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Posts by brightgardener8

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feralridge3 said:I’m currently taking native propolis, but honestly, those capsules are disgusting. Every time I try to swallow one, my stomach just turns. 😲 Next time, I think I'll just grab some drops.

One more thing,
will Temodal make my hair fall out?

Just dump the contents of the capsule into some yogurt and wash it down—it’ll be way easier on you. And just a heads-up, propolis drops aren't the same thing as native propolis; the concentration is usually much lower.

As for the hair? Yeah, combining Temodal with radiation is definitely going to cause hair loss, and honestly, even Temodal on its own will likely do the trick...
Angela Wright said:Dr. David Servan Schreiber is an internationally recognized clinical professor of psychiatry at the University of Pittsburgh School of Medicine and a co-founder of the Center for Integrative Medicine. He’s also one of the founders of the American branch of Doctors Without Borders—who, by the way, won the Nobel Peace Prize 1999—and he wrote the bestseller Against Cancer - New Way of Life, which focuses on managing stress, anxiety, and depression without relying solely on meds or psychotherapy.

...

The book actually goes way deeper than just the highlights I mentioned; it's packed with real-life stories from people he's treated, plus useful charts and data regarding nutrition and other vital info.
To wrap things up, I want to emphasize something he constantly hammers home: how much psychological support from your family and inner circle matters. It truly makes a massive difference in getting a positive outcome when you're fighting a disease.

Can you tell me the title of the other (blue) book by d. Schreiber?
Amanda Miller69 said:In case anyone actually cares about this:

http://www.chicagotribune.com/lifestyle/health...B48777BC0326.1

The renowned French neuroscientist and psychiatrist, David Servan-Schreiber—who basically laid it all out in his book 'Against Cancer - New Way of Life' regarding his own fight—is giving a talk at Mimara on February 26th.

Angela Wright said:They didn't even mention if the talk starts at 7 PM.

I'm going. I need to figure out how he pulled off what he did when we couldn't. He was dealing with the exact same diagnosis as my Mom.😢

Did anyone actually make it to the lecture last night?
I ended up stuck in that crowd that showed up ten minutes late, and by then, there wasn't a single seat left...
wanderingharbor61 said:My mom lost her fight with melanoma yesterday. It was sudden—she just stopped breathing. One minute she was here, and the next, she just flickered out like a candle hitting the end of its wick.🙂

I feel for you, wanderingharbor61. 😢 If only someone could just bring our moms back to us... 😢
Amy Hayes28 said:My dad passed away for good.😢
thanks Jane and everyone who reached out to help us through this nightmare.

I am truly sorry for your loss. 😢
I know how hard you guys fought; at least your dad isn't suffering anymore...
Hang in there. 🙂
Man, this news just totally crushed me...
Dina9 really was the heart and soul of this forum. I truly hope that she—just like all our dear friends we've lost to this disease—is somewhere beautiful now, far away from all the pain and suffering.
My deepest condolences go out to Dina's family, her friends, and everyone who knew her.
Zendaya, I'm so sorry 😢
Thanks everyone for all the support 🙂
Hey everyone,
Over the last 20 months spent hanging out on these boards, it’s been honestly tough reading about your losses. I really felt that weight because I knew exactly what you were going through, and I knew my turn was coming too.
My mom passed away yesterday. 🙂
She had been struggling for way too long, so if I'm being real, there's a small part of me that feels relieved she isn't suffering anymore.
I truly hope she's in a better place now.

Things just aren't going to feel the same without her around.

I'm wishing all of you nothing but strength as you fight through these hardest battles life can throw at you.
Grace Fowler said:I'M STILL HERE AND I'M STILL FIGHTING, I HAVEN'T GIVEN UP!!!!👍

I’ve actually spent the last few days scrolling back through this thread almost from the very beginning; honestly, it was pretty gut-wrenching to see how many people have come here and then just disappeared...
I don't know why I even do this to myself, but every single time I look, I end up in tears. 😢
We’ve basically taken all this pain and suffering and concentrated it into one single spot, but on the flip side, you can find an incredible amount of support and empathy right here—sometimes way more than what we get from the people we deal with in our day-to-day lives.

Grace, I've seen you in this thread since the very start. We've been through absolutely everything, but you never, ever waver.
I really hope you keep that same fire going! 🙏
@Diana, don't let them get to you! Seriously, major props for staying so strong. 🙂

@casualpanther1/">@@casualpanther1, it's been a minute. What's the vibe over on your end? Everything holding up okay?
quietpilot87 said:My mom passed away this morning.

quietpilot87, I am so sorry for your loss.
briskscout583 said:I need some intel:
1. which facilities are actually decent and professional (not just when they're trying to impress visitors)?
2. what's the damage looking like cost-wise?
3. where can I actually find an opening?
4. any other solid advice?

1. honestly, most places act way more high-end than they actually are.
2. expect to shell out around $4,000-$2.00 per month.
3. try calling the homes on that list Angela Wright posted.
4. once you narrow down your choices, if you can, talk to people who already have family living there. That’s how you get the real story on the service quality. Also, ask about their nurse-to-patient ratio. It sounds technical, but quantity matters just as much as quality—most places struggle with being understaffed.

In the facility where my mom stays, the owners won't even spring for a dishwasher, so instead of actually looking after patients, the nurses are stuck washing dishes!
quietpilot87 said:Today just completely wrecked me 😢
...
My dearest, my everything... 😢

🙂
Amy Hayes28 said:What am I even supposed to say? Honestly, I don't know what to write to you guys... I'm just sitting here reading through everything.
...
We’re all just completely losing our minds here. Mom has turned into an entirely different person. Honestly, I can only hope that once Dad passes away, things might finally settle back down to some kind of normal. That's just how it is. God forbid anyone else ever has to deal with this kind of evil.😢

I was wondering where you’d been... honestly, everything makes sense now. We are going through an absolute nightmare right now. I just really hope we can get back to some kind of normal one day.
Jonathan Doyle55 said:Unfortunately, we didn't pull it off, and my mother has been diagnosed with metastases. We've been briefed on what comes next, and let's just say it’s not going to be pleasant. Since she lives alone, we're debating whether it's better to arrange for someone to move in with her or if we should place her in a high-quality (humane) facility where she can get proper care until the end, allowing us to visit her every single day.
We went through something similar with my father, but back then, the decision was made to keep him at home. The issue was that we couldn't provide the level of medical care he needed, so I honestly feel like he suffered more even though he was right there with us...😢
Does anyone know or have a recommendation for a good nursing home or facility in New York City? (Specifically, they won't take her at the local hospital because they don't have room for patients in this condition, and neither does the MD Anderson Cancer Center)..thanks in advance..🙏

I am so sorry you're going through this stage...
From my own experience, I can tell you that there probably isn't a facility out there that will fully meet your requirements for proper care. No matter which one you pick, they’re all going to present themselves in the best possible light during the initial tour. Maybe the smartest move is—if you can manage it—to actually talk to a current resident or one of their family members. That way, you find out what the conditions are really like from a first-hand perspective.
The staff will obviously promise you the moon and the stars, and it’s heartbreaking when you realize pretty quickly that you're dealing with charlatans and the person you entrusted to them is suffering because of their lack of professionalism, negligence, or something similar.
I can send you a private message about the facility where my mom is staying—one I wouldn't recommend to anyone, even though we ended up placing her there because we heard nothing but glowing reviews. Unfortunately, she's in such a state now that moving her isn't even an option.

Ideally, it's probably best for a mother to be at home with her family, but I totally get that it’s not always feasible. Most of us have to work, leave the house, and our homes aren't equipped with the necessary setup to handle patients this ill.
I tried the home route, but when Mom was in those critical states where she needed to be hooked up to machines or given an IV, I found myself wondering what would have happened if she had stayed home instead...
Maria Jones40 said:It’s honestly pathetic. I just don't know who fed these poor souls the idea that everyone is out to get them, based on nothing but urban legends and hearsay that lacks any real foundation most of the time. You can't judge an entire system based on a few bad actors.

Go ahead, keep praising your flawless doctors and the perfect healthcare system. Keep hoping—really, put all your heart into it—that you won't end up on this side of the fence, where we're currently talking to you.
And if you do find yourself here? You'll be clawing at the walls trying to make something happen, just like the rest of us.
Maria Jones40 said:That’s pretty much the one thing you can actually do for a colleague.

Oh, fantastic! So what you're basically saying is that doctors are some kind of higher species, and their health, their schedule, their nerves—all of it—is somehow more precious than ours regular folks.
👎
Maria Jones40 said:Yeah, there's this constant pattern of trashing doctors and medical staff. It’s not just happening now, either; it’s been going on forever. People throw out these massive lies and call for some kind of "confrontation" with their doctors, which is honestly just plain rude. It's totally uncalled for. And you’re actually suggesting this lady should be aggressive toward them?
...
I always thought this forum was meant to be a psychological support system for patients and their families, not a place where people flex their "medical knowledge" or find every possible way to smear the professionals who are actually trying to help you.

Look, it's obvious everyone here is just digging in their heels to defend their own side. But let's be real: if you ever end up in the same boat we're all in right now—which, by the way, I hope you never do—you'll never be on the same level as us regular folks. To them, you’ll always just be a colleague from the industry. That means you'll get info easier and more doors will swing open for you. Let's face it, the treatment is just different.

It’s not rare to see a waiting room packed to the gills with people, all fighting cancer, only to have some doctor's colleague walk in—who's also sick, mind you—and bypass the entire line to go straight into the exam room. For her, waiting just doesn't exist.
And that's just one example, probably the most obvious one.
frozencobra25 said:My dad lost the hardest fight of his life this morning at 6:10 AM.

Everything still feels a little surreal. No matter how much I knew how this was going to end, or how much I braced myself for it, the moment still hit me way too soon.

I am so sorry for your loss, frozencobra25. 😢