Posts by cosmicsurfer7

Kyle Cruz8 said:Actually, my bad, I meant Dr. Darko Marđetko

fajterica;15107863 said:I have to say, I was actually pretty shocked by how chill the guests were in the studio. I’m honestly bummed I didn't get a chance to bring up the whole issue with medications that aren't covered on the approved list.

It felt like the host was being a little too soft on them, if you ask me...

At least we gave the Department of Health a real wake-up call. I really hope they got the message that we aren't backing down and we won't let them treat us like we're clueless.[/Q

NEW YORK CITY IS STUNNED! WAY TO GO!🙂

velvetmason35 said:I just stumbled onto this thread, so if anyone here knows their stuff, let me know—I’m actually taking both of these right now...
I know I’m totally in the wrong spot for this, but since I'm already here, I figured I'd toss out one more question.
I’ve been dealing with some nerve inflammation, so my doctor put me on Medrol.
The thing is, I've also got these weird tingling sensations in my hands. According to my doctor, those should be going away, but I'm also taking Ketorol (dealing with some pain after a recent spinal puncture), and the label says tingling is a super common side effect. So, which one is it??

slyseal28 said:So, I finally met that Dr. Slavoj Žižek today. She reached out to us through the Patient advocacy group and sent over some write-up about this Inocell stuff, and then we actually bumped into her while we were heading back from the Rib. Honestly? I wasn't feeling it at all.

The first thing that rubbed me the wrong way was her claiming this drug is great for every single type of cancer. Like, a universal cure???

Then, she goes on about how back in the 90s, she had cystosarcoma and turned down surgery and standard treatment, choosing instead to heal herself just by eating right (no meat or fish, just fruits and veggies). I did a little digging on that specific tumor and found out there’s both a benign and a malignant version.

Since she didn't show me any actual medical records, it’s hard for me to buy that she was dealing with the malignant kind. But hey, that's just my take. Call me a Doubting Thomas if you want.

On top of that, one tiny little bottle costs about $122. I totally forgot to ask how many capsules are even in there. As for the Pigeon, she immediately told him he needs to take 8 capsules a day, even though she hasn't even looked at his medical history yet. Then she had the nerve to insist that I bring his documentation in. That part really annoyed me.

Maybe some of you will have better luck or actually like her. I just wanted to be real with you guys and share my experience.

It feels like everyone is just looking for a way to make a buck off oncology patients, and honestly, it gets under my skin. It’s just not right.

Sorry if I stepped on anyone's toes with this, but I figured this forum is exactly where we should talk through these kinds of dilemmas together. Maybe I'm totally off base...

Hannah Wells30 said:This is the diagnosis my friend's husband received.
His wife is in a coma, she just won't wake up, everything happened so fast...
Surgery isn't an option, so they're looking at radiation and chemo.....
Does anyone know anything about this disease... any experiences from families dealing with it...
THANKS FOR ANY INFO!

Linda Peterson37 said:Back when my dad was going through his treatment, we ran into this attitude from doctors and medical staff constantly. I honestly felt like anyone who had to deal with our hospital crew should just stay far away, and I still feel that way today. Sure, there are exceptions, but looking at the big picture? It’s a total disaster👎.
When our whole family was at our absolute lowest—just feeling miserable, helpless, heartbroken, and terrified, with a million questions running through our heads—the nurses and doctors just made everything harder. They were arrogant, and they used rudeness to mask the fact that they didn't actually know what they were doing.
They weren't even tracking my dad's progress. The afternoon shift would have no clue what happened during the morning shift, or vice versa. Everyone just acted surprised whenever you asked them a question or, God forbid, actually demanded something.
During those last few months while Dad was in the hospital, I didn't meet a single person in the healthcare system who showed even an ounce of genuine desire or enthusiasm to actually try helping. A complete mess!!! 😠😠
Don't get me wrong, I wasn't looking for a shoulder to cry on or expecting them to empathize with me or anything. I just wanted straight answers to the medical questions I was asking. But instead, it always ended with these snappy, aggressive responses, basically telling us to mind our own business, acting like they knew best, or saying things like, "Well, what do you want us to do now?" or "Can't you see the situation he's in?" or "What are we supposed to do about it?" etc.
One time, Mom just reached her breaking point and snapped at them, and after that, the nurses stopped rolling their eyes every time we asked something.

People are always talking about how low the pay is in healthcare, especially for nurses and all that... honestly, I couldn't care less!!!! I have a pretty tight paycheck too, but I have never—not once—been rude to the people I serve (and my job is literally being around people non-stop). I always listen with a smile, no matter how fed up I am or how little I'm making.

For a long time, I seriously considered suing them for some of the stuff they pulled.

Hannah Wells30 said:I don't want this to look like an ad, so just shoot me a DM.

shadowmason6 said:I've got two quick practical questions here:

Who actually writes the referral for marker testing—your regular GP or an oncologist???

Also, does anyone know if the tumor clinic accepts blood work done at an outside lab, and which specific tests they usually need?
Basically, I called them and the lady on the phone was super dismissive with me (I guess they’re just swamped, unfortunately), but my nutritionist suggested checking this out so we could maybe speed things up a bit...

Thanks!

Frank Taylor4 said:Instead, try IP6 & inositol. It’s been clinically tested and works wonders when dealing with chemo or even treating cancer itself!!!
You can reach out to Dr. Jordan Peterson at 555-012-3456.
You won't regret it!

Hannah Wells30 said:There’s this super cheap thing that actually works for boosting your immune system—colloidal silver. You can pick it up here in the States, and it definitely helps with immunity and dealing with various illnesses and stuff.

Linda Peterson37 said:Hey everyone,
I’ve been spiraling into this dark headspace lately. Honestly, part of me feels like I shouldn't even post these thoughts because I don't want to bring anyone else down, but there are just a few things weighing on me that I need to get out there..
My dad is going through radiation right now, and to be honest, he hasn't been doing great the last few days. But I really believe that once the radiation is over, we'll see that it worked and helped him enough to turn things around. He also had chemo yesterday, and I think all of that combined just totally drains the body, which is probably why he's feeling so rough lately.

I was reading where Ivanna mentioned in some posts how her mom’s illness acted like a filter for the people in her life, and man, I totally feel that. It makes me want to say how much I thank God every single day for my family—for how we look out for each other, care, and love one another. I'm so grateful for my mom and my brother, who help me out while I try to help them, just so we can all stay somewhat sane. And then there's my husband, who is just so incredibly understanding of everything I'm going through. I honestly don't know if I'd have half his patience, love, or attention if the roles were reversed; he looks at me with the same love whether I'm happy, sad, a total mess, or completely desperate. Then there's my best friend who takes me for walks, makes me laugh, cheers me up, and gives me a hug without me even asking—she's just always right there. Plus, my small but amazing circle of friends who are available anytime, day or night, and this community here where I find endless empathy and support.
When I sit back and look at it all written out—man, who else do you even need? It's true. I don't need anything or anyone else, besides obviously wanting my dad to get better. But I'm only human, and certain things just hit hard. It's tough not to let them get to you. I'm mostly thinking about certain people in our extended family circles who haven't even called in months to check on my mom. Or people who call but don't even bother asking about my dad. Or those folks who finally reach out after ages just to lecture my mom on what she "should" be doing. Then there are the ones you run into at the grocery store who act all curious and concerned, yet they never actually call or stop by. Or people telling my mom she needs to reach out to certain relatives to mend old family ties that were broken a long time ago... yeah, it's just a lot.
And the more I dwell on it, the more depressed I feel....
Sending love to you all.