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Posts by Carol Barrett2

365 posts shown.

Schizophrenia - General Discussion in Psychology & Therapy ·
I finally got the decision, though the actual checks haven't hit my account yet. It’s a Category II disability rating, 136 miles, which comes out to about $110. Category I is a bit more, sitting just over 249 miles, maybe around $220. We'll just have to wait a year and see how things shake out. My dad passed away recently—he had a stroke. Just collapsed right in front of me while I was sleeping. Between all that and everything else, I ended up being hospitalized twice last year.

It forced me back onto my old medication regimen—Metoten, Moditen, and that Unknown stuff—the same routine I used for over three years and felt actually okay on.

Life's a grind, honestly. It just keeps churning you up if you let it.
Schizophrenia - General Discussion in Psychology & Therapy ·
mellowskipper said:I don't buy for a second that you're reacting to Seroquel. It’s more likely some kind of allergy—food, maybe? Or feathers, pet dander, laundry detergent, fabric softener... even just a specific soap you've started using. I guess you could try keeping a little log of what you encounter to see if you can eliminate things one by one...

Sent from my PRA-LX1 using Reddit

It's fine now. It just itches a bit in the morning. I can deal with it. Besides, who's going to know what caused it? It'll be pretty much impossible to pin down.
Schizophrenia - General Discussion in Psychology & Therapy ·
mellowskipper said:Are you currently on any kind of medication?

Sent from my PRA-LX1 via Reddit

I’ve been on various meds consistently for nine years now—just part of the routine at this point. I've cycled through different stuff over the years, too. Right now, I’m taking Unknown here in the US along with Unknown. They used to have me on Seroquel and some kind of Pin as well, but they cut both of those out because the Seroquel was making my legs swell up like crazy, and the Pin was probably causing some skin irritation or itching.

Even now, I still wake up with this itchy feeling all over... honestly, I don't think it's coming from the Unknown.
Schizophrenia - General Discussion in Psychology & Therapy ·
mellowskipper said:So, what specific code are they actually putting on your lab results and discharge papers? Is it F20. XX?

Sent from my PRA-LX1 using Reddit

It started out listed as acute and transient psychosis—then later, under that same heading, they added "with schizophrenic features." After I sat down for a session with the hospital psychologist while I was still on heavy meds, she officially slapped me with a diagnosis of paranoid schizophrenia.

Even though I don't have—and I'm repeating this, I really don't—any paranoia or hallucinations.

I’ve just had ideas for a long time. Back when I was a kid during the war, I used to come up with these little games involving blocks. Stuff like soccer or some kind of strategic military game. Unfortunately, I didn't save any of that, so those specific games are gone, but since 2008, I've been scribbling ideas in notebooks—and since 2016, I've been using my laptop, even though I actually got it as a gift back in 2014.

I mentioned all this to the doctor at the evaluation board and brought my notebooks so he could see some of the more recent stuff. I brought up that old idea about a vacuum bomb, plus a new one about a teleportation bridge and pathway, and showed him an idea for a game. Well, he wrote in his official report that I have "delusional ideas," specifically citing the vacuum bomb and the teleportation stuff.

Just for the record, those aren't crazy to me. I actually have a whole folder now—labeled "My Ideas and Craziness"—where I keep everything I think is actually logical and sound.
Schizophrenia - General Discussion in Psychology & Therapy ·
steelskipper9 said:Paranoid schizophrenia is actually the most common type—and generally much more manageable than other clinical forms—yet people still get it wrong. It isn’t hereditary, and for heaven's sake, it certainly isn't the same thing as autism. I’d highly recommend doing a bit more reading—ideally diving into literature from a wide variety of sources.

The thing is, I don't even think what I have is paranoid schizophrenia—maybe it's just some unspecified version. I mean, I don't deal with paranoia, like thinking someone is out to get me or anything like that.

I was watching that series > recently, and I really felt a connection to one of the characters. I act a lot like him, except for the fact that I can't even leave my own neighborhood without someone coming along—mostly because I just don't know how to navigate things on my own.

There are even basic, everyday tasks that I struggle to handle completely solo without some kind of help.

Look, I know I'm struggling mentally—and physically, I'm not exactly at 100% either—so I'm not sitting here denying that I'm mentally ill. I get it, I accept it. I just don't think it's paranoid schizophrenia.
Schizophrenia - General Discussion in Psychology & Therapy ·
cosmiclynx79 said:Can you walk me through what those outbursts actually look like?

Sent from my Redmi Note 9s via Tapatalk

It’s tough to recount, but I’ll give it a shot. Back in 2012, I had an episode in the internal medicine ward while I was there for some intense tests. I’d had way too much Starbucks—overdid it, I guess—and was feeling a bit jittery, just slightly restless. I ended up getting into this whole debate with the staff in my room about "floaters"—basically seeing my own blood cells, which I know now were actually white blood cells. One of the staff members told me the administration would just label me crazy if I kept it up. They didn't really have a choice but to move me to psych because I just wouldn't settle down.

Then in 2013, things got a little intense with my religious beliefs. I sort of snapped, bolted out of my apartment, then ended up out in the street where I actually got hit by a car. It wasn't a suicide attempt, though.

2016? Honestly, I can't quite place what happened. Maybe an argument with my family. I couldn't convince them that tethering my phone to a USB stick for data was cheaper than just using mobile hotspots—and that I'd get better coverage that way. Typical stuff.

In 2018, another spat with my folks. Can't remember the specifics.

During 2020 and 2021, I was hospitalized twice due to heart issues related to the Coronavirus. The first time, I was terrified my cousin wouldn't be able to speak for herself or us, and that we’d end up starving. The second time, I just lost my grip on reality and was talking total nonsense. I didn't even recognize a girl from my old school when she was the one treating me in the ER.

That adds up to 7 hospitalizations in 9 years. And honestly, looking at the state of things, we might actually go hungry. My mom and I don't have any steady income, and she hasn't been able to work for almost three months now. We're stuck waiting three months for my benefits to kick in, meanwhile, our utility bills are a complete disaster—even though they used to garnish more than half of my late father's Social Security check to cover them.

Some of those stays were voluntary, others... not so much.

Regarding the topic, it seems like schizophrenia and autism are pretty closely linked. Some institute in Tel Aviv supposedly uncovered it. Just search Google for "Schizophrenia is Autism."

At this rate, we'll probably find out we're all on the spectrum too.

Edit: I'm missing one year and one hospitalization from the tally.
Schizophrenia - General Discussion in Psychology & Therapy ·
Olivia Bishop8 said:So, what happens if someone with F20 just decides to stop taking their meds on their own? Like, they've been off them for 9 months now... 😬

Look, you can technically exist without medication, but there’s always that looming question of when things are going to go south. Even when I’m strictly following my regimen—which I have been, religiously, for nine years now—I’ve still had episodes that landed me in the psych ward.

Someone on an American Forum actually explained our situation to my mom once regarding what we could do about it. It’ll probably be some small amount of assistance. Honestly, I don't even know if we'll bother applying. We’ve basically been treated as a social services case for years, living with zero real income. My mom just did her best to scrape by and keep us afloat.
Schizophrenia - General Discussion in Psychology & Therapy ·
So, after nearly a decade of dealing with my mental health issues, I finally got the paperwork back stating I’m basically 90% disabled. Honestly, though—between me being old and just not knowing what the hell comes next—it’s all a bit much. My old lady and I are heading down to the Department of Social Services this Monday to see what the deal is with the final decision.

The paperwork says I qualify for Group II disability, but apparently, I don't qualify for some specific type of permanent assistance or whatever. I have no clue what any of this actually means or how it changes things moving forward.
Schizophrenia - General Discussion in Psychology & Therapy ·
frozengardener7 said:Lithium will stabilize me. 🍿

As for me? I just fixed my sleep schedule. Basically flipped the script on my rhythm—though, honestly, maybe I actually have narcolepsy or something. Anyway, things are better now... mostly. I'm doing okay.
Schizophrenia - General Discussion in Psychology & Therapy ·
frozengardener7 said:🙂

🙂

I just want everyone here to get back on their feet, find some stability, and honestly, just heal up—be okay again. I’m planning to pull the trigger on the legal proceedings regarding my rights to receive benefits, but we've hit a bit of a snag with the paperwork from the DMV—it's just stalled us for a second. But hey, we’ll get that moving soon enough. My sister is going to help me navigate the whole mess.

Hopefully, we can make it happen.
Schizophrenia - General Discussion in Psychology & Therapy ·
@Rebecca Rivera3, most things are actually doable if you can just figure out the "how" and the "what" of it all. Honestly, I’m a total early bird now—and not the fun kind. I’m waking up at the crack of dawn, sometimes even earlier. You probably remember me mentioning how much I struggled with my sleep schedule before—it was a mess, trying to flip day and night.

The meds I'm on lately have been solid, though I'm no doctor or anything. I started off really slow with a tiny dose just to get used to them, then gradually doubled it up. It helped my body actually adjust without feeling like a wreck.

Hang in there, @Rebecca Rivera3. Best of luck.
Schizophrenia - General Discussion in Psychology & Therapy ·
I’m doing alright now.🙂
Schizophrenia - General Discussion in Psychology & Therapy ·
Nicholas Barnes74 said:Those spots you're seeing—those tiny little circles and dots drifting through your field of vision, and even the flashes—I deal with that too. It started when I was 15 with just one little speck, but now there are tons of them. And yeah, it's definitely not just "in your head."

Well, I'm heading in front of an evaluation board soon after nearly a decade of waiting, so we'll finally get to lay it all out there. Everything from the floaters to the fact that I can actually see my own white blood cells. It’s a real shame, though—back when they were in the hospital years ago, they lost all my old test results. They didn't return the reports about that spot on my stomach or the liver damage I had (which, thankfully, cleared up).

Hopefully, luck is on my side this time, because the bureaucracy in this country is just... well, it's a mess. I'm just hoping to get something settled since I'm not doing great, physically or mentally. The other day I was trying to lug an old TV around—nearly killed me, honestly. My wife is actually stronger than I am, and she's 65, while I'm only 35. Makes you think, doesn't it?
Schizophrenia - General Discussion in Psychology & Therapy ·
Between dealing with Corona and some other health issues popping up, I ended up pulling a 15-day stint in the psych ward. Honestly, I was spiraling—convinced I was dying or that something terrible had happened to my family. I lost my grip for a second there; started giving away my stuff to people, acting all "happy" and handing gifts to my neighbors and relatives. I was terrified for my niece, too, though she doesn't know anything about it.

It actually hit me a little harder maybe a month ago. I haven't been hanging out on this forum as much lately—mostly just trying to cut back on my screen time in general.
Schizophrenia - General Discussion in Psychology & Therapy ·
I actually had no idea about the Metropolitan situation. I was on it for six years—maybe even longer, honestly—so it’s really no wonder I felt like garbage. As for Rexulti, that stuff is an absolute disaster in my book. They used to have me taking it at night paired with Xanax, and I was basically a zombie. Actually, the Xanax is what keeps me in a fog because I sleep way too much and feel drowsy all day long. I'm thinking about cutting my dose in half to 2.5 mg. Right now, I just take it whenever, or sometimes I don't... but man, trying to split those pills is such a pain, just like trying to deal with Zoloft.
Schizophrenia - General Discussion in Psychology & Therapy ·
Olivia Bishop8 said:Hey everyone.
Haven't been around here in a while (thank God), since things have finally started looking up for us. My son was diagnosed five years ago (f20). Reading through your posts lately, I see just how much progress people have actually made. Right now, he’s on an injection every three months and takes a pill every morning. He seems totally fine. Or, at least, he looks that way. He doesn't really complain about being sick either; worked all summer and now he's talking about college. Sleeps normally, functions fine. One thing though—he gets pretty anxious. That wasn't really an issue before. What's messing with my head is whether this could get worse. I'm beyond happy with where he is right now, but... I don't know, I'm a mom, and I can't help worrying about the future. Did any of you deal with phases where everything seemed okay, only for things to take a turn for the worse? His doctor says as long as he stays on the meds, he won't relapse. He mentioned he'll be taking them for a long, long time, which I'm guessing means basically forever. Thanks if anyone takes the time to reply.

My situation has leveled out, but honestly, that's just because I'm on this specific therapy. Sometimes you get lucky and find a regimen that works, but finding the right fit is such a massive struggle since patients don't always listen to their doctors. Once I actually listened to my psychiatrist and was upfront about being bipolar, things finally stabilized.

I still live in my own little bubble, though, and I sleep a ton. Lately, I've even flipped my schedule—sleeping through the day and staying up half the night.

But there is progress. Progress, in this case, means stability. I really hope your son turns out okay too.
Schizophrenia - General Discussion in Psychology & Therapy ·
Olivia Smith2 said:I struggle with constant restlessness and can't seem to sit still—my foot is always tapping against the floor. It’s not exactly a mental crisis, but man, it is incredibly annoying. I take aripiprazole, so akathisia is a known side effect, but Normabel isn't doing much for me... I was prescribed a beta-blocker to slow my heart rate down, which helps slightly, but the leg twitching persists. I think I need something more effective—or maybe just a few cold beers? 😵

Honestly, the fidgeting doesn't really bother me when I'm waiting for something—since I don't get out much and spend most of my time sitting anyway—it’s just awkward for everyone else watching. But once I’ve had a cigarette? Then the restlessness turns into this weird swaying or hand tremors... almost like I'm having some kind of episode.

I heard people with Aspija deal with this too. They get the jitters and all that. I just never knew there was an actual name for it; I honestly thought it was just one of those "features" that comes along with the diagnosis.

I didn't know it had its own label. If I remember correctly, I think *Diego* went through something similar.
Schizophrenia - General Discussion in Psychology & Therapy ·
Man, I had absolutely no clue this was even a thing. I get these bouts where I’m just restless—like, my whole body is swaying or shaking or whatever. Even when I'm just standing around waiting for something, I can't seem to stay still. I really didn't realize there was an actual name for this feeling.
Schizophrenia - General Discussion in Psychology & Therapy ·
Best of luck,
Nicole Barrett76.
Schizophrenia - General Discussion in Psychology & Therapy ·
Rebecca Rivera3 said:I am the first one to argue that mental disorders and illnesses definitely need treatment. But don't go rushing in unless you are absolutely certain. Sometimes, the mind perceives an illness where none exists, and then you end up convinced you have it, and because the psyche identifies with it, you actually fall ill.

It is vital to proceed with caution, even when dealing with highly trained professionals.

Carol Barrett2, I really hope you manage to secure that disability benefits package. Honestly, regardless of whether I think you actually have it, if you have a diagnosis of paranoid schizophrenia, they are obligated to provide disability based on that. You should look into your rights further so you don't have to wander around psychiatric facilities if it isn't necessary.

If the liver is damaged, it starts to enlarge—I'm not entirely sure why, but that's how it manifests on an X-ray.

Well... whether I take pills or not, it doesn't bother me. It regenerates itself from time to time. I once had jaundice... if you get that, things aren't looking good, haha.

Look, your prescription is measured by a machine. You sit down, look at an image through a lens, and the device prints out a slip with your prescription. There is no cheating there... even if people don't believe you or whatever. The eye chart test is just a leftover part of the exam to check visual acuity and fine-tune the prescription.

You are describing things so vividly that I can almost see the white blood cells. My advice to you is: don't tell anyone like that, or they might think... well, that you are schizoid. And look... it is very possible to see flying flashes, like little specks. Google it; it's a real thing. I used to see bright spots too; that's just light phenomena. It is almost always harmless and passes on its own.
But I don't know your specific case or anything regarding your eyes; an ophthalmologist needs to perform a full, detailed examination. Maybe you'll need some drops or something...

Oh, and for the record, I can hear someone from 30 or 40 feet away... my hearing is excellent.

Look, I’ll be the first one to step up and say that mental health issues and illnesses absolutely need treatment—period. But, you know, don't go rushing into anything unless you're 100% sure what you're dealing with. It’s a weird thing, how the mind works sometimes... people can see an illness where there isn't even one, and then—boom—it's like a self-fulfilling prophecy. You start believing you're sick, and then your psyche just goes, "Oh, okay, this is happening now," and suddenly, you actually are. It's a trip.

You really have to watch your step even when you’re dealing with the "experts"—those people who act like they have everything figured out just because they have a fancy degree or a title. It's easy to get swept up in their confidence, but honestly? You still need to be careful. Just because someone sounds authoritative doesn't mean they aren't full of it.

The first time I went in, I kept my mouth shut—didn't really open up to them—so they just slapped me with a psychosis diagnosis and called it a day. But once I actually started being honest about what was going on, after getting hammered on Alazur, Lupinex, and Xanax... well, then suddenly it’s "paranoid schizophrenia." Typical.

Carol Barrett2, I really hope you manage to pull that disability claim through. Honestly, even if you don't have it yet—and let’s be real, with a diagnosis of paranoid schizophrenia, they basically owe you that benefit regardless—it’s worth the fight. You should definitely dig a little deeper into your rights; there's no point in being stuck bouncing around mental health facilities if you can avoid it.

It’s honestly pretty much impossible to get anything done around here—it feels like the system is rigged against you and the government isn't exactly lifting a finger to help. Look, I’m not even looking to collect disability for myself; I just want to be able to actually support my mom with hers and maybe invest a little bit in my own future for once. I’ve been weighing my options—do I try selling stuff at a local farmers market, or should I put that money toward some actual education? Maybe get certified in computer work or pick up a new language so I can actually land a decent job. But man, it’s going to be an uphill battle. Like I mentioned before, I’ve been sleeping way too much lately—half the day is just gone—and I’ve mostly just been stuck in my own head. Still, if I could just get things moving, I could at least help my mom out a little.

So, when the liver gets damaged, it starts to swell up—I'm not entirely sure about the exact biological "why" behind it, but that’s how it shows up on an MRI.

I honestly have no clue how they even figure this stuff out. All I know is that back when I was lying next to her, I had this weird mark on my stomach—it actually cleared up right after I got the IV fluids. Who knows? Everything seemed totally fine at the time.

Whatever... honestly, whether I'm taking my pills or not, I couldn't care less. It just resets itself every once in a while anyway—plus, I’ve dealt with jaundice before. If you actually start turning yellow, then you know you're in real trouble, haha.

I honestly had no idea they were all that bad—like, I thought they were just... pills? I didn't realize the whole lot was such a massive letdown.

Look, there’s no cheating the system when it comes to eye exams. You sit down, stare at some picture through a little lens, and then—boom—the machine spits out a printout with your exact prescription right there on paper. It’s all automated, so if someone tries to tell you the numbers are wrong or whatever... well, they can't really argue with the data. As for that part where they have you read letters off a chart? That’s just the final touch—it’s basically just checking your visual acuity to fine-tune everything and make sure the prescription is actually perfect.

I’ve actually been through that myself. Had it checked out—my distance vision is worse in one eye than the other.

You're describing things so vividly that people might think you're seeing white blood cells. Honestly, my advice? Don't describe it like that to just anyone, or they'll start thinking... well, that you're schizo. And look... it's totally possible to see light flashes, kind of like little crumbs floating around... Google it, it's a thing. I used to see these bright spots too, which is just phosphenes. It's almost always harmless and usually just goes away on its own.

The reason I describe it that way is because I don't know any other way to put it. I figured out what all this stuff is a long time ago, and there are specific tests to diagnose it. I'm not sure if anyone else here even does those. These spots that bother me are floaters—they look like tiny amoebas drifting through my field of vision. As for the other thing, the blood cell thing, that's the entoptic bluefield vision phenomenon. I get flashes occasionally too; I've read up on it and searched for it, maybe it's optic neuritis or something like that. Luckily, it isn't getting much worse. This whole situation has just been creeping up on me for decades now.

But hey, I don't know anything about your specific case or eye issues—you really ought to have an ophthalmologist give you a full, detailed exam. Maybe they'd prescribe some drops or something...

They only checked my prescription, nothing else, because I didn't even bring it up. And I've got other issues too. It looks like I have low blood pressure. That's probably why I sleep so much. Basically, I'm not feeling physically great at all.

And honestly, it's possible I've had schizophrenia since I was a kid—back when I had a massive seizure and they basically had to bring me back to life. They kept me in the hospital for half a month under a diagnosis of convulsions. So, I don't think schizophrenia is something you "catch" later, since I was already living in my own little world back then—though around here we just call it being "fragile," or just sickly.

But this last decade, I've just hit rock bottom. On top of everything, my finances are a total mess. I have to fight and claw my way out of this hole because if I just give in, things will only get worse. I'm trying, but sometimes the motivation just isn't there, unfortunately.