Angela Wright, thanks. It feels like we’re constantly talking past each other. All I want is to help people, yet I'm always getting hit with accusations about my "hidden motives" or whatever. Honestly, it doesn't surprise me; I've dealt with this kind of stuff before.
Here's an example—and yeah, I know it looks like I'm bragging (my bad!). Years ago, I started the "Books for America" initiative, donating free English books and magazines to various libraries across the US. We spent about $10,000 on it, and what did we get? A ton of backlash. People asking, "What's your angle?" or "What do you actually want from us?" The only place that truly welcomed the gesture was the Varaždin University of Computer Science (and seriously, thank you guys). For nearly five years now, we've been sending them materials with zero strings attached—feel free to check with them if you don't believe me. Huge thanks to them for even setting up a dedicated section for my donations here:
Again, the sheer amount of negativity coming out of America just baffles me. But hey, what can you do?
Anyway, I really dig that Leleeo slogan, the one Einstein used to say:
"A mind is like a parachute—it only works when it's open."
Thanks. Look, maybe I said some stupid stuff, but I would never be dumb enough to compare colloidal silver to this medication.
It’s entirely up to you if you want to try something new. Don't just take my word for it—go do your own homework. Check out the various links I’ve attached to my posts to see how effective this stuff actually is.
Angela Wright, listen: Dr. Bihari started using LDN and claimed it helps with glioblastoma. He was a highly respected doctor (passed away about five months ago), but hey, believe him or don't. It's your call. And no, nobody is paying me off. Why would they? The drug is dirt cheap. Also, I never called you a shill for Big Pharma; I just suggested you might be biased since you reject everything outright. But that's on you.
Leelo, I highly doubt any doctor here in the States knows anything about this. Missy, who lives in Norway, posted in the MS section that they set up a small organization there with a whole website dedicated to LDN. She showed all that info to her doctor and successfully convinced him to write her a prescription.
My advice? If you're interested, do your own research. You don't need to trust me; just decide for yourself after looking at the facts.
melloworca6 said:urbanorca, you should see how fast the mods and some other folks jumped on this. 🙂
Too many people come on here peddling nonsense. Most folks on this forum are actually sick, or they're looking out for someone who is. You know as well as I do that when people are desperate, they'll spend their last dime just to feel a little better.
And look, this drug is like any other—it has side effects. You have to be upfront about the downsides, not just the perks. 😉
Honestly, I'm glad you started this thread because I had no idea this was even an option. From what I can gather, the FDA has it approved here in the States, but strictly for addiction treatment. Jane mentioned earlier that getting a hold of it for anything else is going to be an uphill battle. 🤷 I'm going to check in with my immunologist to see if she’s heard of this and get her take on it.
Back at it again with the boring questions. What kind of side effects are we talking about here? Aside from some mild insomnia during the first week or two? Give me a link, please!
Missy really nailed those comments over in the MS section. Meanwhile, here I am, just an old fool spinning my wheels trying to dig through all this research. Honestly, I need a serious break. Thanks, everyone!
Sorry everyone, me being annoying again. Just saw this piece in today's The New York Times about how Big Pharma operates here in America. There's massive amounts of cash on the line, so maybe some of you actually care:
George, thanks a ton. This isn't my first rodeo, so I'm not losing sleep over it. You just have to stay persistent and keep fighting. That’s just how life works.
Keep pushing for answers regarding your condition, even if you only find partial relief. Good luck!
Scott Allen10, look, LDN isn't the Holy Grail, but it actually works. Please, just read the links provided (I honestly don't get why you're digging your heels in when you could actually learn something about LDN). You have every right to disagree, but don't just dismiss everything out of hand.
It feels like every single day some new author or group pops up pushing some new theory. Someone asked me yesterday about blood types and cancer links because a book was released here in the States—some American authors—but I looked into it and couldn't find much solid evidence to back it up. With LDN, though? It's nothing but positive reports.
I'm sticking to my guns regarding Big Pharma. It's based on my own experience and what I've seen from others. Think about statins or Avandia—which is banned now. Pfizer actually had to pay a $450 million fine right here in America because they were pushing drugs that did more harm than good. There are endless examples like that!
Please, seriously, just look up LDN online. Once you do, you'll see what I mean.
Bravo, gentlemen. As usual, what does some old fool living abroad know compared to us? I mean, clearly, we know way more than American TV networks, Ivy League universities, doctors, or actual patients, right? He’s just talking nonsense, but look—I wasn't just talking about MS; I said LDN helps a whole host of different conditions. To me, it’s a massive win that people have actually reached out to thank me. Even if I’ve only helped ten sick people in the States, that’s a huge deal.
On another note, I’ve had plenty of bad experiences with this country. My daughter Anna and I have been running the website www.visit-america.co.uk for twelve years now. In that time, we’ve brought about 100,000 tourists to the US and answered roughly 25,000 questions in English. We haven't seen a single cent from the government, yet we get all these replies from people here acting like they're so important, or claiming we're somehow messing with the local tourism industry. But whatever, I won't drone on about it.
As for Jane, I wish her the best, though some of her responses really caught me off guard.
One question for everyone: if my posts aren't actually useful, why am I wasting my time? I've put over 20 hours into research so far. So, please, give it to me straight.
Angela Wright said:Look, I could step up right here, put my full legal name on the line, and tell you that I beat my endometriosis using nothing but apple compote. But obviously, an anecdote isn't enough to be taken seriously or to justify treating millions of women that way. We need hard, concrete evidence, and that can only come through rigorous studies—and we need a massive volume of them before this kind of treatment becomes standard medical practice. The trials you’re bringing up, unfortunately, simply don't provide enough certainty to eliminate all doubt when determining if a drug should be used in clinical settings. It’s a shame if you can't view this as a cold, hard fact rather than just my personal skepticism. I think I've made my position crystal clear.
I’m not looking for a fight here—we both have way too much on our plates for that. But honestly? That comment wasn't worthy of you. Unless you’re secretly on some Big Pharma payroll, why are you so against CNN?
I’ve mentioned this multiple times already: several top-tier American universities (run by actual qualified doctors) have conducted studies proving that CNN is effective. The problem? There's zero funding for massive trials because the pharmaceutical companies won't touch it with a ten-foot pole. So, they run these smaller studies on maybe 100 people, which just isn't enough to get official FDA approval.
Even the Italians (Nature Neuroscience (FDA) and Department of Neurology, Mayo Clinic, 1600 Pennsylvania Avenue NW, New York City,) and the Germans have carried out research. All results were positive.
Last year, Dr. Tom Gilhooly even organized the first major conference on CNN in Chicago and wrote a glowing piece about it in a leading medical journal. Etc, etc.
That’s a hell of a lot more substantial than apple compote.
Angela Wright, look, these aren't just some random anonymous trolls claiming LDN works. There are plenty of people out there who have put their actual names on the line to back this up. Plus, like I mentioned before, we’ve got four major universities right here in the States that have run the studies and reached the same conclusion: LDN is legit and provides massive help for certain conditions, especially autoimmune stuff.
You can find all their research online if you actually bother to look.
Just wanted to give a heads-up to anyone looking into LDN. I swung by the pharmacy today to poke around and see what the deal was. So, the drug is available here in the States, which is a win, but there's a catch—it’s also used to treat addiction. Apparently, you can get it via a special double prescription or something along those lines... anyway, long story short, a specialist has to prescribe it. For what exact purpose? Honestly, I have no clue yet. I need to sit down with my doctor and hash it out. As soon as I dig up more info, I'll let you guys know. Bottom line: you can get your hands on it, but it’s going to be a massive headache to navigate... and yeah, for addiction, they dose it at 50mg, while for colitis or Crohn's, it's only 4mg. That's a huge gap.
Ethan Reed2, there are literally hundreds of testimonials floating around the internet from MS patients who swear this drug changed their lives. People call it a "miracle cure," and even some TV shows have featured it.
Angela Wright, I’ve gotta say, your negativity caught me off guard. Why all the skepticism? Look, a massive American corporation originally patented the drug, but since the patent expired, anyone can make it now. The biggest supplier out there is Intas Pharmaceuticals, which is huge in the generic drug game.
Quick reply yesterday, and I’m typing this on my iPad, so excuse any typos!
Your take on LDN honestly caught me off guard—you seem pretty negative about it. If you just look at the main website, there are like 5 or 6 studies proving how useful LDN is, and they're coming from top-tier USA universities. Plus, there are links to segments on major US networks like CBS and ABC that all say positive things about it (check the link in my first post).
Reading through this forum makes me feel sick. So many people here are suffering from all sorts of illnesses, yet it feels like almost nobody in America is actually interested in looking into real options. Everyone would rather run to some fringe healer like Torabi. I truly believe LDN could help them, especially since it's cheap and doesn't have side effects.
I actually help out an LDN organization over here in the United Kingdom. People here seem to take things more seriously; they don't just fall for every fake healer.
The organization even sent me an address where you can get the medication without a prescription:
It's based in Cyprus. For LDN, it's only $16.80 for a four-month supply (shipping probably costs a bit extra). People from the United Kingdom and all over the world order from here.
I’m living in the United Kingdom, I'm 70, fully retired, and honestly, I just want to be useful to people as much as possible.
On top of everything else (and there's plenty, like how we promote US tourism through www.visit-usa.com), I also run a health blog www.healthinfo.blogspot.com.
While digging around the web for my blog about two weeks ago, I stumbled upon this absolute game-changer called LDN (low dose naltrexone). It’s helping folks dealing with multiple sclerosis, Crohn, colitis, lupus—basically all sorts of autoimmune issues, and even some cancer cases.
I’ve dropped a few posts on this forum already (specifically in the Chron and colitis sections), but I was shocked to see how little interest there is here in the States. Meanwhile, reading what patients in the US and elsewhere are saying, the results sound incredible, there are virtually no side effects, and since the patent expired, it's dirt cheap.
Just to be clear, I have zero connection to this drug—I don't sell it, and I don't need it myself. So now I'm wondering if I should even bother spending more time researching this if nobody in America cares. I've already sunk over 20 hours into it. It feels like a waste, IMO. Maybe I should move on to something else.
I really think more people ought to just Google "LDN" and see the benefits for themselves. Most of the good info, websites, and forums are in English anyway.
Ivanica, sorry, I wasn't actually at any of the spots you mentioned this time around, but I've spotted some recreational runners before over by Jarun, Bundek, or the riverbank. Just mostly older folks!
I just got back from a ten-day trip to Washington, D.C., and honestly? It blew my mind how little I saw anyone actually moving. Not even a brisk walk in the parks. I’m talking specifically about the older crowd—the folks who would benefit the most from staying active. Instead, it’s just a sea of people sitting in cafes, sipping coffee, grabbing bites, and basically staying glued to their seats.
Why hasn't someone launched a massive public health campaign to get people moving more?