restlessangler said:Hey,
first off, thank you so much for getting back to me.
That’s actually why I did some digging—everything came back negative for Lupus. I don't know if you can see that picture under my face, but that's for the dsDNA. Later on, my dermatologist—well, she told me—said we're ruling out Lupus and that it's just seborrheic dermatitis.
Sometimes you run into these overlapping conditions where you end up showing symptoms and lab results from one autoimmune disease alongside things from another. It's confusing, right?
You really need to comb through all your labs. If they weren't testing you during those specific flare-ups—you know, when the skin issues, stomach pains, or fevers hit—did they at least check your ESR and C3, C4, and total complement levels? Those are your big indicators for autoimmune activity, along with the usual stuff. Honestly, ESR isn't even a routine test at many clinics anymore because everyone just uses CRP instead, but let's be real: you don't get the same level of detail from both. They aren't interchangeable!
Look, if your results show high ESR combined with low C3 and/or C4 and/or low total complement, then you have strong evidence of an autoimmune issue involving immune complex formation (Lupus being one of them). At that point, you have to be persistent—really push—to figure out exactly which one it is.
Make sure you get your thyroid hormones checked (T3, T4, TSH). If those suggest a thyroid problem, you'll need an ultrasound and tests for Anti-TPO, Anti-Tg, and Anti-TSI—though I'm not entirely sure which local lab handles those specific ones... Looking back, if you were ever seen in endocrinology, they probably already ran most of this (at least the basic thyroid panel).
One thing you definitely should have by now is your CBC. Go through your records and check how many of them show low values for WBC (white blood cells), platelets, lymphocytes, or RBC (red blood cells). Also, check your urinalysis: look at what it says next to protein. If you haven't had one done in a while, go ahead and redo it.
And if you've ever had a biopsy done on any of those skin patches, make sure you get the actual pathology report.