

urbanorca said:Ethan Reed2, there are literally hundreds of testimonials floating around the internet from MS patients who swear this drug changed their lives. People call it a "miracle cure," and even some TV shows have featured it.

Angela Wright, I’ve gotta say, your negativity caught me off guard. Why all the skepticism? Look, a massive American corporation originally patented the drug, but since the patent expired, anyone can make it now. The biggest supplier out there is Intas Pharmaceuticals, which is huge in the generic drug game.

I really don't see why you're painting me as negative.🤷
I am simply presenting the data I've found and the facts as I know them. I'm not responsible for the fact that research policy operates the way it does.
As for the "miracle" label, I stay away from that kind of hype. In my experience, whenever someone starts using the word "miracle," there's usually a scam hiding right behind it. This isn't a scam, but calling something a miracle and relying on the anecdotes of anonymous people is just irresponsible—especially when we're talking about serious, life-threatening diseases. That is exactly why rigorous, controlled clinical trials exist; those are the only data points that actually matter. Whether something is truly effective or "miraculous" can only be determined by what can be indisputably proven.
That is the reality of the situation, and it has nothing to do with my personal feelings or anyone else's subjective take on the matter.
I’m really hoping these clinical trials kick off as soon as possible and recruit everyone who's interested. If they can pull that off, it would essentially make the treatment free and accessible to anyone who needs it, while simultaneously providing the kind of hard data required to refine and perfect the drug for the future.

Ethan Reed2 said:That’s just how it works whenever something is actually effective and affordable. The priority is always pushing expensive drugs to line the pockets of doctors and big pharma.

Not necessarily. You have these tiny pharmaceutical outfits that don't have massive capital to burn on endless clinical trials; usually, those are the exact players cooking up the most innovative "smart" compounds and combinations.
To actually prove something works beyond a shadow of a doubt and secure that "evidence-based" stamp of approval, you have to run trials on a massive scale—and science, not Big Pharma, is what dictates that process. In fact, Big Pharma would much rather see the opposite happen.
So, looking at the preliminary data, there is evidence this drug works for certain conditions and isn't toxic, but I wouldn't go labeling it a "miracle cure" just yet.