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Posts by Kate Williams41

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Psoriasis [PLEASE READ FIRST POST!] in Health ·
Thanks for all the replies everyone... it really feels like there's a wave of optimism flowing through here right now...😍
This... thread has really come back to life lately... there's just this positive energy in the air... maybe Rose brought it with her👍... who knows.. or maybe everyone's just getting back from their summer vacations in California😁 but either way.... it's a great change of pace...

Oh man, I'm heading out in a week! Yippee, I am so happy.. and honestly.... I'm totally feeling that same positive vibe.. we'll see how things turn out though... you know how it is.. everyone keep your fingers crossed for my fish therapy session... hmm....🙏

Best to everyone... =)
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Linda Chase81 said:Plus, it drives me absolutely crazy that it showed up on my legs too, so now I can't even wear dresses. 😢 I never used to have issues with my legs before. 😢

It’s honestly terrible how uninformed people are. It makes me so mad that there aren't more shows on TV about this, and that psoriasis is still treated like some big taboo. 😠 You don't even see it in those silly medical dramas—I've never heard or seen anyone with psoriasis or psoriatic arthritis on screen. 🤷

Oh man... I went through the exact same thing last year when it spread everywhere. Total nightmare! Every single tiny thing that didn't fit was tossed straight out of my closet immediately. I didn't want to deal with the heartbreak of opening it up and realizing I couldn't wear my clothes anymore. Just awful.
I totally agree with the other point... seriously, it's infuriating!! But, if I'm being honest with myself and assuming people actually *are* informed... well... people would still stare. We have to admit it, even if it's hard to swallow... psoriasis just doesn't look pretty.
Sometimes my sister tries to cheer me up. Like when I clear the scales and they stay away for a while... like right now... she'll be like, "Wow, your legs look amazing!" 😂
I don't know if you've heard this, but someone once told me, "Red is a beautiful color, just not when it's on you!!!" Such a blunt way to put it... right, people?
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Betty Allen15 said:The main thing is just respecting and loving yourself exactly as you are. Try to live your life normally, and you'll notice those weird looks from strangers a lot less. I don't know what depression feels like because I never let anyone—not even an illness—control my life. So, don't let depression or a bad headspace take over. I’ll just put on a CD and dance all morning, wearing skirts and short sleeves regardless of how things look, and if people stare, I just smile at them. I've hit 54 without ever dealing with depression, and I still feel the same way. I talk about my psoriasis much less now. I have a family of seven—husband, two daughters, a grandson, and a son-in-law—to look after, so I don't have time to sit around wondering "what if" or worrying about what people think. You're young. There are so many great years ahead of you. Enjoy them. Leave the depression to someone else. Keep your head up; tomorrow is a new day.🙂

It's really nice to see how well you guys handle your condition....I get those moments too, but in the past, the depressions used to be huge.
I've noticed this thread has really picked up since you joined us, so... kudos to you! hehe...
I truly believe having family support helped you through all that... personally, I've been right on the edge of depression quite a few times because of one specific thought... the growing feeling that I might never be able to start a family because of this condition.... regardless of the people posting here or the spouses of those who are sick.. in today's world.. with young people.. I honestly don't think anyone would want to be with me because of this... that's why it's such a struggle to deal with.
I don't know how it is for everyone else.... there are plenty of young people here... how do relationships and psoriasis work together for you? Or maybe a better question... what about your sex life???

Hi everyone.....👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Alexander Rodriguez69 said:tel./fax:+1 212 555 0198
cell: +1 212 555 0142 herbal remedies from Whole Foods
give them a call, they might have some stock left somewhere
otherwise, "psorex" is 19 miles and basically "the elixir of life" 12 miles

Thanks so much!!!!!
Best!👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Betty Allen15 said:Hey everyone!🙂 I wanted to share my own journey with psoriasis. I've been dealing with this for 47 years now. It started when I was just 7 years old after a skull fracture left me with plaque psoriasis on my elbows, knees, and scalp. Later, after an appendectomy, it shifted into atrophic pustular psoriasis vulgaris. That means my fever spikes to 104, I break out from head to toe with pustules, and the pain and loss of mobility are intense. By the time I hit 20, it attacked my nails and joints—psoriatic arthritis. My nails used to fall off, and the cramping in my hands and feet was so severe that I'm now 80% disabled. During times of stress, my heels crack open and they never fully heal. Since I started treatment, I've been through every hospital imaginable, from places in California to major centers in Washington, D.C., and even some specialists in Chicago before the war. I've tried every ointment, pill, and corticosteroid injection out there. I’ve visited every herbalist I could find; things usually look okay at first, but then the flare-ups always come back. I live by the coast, so I swim and use St. John's Wort and olive oil, but as soon as winter hits, the psoriasis flares right up again. Four months ago, I was sent to Washington, D.C. to get a new, expensive biologic because I developed an allergy to corticosteroids. I had to complete a three-month course of methotrexate at 7.5 mg weekly, then bumped up to 15 mg weekly. My psoriasis has completely cleared up without any relapse, the arthritis has stopped progressing, and I'm pain-free. I have a follow-up in nine months where Dr. Smith will decide if I stay on this or move to biologics. So, that's my update. Since I've been through the ringer with this, feel free to reach out if you have questions. Best wishes.

Hi, Rose!! Welcome!
Man, I don't even know what to say... such a heartbreaking story, but sadly true.
A life full of struggle and pain... just like what I see in front of me.😢
Thank you for reaching out and sharing your story with us...
One question though... how much did that therapy end up costing you? You mentioned it's expensive? Hmm...
So... after all that hardship, you've finally reached a point where this disease isn't the only thing on your mind! Yes... but... things are finally looking up! That's wonderful!

Best regards
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Alexander Rodriguez69 said:I picked up some "Place" and "Life Med" (3 jars) today. It’s supposed to be a month-long therapy, but I'm ready to commit at least two months (fingers crossed) to this treatment and my diet. If I see results, I'll go even longer.
Hey everyone.

Wait, can you actually only buy that stuff in Boise???? It's nowhere else, literally nowhere!
That's kind of tragic...
Psoriasis [PLEASE READ FIRST POST!] in Health ·
So, I headed to the doctor today because I needed some test results sorted out for my move to San Francisco!
I've actually been living in Switzerland for a little while now, and whenever I need medical help, I just see this one specific doctor here... honestly, I'm so grateful for him.
He keeps saying he can't believe how our doctors back home don't take much more action regarding diseases like this... for my little fish, he just tells me not to rely on them, and he’s genuinely shocked that we usually have to pay for everything ourselves.
As he puts it... if I could get treated here instead, it would be so much better, and he's totally convinced of that!
Personally, I'm completely disillusioned with doctors... I really avoid going unless I absolutely have to... but I can see there are still good people out there!
This doctor, who isn't even obligated to take me on, basically treats me like his own patient... back home, not a single doctor does anything more than the standard routine of prescribing Elocom or Diprosalic.
The doctor here told me, just like I wouldn't bother going to the specialized dermatology institute back home, you can't exactly explain to people here that it isn't that simple, right?!!!
Believe it or not, he didn't even charge me for the exam—just the lab work for the blood tests, or maybe if he gives me a cream or something. Back home, those private sharks are only looking for ways to stuff their wallets. He even offered to ask a colleague dermatologist to give me a free consultation just to get a second opinion... I couldn't believe it.
Whether you believe it or not, there are still good people left in the world...

Best wishes to everyone... and have a wonderful holiday!👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
brightsailor4 said:Thanks so much for the reply. I'll give Place a shot. Honestly, it surprised me how many people here are fighting this nasty disease. Personally, I don't know anyone else dealing with this, so I really thought I was one of the rare ones. It feels a lot easier when you can actually talk about psoriasis with someone who gets it—people who have lived through it. Others just don't understand what we're going through or how it feels...
I'm not sure if anyone has heard of sulfur-rich water. A lady mentioned it to me while I was shopping the other day; she claimed she cured her son's psoriasis using it. Hard to believe, I know, but hey, you never know. Might be worth a try...

Unfortunately, I haven't tried Place myself. I have no idea how to get my hands on it!
....I totally get why you're surprised, but there are quite a few of us out there! I used to think the exact same thing—that I was one of the only people in the whole country dealing with psoriasis. Turns out, that wasn't true at all... This forum really helped me, though. At least it gave me a place to start talking about everything. Before this, I just didn't have the strength. I was feeling pretty depressed, even if that sounds like a heavy word to use...

As for the sulfur water... I remember reading somewhere that saltwater helps, like the ocean, and water with sulfur is good too. On the flip side, they say chlorine is bad for it. So, stay away from swimming pools!
I haven't tested that theory yet, though... If you find out where to get that water, let me know. I'm clueless!
Best,
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Michelle Parker3 said:Nothing much. Not even a basic tan. Just some sunbathing—well, more like baking in the heat—plus hitting the pool, and that's about it. It’s been a pretty mellow summer, honestly. What can I say? 😉


So, frying... does that mean you've actually gone and fried yourself?😂
Wait, did you just turn into a chocolate bar, Michelle Parker3? Haha!😁
👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Michelle Parker3 said:You guys, I’ve spent the last two weekends down by the coast, and honestly? My skin is completely clear. Not a single trace of psoriasis left. I’m feeling so good about this that I think I might even be ready to head into the mountains next. 😁


Man, how on earth did you pull that off? Seriously... I wish I could do that too! 😢
Hey, were you just catching some rays... or was there something else going on?

Thank God...👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
placidorca14 said:It takes about $2333 three weeks. Just don't regret it; it's definitely worth the money.

I totally agree! If it actually works...👍

Anyway, my fellow psoriasis warriors, how are you all handling this sudden heatwave???😕
I'm struggling a little bit. This is my first summer dealing with having to wear long sleeves... it's not too bad yet, though....for now....☕More than anything, I'm just worried about the rest of the summer... and those temperatures that are coming up next! Ugh...!!!🤷

Sending everyone my very best wishes, of course.👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
silentheron25 said:this Sean Foster81 guy reminds me of some unwanted philosopher who also uses a weird regional accent... I can't tell if it's the same guy or just some massive conspiracy at this point.

Look at that. He starts typing with one dialect, then gets so caught up in his own "philosophy" that he slips right back into his original way of speaking... it's almost funny.


I agree. And there’s definitely a bit of a cynical tone there too!!

And hey, Sean Foster81, why are you suddenly acting like such a genius? It's common knowledge that the beach and the sun make everyone feel better! Who are you trying to impress with all this wisdom?..............
Anyway, let's keep one thing in mind... EVERYONE reacts differently. Everyone is an individual. Our whole system, blah blah blah!! I feel like a parrot just repeating it, but clearly, some people think they're much smarter than the rest of the world because they live in their own little philosophical bubble!!!

Cheers everyone, hang in there..👍
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Sean Foster81 said:Has anyone actually tried using those doctor fish for their skin?

Kate Williams41, you just confirmed my suspicions. This is how I read the situation: it’s not that the treatment will cost me $1,200, it’s that it’ll actually cost me way more than that. I’m not about to lose sleep over this.

Well, count me out. I'm lucky enough to have some connections there where I can stay, so I'm set! You only asked about the price of the treatment, so stick to that... don't go looking for trouble where there isn't any.
And I gave a perfectly polite answer, unlike some people who just snap back rudely!!

Best,
Psoriasis [PLEASE READ FIRST POST!] in Health ·
fadedraven772 said:I heard you can find good badger fat over in Des Moines, and it's about $33 100g 👍 per serving.

I'm actually from that area! I've heard mentions of that fat before, but just in passing... honestly... I always figured it was just old wives' tales, so I never really gave it a second thought. To be fair, I've never actually heard of it helping anyone, nor have I ever read anything about it working. But hey, maybe I'll ask around next time I'm back in town!
Psoriasis [PLEASE READ FIRST POST!] in Health ·
silentheron25 said:Girl, I honestly don't know why you're dropping all that cash on basically nothing. Those little fish can't actually cure psoriasis; they just scrape off the scales. And you can do that yourself just by soaking in water. It's wild to me how much people turn this into a business just to get rich. If you're at the coast, just swim in the ocean. I went recently when the weather was nice, and a school of tiny fish surrounded my legs while I was scrubbing the scales off. The ocean is the best thing ever. It stings a little, but trust me, going to the beach is better than wasting money on this. I'm telling you this because I want to help—we all want to beat this thing. But don't rush into this blindly; it's not cheap, and the cure rate is basically zero. Believe me, I have over 15 years of experience with this. I'm not here to sell you anything. Sun and salt water are the answer. Maybe some natural creams like Psorex, which worked wonders for me personally. But hey, it's your call.

Look, the decision is mine!!!!!
That's exactly why I'm doing it! Besides, I'm already at the coast, so if I decide to hit a beach, I've got a full 21 days to do that... even though I doubt it'll work!!
Because if I hadn't worked up the courage to try this, I would never have gone to the ocean on my own and shown everyone what I'm dealing with. Sometimes I can't even stand looking at myself. Where am I supposed to go? People are staring! Honestly, I'm doing this for my mental health too, because I absolutely loathe this disgusting disease!!!
I know that even if it helps, it probably won't last longer than two years. And I know there's a chance it won't help at all!! But it hurts... so I'm going for it, period!!
To be honest, I'd rather pay for this than spend whatever crazy amount I've already wasted on stupid drugstore creams that were "clinically tested" and blah blah blah... they cost like $67... all those creams, capsules, gels, ointments... I paid through the nose for them, and for what? Nothing worked!!
I'm only 19, and I want to do this FOR MYSELF!!! Even if I'm a little scared it won't work, if it fails, I won't regret it! People can say whatever they want. So many different brands and products have been mentioned on this forum... who could even try everything? I've had enough... I can't even remember everything I've tried anymore!!! Everyone's body reacts differently to everything! You can't rely on anything, especially with an incurable disease. There isn't one single cure, period! Everyone just uses whatever they want or whatever someone recommends...
Besides, a disease is a disease. No matter what it is, you have to treat it from the inside. Topical stuff is just a temporary fix. It feels good while you're applying it, then you stop and everything goes back to how it was!!
And besides, those little fish aren't just nibbling scales like you said. During the treatment, as they "nibble," they release an enzyme called dithranol that prevents the rapid cell turnover (which is the whole problem with psoriasis), and that's how they control it!!

And from what I've noticed, the placebo effect works great for me, so I'm putting my faith in that too, even if it doesn't technically count!! When someone gives me something for my psoriasis, if I tell myself it's going to help, it actually does help—at least for a little while!!
So, I believe in that power of belief. Maybe it'll save me, who knows... hope is the last thing we have...
Thanks for the advice, really. I want everyone to be healthy just as much as I do!!
But at the end of the day, every one of us does what we do for ourselves... and what our elders advised us to do... don't skimp on your health!!!! Health is everything... and we all know that very well!

Hey everyone, hope you're all doing great!
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Sean Foster81 said:I've dealt with psoriasis since I was 13, and now I'm 23. Is it true that a 21-day therapy session in San Francisco costs 1200 euros?


That's just not right. I'm actually heading out this summer to see an unknown specialist, and that's in San Francisco!!!
The price is 840 euros, or in dollars $2000!!
That covers the entire treatment....not including lodging. The cheapest place Mary can find is probably around 11 euros a night, I think.....
And for the reservation, you send $333 ahead of time or 150 euros!! That's already included in the $200 total of 840 euros!!
If you want to go this summer, you better hurry up. I was honestly worried I wouldn't snag a spot....summer is coming fast, and the rush is huge right now!!
As for how well it works, I can't say for sure yet because I haven't gone! But honestly, even if it doesn't work, I won't regret it....I'm ready for any outcome, even if it's ineffective....
I just want to know that I tried!! And it has nothing to do with corticosteroids...

You can find everything at www.psorijaza.net. The director, Mary, is Mary Bacac. You can get all the details by emailing info@psorijaza.net. Just ask her anything; she is truly wonderful and writes back so clearly about whatever you need!!

Good luck!!! Best wishes
Psoriasis [PLEASE READ FIRST POST!] in Health ·
silentheron25 said:Look, you're still just stubbornly trying to push your nonsense on everyone else. Don't try to play philosopher because it's obvious what you're doing. You don't have psoriasis, so you have nothing to write about here every single day. Seriously, you don't. Go find some basketball forum or something. You really shouldn't be posting here. This space is for those of us actually dealing with psoriasis.

Just stop letting some guy get under your skin when he isn't even worth it!!
It's obvious this guy thinks he's God's gift to the world🙂, like he's swallowed all the wisdom in the universe!!😂
Hardly anyone actually backs him up, at least not the people who are active on this forum every day!!!!
Just read the post and move on.... don't pay any attention to the garbage he writes😵...the guy just wants to grab attention...and rattle people's nerves... especially since he doesn't have any real problems at home!Don't give him the satisfaction............☕

Best,🙂
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Michael Ramos3 said:Good afternoon from a sweltering Belgrade.

-If you feel like you need me, then I'm just as much in need of you. You guys are clearly just using me as a way to vent all that frustration and dissatisfaction. It's a totally normal, natural instinct—to get rid of that nervous energy. And honestly? It's perfectly fine if you two decide to take it out on me.

Love ya too!!😂😂😂

P.S. For the record, I'm actually a super cheerful girl!!!😁
So, your assessment is zero!
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Grace Hughes42 said:It’s honestly so strange. From everything I’ve read, there are so many similarities to what my son is dealing with right now.
For instance, his hands are reacting poorly to the cream he uses; the skin is pulling, and the patches look white in the center with a red ring around them. On his head, there aren't many changes, just constant scaling. We noticed a spot on his knee tonight, so we're going to leave it alone for a few days to see how it develops.
It’s exhausting because we still don't even know what we're fighting against.
Is there any link between high triglycerides and psoriasis?

High triglycerides—if I'm following correctly—means higher fat levels... but... don't take that as a given!! I don't think there's a direct link to the cause of psoriasis either...
Personally, my skin looks exactly like that when flares pass while using certain creams, but even that isn't a rule. Psoriasis looks different on everyone, and every body reacts differently... to absolutely anything!!!

One thing I'll say again: please don't try to be a backyard doctor or just blindly believe everything people tell you. Honestly, even I can't say anything for sure if nothing has been officially diagnosed!!! There are so many conditions with similar symptoms. You can't just pinpoint a specific illness based on that; an average person who isn't a specialist simply can't make that call!!!

GO TO A DOCTOR AND FIND OUT WHAT IS HAPPENING WITH YOUR SON!!!! DO THE RIGHT THING FOR YOUR CHILD!

Best,
Psoriasis [PLEASE READ FIRST POST!] in Health ·
Sandra Gomez56 said:In my family, nobody else has dealt with this. I have psoriasis and my daughter has vitiligo, but even the older relatives don't remember anyone ever having it. It’s a stroke of luck, I guess. Or maybe just our welcome to America. Sending good vibes to everyone on the forum—good luck with your treatments.

Even before my uncle, absolutely nobody had it!!!!!!!!!!!!
There has to be a "Patient Zero" in every family line!!!!!!!!!!!!!!! And almost every single article you read about psoriasis mentions genetic inheritance... even if that isn't always the case!!

Quoting:
"What causes psoriasis?
The exact cause of psoriasis remains unknown. However, genetics seem to play a massive role in how susceptible someone is to developing the condition. Beyond heredity, other factors like infections and stress can influence both the onset and the progression of the disease."