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Posts by Angela Wright

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Amanda Miller69 said:Seriously, this thread has devolved into relationship drama instead of focusing on the actual illness... if someone is sick, fine, but let's talk about the disease, not whether or not someone wants to marry them.

So, what you're saying is that sick people just don't get married?😕 In my view, when people actually commit to that step, they should leave the door open for the other person to decide if they can handle staying by a partner's side through an illness.
I brought it up because, frankly, the whole story about the illness feels incredibly shaky after reading that post in the other thread.
Does a woman really need to go through all that suffering just for it to turn out to be a complete fabrication? That’s why I asked if she was absolutely certain the diagnosis was legitimate. We all know the emotional rollercoaster involved when we’ve dealt with these kinds of diagnoses indirectly. Now, imagine someone you love just cuts you out of their life over a phone call because they're "sick," only for it to be revealed as a cheap trick to get rid of you. It’s ugly, and it's unfair to her, and it's insulting to people who are fighting real battles.
Amanda Miller69 said:I find it hard to believe he’s actually the type of guy who would use something like this as an excuse to end things; that just feels like a cheap shot. Honestly, my take? He probably just doesn't want to be tied down to someone else when he has no idea how much longer he can hold it together, and he's trying to spare her the heartache. People can dig up a thousand different reasons to call it quits, but I have never heard anyone pull a stunt quite like this before.

I don't know, I just find it bizarre when someone plays both sides—acting hot and cold, asking for things via SMSom, and then suddenly deciding they don't want them anymore just because they're sick.

Taylor Fox6 said:I'm jumping into this thread too.
We’ve only been together for a month, but in that short window, we've packed in enough experiences to feel like we've been a couple for an entire year.
And yeah, I'm a skeptic.
And yeah, I don't trust him either.
Oh yeah, I told him.
So he’s actually going to send me an SMS telling me to just forget about him? Seriously?
And then, after all that back-and-forth—all that endless, tedious dithering—he finally calls me up. He has the nerve to tell me it’s not over yet, but then follows it up by saying I need to stop being so suspicious.
So, he actually had the nerve to text me on Wednesday night asking me out on a date. This was right after I laid all my cards on the table and told him exactly how I felt about him. And get this—he tells me he didn't even believe me all this time. He claimed he thought I was just playing games when I told him how much I cared about him and that I'd fallen for him.
He said it again yesterday—he’s still sitting there waiting for an answer to his question (whether I’m actually going to marry him or not).
I don't accept those kinds of half-baked excuses—not unless I'm looking someone straight in the eye. So now, I'm just counting down the days until the weekend. Once he's back from his trip, we'll see if he actually manages to scrape together enough courage to face me. Apparently, he's too terrified to ask me anything directly.
Mom's in infectious disease ward :( in Health ·
Grace Lewis6 said:She was at the infectious disease ward. Honestly, I'm at a loss. I talked to the doctor, and she said the liver enzymes are borderline, blood work looks fine, and they're scheduling an ultrasound for tomorrow. Apparently, it's not an emergency since there's no fever today and she's feeling alright... I brought up sepsis, but the doctor just brushed it off, saying we'd already know if that were the case.

Well, I guess she's the expert. Everyone will suddenly be a genius once that ultrasound results come back tomorrow. At the end of the day, the main thing is that Mom is feeling better.
Mom's in infectious disease ward :( in Health ·
Grace Lewis6 said:Do you really think those symptoms line up with an inflammation that severe? About ten years ago, she had her last seizure—it was easily the most brutal and painful one yet. They were actually getting everything ready to wheel her into surgery, and then, out of nowhere, it just stopped 🙄
And she ended up calling off the whole operation...
Man, I don't know, I was honestly hoping they’d have some real answers by today!

I think that's a very real possibility. You absolutely need to tell the doctor right now if you haven't already, because if we're looking at sepsis, treatment has to start immediately. They need to get that ultrasound done ASAP!
Mom's in infectious disease ward :( in Health ·
Grace Lewis6 said:Swine flu is off the table. Now they're fixated on a new symptom because this bright yellow, loose stool showed up...
My mom has always struggled with her gallbladder and stones, but she hasn't had an attack in years. She isn't even complaining about abdominal pain right now. She was diagnosed with fatty liver last year, and apparently, today's liver function tests were right on the edge. She’s heading in for an ultrasound tomorrow... The doctor floated the idea of hepatitis, but didn't specify which type. I'll be heading up there around 2:00, so hopefully, I can squeeze some more actual information out of them!


It's entirely possible she's dealing with cholecystitis triggered by those stones. My own mother went in for a routine gallbladder surgery, and they didn't even realize things were inflamed until they actually opened her up. She hadn't felt a single thing wrong beforehand.
Taylor Fox6 said:Honestly, I just found myself getting sucked into this thread.
Yesterday, a guy I’ve been seeing for two months called me up and dropped the bomb: he has lung cancer. His doctor told him yesterday that he might only have a year left to live... and apparently, it’s all because he was careless and didn't stick to his treatment schedule.
The worst part is, in just those two months, we went through more together than most people do in two years of dating. It was intense.
Of course, I was in total shock, and it hit even harder when he told me to forget about him and stop looking for him.
Even though I told him I’d be right there by his side, he just won't have it. It crushed me even more when he said he doesn't have the strength to fight anymore—that he’s given up and sees no point in trying.
I don't know what to do..

Good grief😢...what kind of therapy was he on, and what exactly was the diagnosis?
I happened to read your post on another thread, and I have to be blunt: everything you wrote about him sounds pretty bizarre and frankly, incredibly shady on his part.
Are you 100% certain he's actually sick, or is this just some elaborate excuse to dump you? Seriously, you meet all kinds of people these days who will spin any lie imaginable just to get exactly what they want.
Proposed bill on IVF regulations in Women's Health ·
I can't help but wonder how many abortions our Secretary performed during his years in gynecological practice, especially considering he talks a big game about being a devout Catholic.😳

And as for San Francisco, they should honestly take that neglected property they have out in Appalachia and turn it into a hospice for cancer patients... it would be a much better way to actually live out all that dignity and faith they love to preach about.
Mom's in infectious disease ward :( in Health ·
Grace Lewis6 said:Yeah, waiting on test results is the absolute worst part...
I’m heading up there in about two hours, so I'll check back in later once I have more info. Let's just hope it isn't anything major; if we need to scrape some cash together to fix it, we'll find a way. 🙂

Look, whatever turns out to be the case, you're in good hands.
Mom's in infectious disease ward :( in Health ·
Grace Lewis6 said:Hey everyone!
I need help, I need some comfort, or maybe just some solid advice—honestly, at this point, I’ll take all three.
They held my mom at the local hospital today. She woke up this morning running a fever—around 100.4—and dealing with this weird sensation in her head, like there’s some kind of pressure right at the base of her skull. On top of that, she was feeling pretty weak and her stomach was acting up a bit, but those were basically the only symptoms.
They only decided to admit her because the doctor brought up potential complications. I mean, she’s been running a fever since Wednesday—it lasted for two days straight—and then she felt totally fine for three days before this happened.
She already had an MRI, which was fine. Now they’re performing a lumbar puncture just to rule out meningitis. They haven't even gone for blood work yet...
I'm heading there soon for a visit. Does anyone have any actual, useful suggestions on what I should check out?

Look, I’m already stressed enough about the whole public health situation, but there's another massive headache looming over me: my mom doesn't have health insurance. That's a whole other nightmare we can dive into later. 😠
Does anyone have a ballpark figure for what this would run me? I'm looking at things like two nights in a hotel, medication, and the main diagnostic tests.

Thanks for the replies. I need some help here. 🙂

You can't call anything without blood work and a spinal tap. Until then, we have no idea if we’re even looking at an infection or something else entirely.
When it comes to social services... man... I know a guy who didn't have any extra coverage and ended up footing the entire hospital bill himself. It was a massive hit. $667 She’s looking at a week of bed rest. Honestly, the total cost is going to hinge entirely on what she actually ends up needing—it all comes down to the diagnostic tests and whatever her specialist charges for those services. If you ask me, the room rate and meals will be the cheapest part of the whole ordeal.
Proposed bill on IVF regulations in Women's Health ·
This might be more suited for a legal forum or a pregnancy group, but it hits right at the heart of women’s healthcare.
I just can't sit here by myself without expressing my absolute disgust regarding this proposed legislation. It feels like it's going to be shoved down the throats of any woman who has had the misfortune of dealing with a severe inflammation or health complication that leaves her relying on IVF to conceive.
Beyond the anger, I’m genuinely terrified. If this law actually passes, it feels like we’re being dragged back into the Dark Ages. Honestly, it could be the opening act for a future where they start installing cameras in our private rooms and banning anything outside of traditional marriage.
As for those who were "lucky" enough to find husbands and want to conceive, they’ll be forced to endure the grueling, painful torture of egg retrieval over and over again for every single attempt, instead of being allowed to freeze their eggs once and simply use them for future implantations.

Living with endometriosis, I feel incredibly vulnerable right now. I can't help but wonder what's coming next—what else will they try to force upon us or strip away when it comes to our basic bodily autonomy and personal health?
😠
Carol Mitchell86 said:Thanks, I really appreciate it. I’ve spent so much time digging through everything on the website, and honestly, it’s been eye-opening. It is such a relief that a resource like this actually exists. Being from Canada, we don't have many reliable places to turn for info—which is basically a polite way of saying we have absolutely no way to prepare ourselves or her for what we're actually up against.
Surgery is scheduled for next week. We met with the doctor yesterday, and she was blunt: they won't be able to get the whole tumor out because of where it’s sitting. It's in a tough spot. We won't really know what we're actually dealing with until the pathology report on the tissue comes back.
Her vital signs are totally fine—she’s talking normally, walking around, thinking clearly. Her only real symptom was those headaches, which were absolutely brutal, but they've cleared up now. When you look at her, you honestly can't believe there's something that terrifying inside her head.😢

Look, we didn't have any reliable sources of information either until we started consolidating our own data. We had to take matters into our own hands—translating foreign websites, launching our own page and forum, and basically creating a pipeline so that firsthand information could actually start circulating.
My advice—and this is the same advice we all give at the For a New Day Association—is simple: don't sit around waiting for someone else to step up and do what needs to be done for you. Don't wait for a savior. Unlike us, you actually have plenty of people to model yourselves after without having to deal with any language barriers. Take the initiative.
Maria Lee54 said:It’s been a while since I last checked in here. Last time, I mentioned things were taking a turn for the worse, and I was doing everything humanly possible to jumpstart the next phase of my treatment. I have spent exactly eighteen months waiting for a response from that clinic in Canada where I had my initial surgery. Since then, they haven't given me a single straight answer as to why they won't take me back for further treatment. To give you some context: I have a brain tumor located deep within the skull—a rare diagnosis that simply can't be treated surgically here in the States. Getting treatment in Canada was fully covered by Medicare, so there weren't any financial hurdles there, but clearly, that wasn't enough for them. It seems like because the money wasn't lining their pockets, they aren't interested in helping the person whose life might actually depend on it. My doctor showed me he knows what he's doing, but now he's just sitting around waiting. He doesn't seem to mind the wait, which is honestly pathetic. My latest MRI and angiography scans show a large tumor in the posterior fossa that absolutely requires surgery. Three different clinics were suggested, and the specialist at Mount Sinai Hospital decided on the option in Bruxell. He insists he can handle all the Medicare paperwork without an issue, explaining that performing this specific surgery here in the US isn't technically feasible. So, here I am again, facing this crushing uncertainty that I'm desperate to shake off. Now, I just have to wait and see what the options are in Bruxell and whether they will even accept me. I won't get into every single emotion swirling around inside me right now, but yesterday, I finally hit my breaking point. I broke down completely and walked through the entire hospital, sobbing my way toward the exit—something I haven't done once in these three years. I guess sometimes you just have to let it out. I was deeply moved by the compassion and genuine concern shown by my neurosurgeon; he’s a truly great man. After that, there was a bit of fear, too—I’m well aware of all the potential complications—but I’ll keep trying to stay positive, like I always do. I’ll check back in once I get the news I'm praying for regarding whether they'll take me in at Bruxell. Sending positive vibes to all of you.

Hang in there, girl! Everything is going to be just fine. We're all thinking of you.
Something wrong with my lungs??? in Health ·
Megan Gray said:Is this normal? For the last few days, I've been feeling this pressure in my chest, like it's being squeezed, and my breaths feel shorter than usual. It's especially bad when I'm lying down. I had mild bronchial asthma as a kid. I don't smoke.
Could this be because of all this humid weather, or should I go see a doctor?
Has anyone else dealt with something similar?

thanks.

Sounds like asthma to me. Go see a doctor.
Carol Mitchell86 said:Thanks so much, Angela Wright. So, the final diagnosis isn't actually set until after the PhD analysis is complete.

Exactly.
Period talk: Questions and advice in Women's Health ·
You should really sit down with a gynecologist to discuss whether birth control pills might be a good move for you. It’s honestly not as scary as people make it out to be, and it could actually help get your hormones back in balance. Have you gone through any hormone panels or had an ovarian ultrasound yet? It’s entirely possible you’re dealing with PCOS.
Carol Mitchell86 said:My mother had a head CT yesterday. She’s been dealing with intense headaches over the last few months, and about two weeks ago, she actually collapsed—everyone suspected a stroke at the time. The CT results came back suggesting that the findings most likely point toward a glioblastoma. She’s scheduled for an MRI today. Can anyone tell me if there's any chance this isn't a glioblastoma? Is it possible for a CT diagnosis to be wrong?😢

The only way to get a definitive diagnosis is through a PhD-level analysis of a puncture biopsy or tissue samples removed during surgery. Scans like a CT, PET CT, or MRI can only point toward a tumorous mass; based on how it looks and where it’s sitting, a doctor might use their experience to suspect a specific diagnosis, but that's just a hunch. The PHD is the absolute alpha and omega when it comes to establishing a tumor diagnosis. It’s the beginning and the end of the entire process. Basically, it all comes down to tumor typing. The specific type of tumor dictates exactly how you approach the treatment.
If it turns out this is glioblastoma, you need to understand one thing: nothing would have changed even if we had caught it a month earlier right at the starting line.
Harold Ramos67 said:We got the pathology results back today: Glioblastoma multiforme grade IV.

😢 I am so incredibly sorry.
Harold Ramos67 said:The tumor was diagnosed at an inoperable stage. Despite the family's intense pressure, they pushed ahead with surgery anyway, and they managed to excise a portion of the tumor tissue. Even so, the prognosis remains grim...

Honestly, we’d probably try anything—whether it’s some experimental drug in clinical trials, bioenergy, or even a folk remedy. It doesn't matter what the previous results were; the truth is, we're running out of time, and frankly, we have nothing left to lose.

You can bleed your bank account dry and absolutely exhaust someone who desperately needs peace and dignity. Watch your step out there, because most of what you’ll run into are nothing more than charlatans. They don't give a damn about the patient; they're just looking for any way to squeeze every last cent out of them.
Brain tumors—whether we're talking malignant types like astrocytoma, glioblastoma, or gliosarcoma—always come with a grim prognosis. But listen, just because the statistics say one thing doesn't mean you have to be a slave to those survival averages. You don't get to define your own ceiling based on a spreadsheet. I know people who have been living with this diagnosis for years, fighting through it using conventional medicine while simultaneously overhaulng their entire lifestyle, especially when it comes to diet. If you want to dive deeper into how to take control, I highly recommend picking up this book. David Servan Schreiber's "Against Cancer."I’m a doctor myself, and I was once staring down a brain tumor diagnosis. Fast forward 17 years, and I’ve been in remission the whole time. There is some incredibly fascinating insight here that will show you the right way to navigate the fight against this brutal disease.

rustyangler7 said:Hey everyone.
My seventeen-month-old cousin was a mess before he ended up in the hospital. He had a massive fever, was drooling constantly, coughing, and broke out in this rash all over his body and throat. At night, he couldn't even settle down; he was tossing and turning like crazy, just fighting sleep. By the next day, he couldn't even stand on his feet anymore—he could only crawl on his knees. Right now, he's being treated with IV antibiotics three times a day, and that's been going on for four days.
All scans of his vital organs are coming back clear. He’s responding well to the antibiotic therapy, stays cheerful, eats, and sleeps like a baby. He’s starting to interact more—reaching out with his hands, pulling his legs toward him, even wiggling his feet and toes. He still can't put any weight on his legs just yet, though.
The sedimentation level was 76.

So, did he actually get a diagnosis? It’s not like they should just be throwing antibiotics at him and hoping for the best. To me, it feels more like... Meningitis is a brutal, aggressive beast. It doesn’t just knock on your door; it kicks the whole house down. You’re talking about inflammation of the membranes surrounding your brain and spinal cord—basically, the protective casing for your entire central command center. When that gets irritated by bacteria or viruses, things go south incredibly fast. It’s like a short circuit in a high-voltage power grid; one minute everything is running smoothly, and the next, the whole system is sparking and failing. If you’re dealing with bacterial meningitis, you aren't just looking at a bad headache. You're looking at a medical emergency that demands immediate intervention at a place like the Mayo Clinic. We're talking intense fever, a stiff neck that feels like concrete, and light sensitivity that makes even a dim room feel like staring into the sun. If it’s viral, it might be slightly less lethal, but it can still knock you sideways for weeks. The bottom line? Don't play games with it. If you suspect it, don't wait for an appointment or try to "sleep it off." Get to an ER immediately. Speed is the only thing that matters when your brain is under siege.I also heard about this virus that attacks the nervous system and essentially hijacks the body. Since they’re treating it with antibiotics, it’s most likely just some kind of bacterial infection manifesting itself that way.
Harold Ramos67 said:I was hoping if anyone knew anything about this, they could get back to me.
The main thing we're looking for is info on how to access this medication as quickly as possible.

Here’s the published study: http://www.slu.edu/readstory/more/2171

Since this came out way back in 2003 and nothing groundbreaking or sensational has surfaced since then, you have to assume the study didn't yield results any better than what's already being offered as the standard protocol drug.

edit: here are the results http://jco.ascopubs.org/cgi/content/abstract/24/22/3644

Out of 17 people, only 2 saw tumor regression and stayed clear for the next 30 months... unfortunately, it's nothing better than what you currently get from Temodal.
Susan Diaz91 said:Please, could you let me know where you bought that? How many pieces are in a pack, how many days does it last, and what’s the daily dosage?

My mother just finished 9 rounds of chemo—and she’s already dealing with heart issues—and her heart actually started enlarging because of the treatment, so they had to halt everything.
Right now, she’s on IV drips for her heart, waiting for the medical board to decide if they can even continue with the treatment.
The cancer hasn't spread further, but an MRI picked up three tiny metastases (less than 1 cm—I have no clue what "tiny" means in doctor-speak 🤷)—two in the cerebrum and one in the cerebellum.
They mentioned it depends on which part of the brain is hit, but since she’s lost her balance (and the balance center is in the cerebellum), she keeps getting disoriented, so they think the memory center in the cerebrum might be involved too.

So, I'm looking for every bit of info on Tarceva—if it isn't too much trouble, please let me know.

Thanks.

The balance center is actually in the inner ear... the tumor causes edema, which builds up pressure in the head. That’s why you get those neurological glitches, like losing your balance, messing with short-term memory, or losing your sense of time.
Comatose state in Health ·
If they think he needs a stay at Palm Springs, then he should go. You all can just come visit him there. It’s great news that his condition has stabilized. The brain needs time to heal, and you have to be patient and commit to a lot of physical therapy—which is exactly what he’ll get at a place like Palm Springs.